Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Manon, That is so great. I am happy to hear you can finally get casted. Remember to bring a few washable toys, a bottle(if taking one), a pacifier or lollipop, anything special(ie:soap) that you use for a bath. They have everything there, but some babies need certain brands or types of soap. They can have a bottle or pacifier while the front is being done(helps alot) and then you use the toys to entertain when the back is being done. Let us know how it goes. I'm so excited for you. CAROLG > I just got the call that we were approved for the > DOCband and that our insurance will cover 50% of it. > I was so happy to hear the news and that we will > finally be able to proceed with treatment. So we have > the appointment to have him casted on July 18th and > then band day will be Aug. 1. It'll be the week he > turns 9 months so we're a little late in getting him > treatment but I have my butthead of a ped to thank for > that... > Anyway, just wanted to share my good news and to thank > everyone for being there for us and helping me get > things rolling. You all are the greatest! :-) > I'll keep you posted. > > Manon > Mom to T. > brachy/mild plagio/to be banded Aug. 1 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Manon, That is so great. I am happy to hear you can finally get casted. Remember to bring a few washable toys, a bottle(if taking one), a pacifier or lollipop, anything special(ie:soap) that you use for a bath. They have everything there, but some babies need certain brands or types of soap. They can have a bottle or pacifier while the front is being done(helps alot) and then you use the toys to entertain when the back is being done. Let us know how it goes. I'm so excited for you. CAROLG > I just got the call that we were approved for the > DOCband and that our insurance will cover 50% of it. > I was so happy to hear the news and that we will > finally be able to proceed with treatment. So we have > the appointment to have him casted on July 18th and > then band day will be Aug. 1. It'll be the week he > turns 9 months so we're a little late in getting him > treatment but I have my butthead of a ped to thank for > that... > Anyway, just wanted to share my good news and to thank > everyone for being there for us and helping me get > things rolling. You all are the greatest! :-) > I'll keep you posted. > > Manon > Mom to T. > brachy/mild plagio/to be banded Aug. 1 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 WOOOOOHOOOOO Manon!! I'm so happy to hear this, I love reading good insurance posts. Let us know how the casting goes. > I just got the call that we were approved for the > DOCband and that our insurance will cover 50% of it. > I was so happy to hear the news and that we will > finally be able to proceed with treatment. So we have > the appointment to have him casted on July 18th and > then band day will be Aug. 1. It'll be the week he > turns 9 months so we're a little late in getting him > treatment but I have my butthead of a ped to thank for > that... > Anyway, just wanted to share my good news and to thank > everyone for being there for us and helping me get > things rolling. You all are the greatest! :-) > I'll keep you posted. > > Manon > Mom to T. > brachy/mild plagio/to be banded Aug. 1 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 WOOOOOHOOOOO Manon!! I'm so happy to hear this, I love reading good insurance posts. Let us know how the casting goes. > I just got the call that we were approved for the > DOCband and that our insurance will cover 50% of it. > I was so happy to hear the news and that we will > finally be able to proceed with treatment. So we have > the appointment to have him casted on July 18th and > then band day will be Aug. 1. It'll be the week he > turns 9 months so we're a little late in getting him > treatment but I have my butthead of a ped to thank for > that... > Anyway, just wanted to share my good news and to thank > everyone for being there for us and helping me get > things rolling. You all are the greatest! :-) > I'll keep you posted. > > Manon > Mom to T. > brachy/mild plagio/to be banded Aug. 1 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Manon, Yeah!!! 9 months is still a good age. He may grow a llittle slower but he still has lots of growth ahead of him Don't forget the lollipop and camera for casting. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.comManon <jeffandmanon@...> wrote: I just got the call that we were approved for theDOCband and that our insurance will cover 50% of it. I was so happy to hear the news and that we willfinally be able to proceed with treatment. So we havethe appointment to have him casted on July 18th andthen band day will be Aug. 1. It'll be the week heturns 9 months so we're a little late in getting himtreatment but I have my butthead of a ped to thank forthat...Anyway, just wanted to share my good news and to thankeveryone for being there for us and helping me getthings rolling. You all are the greatest! :-)I'll keep you posted.ManonMom to T.brachy/mild plagio/to be banded Aug. 1 ____________________________________________________Sell on Auctions – no fees. Bid on great items. http://auctions./For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Manon, Yeah!!! 9 months is still a good age. He may grow a llittle slower but he still has lots of growth ahead of him Don't forget the lollipop and camera for casting. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.comManon <jeffandmanon@...> wrote: I just got the call that we were approved for theDOCband and that our insurance will cover 50% of it. I was so happy to hear the news and that we willfinally be able to proceed with treatment. So we havethe appointment to have him casted on July 18th andthen band day will be Aug. 1. It'll be the week heturns 9 months so we're a little late in getting himtreatment but I have my butthead of a ped to thank forthat...Anyway, just wanted to share my good news and to thankeveryone for being there for us and helping me getthings rolling. You all are the greatest! :-)I'll keep you posted.ManonMom to T.brachy/mild plagio/to be banded Aug. 1 ____________________________________________________Sell on Auctions – no fees. Bid on great items. http://auctions./For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Manon, If you do Fridays you don't want to do it too late in the afternoon. Traffic coming around the beltway starting around 2pm during the summer can be bad. (I once missed a 6 pm flight out of BWI and left around 2pm). But you will be in August pretty soon and traffic lets up somewhat then. Also I don't know where exactly in Baltimore you are, but there are some " backways " to get down here -- 97, 295, 270. Depends on where exactly you are coming from. Sometimes Balt/Wash Parkway isn't too bad. It is that stretch from 95/495 interchange to the 270 split that can be a bear. Coming through the city might be an option sometimes too. Let's face it Northern VA is a parking lot! That is an idea Carol. And here I am almost done. I guess I could play hookie one day and pretend we have an appointment ... --- " Carol G. " <GATTVA@...> wrote: > Manon, > We drive about two hours one way to ndale also, > can't stand the > traffic. We have it coming from the other side, > Manassas and 66 into > DC traffic. I have noticed that Fridays the traffic > is much lighter > coming from my way maybe it will be for you too. A > good time for an > appointment is around 11:30 -12:00, you miss alot > of rush hour and > leave before it starts again.That will help when you > start your > regular visits. We will miss you by a day, we go > for his band on the > 19th. We have to get everyone on the board that uses > ndale to get > an appt. the same day,lol. Good Luck, > CAROLG > > > > > > > > > > > I just got the call that we were approved for > the > > > > DOCband and that our insurance will cover 50% > of > > > it. > > > > I was so happy to hear the news and that we > will > > > > finally be able to proceed with treatment. So > we > > > have > > > > the appointment to have him casted on July > 18th > > > and > > > > then band day will be Aug. 1. It'll be the > week > > > he > > > > turns 9 months so we're a little late in > getting > > > him > > > > treatment but I have my butthead of a ped to > thank > > > for > > > > that... > > > > Anyway, just wanted to share my good news and > to > > > thank > > > > everyone for being there for us and helping me > get > > > > things rolling. You all are the greatest! :-) > > > > I'll keep you posted. > > > > > > > > Manon > > > > Mom to T. > > > > brachy/mild plagio/to be banded Aug. 1 > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > > Sell on Auctions – no fees. Bid on > great > > > items. > > > > http://auctions./ > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > Sell on Auctions – no fees. Bid on great > items. > > http://auctions./ > > > ____________________________________________________ Sell on Auctions – no fees. Bid on great items. http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Congratulations and best wishes! Sue mom to Colin 21 mos. STARband grad (also banded at 9 mos.) --- In Plagiocephaly , Manon <jeffandmanon@y...> wrote: > I just got the call that we were approved for the > DOCband and that our insurance will cover 50% of it. > I was so happy to hear the news and that we will > finally be able to proceed with treatment. So we have > the appointment to have him casted on July 18th and > then band day will be Aug. 1. It'll be the week he > turns 9 months so we're a little late in getting him > treatment but I have my butthead of a ped to thank for > that... > Anyway, just wanted to share my good news and to thank > everyone for being there for us and helping me get > things rolling. You all are the greatest! :-) > I'll keep you posted. > > Manon > Mom to T. > brachy/mild plagio/to be banded Aug. 1 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Do you mind me asking if your lung cancer is small-cell or large cell? My dad has been battling small-cell lung cancer for over two years. What alternative treatments are you doing? I assume you have not done any chemo or radiation. My dad has done both but he is starting to open up to some alternative treatments. I'm glad you got good news! I hope you continue to do well. From: rmireles34 Sent: 7/8/2005 1:14:00 PM Subject: [ ] Good news I am doing alternative things for my stage 4 lung cancer. Got x-rays yesterday and cancer has not grown. I would have liked to hear that it got smaller, but that it is the same is good news. Thank God. I see my doctor today. Additional comments on the report say " slight interim decrease in the conspicuity of a previous documented left mid lung mass " I am not sure what this means. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 : It is the non-small cell type. My MD said Friday that internim decrease as noted on x-ray means that it is dissolving. I have a 1/2 in diameter in the other lung but does not show up on x- ray because it is too small. Dr. says that is good. I have never tried chemo or radiation as did not want to weaken my body. Everything I take is to strengthen my body to heal itself. I just finished a month of drip Vit C injections (3x a week) Dr. thinks that this had a lot to do with the healing. I have a massage/reflexology once a week. I did 2 colonics. I am eating a meatless, high in raw food diet. This is VERY good. I cannot do the preferred 75% raw food as was losing weight. I need some pasta and bread. Sugar feeds cancer and is absolutely forbidden. Some people feel that a raw food diet is more important than anything else. Any of these things would also be of benefit if undergoing alternative treatment. I take quite a lot of antioxitants. IP6, detox factors, green tea extract, grapeseed, CoQ-10,Vit D, Curcumin, NAC,Inflo-Zyme Forte, & meletonin before bed. The CoQ10 is pretty expensive at $85 for 60 - 200mg tabs and take 200mg 2x day. The mega Vit C drip shots were $100 each. Still cheaper than drugs. A good ND would prescribe what he thought beneficial, I am sure based on the individual patient. I am very happy with my ND. I hope that this helps. It takes a little longer with natural treatment, but there are no nasty side effects. Everyone has to decide what they think is the best for them. I walk very close to God and pray a lot too. > Do you mind me asking if your lung cancer is small-cell or large cell? My dad has been battling small-cell lung cancer for over two years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 At Costco they sell 75 CoQ10 pills at 150 mg for $25, much less than what you are paying. C rmireles34 wrote: The CoQ10 is pretty expensive at $85 for 60 -200mg tabs and take 200mg 2x day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 I also have good news........... my 4.5 yr old dd said NO and has said it for atleast 2 weeks now! This is HUGEEEE for her. *~*~*~*~*~*~*~* Lena *~*~*~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 That is EXCELLENT NEWS!!! Congratulations to your family! The first few weeks can be rather squirrely during the initial 'house cleaning' in the gut. Glad you found out a workable solution! And with the stress level down, that should help everyone's quality of life. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Wonderful news...congratulations to you and your family!!!! It's good to hear some cheerful news about lyme recovery. Do you mnd giving a quick summary of your symptoms and treatment. How far had you been knocked down by the lyme. Did you have co- infections also? Take Care > > All, > > I just wanted to share some good news on my family's recovery from > Lyme. My wife has come off of abx since her test have come back > negative and she hasn't had any major symptoms in a while. She has > been off of the abx for a week and feels great. She joined Weight > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > close eye on her. She has a checkup scheduled to do another blood > test in November. > > My son's battle is going well. He is still on abx (amoxicillan) but > his energy level is high and he has never shown any major symptoms. > His doctor said he will be on the abx for a year to be sure that the > Lyme is erraticated from his system. > > I have been doing very well. Energy level high and no major > symptoms. My tests still show Lyme but the Lyme levels have come > down dramatically. I'm still on Ceftin after breakfast and after > dinner. Other then that our lives are back to normal. THANK GOD! > > We are all cautiously optimistic that the suffering from this > terrible disease is behind us. We continue to be dilgent about our > treatments and are now focusing on our general health (mind, body > and spirit). > > It's been over a year since we started down the dark path of Lyme > Disease, but we can now see the light at the end of the tunnel. > > Be well, > > and family > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Wow, that's really great!! Thanks for sharing your story. It gives me hope that maybe I will get better some day too. Kathy > > All, > > I just wanted to share some good news on my family's recovery from > Lyme. My wife has come off of abx since her test have come back > negative and she hasn't had any major symptoms in a while. She has > been off of the abx for a week and feels great. She joined Weight > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > close eye on her. She has a checkup scheduled to do another blood > test in November. > > My son's battle is going well. He is still on abx (amoxicillan) but > his energy level is high and he has never shown any major symptoms. > His doctor said he will be on the abx for a year to be sure that the > Lyme is erraticated from his system. > > I have been doing very well. Energy level high and no major > symptoms. My tests still show Lyme but the Lyme levels have come > down dramatically. I'm still on Ceftin after breakfast and after > dinner. Other then that our lives are back to normal. THANK GOD! > > We are all cautiously optimistic that the suffering from this > terrible disease is behind us. We continue to be dilgent about our > treatments and are now focusing on our general health (mind, body > and spirit). > > It's been over a year since we started down the dark path of Lyme > Disease, but we can now see the light at the end of the tunnel. > > Be well, > > and family > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 This is great news for you and your family, take every chance you get to rebuild your bodies so that you can stay strong. Blessings, -- [ ] Good News All, I just wanted to share some good news on my family's recovery from Lyme. My wife has come off of abx since her test have come back negative and she hasn't had any major symptoms in a while. She has been off of the abx for a week and feels great. She joined Weight Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a close eye on her. She has a checkup scheduled to do another blood test in November. My Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Kathy, I posted it because we always hear and read of struggles of the recovery process. I think it is equally important for all of us to post our recovery sucesses as well. I have been on this board since the begining of this year. I have seen many people post how serious their conditions are at first and then gradually over time they disappear. I believe that's because as they start to recover they don't need the support or information any more. They seem to forget to remind everyone of their success in recovering. I would get depressed in the begining reading all of the struggles without hearing any of the progress people do make. I wanted everyone to know that there is hope and I believe that we can all recover! Be well, > > > > All, > > > > I just wanted to share some good news on my family's recovery from > > Lyme. My wife has come off of abx since her test have come back > > negative and she hasn't had any major symptoms in a while. She > has > > been off of the abx for a week and feels great. She joined Weight > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > > close eye on her. She has a checkup scheduled to do another blood > > test in November. > > > > My son's battle is going well. He is still on abx (amoxicillan) > but > > his energy level is high and he has never shown any major > symptoms. > > His doctor said he will be on the abx for a year to be sure that > the > > Lyme is erraticated from his system. > > > > I have been doing very well. Energy level high and no major > > symptoms. My tests still show Lyme but the Lyme levels have come > > down dramatically. I'm still on Ceftin after breakfast and after > > dinner. Other then that our lives are back to normal. THANK GOD! > > > > We are all cautiously optimistic that the suffering from this > > terrible disease is behind us. We continue to be dilgent about > our > > treatments and are now focusing on our general health (mind, body > > and spirit). > > > > It's been over a year since we started down the dark path of Lyme > > Disease, but we can now see the light at the end of the tunnel. > > > > Be well, > > > > and family > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Achetiredmom, Sure. On a Lyme scale of 1 to 10 I was at a 9. My family and I must have gotten it at our old house where there were many deer and we have dogs. I believe I was infected 5 years before I was dx'd in December of last year. I believe my wife was infected 3 years ago and passed it to my son when she was pregnant. We have all been negative for co-infections but we constantly test just in case. Many years of wierd unexplainable symptoms (tingling arms and legs, fatigue...) but my major symptoms began with a case of Pneumonia in September of last year. Things went down hill quickly after that; stomach problems, possible ulcers, possible hernia, orthopedic problems, major neurological problems (doctors thought I might have MS), multiple ER visits thinking I was having major heart attacks (given nitro gliceren at the ER), cardiac specialist and many cardiac tests, tested for PE's, pain in the kidney areas, major pain in the neck and calf area's, eye floaters, Lyme head aches, constant cracking of my neck, major weight gain, white spots on my tongue and others I possible have forgotten. When I went for my first LLMD visit I had a list of over 20 different symptoms. My wife had very minor symptoms, she gained a lot of weight and had arthritic issues with her hips. My son never exhibited any major Lyme symptoms. Once I learned about how tricky Lyme is I insisted that they both get tested and it turned out that they both had it (not by cdc standards but the clinical dx was positive for both of them). They both had positve bands for Lyme. I started in December of last year with my Primary Care Physician who put me on a dose of amoxicillan (this is what they give infants with Lyme), I was lucky to find this group and a very nice lady on this board recommended the best LLMD. After my first visit my LLMD switched my prescription to Doxy (that very day before her blood tests were even sent out). I was on Doxy for about 10 weeks and then she switched me to Ceftin. She doesn't like to use Doxy in the summer and I responded well on the Ceftin. My wife was on Ceftin for about 4 months and now her tests are negative and she has no symptoms. I was doing well for the first six months, getting better slowly. When I thought I was better I got a little careless with my treatment and I slipped from 95% better back to about 90%. Still feeling well but over the summer I had gone to some parties and had a few drinks which made me slip back a little. Since re-focusing on my treatment I feel that I'm back to about 98%. The final 2% may not be Lyme at all, but I have to work on loosing about 50 lbs. I'm 6 feet 4 inches and I'm currently about 320 lbs. But I'm symptom free and I have very high energy levels for about the past 6 weeks. I know how tough it is, how hopeless it can see. But I'm here to tell you that me and my family have returned from the abise. I believe that we can all recover! It's my opinion that the most important thing you can do to recover is to get to the best LLMD that you can. Someone that has over 10 years of treating Lyme patients and a proven track record of successfull recoveries. Simply ask their office. Second is to work with a Naturopathic doctor to balance the abx treatments and supplement your total health. Find a qualified Naturopathic, ask your LLMD if they can recommend someone. Finally find ways to do the appropriate amount of exercise (if you can't walk or are wheel chair bound work closely with a physical therapist under the direction of your LLMD). On the holistic side of my treatment I have realized that the most important thing I did to recover was to relax. Do all of your research and due diligence and then relax and leave your treatment in the hands of the great doctors that you have choosen. Minimize your exposure to any and all NEGATIVE information that you might find on the Internet. The more you relax the more your body has a chance of recovering! Don't worry too much and get plenty of rest. Initially when you start feeling better you will want to do a million things all at once to catch up on everything that you have missed. Stop and force yourself to relax or you will have a relapse. Take it from me! You will need to slow down to speed up the recovery process. I hope this helps. I'm hear to let you know that there is hope and it has gotten much better for me and my family. We're almost back to 100% and the one positive lesson that I have taken out of this journey is to cherish every moment of health that we have. Remember to stop and appreciate the good stuff in our lives. Don't over look the small stuff :-) Be well, and family > > > > All, > > > > I just wanted to share some good news on my family's recovery from > > Lyme. My wife has come off of abx since her test have come back > > negative and she hasn't had any major symptoms in a while. She > has > > been off of the abx for a week and feels great. She joined Weight > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > > close eye on her. She has a checkup scheduled to do another blood > > test in November. > > > > My son's battle is going well. He is still on abx (amoxicillan) > but > > his energy level is high and he has never shown any major > symptoms. > > His doctor said he will be on the abx for a year to be sure that > the > > Lyme is erraticated from his system. > > > > I have been doing very well. Energy level high and no major > > symptoms. My tests still show Lyme but the Lyme levels have come > > down dramatically. I'm still on Ceftin after breakfast and after > > dinner. Other then that our lives are back to normal. THANK GOD! > > > > We are all cautiously optimistic that the suffering from this > > terrible disease is behind us. We continue to be dilgent about > our > > treatments and are now focusing on our general health (mind, body > > and spirit). > > > > It's been over a year since we started down the dark path of Lyme > > Disease, but we can now see the light at the end of the tunnel. > > > > Be well, > > > > and family > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 I agree, it is so nice to hear recovery stories. I'd even settle for just getting some better. Thanks !! Kathy > > > > > > All, > > > > > > I just wanted to share some good news on my family's recovery > from > > > Lyme. My wife has come off of abx since her test have come back > > > negative and she hasn't had any major symptoms in a while. She > > has > > > been off of the abx for a week and feels great. She joined > Weight > > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > > > close eye on her. She has a checkup scheduled to do another > blood > > > test in November. > > > > > > My son's battle is going well. He is still on abx (amoxicillan) > > but > > > his energy level is high and he has never shown any major > > symptoms. > > > His doctor said he will be on the abx for a year to be sure that > > the > > > Lyme is erraticated from his system. > > > > > > I have been doing very well. Energy level high and no major > > > symptoms. My tests still show Lyme but the Lyme levels have > come > > > down dramatically. I'm still on Ceftin after breakfast and > after > > > dinner. Other then that our lives are back to normal. THANK > GOD! > > > > > > We are all cautiously optimistic that the suffering from this > > > terrible disease is behind us. We continue to be dilgent about > > our > > > treatments and are now focusing on our general health (mind, > body > > > and spirit). > > > > > > It's been over a year since we started down the dark path of > Lyme > > > Disease, but we can now see the light at the end of the tunnel. > > > > > > Be well, > > > > > > and family > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 i agree with you kevin! eric --- McGillycuddy <@...> wrote: > Kathy, > > I posted it because we always hear and read of > struggles of the > recovery process. > > I think it is equally important for all of us to > post our recovery > sucesses as well. > > I have been on this board since the begining of this > year. I have > seen many people post how serious their conditions > are at first and > then gradually over time they disappear. I believe > that's because > as they start to recover they don't need the support > or information > any more. > > They seem to forget to remind everyone of their > success in > recovering. I would get depressed in the begining > reading all of > the struggles without hearing any of the progress > people do make. > > I wanted everyone to know that there is hope and I > believe that we > can all recover! > > Be well, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Kathy, Know that with the right treatments you will get better. I know it's a very tough time right now. I was there for a long time, but now I'm back to living life the way I felt before I was infected by this terrible disease. Like most things that are worth while in this life recovering won't come easy. You will have to work at it. Be sure to keep a positive attitude. Even if you have to celebrate each small victory (like finding this board where there are people who have recovered from where you are now). Find the inspiration and know that you will get better. I feel that with the right treatments we can all recover! Be well. I wish you a speedy recovery :-) > > > > > > > > All, > > > > > > > > I just wanted to share some good news on my family's recovery > > from > > > > Lyme. My wife has come off of abx since her test have come > back > > > > negative and she hasn't had any major symptoms in a while. > She > > > has > > > > been off of the abx for a week and feels great. She joined > > Weight > > > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping > a > > > > close eye on her. She has a checkup scheduled to do another > > blood > > > > test in November. > > > > > > > > My son's battle is going well. He is still on abx > (amoxicillan) > > > but > > > > his energy level is high and he has never shown any major > > > symptoms. > > > > His doctor said he will be on the abx for a year to be sure > that > > > the > > > > Lyme is erraticated from his system. > > > > > > > > I have been doing very well. Energy level high and no major > > > > symptoms. My tests still show Lyme but the Lyme levels have > > come > > > > down dramatically. I'm still on Ceftin after breakfast and > > after > > > > dinner. Other then that our lives are back to normal. THANK > > GOD! > > > > > > > > We are all cautiously optimistic that the suffering from this > > > > terrible disease is behind us. We continue to be dilgent > about > > > our > > > > treatments and are now focusing on our general health (mind, > > body > > > > and spirit). > > > > > > > > It's been over a year since we started down the dark path of > > Lyme > > > > Disease, but we can now see the light at the end of the tunnel. > > > > > > > > Be well, > > > > > > > > and family > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 , How have you been feeling. From reading your posts it sounds like you are doing better. I remember when you had the very bad neurologial problems and ever Lyme symptoms. How have you been feeling recently? Be well, > > > Kathy, > > > > I posted it because we always hear and read of > > struggles of the > > recovery process. > > > > I think it is equally important for all of us to > > post our recovery > > sucesses as well. > > > > I have been on this board since the begining of this > > year. I have > > seen many people post how serious their conditions > > are at first and > > then gradually over time they disappear. I believe > > that's because > > as they start to recover they don't need the support > > or information > > any more. > > > > They seem to forget to remind everyone of their > > success in > > recovering. I would get depressed in the begining > > reading all of > > the struggles without hearing any of the progress > > people do make. > > > > I wanted everyone to know that there is hope and I > > believe that we > > can all recover! > > > > Be well, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 I am working and for the first time in 17 years with a renewed sense of well bieng..minocycline seems to target lyme directly so you herx even on small doses. you wont feel better till you stop and that is the truth..but then you have to restart..hit them again and again.. eric --- McGillycuddy <@...> wrote: > , > > How have you been feeling. From reading your posts > it sounds like > you are doing better. I remember when you had the > very bad > neurologial problems and ever Lyme symptoms. > > How have you been feeling recently? > > Be well, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Thanks !! Kathy > > > > > > > > > > All, > > > > > > > > > > I just wanted to share some good news on my family's > recovery > > > from > > > > > Lyme. My wife has come off of abx since her test have come > > back > > > > > negative and she hasn't had any major symptoms in a while. > > She > > > > has > > > > > been off of the abx for a week and feels great. She joined > > > Weight > > > > > Watchers 2 weeks ago and has lost 10 lbs. We will be > keeping > > a > > > > > close eye on her. She has a checkup scheduled to do another > > > blood > > > > > test in November. > > > > > > > > > > My son's battle is going well. He is still on abx > > (amoxicillan) > > > > but > > > > > his energy level is high and he has never shown any major > > > > symptoms. > > > > > His doctor said he will be on the abx for a year to be sure > > that > > > > the > > > > > Lyme is erraticated from his system. > > > > > > > > > > I have been doing very well. Energy level high and no major > > > > > symptoms. My tests still show Lyme but the Lyme levels have > > > come > > > > > down dramatically. I'm still on Ceftin after breakfast and > > > after > > > > > dinner. Other then that our lives are back to normal. > THANK > > > GOD! > > > > > > > > > > We are all cautiously optimistic that the suffering from > this > > > > > terrible disease is behind us. We continue to be dilgent > > about > > > > our > > > > > treatments and are now focusing on our general health (mind, > > > body > > > > > and spirit). > > > > > > > > > > It's been over a year since we started down the dark path of > > > Lyme > > > > > Disease, but we can now see the light at the end of the > tunnel. > > > > > > > > > > Be well, > > > > > > > > > > and family > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Hi , I am so pleased to hear how well you and your family are doing!! I was diagnosed in May with Lyme and have been taking antibiotics since. You mentioned a " test " your wife had that came back negative--you also mentioned your " test " still shows lyme, " but the levels are down " --What test are you referring to? I am not familiar with a test that shows 'levels' of lyme. I am only aware of tests that look for antibodies to borrelia burgdorferi. I would be interested in the test you refer to. Also, you mentioned your wife's loss of 10 pounds--was there a relationship between her lyme disease and weight gain? Thanks for you time. And again, congrats on healing!! > > All, > > I just wanted to share some good news on my family's recovery from > Lyme. My wife has come off of abx since her test have come back > negative and she hasn't had any major symptoms in a while. She has > been off of the abx for a week and feels great. She joined Weight > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > close eye on her. She has a checkup scheduled to do another blood > test in November. > > My son's battle is going well. He is still on abx (amoxicillan) but > his energy level is high and he has never shown any major symptoms. > His doctor said he will be on the abx for a year to be sure that the > Lyme is erraticated from his system. > > I have been doing very well. Energy level high and no major > symptoms. My tests still show Lyme but the Lyme levels have come > down dramatically. I'm still on Ceftin after breakfast and after > dinner. Other then that our lives are back to normal. THANK GOD! > > We are all cautiously optimistic that the suffering from this > terrible disease is behind us. We continue to be dilgent about our > treatments and are now focusing on our general health (mind, body > and spirit). > > It's been over a year since we started down the dark path of Lyme > Disease, but we can now see the light at the end of the tunnel. > > Be well, > > and family > Quote Link to comment Share on other sites More sharing options...
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