Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 In a message dated 11/16/2005 7:05:03 P.M. Eastern Standard Time, @... writes: More good news today. This morning I got a call from my LLMD that my blood had come back negative for Lyme or co-infections for a second straight time (tested 6 weeks apart). My doctor is keeping me on the antibiotics until next time as I still have some minor symptoms. I was dx'd in December of 2004 and I have been on abx since. I believe that I have had Lyme for 5 - 10 years. I am battling the flu today and yesterday. Sore throat, fever and deep coughing. But I feel much better today then I did yesterday. I got a lot of rest, stayed in bed most of the time. The good news is that I haven't felt any of the Lyme symptoms return. My wife has been off of the antibiotics for over 1 month now and is feeling good. My son continues to be bright eyed and energetic. He has hit all of his milestones except speech. He is 17 months old and says about 5 words (Mommy, Daddy...). We have heard that typically boys talk later then girls so we aren't too concerned but we are keeping an eye on his development. I'd be interested in hearing any input from the group about this. I truely know how it feels to start on the path to recovery. That is why I post our good news. I don't minimize the challenge or feelings that we all go through. I just remember when I joined the group all of the postings were about the challenges of recovery, not many about the recovery. I have met and read about many people that have recovered from Lyme yet we don't hear their stories. I think it helps to hear the good news as well as the challenges. I believe that we can all recover. Be well, DEAR KEVIN !!! THIS NEWS IS JUST FANTASTIC !!!! AMAZING AND WONDERFUL ...I WISH YOU AND YOUR FAMILY CONTINUED GOOD HEALTH !!! and ..don't worry so much about the kid ...I have one of each ...and they both did everything opposite ...now they are both full grown adults and just fine ;-) ! God Bless ...Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 More good news today. This morning I got a call from my LLMD that my blood had come back negative for Lyme or co-infections for a second straight time (tested 6 weeks apart). My doctor is keeping me on the antibiotics until next time as I still have some minor symptoms. I was dx'd in December of 2004 and I have been on abx since. I believe that I have had Lyme for 5 - 10 years. I am battling the flu today and yesterday. Sore throat, fever and deep coughing. But I feel much better today then I did yesterday. I got a lot of rest, stayed in bed most of the time. The good news is that I haven't felt any of the Lyme symptoms return. My wife has been off of the antibiotics for over 1 month now and is feeling good. My son continues to be bright eyed and energetic. He has hit all of his milestones except speech. He is 17 months old and says about 5 words (Mommy, Daddy...). We have heard that typically boys talk later then girls so we aren't too concerned but we are keeping an eye on his development. I'd be interested in hearing any input from the group about this. I truely know how it feels to start on the path to recovery. That is why I post our good news. I don't minimize the challenge or feelings that we all go through. I just remember when I joined the group all of the postings were about the challenges of recovery, not many about the recovery. I have met and read about many people that have recovered from Lyme yet we don't hear their stories. I think it helps to hear the good news as well as the challenges. I believe that we can all recover. Be well, > > > > > > All, > > > > > > I just wanted to share some good news on my family's recovery > from > > > Lyme. My wife has come off of abx since her test have come back > > > negative and she hasn't had any major symptoms in a while. She > > has > > > been off of the abx for a week and feels great. She joined > Weight > > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping a > > > close eye on her. She has a checkup scheduled to do another > blood > > > test in November. > > > > > > My son's battle is going well. He is still on abx (amoxicillan) > > but > > > his energy level is high and he has never shown any major > > symptoms. > > > His doctor said he will be on the abx for a year to be sure that > > the > > > Lyme is erraticated from his system. > > > > > > I have been doing very well. Energy level high and no major > > > symptoms. My tests still show Lyme but the Lyme levels have > come > > > down dramatically. I'm still on Ceftin after breakfast and > after > > > dinner. Other then that our lives are back to normal. THANK > GOD! > > > > > > We are all cautiously optimistic that the suffering from this > > > terrible disease is behind us. We continue to be dilgent about > > our > > > treatments and are now focusing on our general health (mind, > body > > > and spirit). > > > > > > It's been over a year since we started down the dark path of > Lyme > > > Disease, but we can now see the light at the end of the tunnel. > > > > > > Be well, > > > > > > and family > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 I'm so very, very happy for you all and thanks for posting this- yes it is so wonderful to hear the good. thanks Rose Maire > > More good news today. This morning I got a call from my LLMD that > my blood had come back negative for Lyme or co-infections for a > second straight time (tested 6 weeks apart). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Hi , Good to hear you so excited! Keep it up. With love, Loes, The Netherlands From: [mailto: ] On Behalf Of bsmyers3999@... Sent: woensdag 23 november 2005 19:09 liver problems Subject: [ ] Good News I have something to be very thankful for this year and I am so excited. As most of you know I had a biopsy in October that said I was going into stage 4 AIH. I went to my G.I. yesterday and he said that I hve a better chance of getting hit by a car than have to need a transplant. I am doing so much better on just Imuran without prednisone that he couldn't believe the change in me. I have lost weight. have more energy, and am alot more chipper. He said I look so healthy now that if he sent me to be preregistered they would say no way. I was so excited by his attitude that I grinned all the way home. I have already gotten all my Christmas decorations up, Christmas cards done and for the first time in years I am making Thanksgiving dinner. I am very thankful and happy and wanted to share with all of you.' I pray that all of you who celebrate Thanksgiving have a beautiful and wonderful day. BRenda the WV hillbilly p.s. we are supposed to get a big snow storm so hope I don't loose electric before the turkey is done.LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 , You have had your share of feeling bad, so I am glad that this holiday you and your family can be truly Happy with a "Happy Thanksgiving". To feel good and have energy is what we all cherish, and wish for. I am grateful that I too am feeling pretty good at least with the liver condition, but there is always something. Now I am struggling with feelings of dizziness, short of breath, racing heart, throbbing veins on the side of my head. All very indicative of highblood pressure, But I do not have high blood pressure. at least not THAT high. 155/80. Last week it was 155/50 and the doctor took me off of ENALAPRIL MALEATE 5MG , which is supposed to be good for the heart for diabetics (which I am but under control with Actos), I am feeling a bit better. It could also be stress related, although I cannot identify the STRESS. I have always lived my life on high adrenelin. Why change now? The doctor says it could be because my husband died unexpectedly last June(2005). True, it was shocking and I still get mad at him everyso often, but that is not new either. And it does not make my heart stress out. Whenever I have these symptoms, it seems totally unrelated to anything. Sitting and writing sstuff at the computer and all of a sudden my heart races, or watching television in bed and the carotid artery throbs in my ear ( had a carotic artery test, it is not blocked, good gflow!) Had a echocardiogram yesterday, and am waiting for the results. Oh well! I am going to have a great Thanksgiving with all kinds of family and lots and lots of different foods, as everyone brings something! HAPPY TURKEY DAY TO ALL! And I will be giving thanks for all the good folks on this forum. Clara [ ] Good News I have something to be very thankful for this year and I am so excited.As most of you know I had a biopsy in October that said I was going into stage 4 AIH.I went to my G.I. yesterday and he said that I hve a better chance of getting hit by a car than have to need a transplant. I am doing so much better on just Imuran without prednisone that he couldn't believe the change in me.I have lost weight. have more energy, and am alot more chipper. He said I look so healthy now that if he sent me to be preregistered they would say no way. I was so excited by his attitude that I grinned all the way home. I have already gotten all my Christmas decorations up, Christmas cards done and for the first time in years I am making Thanksgiving dinner.I am very thankful and happy and wanted to share with all of you.'I pray that all of you who celebrate Thanksgiving have a beautiful and wonderful day.BRenda the WV hillbillyp.s. we are supposed to get a big snow storm so hope I don't loose electric before the turkey is done.LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Clara sometimes when we think we are relaxed our mind sends a different message to our bodies. When my Daughter died I also had "unexplained" episodes like you mentioned and I was finally diagnosed with Post Traumatic Stress Syndrome. I was put on Paxil and it helped for a while. I am now on Lexapro in the morning and Elavyl at night. I am doing alot better but I still can't be in crowds and sometimes I still get episodes. I know about the anger and it does get better. If you need someone to talk to I am here. Email me privatly if you want. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Thanks Loes it's always a good day if we can get out of bed!!!!! Hope all is well with you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Thanks, , I am sorry to hear about your daughter and thanks for the encouragement. I am taking Zanax at night before I go to sleep ( so I can go to sleep) maybe it helps all day too. I stopped taking it, hoping to wean myself off. Maybe I cannot get off it yet. In the meantime, I am following through with the doctors. I cannot imagine how the pressure in my head ( when I bend over) can be psychological! But maybe I'll go see a shrink too! I want to resolve this issue, I am feeling too good to allow a little stress send me spinning. ( my foot that hurt for 2 years froman injury stopped hurting lately. My arthritic thumb joint is under control with a brace, I am not cuaghing with my asthma, my stomach ulcers are controlled by Aciphex, and I am not itching like I used to, etc. I cannot allow this little head thing to take over my life! Clara From OR Re: [ ] Good News Clara sometimes when we think we are relaxed our mind sends a different message to our bodies.When my Daughter died I also had "unexplained" episodes like you mentioned and I was finally diagnosed with Post Traumatic Stress Syndrome. I was put on Paxil and it helped for a while. I am now on Lexapro in the morning and Elavyl at night. I am doing alot better but I still can't be in crowds and sometimes I still get episodes.I know about the anger and it does get better. If you need someone to talk to I am here. Email me privatly if you want. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Fantastic ! I am so happy for you!!!!!! Debby [ ] Good News I have something to be very thankful for this year and I am so excited.As most of you know I had a biopsy in October that said I was going into stage 4 AIH.I went to my G.I. yesterday and he said that I hve a better chance of getting hit by a car than have to need a transplant. I am doing so much better on just Imuran without prednisone that he couldn't believe the change in me.I have lost weight. have more energy, and am alot more chipper. He said I look so healthy now that if he sent me to be preregistered they would say no way. I was so excited by his attitude that I grinned all the way home. I have already gotten all my Christmas decorations up, Christmas cards done and for the first time in years I am making Thanksgiving dinner.I am very thankful and happy and wanted to share with all of you.'I pray that all of you who celebrate Thanksgiving have a beautiful and wonderful day.BRenda the WV hillbillyp.s. we are supposed to get a big snow storm so hope I don't loose electric before the turkey is done.LOL No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.8/183 - Release Date: 11/25/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Thanks Debby I am alittle behind but am trying to get caught up. Hope you had a good Thanksgiving Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Congratulations Grandma!!!! What a big boy, I know he's beautiful! Spoil him, that is what were here for:)Tawny --- In , " bureau97504 " <bureau97504@y...> wrote: > > It was wonderful news for Ken to be home safe and sound because of all > of our prayers...............and i also want to thank all of my RA > family for their love and support during my daughter-in-law's > pregnancy. Evan Alvarez was born yesterday weighing in at 8lbs > 6oz and 20 inches and a very healthy baby. Thank you for all of your > prayers..........I feel very blessed to have another wonderful > grandson and such wonderful friends. > > Love and hugs to all > Pat in so Ore. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 As have the others I am following your posts and feel deeply your pain. In your last one I noticed something positive that is worth emphasizing. You said that you communicated what you called a " no nonsense " tone or attitude to your husband. No matter what any of us are going through the overwhelming fear comes from feeling out of control, feeling like a victim. As many of the ladies mentioned, getting counselling even if just for yourself will help with that, as will taking care of your health. Keep moving forward even if in little steps...action conquers fear. Finances can make you feel out of control and afraid, but you are finding a way around that, a safe haven it seems if it is your father. We all have to use whatever resourses we have, and you are very fortunate to be able to turn to him...more importantly, however, is the fact that you are now thinking more clearly, focusing on what needs to be done and doing it. Gaining strength. You will find that the more you do that the more in control you will feel and while it can be a roller coaster ride, you are on the right track. May God bless you and your family. You may have heard all this from many others, but it can't be said enough. I am woman; hear me roar...Ha! Charlotte > > The financial consultant from Dr Kolbs office said they found out my > military insurance should pay for the removal of my lymph nodes, this > is GREAT news because it will save us 1400 dollars!!! > As for everything else, I greatly appreciate all the suggestions and > will definetly do some counceling to see how I can handle the emotions > and effects of this explant and then get help for my marriage. My > husband has really started to come around since I told him I was going > to get a loan for my dad and pay it back myself and also just the fact > I had a no nonsense attitude when I told him might have had an impact. > Thank you so much for all your support! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 GOOD NEWS!! That's great . I am so glad to hear both that military insurance will help and that your husband is coming around. --- In , " swtlilblonde31 " <swtlilblonde31@y...> wrote: > > The financial consultant from Dr Kolbs office said they found out my > military insurance should pay for the removal of my lymph nodes, this > is GREAT news because it will save us 1400 dollars!!! > As for everything else, I greatly appreciate all the suggestions and > will definetly do some counceling to see how I can handle the emotions > and effects of this explant and then get help for my marriage. My > husband has really started to come around since I told him I was going > to get a loan for my dad and pay it back myself and also just the fact > I had a no nonsense attitude when I told him might have had an impact. > Thank you so much for all your support! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Charlotte . . . Something you said really struck a chord . . . " victim " . . . Long ago, when I first got involved in implant support groups, that word came up . . . We discussed the feelings that go with the word " victim " and decided not to use that word. While we truly have been victimized, describing ourselves is very demoralizing and debilitating. Instead, we need to see ourselves as " survivors " . . . It's a much more powerful way to see ourselves so we can move past a horrible experience. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 , I'm thrilled for you . . . Everything will work out . .. . one step at a time. Your hubby is going to come around completely in time. Keep being loving towards him. . . He needs your support as much as you need his! One things that drives men crazy is the feeling they are helpless to help you when you are sick. With my hubby, as time as gone by, he's come to see these things as temporary and knows that all he needs to do is to be supportive when I need it. (Eating his cooking is enough to make me want to get well quickly anyway!) Our marriage keeps getting stronger and stronger. . . We had some rough times when I was implanted too. You're going to get through this and be all the stronger for the experience! Is there any chance the military will pay for your explant? Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Nope the military won't pay for explant or a lift. They will put the damn things in a woman but they wash their hands as soon as there is a problem. Now I didn't have mine put in by the military nor would I ever trust them enough to do so. But the military insurance will pay for my lymphnode removal because it is medically necessary and not considered a cosmetic surgery. I don't know if anyone is aware of this but Dr Kolb was a Major in the airforce, She has delt with the military insurance and knows how it all works, she and her staff are working very hard at trying to get all the help they can for me. As for my husband and I, we will get through it.It is just so hard on us and I am so emotional. He has been quite mean, however, I think by me telling him that I will pay for the loan from my dad on my own he finally sees the I don't expect him to pay for my mistake and that I am taking charge. he told me he felt like the only reason I was with him anymore is because he was a " paycheck " , that is when I realised he felt taken for granted. I sat him down and had a long talk with him but I really believe the one thing that brought him out of his cave was me telling him I was going to pay the loan off and that I would contribute from now on to the retirement fund. I really do have great respect for all you ladies in helping me through this and I hope after explant I can still lean on this board for support. HUGS, > > , > > I'm thrilled for you . . . Everything will work out . > . . one step at a time. Your hubby is going to come > around completely in time. Keep being loving towards > him. . . He needs your support as much as you need > his! > > One things that drives men crazy is the feeling they > are helpless to help you when you are sick. With my > hubby, as time as gone by, he's come to see these > things as temporary and knows that all he needs to do > is to be supportive when I need it. (Eating his > cooking is enough to make me want to get well quickly > anyway!) Our marriage keeps getting stronger and > stronger. . . We had some rough times when I was > implanted too. > > You're going to get through this and be all the > stronger for the experience! > > Is there any chance the military will pay for your > explant? > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 , Congratulations! Where there's a will, there's a way!! I'm really proud of you, you're taking so many steps in the right direction. You're not a victim, you're victorious!! Sis > > The financial consultant from Dr Kolbs office said they found out my > military insurance should pay for the removal of my lymph nodes, this > is GREAT news because it will save us 1400 dollars!!! > As for everything else, I greatly appreciate all the suggestions and > will definetly do some counceling to see how I can handle the emotions > and effects of this explant and then get help for my marriage. My > husband has really started to come around since I told him I was going > to get a loan for my dad and pay it back myself and also just the fact > I had a no nonsense attitude when I told him might have had an impact. > Thank you so much for all your support! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Congradulations on taking charge of your health and your life, ! With your determination, I know you will work everything out with your implants, AND your husband! . .. . It won't be a straight line, but you'll get there. I'm really proud of you! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 ...I AM SO HAPPY FOR YOU! What a relief to know that some of it is covered. You deserve it girl! Hugs.. Jenna > > The financial consultant from Dr Kolbs office said they found out my > military insurance should pay for the removal of my lymph nodes, this > is GREAT news because it will save us 1400 dollars!!! > As for everything else, I greatly appreciate all the suggestions and > will definetly do some counceling to see how I can handle the emotions > and effects of this explant and then get help for my marriage. My > husband has really started to come around since I told him I was going > to get a loan for my dad and pay it back myself and also just the fact > I had a no nonsense attitude when I told him might have had an impact. > Thank you so much for all your support! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Yeah, I agree. The feeling of being a victim can be so immobilizing. I heard once, " there are no victims, only volunteers " ...and I guess in some ways it's true. Didn't we all put ourselves in a position to have to reconstruct our lives no matter how temporarily (or not)? And for some of us the " volunteering " pattern continues until we get it right. But that's moving into a conversation far off of the subject of putting out toxic fires. We need to be able to clear away that which overwhelms us and those steps come one at a time - clearing up our bodies has to be paramount. Good feedback. Charlotte > > Charlotte . . . > > Something you said really struck a chord . . . > " victim " . . . Long ago, when I first got involved in > implant support groups, that word came up . . . We > discussed the feelings that go with the word " victim " > and decided not to use that word. > > While we truly have been victimized, describing > ourselves is very demoralizing and debilitating. > > Instead, we need to see ourselves as " survivors " . . . > It's a much more powerful way to see ourselves so we > can move past a horrible experience. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Charlotte, I'm tossing in my two cents again . . . There are too many people out there who see us as volunteers for the implant experience. I've been told flat out that women got what they were asking for when they got sick from breast implants! We didn't ask to be lied to . . .or to be treated so shabbily when we begged for help . . . or to be denied care by indifferent doctors! There is a huge amount of money funding the breast implant business. The last thing they care about is what implants do to women (or to their unborn children). . . All they want is their money . . . The way I see it is that the only thing we are guilty of is trusting the FDA when they either approved breast implants, or gave their tacit approval by allowing them on the market under so called studies! . .. . And for trusting the doctors who told us breast implants are safe. After fourty years, there still aren't any comprehensive studies on women or children made ill by breast implants. Is that criminal or not? How words are used is a very powerful thing (note how the administration chooses its words and slogans very carefully!) . . . We must be very careful too . . . We need to chose words that offer hope and not despair! In my opinion, NONE of us volunteered to be made ill by these dangerous devices . . . Nor are we victims even though we've been victimized. We are survivors! We will survive. And we will tell the world that there are people out there who would take everything away from anyone for their own selfish gain! We will name names, and they will be the ones who know shame! Their money will turn to blood on their hands! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 Rogene, Good morning. Your words always inspire. Have a good day. Charlotte > > Charlotte, > > I'm tossing in my two cents again . . . > > There are too many people out there who see us as > volunteers for the implant experience. I've been told > flat out that women got what they were asking for when > they got sick from breast implants! > > We didn't ask to be lied to . . .or to be treated so > shabbily when we begged for help . . . or to be denied > care by indifferent doctors! > > There is a huge amount of money funding the breast > implant business. The last thing they care about is > what implants do to women (or to their unborn > children). . . All they want is their money . . . > > The way I see it is that the only thing we are guilty > of is trusting the FDA when they either approved > breast implants, or gave their tacit approval by > allowing them on the market under so called studies! . > . . And for trusting the doctors who told us breast > implants are safe. > > After fourty years, there still aren't any > comprehensive studies on women or children made ill by > breast implants. Is that criminal or not? > > How words are used is a very powerful thing (note how > the administration chooses its words and slogans very > carefully!) . . . We must be very careful too . . . We > need to chose words that offer hope and not despair! > > In my opinion, NONE of us volunteered to be made ill > by these dangerous devices . . . Nor are we victims > even though we've been victimized. > > We are survivors! We will survive. And we will tell > the world that there are people out there who would > take everything away from anyone for their own selfish > gain! We will name names, and they will be the ones > who know shame! Their money will turn to blood on > their hands! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 Wow you make thus far several times of day (that my internal as well as physical) WELL being needs to stay focused and at arms length from the abyss this tends to lend itself to. You have your wing's fluffed by me, indubitably for ALL you do to inspire, encourage and your incredible drive to help! I took you with me when I went shopping w/my 12 yr old! So hard only able to give a couple of hrs when I still relish when I was ABLE to participate more. I realize this WILL increase, well I pray it will but I must admit that "the being in the NOW" of things leaves me feeling useless to my otherwise previous capacity. It sure is a "roller coaster" for this woman that has always avoided them. The pull from the toes to not feel guilty, a victim & most days here in ole Murrieta, Ca. ALONE can be a minute to minute struggle. I have suited up & shown up for every test, surg, rejection, ignorance etc for soooo many yrs now and have not availed myself to feeling or sharing my grief and the never ending need to NEVER let em see or hear my sometimes near suicidal internal and physical pain. I'm the Polly , Magoo, Lucy persona & guard myself from dismissal but criticism for those moments "it" peeks out and is judged for not being more encouraging, positive and supportive. With what YOU avail US and others within this group along with soooo many avenues that weave us ALL closer to recognition & making a DIFFERENCE~ IS the "not quiting 5 minutes before the Miracle" I have (bones and all) ached for!!!!!!!! I PRAY the darkness I allowed to hit the page is left only to my having "a moment" where otherwise I am UPRIGHT and HOPEFUL! Love, Charlotte <chiandjoe@...> wrote: Rogene, Good morning. Your words always inspire. Have a good day. Charlotte > > Charlotte, > > I'm tossing in my two cents again . . . > > There are too many people out there who see us as > volunteers for the implant experience. I've been told > flat out that women got what they were asking for when > they got sick from breast implants! > > We didn't ask to be lied to . . .or to be treated so > shabbily when we begged for help . . . or to be denied > care by indifferent doctors! > > There is a huge amount of money funding the breast > implant business. The last thing they care about is > what implants do to women (or to their unborn > children). . . All they want is their money . . . > > The way I see it is that the only thing we are guilty > of is trusting the FDA when they either approved > breast implants, or gave their tacit approval by > allowing them on the market under so called studies! . > . . And for trusting the doctors who told us breast > implants are safe. > > After fourty years, there still aren't any > comprehensive studies on women or children made ill by > breast implants. Is that criminal or not? > > How words are used is a very powerful thing (note how > the administration chooses its words and slogans very > carefully!) . . . We must be very careful too . . . We > need to chose words that offer hope and not despair! > > In my opinion, NONE of us volunteered to be made ill > by these dangerous devices . . . Nor are we victims > even though we've been victimized. > > We are survivors! We will survive. And we will tell > the world that there are people out there who would > take everything away from anyone for their own selfish > gain! We will name names, and they will be the ones > who know shame! Their money will turn to blood on > their hands! > > Hugs and prayers, > > Rogene > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 , I'm so glad you found this group . . . You are by no means alone. There are tens of thousands - if not hundreds of thousand - of women who are sharing your experience. . . I'm sure there are many there in Murrieta - if only they will share their experience. Because of the way we've been treated, we fill guilty and ashamed that were duped and made ill IF we even make sense of the health problems we have experienced. Just KNOW that there is much to hope for. I've been active in implant support since 1994 - Lynda has been around even longer - and Lea has been around about the same time. I think they would agree that none of us have ever seen a woman who failed to get better after her implants were removed IF they are removed properly - and if she has not experienced the kind of extracapsular rupture common before the early nineties. You may not recover 100% of your health. But, you can reach the point where life is good again and you can enjoy all it has to offer. For myself, I had silicone gel implants for 16 years. I began having problems within months. It took almost 16 years to make the connection - and even then, it was only my sister who connected the dots! By that time, I had lost my job, I couldn't think straight, couldn't do the simplest job right. I hurt all the time and was taking multiple medications. There were no support groups! If a woman had breast implants, it was her secret. IMHO, that's where they got us! Twelve years after having my implants out, I am doing really well as long as I follow my " program " . . . i.e., eat right, get enough sleep, avoid stress, don't overdo exercise - and get enough exercise. . . I see my health as walking a balance beam. As long as I keep everything in balance, I do fine. Nobody would know I had a problem. However, unlike others, if I cheat on my program, I fall off the beam. Sometimes it's really hard to climb back on! . . . My goal is to make that beam as wide and as close to the ground as possible. They've found a clear correlation between the amount of time women have silicone gel implants and how sick they are . . . After 13 years, it can be assumed they will be quite ill. I don't think anyone is paying much attention to what's going on with saline implants - since they are FDA " approved " , so no further studies are required. It appears there are several factors at work . . . Some women appear to be sensitive to the materials . . .. sometimes the implants are contaminated before being placed, and for others, they become contaminated over time as body fluids are exchanged with the contents of the implants. Regardless, over time, the silicone shell is going to deteriorate. Minute particles of the implants are going to be distributed throughout the body. Where these particles land, and the bodies reaction to them results in a host of symptoms that mimic numerous serious diseases. Getting well is something every woman has to do for herself. It's hard! . . . It takes committment, discipline (lots), and patience. There are no magic pills, or quick fixes. It's up to each woman to learn to listen to her body. To figure out what helps and what doesn't. We're all different, so there's no formula to wellness. Something that can help immeasurably is to start keeping a journal about how you feel and what you're doing. You may not feel like you're making progress, but when those down days come later on, you'll be able to look back and see how far you've come. That will provide the motivation to keep moving forward because there is a light at the end of the tunnel! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 great news!!! good luck and god bless!!! love shari Quote Link to comment Share on other sites More sharing options...
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