3 Logs

[Guest guest]

Dear Margaret,

Congratulations on having reached the level where you can feel safe. Zavie

hopes

we will all soon " get there " . It makes me smile because even though we don't

reach

that level, we all have a chance at the brass ring - even without it. After

nearly 15 years,

I continue to struggle to " get there " , but I am at peace with the status quo.

It was not

that way 15 years ago. Seems like they had a rubber stamp and put on your

history that

you had 3 1/2 to 5 years. Of course that meant without treatment.

They say to never sweat the small stuff, but at 4 years and no word on what my

trial was doing or no luck in finding anyone else in it, I did begin to sweat

profusely (the size of collar buttons). Just about that time I went to MDACC

and started a new trial with INF and HHT, the hotly debated new(old) drug.

Gleevec rescued me from that hot bed, but I think I have INF to give credit to

for extending to me the extra time I have accumulated. Every drug(trial) I was

in gave me extra time, so whether it was considered a failure or success, I am

still grateful for the opportunities extended me. I hope you go all the way up

that ladder of success, as the hope it spreads is genuine.

Carpe Diem,

Lottie Duthu