Re: Doctors Visit for 8th anniversity of CML

[Guest guest]

, that's very interesting! It also goes to show just how differently

some doctors look at and interpret the same information. Actually, I'm happy

for you, that you are doing so well without the medication. My side effects

are not too bad at this time, mostly just fatigue... it fluctuates between

mild to moderate... don't know how much is from age, from being out of shape

or the medication... I suspect a little of all three.

As a side note, I was diagnosed on 2/10/3003... Happy Anniversary!

Troxel

On Tue, Feb 22, 2011 at 1:37 PM, <dickie_64012@...> wrote:

>

>

> I just returned from receiving the results of my blood test. While the CML

> leukemia still present and active the counts are only increasing at a very

> slow rate. The Dr. agrees that if I would go back on the drugs they would be

> harder on me than living without them. The Dr. thinks that it is possible

> that the Gleevec probably eliminated the fast growing cells and only the

> slow growing ones are left, based on a two year review of three sections of

> my blood tests.

>

> H.

> dxd 2/2003

> 400mg Gleevec 3/2003

> Undetectable 11/03

> RT-PCR negative 11/04

> QT-PCR .003 11/05

> RBC 8.

> Gleevec Vacation 11/06-6/07

> Iron infusion 11/06

> Transfusions 12/06-5/07

> QT-PCR .7

> Gleevec 1/08 -5/08

> Procrit 8/08-11/08

> Gleevec Vacation 7/08-Present

> QT-PCR .03 4/09

> QT-PCR .015 6/09

> QT-PCR .021 9/09

> QT-PCR .028 1/10

> QT-PCR .01+ 4/10

> QT-PCR .0438 10/10

> QT-PCR .05 2/11

>

>

>

[Guest guest]

The fatigue part is the most grueling part for me. It probably reduced 50% or

more since I have not been on Gleevec. The other 50% is combined lack of

activity (most of my life unless I was on a remodel or repair project) and age.

The age and other problems keep me distracted from excerise(LOL). I don't

remember the exact date in Feb. that I was told. I had my BMB the middle of the

month, and the results a week or so later. Then I had about 4 weeks of pills

and consulting BMT specialists preparing to take Gleevec.

H.

>

> >

> >

> > I just returned from receiving the results of my blood test. While the CML

> > leukemia still present and active the counts are only increasing at a very

> > slow rate. The Dr. agrees that if I would go back on the drugs they would be

> > harder on me than living without them. The Dr. thinks that it is possible

> > that the Gleevec probably eliminated the fast growing cells and only the

> > slow growing ones are left, based on a two year review of three sections of

> > my blood tests.

> >

> > H.

> > dxd 2/2003

> > 400mg Gleevec 3/2003

> > Undetectable 11/03

> > RT-PCR negative 11/04

> > QT-PCR .003 11/05

> > RBC 8.

> > Gleevec Vacation 11/06-6/07

> > Iron infusion 11/06

> > Transfusions 12/06-5/07

> > QT-PCR .7

> > Gleevec 1/08 -5/08

> > Procrit 8/08-11/08

> > Gleevec Vacation 7/08-Present

> > QT-PCR .03 4/09

> > QT-PCR .015 6/09

> > QT-PCR .021 9/09

> > QT-PCR .028 1/10

> > QT-PCR .01+ 4/10

> > QT-PCR .0438 10/10

> > QT-PCR .05 2/11

> >

> >

> >

>

>

>

[Guest guest]

The date is easy for me to remember, my grandmother's birthday was 1/10 and

my brother's is 3/10... 2/10 right in the middle.

Can I blame the typo on the Gleevec, it was 2003 not 3003?

On Tue, Feb 22, 2011 at 8:25 PM, <dickie_64012@...> wrote:

>

>

> The fatigue part is the most grueling part for me. It probably reduced 50%

> or more since I have not been on Gleevec. The other 50% is combined lack of

> activity (most of my life unless I was on a remodel or repair project) and

> age. The age and other problems keep me distracted from excerise(LOL). I

> don't remember the exact date in Feb. that I was told. I had my BMB the

> middle of the month, and the results a week or so later. Then I had about 4

> weeks of pills and consulting BMT specialists preparing to take Gleevec.

>

> H.

>

>

>

> >

> > >

> > >

> > > I just returned from receiving the results of my blood test. While the

> CML

> > > leukemia still present and active the counts are only increasing at a

> very

> > > slow rate. The Dr. agrees that if I would go back on the drugs they

> would be

> > > harder on me than living without them. The Dr. thinks that it is

> possible

> > > that the Gleevec probably eliminated the fast growing cells and only

> the

> > > slow growing ones are left, based on a two year review of three

> sections of

> > > my blood tests.

> > >

> > > H.

> > > dxd 2/2003

> > > 400mg Gleevec 3/2003

> > > Undetectable 11/03

> > > RT-PCR negative 11/04

> > > QT-PCR .003 11/05

> > > RBC 8.

> > > Gleevec Vacation 11/06-6/07

> > > Iron infusion 11/06

> > > Transfusions 12/06-5/07

> > > QT-PCR .7

> > > Gleevec 1/08 -5/08

> > > Procrit 8/08-11/08

> > > Gleevec Vacation 7/08-Present

> > > QT-PCR .03 4/09

> > > QT-PCR .015 6/09

> > > QT-PCR .021 9/09

> > > QT-PCR .028 1/10

> > > QT-PCR .01+ 4/10

> > > QT-PCR .0438 10/10

> > > QT-PCR .05 2/11

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Yes, you can blame the typo on whatever you want. I notice that my keyboard is

always jumping around and causing me to j(hit) the wrong keys. LOL

H.

>

[Guest guest]

- That is wonderful news. I am very happy for you. Keep up the good

work.

Sandi

>

> >

> >

> > I just returned from receiving the results of my blood test. While the CML

> > leukemia still present and active the counts are only increasing at a very

> > slow rate. The Dr. agrees that if I would go back on the drugs they would be

> > harder on me than living without them. The Dr. thinks that it is possible

> > that the Gleevec probably eliminated the fast growing cells and only the

> > slow growing ones are left, based on a two year review of three sections of

> > my blood tests.

> >

> > H.

> > dxd 2/2003

> > 400mg Gleevec 3/2003

> > Undetectable 11/03

> > RT-PCR negative 11/04

> > QT-PCR .003 11/05

> > RBC 8.

> > Gleevec Vacation 11/06-6/07

> > Iron infusion 11/06

> > Transfusions 12/06-5/07

> > QT-PCR .7

> > Gleevec 1/08 -5/08

> > Procrit 8/08-11/08

> > Gleevec Vacation 7/08-Present

> > QT-PCR .03 4/09

> > QT-PCR .015 6/09

> > QT-PCR .021 9/09

> > QT-PCR .028 1/10

> > QT-PCR .01+ 4/10

> > QT-PCR .0438 10/10

> > QT-PCR .05 2/11

> >

> >

> >

>

>

>