Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Bobby it is definitely great news as you are feeling better and that you did not a heart attack. I feel the same after I lost 20 lbs andI have less Health problem. God Bless T Sent from my Verizon Wireless BlackBerry [ ] Dr. Talpaz visit Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Bobby, I'm assuming they ran blood work called cardiac enzymes to check to see if you had a heart atack? Also do you have CHF?  ~Karine~ ________________________________ From: Armour <suzzienovember@...> Sent: Fri, February 18, 2011 4:01:35 PM Subject: Re: [ ] Dr. Talpaz visit  So glad you got good news. We all need to hear something good happening, and especially to you who has been through it all. May you continue to do well with your treatments. This should inspire many who have been struggling to get to the point that your at right now. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 8:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 They did a ton of blood work,ekg's, but mainly they did a stress test. She referred to fluid but did not specifically call it CHF, there is also pleural effusion. a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 8:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 If I were you I would ask what your ejection fraction is. They should give you a number in percentages. Normal ejection fraction is 50-70%.  Usually if someone has CHF the ejection fraction is usually lower than 45%. Which means the left ventricle the main pumping part of your heart is not pumping out your blood to your body efficiently. This can cause you to retain fluid in your abd,lower extremities, and your lungs.  I'm not trying to scare you just make you more aware.  Also, I have seen false positve and false negative stress test-just an FYI.  One of the only defentative cardiac test that can check your coronary arteries is cardiac catheterization.  ~Karine~ ________________________________ From: ROBERTA DOYLE <rcd1929@...> Sent: Fri, February 18, 2011 4:31:27 PM Subject: Re: [ ] Dr. Talpaz visit  They did a ton of blood work,ekg's, but mainly they did a stress test. She referred to fluid but did not specifically call it CHF, there is also pleural effusion. a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 8:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Bobby that must have been scary! They say that women don't know their having heart attacks before it kills them. Wow. I am so happy to hear from you. When my HGB use to be low, I would get short of breath too. Was yours ok?  Happy that your home and you don't have to return til May. That's great news. God Bless, Jackie S. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 7:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Bobby, That is wonderful news! I'm glad you are feeling better. Now to have so much time between visits- that is great. I will still be monthly until...who knows when? I'm glad you are well. ________________________________ From: ROBERTA DOYLE <rcd1929@...> < > Sent: Fri, February 18, 2011 7:35:37 AM Subject: [ ] Dr. Talpaz visit  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Bobby, Wow! Never a dull moment. Very scary update. I am so glad to hear you are feeling better and getting back on track. Yikes!!! (I am on the 3 month schedule; although in close touch with my study coordinator at the moment as I re-started about a week and a half ago and we're carefully watching to make sure no side effects kick in...I did go through the bone pain all over again on re-entry which was a nightmare, but the pain did pass after 72 hours.) Hang in there! You are an amazing woman. BethG [ ] Dr. Talpaz visit  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
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