Who is #1

[Guest guest]

Hi Guy,

I don't think we have to take a poll, Skip will always be #1 on the roster. No

one has lived as long or has been more positive. Bobby is #2, she has had it

longer than me. Skip has so many stories locked up in his head, I wish he would

tell us more about his experiences. It is amazing that he is still able to do

the things he does. He no longer goes anywhere but to the hospital, because he

has little to no platets and no immune system. I'm not too far from that myself

(staying inside, that is).

I will probably will be back on Ariad on Monday, I received a call that my

platelets had gone up, but they were waiting for MDACC to give the signal and I

couldn't find anyone to answer the phone. Not kidding, no one I called answered

the phone and there was no way to leave a message - strange. I have some

emergency numbers to call, but I didn't consider it an emergency. I would like

to start on 15 mg. as Bobby did in Phase I and gradually work my way up the

ladder slowly, but that is not how they do it.

In my case, Phase II always started with the highest dose. I think age and the

number of years with CML should be an exception. No one asked me! Dag nab it,

help me out with some cuss words, Shelagh! She cusses like a Russian sailor. I

hope she doesn't have a parrot. LOL My sister's MIL had a mynah bird and he

imitated the screen door all day long. Sometimes he would say, " My name is

Joe " , then he would laugh just like the owner. When the bird died, we went all

over New Orleans looking for another one, but this one wouldn't talk, a total

misfit in comparison to the other bird.

Bobby, how long do you think I will be going every month? How long was it for

you?

xoxox

Lottie