Fatigue

[Guest guest]

Hi Barbara!

Thank you so very much for this dear sweet post!! I feel badly for your

friend! I know how terrifying and debilitating panic definitely is. It's

amazing how a fear can just pop out of nowhere and practically paralyze someone.

I live in Southwest Michigan right on the lake! I'm looking forward to the warm

weather, even though its supposed to rain with snow tomorrow! I'll be able to

get out and hopefully see the beach and water. I have a little therapy dog

named Bella. I'm hoping to find a great craft class at s too! We have an

art center too, I am going to try to check into, and I found a ceramic studio in

the yellow pages. Folk art painting sounds amazing!

My family does live near me. My mom, an uncle, and my brother. I am a first

time aunt, my nephew is 9 months old now and just started crawling all over.

He's really one of the best forms of therapy and entertainment I could ask for!

Thank you for the hugs I am sending you some as well!

Barbara Creedon <bcreedon@...> wrote:

Gee , you have so much to deal with. God Bless you in all

ways. I admire you so much as you have totally bared your soul, and I know how

hard that is to do. I have a dear friend who has panic attacks, and they just

terrify her. I know how debilitating they are, plus, she suffers from

depression too. Your plate is so very full, and I hope that you do find a craft

class in 's, as I know you will really enjoy making some new friends.

Where do you live? If you lived anywhere near me I would go see you in a flash.

I do folk art painting, and I was going to start to get some girls in to teach

them this craft, but when my RA was really bad, I put it on the back burner. As

soon as I can, I want to try to do this.

We all need something positive in our lives, something to look forward to,

etc.

Does your Mom and family live near you? If so, that is so nice. I am sure they

know what you are going through, and how hard some days really are. You are so

young to be so sick, and homebound. It is not fair. I am sending you some

hugs, from me to you. You have touched my heart . I hope you have

better days, and please remember, I do care about you.

God Bless you. Your friend, Barbara

Re: [ ] Fatigue

>

> Oh they are definitely old enough.... but have many emotional problems.

> It's

> very hard and someday I will figure out how to get them to do things

> regularly. I can often get them to do things from time to time... but to

> clean up

> after themselves regularly? forget it.

>

> Abby

>

> In a message dated 4/26/2008 7:42:41 P.M. Pacific Daylight Time,

> marysuetriad (DOT) rr.com writes:

>

> So maybe you'll have to get those messy children to help, LOL. Or maybe

> they're not old enough to do much yet. I gave all of mine chores to do

> when they were old enough, and eventually turned over their laundry to

> them. It was good training for them.

>

> Sue

>

> ************ **Need a new ride? Check out the largest site for U..S. used

> car

> listings at AOL Autos.

> (http://autos.<http://autos.. /> aol.com/used? NCID=aolcmp00300 000002851)

>

>

[Guest guest]

Sharon,

Hang in there w/ the job. Like I said, pace yourself. Most employer

based healthcare insurance you should qualify for regardless of pre-

existing condition or not having insurance prior. If they do have a

clause (pre-existing or not having insurance)...there is a grace

period of 3-6 months. If you are on probation for 90 days and are

eligable for healthcare insurance after that probation peroid...that

normally is all you have to wait. Again, good luck!!

> > > > >

> > > > > I have been worrying about this a lot, I see some have

> > mentioned

> > > > here

> > > > > struggling with this too... how many of us deal with this?

> > > > >

> > > > > I notice constant fatigue... I can't do anything and I feel

> so

> > > > > depressed about this. I feel mentally and physically tired

in

> > > huge

> > > > > proportions. I have been officially diagnosed with RA for

> > nearly

> > > > two

> > > > > years, though it took a year to find a Rheumatologist that

> took

> > > it

> > > > > seriously. All my blood work and symptoms said RA, but the

> > first

> > > > > doctor my GP sent me too didn't believe it. (I have no idea

> > why).

> > > > I'm

> > > > > on mtx injection, sulfasalzine, and hydroxychloroquin. It

has

> > > > really

> > > > > cut my pain down, but my feet still always hurt. But I am

> > ALWAYS

> > > > > tired, I can't get myself to do anything! Where I used to

be

> a

> > > > mover

> > > > > and shaker, now I sit most of the time, and have to lie

down

> a

> > > > couple

> > > > > times a day. Some days my ankles, knees, and hands hurt or

> > mostly

> > > > > just ache, but I can't see how that would be tireing!

> > Especially

> > > > > since I am getting so sedentary! Does the disease process

> > itself

> > > do

> > > > > this, or what? How many of you out there deal with this

> daily?

> > I

> > > > > think I'm in a terrible cycle... feel worn out, feel like I

> > can't

> > > > do

> > > > > anything, feel depressed, so I feel more worn out!

> > > > >

> > > > > Thanks in advance for input!

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I get the flu-ish symptoms too. From what I can tell, this is common

in RA? As the day progresses, the aches increase and by evening I'm

usually running a slight fever. Overnight I often wake up in sweats. I

just generally feel like I have the flu.

I used to think that once I had the morning stiffness conquered all

would be great. Then I discovered that I may have a few good hours

before these other symptoms creep up on me. And then the nighttime

voodoo-doll syndrome.

[Guest guest]

Thank you so much ....you've put my mind at ease. I'll see

what happens. I should qualify for their insurance by the end of

July I would guess. Thank you too for your good luck wishes. I'm

feeling a little better about it all. I think my partner is going to

take me to work in the morning and then my Mother will pick me up in

the afternoons so I won't have to deal with the hike from the parking

lot to casino and then from there to the office. I'll just have to

deal with getting to the office from wherever I can go inside. That

is a huge relief for me because I can't walk too far without a

break. I'm sure the first few days will be rough but I'll manage.

Thinking very positively here!!

Take good care,

Sharon in NJ

> > >

> > > Sharon,

> > > I only take predisone when I have really bad flare that lasts

> days.

> > I

> > > don't get fevers or anything like that, but my body aches so

> > bad...it

> > > hurts to do anything.

> > > Congrads on the new job. The only thing I can suggest is that

> you

> > do

> > > get a handicapped place card (if your PCP doesn't sign off,

most

> > > rheumy's are more willing to fill out the paperwork). It's

going

> > to

> > > be extremely hard when you first begin. You will probably be

so

> > > tired by the time you get home, you will just want to sleep.

> Pace

> > > yourself. I hope it will get easier on you once you get on a

> > routine

> > > schedule. Drink coffee all day if you need to keep you awake.

> > Before

> > > you start working, talk to your rheumy on what your game plan

> > should

> > > be since you can't take a nap in the afternoon. Best of luck to

> > you,

> > > just keep a positive outlook for the most part. Take advantage

> of

> > > being able to work. I had to quit working a little more then a

> year

> > > ago and I miss it. Best of luck to you.

> > >

> > >

> > >

[Guest guest]

I am right there with all of you...I think its the constant pain and the fear of

the constant pain that wears us down. I dont really have any advice yet because

I am so new to this. But I do wish you the best of luck.

________________________________________________________________________________\

____

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http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

In a message dated 6/19/2008 1:06:25 P.M. Central Daylight Time,

cherblue2002@... writes:

How does everyone handle the fatigue, awful exhaustion, just

don't care-I am laying down attitude.

This is going to be one of my questions for the Rheumatologist when I see

him July 1st. So far, I have handled it by doing what I want to do -- lay down.

I save my energy for the most important things. I feel best in the evening.

What I need to ask is whether the fatigue means your body needs to rest or

if it's ok to take something to zip you up a little. Like I rarely use

caffeine, so a coke will do it.

Interesting about Provigil. My husband is on it for narcolepsy.

dd

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

The fatigue I get sometimes is literally nauseating. If I don't sit back and

rest or nap, I feel as though I will throw up. Awful.

Cheryle aka Tess

[Guest guest]

Hello Margaret. My doctor prescribed Provigil and it really helped my fatigue.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Lori,

I hope my question isn't rude, but how much did the med cost you.

Would like to try it, but I've heard it's very expensive. I'm

wondering if there might be a generic. My fatigue is so bad, I can't

hardly do anything. I've had fatigue for so long, I just feel like

it's a part of my life now. But, it would be nice to feel better.

Have a nice day, Tawny

>

> Hello Margaret. My doctor prescribed Provigil and it really helped

my fatigue.

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

>

>

[Guest guest]

Not rude at all Tawny! It's covered under my medical insurance, and my copay is

$40. There is no generic form available at this time. I get the 200mg and cut

them in half with my pill cutter, so in effect I only pay $20 per month for

them. I really struggled with terrible fatigue for over a year before my doctor

suggested trying these.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[ ] Re: Fatigue

Lori,

I hope my question isn't rude, but how much did the med cost you.

Would like to try it, but I've heard it's very expensive. I'm

wondering if there might be a generic. My fatigue is so bad, I can't

hardly do anything. I've had fatigue for so long, I just feel like

it's a part of my life now. But, it would be nice to feel better.

Have a nice day, Tawny

.

[Guest guest]

Do they affect how you sleep at night?

On Wed, Sep 10, 2008 at 12:41 PM, Stitching Queen <queenstitcher@...

> wrote:

> Not rude at all Tawny! It's covered under my medical insurance, and my

> copay is $40. There is no generic form available at this time. I get the

> 200mg and cut them in half with my pill cutter, so in effect I only pay $20

> per month for them. I really struggled with terrible fatigue for over a year

> before my doctor suggested trying these.

> Lori

>

http://home.comcast.net/~queenstitcher/<http://home.comcast.net/%7Equeenstitcher\

/>

> http://stitchingqueen.multiply.com

>

> [ ] Re: Fatigue

>

> Lori,

>

> I hope my question isn't rude, but how much did the med cost you.

> Would like to try it, but I've heard it's very expensive. I'm

> wondering if there might be a generic. My fatigue is so bad, I can't

> hardly do anything. I've had fatigue for so long, I just feel like

> it's a part of my life now. But, it would be nice to feel better.

> Have a nice day, Tawny

> .

>

>

>

[Guest guest]

Thanks for sharing! I will talk to my rheumy, which my appointment

isn't until Nov. You have a great day, Tawny

>

> Not rude at all Tawny! It's covered under my medical insurance,

and my copay is $40. There is no generic form available at this

time. I get the 200mg and cut them in half with my pill cutter, so

in effect I only pay $20 per month for them. I really struggled with

terrible fatigue for over a year before my doctor suggested trying

these.

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

[Guest guest]

Margaret,

I saw that someone else already responded with a medication for

fatigue. So glad that you brought this up. I have complained forever

to my rheummy about fatigue. I will have to check into Provigil also.

I hope you are having a better day today.

Shirley

--- In , " Margaret " <margaret.kamphorst@...>

wrote:

>

> Hi,

> Does anyone have any suggestions on how to deal with the fatigue that

> comes with RA? I literally slept from getting off work yesterday to

> when I had to go in today.. and I'm still exhausted.. are the meds

> supposed to help with this? I just feel like a zombie just trying

> to get through the days so I can sleep.

> -Margaret

>

[Guest guest]

No, Provigil doesn't effect my sleep at all. I'm actually very lucky that I

don't experience any side effects from it. My rheumatologist did tell me to

watch out for heart palpitations and he said that it can make you feel antsy.

It is originally prescribed for people with narcolepsy as well as those who are

shift workers. I really was at the end of my rope before I tried this. I was

so fatigued that I was falling asleep a couple times a day even though I was

getting a decent nights sleep. Now that I take it, I'm still a tiny bit tired,

but not enough for me to increase the dosage.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

Re: [ ] Re: Fatigue

Do they affect how you sleep at night?

.

[Guest guest]

:pri,

I too take provigil and it jas done womders for me. It's doesn't me

a antsy, keep up at night...noting loke that. I feel like I don't

need to take a nap throughout the day. Granted, mu am sleep but it's

because I just had major abdominal surgery.

>

> No, Provigil doesn't effect my sleep at all. I'm actually very

lucky that I don't experience any side effects from it. My

rheumatologist did tell me to watch out for heart palpitations and he

said that it can make you feel antsy. It is originally prescribed

for people with narcolepsy as well as those who are shift workers. I

really was at the end of my rope before I tried this. I was so

fatigued that I was falling asleep a couple times a day even though I

was getting a decent nights sleep. Now that I take it, I'm still a

tiny bit tired, but not enough for me to increase the dosage.

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

> Re: [ ] Re: Fatigue

>

>

> Do they affect how you sleep at night?

>

> .

>

>

>

[Guest guest]

Before taking Provegil, check the meds you're on because they cause

fatigue and weakness, especially Planquanil. Doc gave me Provagil

sample to try and it did nothing for me but Plaquanil put me in the

hospital with weakness.

Be careful with your meds.

Stella

> >

> > Hello Margaret. My doctor prescribed Provigil and it really

helped

> my fatigue.

> > Lori

> > http://home.comcast.net/~queenstitcher/

> > http://stitchingqueen.multiply.com

> >

> >

> >

> >

> >

[Guest guest]

Tawny,

I had to see my GP's partner yesterday and told him how the beta-

blocker has really added to my fatigue. He told me to take Coenzyme

Q-10 100MG once a day. It is for energy and he takes it because of

the same problem. Here is a site where you can check it out. There

are some drug interaction warnings, such as if you are a diabetic.

http://altmedicine.about.com/b/2006/09/27/what-is-coenzyme-q10.htm

Read it carefully and you might want to check with your doctor. It

is an over the counter supplement. I paid about $16 for a month

supply.

Shirley

>

> > >

> > > Hello Margaret. My doctor prescribed Provigil and it really

> helped

> > my fatigue.

> > > Lori

> > > http://home.comcast.net/~queenstitcher/

> > > http://stitchingqueen.multiply.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Stella and group;

I do feel very weak. I am on plaquenil. I just started taking

humira injections. Which is great cause it stoped the RA pain

completly. I hope it last. I am going to tell my rheumy about my

weakines. I was thinking I was weak because I didnt move around for

so long from the RA pain. I really feel so tired and weak. Thanks

STella.

gentle hugs

Clora

> Before taking Provegil, check the meds you're on because they

cause

> fatigue and weakness, especially Planquanil. Doc gave me Provagil

> sample to try and it did nothing for me but Plaquanil put me in

the

> hospital with weakness.

>

[Guest guest]

Clora,

PLEASE talk to your doc immediately and don't let him brush you off.

Look up Plaquanil on the internet and print out out whatever you can

and highlight the specific verbage on weakness and fatigue. Tell him

about me in your support group or what ever you can think of but tell

him you want to wean off so you can see that it is the med that could

be causing your weakness. I thought just like you, but I kept pushing

trying to prove that I can make myself stronger (only to get myself

to bed for a couple of days) and that I can do what I have to around

the house (couldn't fold laundry because of weakness or talk for 5

min on the phone). Be firm for yourself.

Gopod luck and let me know what the doc says.

Stella

>

> Stella and group;

>

> I do feel very weak. I am on plaquenil. I just started taking

> humira injections. Which is great cause it stoped the RA pain

> completly. I hope it last. I am going to tell my rheumy about my

> weakines. I was thinking I was weak because I didnt move around for

> so long from the RA pain. I really feel so tired and weak. Thanks

> STella.

>

> gentle hugs

> Clora

>

>

> > Before taking Provegil, check the meds you're on because they

> cause

> > fatigue and weakness, especially Planquanil. Doc gave me

Provagil

> > sample to try and it did nothing for me but Plaquanil put me in

> the

> > hospital with weakness.

> >

>

[Guest guest]

Stella,

Most of my meds cause fatigue:( I will talk to my rheumy at my next

appointment. Thanks, Tawny

>

> Before taking Provegil, check the meds you're on because they cause

> fatigue and weakness, especially Planquanil. Doc gave me Provagil

> sample to try and it did nothing for me but Plaquanil put me in the

> hospital with weakness.

>

> Be careful with your meds.

> Stella

>

[Guest guest]

Shirley,

I hope it helps, let me know. I will ask my doc when I see her next

time. I do have pre-diabetes, so I need to be careful. I am

interested if it helps you, I'm praying it will. Does it take awhile

to work? It would be much cheaper, and that is what we all are

looking for. Take care, Tawny

>

> Tawny,

> I had to see my GP's partner yesterday and told him how the beta-

> blocker has really added to my fatigue. He told me to take Coenzyme

> Q-10 100MG once a day. It is for energy and he takes it because of

> the same problem. Here is a site where you can check it out. There

> are some drug interaction warnings, such as if you are a diabetic.

>

> http://altmedicine.about.com/b/2006/09/27/what-is-coenzyme-q10.htm

>

> Read it carefully and you might want to check with your doctor. It

> is an over the counter supplement. I paid about $16 for a month

> supply.

> Shirley

>

[Guest guest]

Stella and group;

I certainlly will talk to my RA doctor about this fatigue Stella. The

plaqunil never even help in the first plase I have been taking it for

almost a year now. With out even any relief from the RA pain.

hugs

Clora

> Clora,

>

> PLEASE talk to your doc immediately and don't let him brush you

off.

> Look up Plaquanil on the internet and print out out whatever you can

> and highlight the specific verbage on weakness and fatigue. Tell

him

> about me in your support group or what ever you can think of but

[Guest guest]

Tawny,

I have no idea how long. I will let you know when I see results. The

jury is still out.

Shirley

>

> Shirley,

>

> I hope it helps, let me know. I will ask my doc when I see her next

> time. I do have pre-diabetes, so I need to be careful. I am

> interested if it helps you, I'm praying it will. Does it take

awhile

> to work? It would be much cheaper, and that is what we all are

> looking for. Take care, Tawny

[Guest guest]

Hi Shirley,

Hope your having a good day. I am doing a little cleaning, so much

for relaxing. I do a little bit, and I keep up with my work. I pray

the med works for you, and you will be able to rid a little of that

fatigue. Take care, Tawny

>

> Tawny,

> I have no idea how long. I will let you know when I see results.

The

> jury is still out.

> Shirley

>

>

[Guest guest]

Tawny,

Thanks, Sweetie. I was going to try and attend a funeral but going

yesterday just did me in, so I have only rested today.

I hope you are having a good day also. Did you get to see that

beautiful grandbaby? She is just a doll.

Shirley

>

> Hi Shirley,

>

> Hope your having a good day. I am doing a little cleaning, so

much

> for relaxing. I do a little bit, and I keep up with my work. I

pray

> the med works for you, and you will be able to rid a little of

that

> fatigue. Take care, Tawny