Fatigue

March 25, 2003

yes i made it through the day. i also did a bunch of housework so i could

enjoy my day off. i just realized i just took my first set of tylenols today.

wow, unbelievable. kathy in il

January 28, 2004

hi pat if i may call you that i too find it troubling and still trying to

figure it out ive got step kids and boy is it trying im taking a nerve pill but

i just dont think it works let me know how your feeling ty for listening god

bless hugs cindy

January 29, 2004

Dear ,

I too was recently diagnosed with RA and I have been on plaqenil since

October and I too am tired and don't like doing anything after I get off from

work

as I am so tired. Also, the plaqenil causes me to have diarrhea after I eat.

I just about have gotten to the point to not want to eat because of being so

sick afterwards. Do you have the same problem?

This question if for whoever can answer:

Is there a particular diet that we should be on?

This is a great group and I am a newbie myself and really don't post but I

have learned so much info from all of your emails. The support is great!

Love,

Wanda

January 29, 2004

Wanda,

One of my diabetes medications caused me severe diarrhea. I started

eating yogurt every day, and I no longer have that problem. It would be

worth a try. Sue

On Thursday, January 29, 2004, at 12:54 AM, waferg63@... wrote:

> Also, the plaqenil causes me to have diarrhea after I eat.

> I just about have gotten to the point to not want to eat because of

> being so

> sick afterwards. Do you have the same problem?

January 29, 2004

Wanda and Sue:

For what it is worth....I too, am plagued with diarrhea, however my " finf " has

been that I now drink two or three 8 - 12 oz glasses of fruit or vegetable juice

a day ie; vegetable juice such as V-8, 100% grape juice, ruby red grapefruit

juice etc. You would think it would cause the problem to become worse but it

has been totally oposite for me. I do eat yoghurt once to maybe three times a

week but the dramatic change did not come until I started the juices...almost

immediately.

Good luck in finding what works for you and stick with it.

Take care all and this includes TLC for yourself.

Jan in CA =^..^=

----- Original Message -----

Wanda,

One of my diabetes medications caused me severe diarrhea. I started eating

yogurt every day, and I no longer have that problem. It would be worth a try.

Sue

On Thursday, January 29, 2004, at 12:54 AM, waferg63@... wrote:

Also, the plaqenil causes me to have diarrhea after I eat.

I just about have gotten to the point to not want to eat because of being so

sick afterwards. Do you have the same problem?

January 29, 2004

Wanda and Sue:

That " finf " is " find " ....sorry.

Jan in CA

Re: [ ] Fatigue

Wanda and Sue:

For what it is worth....I too, am plagued with diarrhea, however my " finf " has

been that I now drink two or three 8 - 12 oz glasses of fruit or vegetable juice

a day ie; vegetable juice such as V-8, 100% grape juice, ruby red grapefruit

juice etc. You would think it would cause the problem to become worse but it

has been totally oposite for me. I do eat yoghurt once to maybe three times a

week but the dramatic change did not come until I started the juices...almost

immediately.

Good luck in finding what works for you and stick with it.

Take care all and this includes TLC for yourself.

Jan in CA =^..^=

----- Original Message -----

Wanda,

One of my diabetes medications caused me severe diarrhea. I started eating

yogurt every day, and I no longer have that problem. It would be worth a try.

Sue

On Thursday, January 29, 2004, at 12:54 AM, waferg63@... wrote:

Also, the plaqenil causes me to have diarrhea after I eat.

I just about have gotten to the point to not want to eat because of being so

sick afterwards. Do you have the same problem?

January 29, 2004

Thanks Jan and I will try the juices and see if that helps.

Wanda

In a message dated 1/29/2004 5:20:38 PM Central Standard Time,

momacat2@... writes:

> Wanda and Sue:

>

> For what it is worth....I too, am plagued with diarrhea, however my " finf "

> has been that I now drink two or three 8 - 12 oz glasses of fruit or

> vegetable juice a day ie; vegetable juice such as V-8, 100% grape juice, ruby

red

> grapefruit juice etc. You would think it would cause the problem to become

> worse but it has been totally oposite for me. I do eat yoghurt once to maybe

> three times a week but the dramatic change did not come until I started the

> juices...almost immediately.

> Good luck in finding what works for you and stick with it.

> Take care all and this includes TLC for yourself.

> Jan in CA =^..^=

>

January 30, 2004

the fatigue

> thing is really getting me down.........I find that

> the hardest thing to manage........I am just too tired

> to exercise anymore.............any suggestions

I've practiced yoga for more than 20 years. There are breathing

exercises that are very invigorating. I'm sure you could find some

descriptions of them on-line...cetainly in books. " Alternate nostril

breathing " is a good one.

Sierra

March 24, 2004

Hi: I used to take trazadone at bedtime and it used to make me so droswy all

day. I finally got off of that. Now I take zoloft and I am much better as

far as drowsiness and depression too. Ask your Dr.

My name is . I am a member of RA Support too.

Good luck.

Anjillah@...

March 24, 2004

Hi,

For me, no one medication helped with the fatigue. It was finding the

right combination that did it. When I was on Enbrel and Humira my

joint pain improved but I was still fatigued. I had bad side-effects

with both and stopped taking them. I also take Wellbutrin XL which

may also be helping. I'm sure you've done this, but I would advise

asking your Rheumy or doctor if there is anything that would help.

Best of luck to you...

Alan

--- In , " eaprescott " <aphillips@h...>

wrote:

> Hi Group. Thanks for making my day at work so informative, I read

> all the digests, which sometimes makes me late for meetings but I

> wouldn't miss keeping up with all of you. This time I need a

little

> advice, I read Alan's post with interest since he mentioned that

the

> fatigue problem was much improved with his medication change.

Well,

> I am on Methotrexate (inj.) and Plaquenil and I am so tired

sometimes

> I'm frightened I will fall asleep driving home. Since the metho is

> working for the joint pain I don't think my rheumy will add

anything

> else. I'm not sure if the Plaquenil is still working, I just don't

> want to go off of something that worked for such a long time and my

> dr. agrees. Now, am I missing something or is there anything I can

> do to help with the fatigue? I'm exhausted all the time. I take

> Trazadone at bedtime to sleep and have been on Effexor for

depression

> for five years, it works great. Help!

March 24, 2004

I tell my friends & family I am having a " Dercum day " and they know

what I mean now. First thing every morning when we wake up, if I

don't get up right away, Ron asks if I want him to let me sleep, and

if I say yes, he just quietly get up and shaves & dresses and goes

downstairs. At least I am blessed with the luxury of being retired

and only work one day a week, but on that one day if I am in a Dercum

day, man it's sure hard to drag myself in, so I can relate.

Last week on bowling night (yes, I do bowl one night a week, not very

well, but it's a couples' league, and mostly for fun) one of the

women looked at me and asked why I was bowling so bad, and then

said " you don't need that cane! " I wanted to hit her, but I just

ignored her. People can be insensitive when they can't really see or

feel what's wrong with you. Ron asked her if she'd ever heard me

crying at 2 in the morning, or watched me hobble to the bathroom in

the morning.

All I can say, is do your best to rest when you can, and hopefully

some day these people will understand.

Judi

March 27, 2004

Have you asked your doctor about your fatigue, Ann? Are you taking your

folic acid and are you taking enough?

How long have you been taking Trazodone? I'm assuming that you didn't

have fatigue problems since starting Effexor five years ago.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] fatigue

> Hi Group. Thanks for making my day at work so informative, I read

> all the digests, which sometimes makes me late for meetings but I

> wouldn't miss keeping up with all of you. This time I need a little

> advice, I read Alan's post with interest since he mentioned that the

> fatigue problem was much improved with his medication change. Well,

> I am on Methotrexate (inj.) and Plaquenil and I am so tired sometimes

> I'm frightened I will fall asleep driving home. Since the metho is

> working for the joint pain I don't think my rheumy will add anything

> else. I'm not sure if the Plaquenil is still working, I just don't

> want to go off of something that worked for such a long time and my

> dr. agrees. Now, am I missing something or is there anything I can

> do to help with the fatigue? I'm exhausted all the time. I take

> Trazadone at bedtime to sleep and have been on Effexor for depression

> for five years, it works great. Help!

March 29, 2004

Welcome, ! Sorry about your RA diagnosis and your fatigue.

Here are some good links to information on fatigue:

" Mastering the Impact of Fatigue in Rheumatoid Arthritis " from the

Hospital for Special Surgery:

http://www.rheumatology.hss.edu/pat/eduPrograms/livingRA/fatigue_n_RA.asp

" Fatigue: When You Don't Feel Like Fighting " from the Arthritis

Foundation:

http://www.arthritis.org/resources/arthritistoday/2002_archives/2002_05_06_Fatig\

ue_p2.asp

From HealthTalk, " Living Well with RA: Managing Pain and Fatigue " :

http://www.healthtalk.com/rheumatoidarthritis/programs/111202/index.cfm

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Fwd: Re: [ ] fatigue

> Hi , this is the first time i'm writing in this

> support group , but l have RA and l'm 25 going to be

> 26 in April . l was diagnosed 4 years ago , and l'm

> currently taking Plaquenil .

> l feel fatigue alot of the time and l had no idea that

> RA can make you feel fatigue , and l understand how

> you all feel , and l also get annoyed with other

> people who don't understand what we are going thourgh

> !

> And l'm so glad l found this support group because it

> helps me so much to know that there are other's out

> there that know exactly what l'm going through .

>

July 8, 2004

That is a great article. Thank you for posting it. Fatigue is my

biggest problem right now. My mom says she gets fatigued, but not to

the point of sleep. I could take a nap every day and do when I am

given the chance. She thinks that is not normal, too much fatigue

even for RA. Who knows, but she wants me to mention it to my rheumy

next week so we'll see what he says. I remember when I was younger I

could sleep until 11 or noon on a Saturday or Sunday. Then as I got

older I would automatically wake up around 8am. I guess I've gone

full circle because I can sleep till noon again. Jennie

> Hi all. I found this article called Mastering the Impact of

Fatigue in Rheumatoid Arthritis and found it to be helpful.

Hopefully someone else can benefit from it too. Here is the link:

> www.rheumatology.hss.edu/pat/eduPrograms/livingRA/fatigue_n_RA.asp

>

> Sharon

>

July 8, 2004

--- I can understand your fatigue. Hy husband tells me I am tired

more than anyone he has ever known. It does go way beyond just

taking a little nap!!! I hope your rheumatologist has some good

advice for you. Mine just tells me to pace myself and get plenty of

rest. Good advice...but not very realistic for a wife of a high-

energy husband and mother of a six year old. Good luck - Sharon

Oh... and for your mom...tell her that there is no " normal " when

dealing with a systemic illness. Maybe there is something more

going on, but your exhaustion is certainly understandable.

In , " xponder70 " <xponder70@y...> wrote:

> That is a great article. Thank you for posting it. Fatigue is my

> biggest problem right now. My mom says she gets fatigued, but not

to

> the point of sleep. I could take a nap every day and do when I am

> given the chance. She thinks that is not normal, too much fatigue

> even for RA. Who knows, but she wants me to mention it to my

rheumy

> next week so we'll see what he says. I remember when I was

younger I

> could sleep until 11 or noon on a Saturday or Sunday. Then as I

got

> older I would automatically wake up around 8am. I guess I've gone

> full circle because I can sleep till noon again. Jennie

>

> > Hi all. I found this article called Mastering the Impact of

> Fatigue in Rheumatoid Arthritis and found it to be helpful.

> Hopefully someone else can benefit from it too. Here is the link:

> >

www.rheumatology.hss.edu/pat/eduPrograms/livingRA/fatigue_n_RA.asp

> >

> > Sharon

> >

July 8, 2004

I feel the same fatigue that you do. I am taking Provigil for it and it helps

but I'm just less fatigued, still fatigued though. I can sleep all night and

get up and feel like I never slept.

Becky

[ ] Re: fatigue