Fatigue

[Guest guest]

Viver

LDN can be had in caps, in a transdermal cream developed by Dr McCandless and in liquid form. Just ask Dr Skip Lenz at www.skipspharmacy.com. Then, consider contacting your doc and getting the prescription re-written. Good luck to you and are you aware that there is an LDN cancer group? It is LDN_4_cancer.

mjhSieven low dose Naltrexone groupsldnsupport, LDN_Users, SpotlightLDN, Autism_LDN, NewGenLDNUsers, LDN_4_cancer, LDN_HIVAIDSProceedings of the 2nd LDN Conference, 2006, www.skipspharmacy.com

Posted by: "Vivianne Israel" sheji@... gamzaft

Thu Jul 19, 2007 12:43 pm (PST)

Marshiris,I have a question for you--At the end of one of your earlier post (shows at the bottom of these posts), you mentioned "...I increased to the 4.5 mg transdermal/cream gel, with no ill-effects at all. ..."My question: does LDN come in more than one form? the 4.5 .mg transdermal/cream gel worked well for you. Had the other doses you had been taking come in a different form (pill, liquid, whatever)?I am very new to the awareness of LDN but I hadn't given any thought as to what form(s) it came in. My oncologist has agreed to write a script for me, yesterday; however, we had 3 large issues to deal with yesterday and I forgot to remind him of that as I was leaving. So I don't know what form or forms it comes in; if so which mght be better than others.I would appreciate any input you have. I will be taking LDN for lymphedema.I hope your new dosage level/delivery continues to work for you--allowing some level of "perkiness" so you can do what you need to do!Thank you,ViverGet a sneak peek of the all-new AOL.com.

[Guest guest]

WANDA - no, i don't think the increase of LDN had anything to do with the sleepiness!! now, that i've taken the full 4.5 mgs., without the excess sleepiness, i'm really inclined to believe it was the ultram + LDN that did the job on me!! even with a less dose - 2.5 mgs., + ultram, i had extreme sleepiness!! hope i never have to take the ultram for pain again!!

marshiris@...

Get a sneak peek of the all-new AOL.com.

[Guest guest]

Joy:

Fatigue makes me feel like it's hard to do ANYTHING. Aside from pain, fatigue

has been my #1 complaint. In fact, severe fatigue is what started me on my

journey to diagnosis of RA & Fibro. Some things I just don't do anymore.

Walking long distances is one of them. Although I still make greuling grocery

shopping trips (groceries for 6 people for 2 weeks) that last 2 or more hours

while I'm pushing a heavy basket, that is only on " good days " . On a bad day

where I have to go out, I take advantage of the handicap parking spaces, use the

scooters provided by the stores and bring my teenage boys along to do all the

lifting and basket-pushing.

Before being diagnosed, one bout of fatigue I had was so extreme that I

thought I was having a heart attack. I slept almost constantly for 3 days. It

was like running a marathon to get from my bed to my toilet in the adjacent

bathroom (about 5 feet). It took great effort to even breathe. I ended up in

the ER and had everybody scared, including the drs. They ran tons of tests on

me in the hospital, cardio, pulmonary, etc. and could not find a thing wrong

with me. I slept ALOT. That is the worst bout I've ever had and it was not

long after that that I was diagnosed.

Sometimes, I feel my muscles have lost their strength. Don't let your family

make you feel bad about taking it slow. The old saying goes, " Slow and steady

wins the race. " And for those of us who walk in a fog, slow and steady keeps us

on our feet instead of flat on our faces!

God bless you today!

in Texas

Joy <jhoorm01@...> wrote:

Does fatigue make you feel like it is hard to walk? Like your muscles

just don't want

to co operate. My kids and hubby say how slow I walk and how I should be walking

faster and not like a grandma. Almost like if I walk to fast I will fall. My

feet do swell and hurt but now it just feels like I amwalking in a fog. Do any

of you feel like this? I hate going shopping or on events like a festival etc.

Just the thought of walking puts me off.

Joy

[Guest guest]

Thanks for writing back. I am sorry you have that problem too but

sometimes

it is nice to hear that others have had it and get thru it too.

Joy

Pou <jenncrew@...> wrote:

Joy:

Fatigue makes me feel like it's hard to do ANYTHING. Aside from pain, fatigue

has been my #1 complaint. In fact, severe fatigue is what started me on my

journey to diagnosis of RA & Fibro. Some things I just don't do anymore. Walking

long distances is one of them. Although I still make greuling grocery shopping

trips (groceries for 6 people for 2 weeks) that last 2 or more hours while I'm

pushing a heavy basket, that is only on " good days " . On a bad day where I have

to go out, I take advantage of the handicap parking spaces, use the scooters

provided by the stores and bring my teenage boys along to do all the lifting and

basket-pushing.

Before being diagnosed, one bout of fatigue I had was so extreme that I thought

I was having a heart attack. I slept almost constantly for 3 days. It was like

running a marathon to get from my bed to my toilet in the adjacent bathroom

(about 5 feet). It took great effort to even breathe. I ended up in the ER and

had everybody scared, including the drs. They ran tons of tests on me in the

hospital, cardio, pulmonary, etc. and could not find a thing wrong with me. I

slept ALOT. That is the worst bout I've ever had and it was not long after that

that I was diagnosed.

Sometimes, I feel my muscles have lost their strength. Don't let your family

make you feel bad about taking it slow. The old saying goes, " Slow and steady

wins the race. " And for those of us who walk in a fog, slow and steady keeps us

on our feet instead of flat on our faces!

God bless you today!

in Texas

Joy <jhoorm01@...> wrote:

Does fatigue make you feel like it is hard to walk? Like your muscles just don't

want

to co operate. My kids and hubby say how slow I walk and how I should be walking

faster and not like a grandma. Almost like if I walk to fast I will fall. My

feet do swell and hurt but now it just feels like I amwalking in a fog. Do any

of you feel like this? I hate going shopping or on events like a festival etc.

Just the thought of walking puts me off.

Joy

[Guest guest]

Hi Joy,

My problem with walking is my legs start to burn and then will hurt. It

seems to be a domino effect, as the legs get tired my body follows suit. I

want so bad to go to the carnival that is in our town but I know about

halfway out of the parking lot I will be wiped out. I hate going to the

grocery store, thank God for carts to lean on. Now if they could just make

something to clear the cobwebs in my head while shopping all would be good.

I will just stop and stare at the shelves, knowing I came to that aisle for

something but sure as hell can't remember ( of course when I get home its

right there in my head just what I needed and forgot to get. LOL).Anyway I

figure someday there has to be a reward for living with these DDs. I hope

you have a painfree day and now I have to figure out what I need at the

store..

Heidi M

On 9/14/07, Pou <jenncrew@...> wrote:

>

> Joy:

>

> Fatigue makes me feel like it's hard to do ANYTHING. Aside from pain,

> fatigue has been my #1 complaint. In fact, severe fatigue is what started me

> on my journey to diagnosis of RA & Fibro. Some things I just don't do

> anymore. Walking long distances is one of them. Although I still make

> greuling grocery shopping trips (groceries for 6 people for 2 weeks) that

> last 2 or more hours while I'm pushing a heavy basket, that is only on " good

> days " . On a bad day where I have to go out, I take advantage of the handicap

> parking spaces, use the scooters provided by the stores and bring my teenage

> boys along to do all the lifting and basket-pushing.

>

> Before being diagnosed, one bout of fatigue I had was so extreme that I

> thought I was having a heart attack. I slept almost constantly for 3 days.

> It was like running a marathon to get from my bed to my toilet in the

> adjacent bathroom (about 5 feet). It took great effort to even breathe. I

> ended up in the ER and had everybody scared, including the drs. They ran

> tons of tests on me in the hospital, cardio, pulmonary, etc. and could not

> find a thing wrong with me. I slept ALOT. That is the worst bout I've ever

> had and it was not long after that that I was diagnosed.

>

> Sometimes, I feel my muscles have lost their strength. Don't let your

> family make you feel bad about taking it slow. The old saying goes, " Slow

> and steady wins the race. " And for those of us who walk in a fog, slow and

> steady keeps us on our feet instead of flat on our faces!

>

> God bless you today!

>

> in Texas

>

> Joy <jhoorm01@... <jhoorm01%40>> wrote:

> Does fatigue make you feel like it is hard to walk? Like your muscles just

> don't want

> to co operate. My kids and hubby say how slow I walk and how I should be

> walking

> faster and not like a grandma. Almost like if I walk to fast I will fall.

> My feet do swell and hurt but now it just feels like I amwalking in a fog.

> Do any of you feel like this? I hate going shopping or on events like a

> festival etc. Just the thought of walking puts me off.

> Joy

>

>

[Guest guest]

Thanks Heidi

Good luck at the store. I know when the store clerks as if I found everything

I needed

it always starts me chuckling.

Joy

Heidi Mendelsohn <hmendelsohn@...> wrote:

Hi Joy,

My problem with walking is my legs start to burn and then will hurt. It

seems to be a domino effect, as the legs get tired my body follows suit. I

want so bad to go to the carnival that is in our town but I know about

halfway out of the parking lot I will be wiped out. I hate going to the

grocery store, thank God for carts to lean on. Now if they could just make

something to clear the cobwebs in my head while shopping all would be good.

I will just stop and stare at the shelves, knowing I came to that aisle for

something but sure as hell can't remember ( of course when I get home its

right there in my head just what I needed and forgot to get. LOL).Anyway I

figure someday there has to be a reward for living with these DDs. I hope

you have a painfree day and now I have to figure out what I need at the

store..

Heidi M

On 9/14/07, Pou <jenncrew@...> wrote:

>

> Joy:

>

> Fatigue makes me feel like it's hard to do ANYTHING. Aside from pain,

> fatigue has been my #1 complaint. In fact, severe fatigue is what started me

> on my journey to diagnosis of RA & Fibro. Some things I just don't do

> anymore. Walking long distances is one of them. Although I still make

> greuling grocery shopping trips (groceries for 6 people for 2 weeks) that

> last 2 or more hours while I'm pushing a heavy basket, that is only on " good

> days " . On a bad day where I have to go out, I take advantage of the handicap

> parking spaces, use the scooters provided by the stores and bring my teenage

> boys along to do all the lifting and basket-pushing.

>

> Before being diagnosed, one bout of fatigue I had was so extreme that I

> thought I was having a heart attack. I slept almost constantly for 3 days.

> It was like running a marathon to get from my bed to my toilet in the

> adjacent bathroom (about 5 feet). It took great effort to even breathe. I

> ended up in the ER and had everybody scared, including the drs. They ran

> tons of tests on me in the hospital, cardio, pulmonary, etc. and could not

> find a thing wrong with me. I slept ALOT. That is the worst bout I've ever

> had and it was not long after that that I was diagnosed.

>

> Sometimes, I feel my muscles have lost their strength. Don't let your

> family make you feel bad about taking it slow. The old saying goes, " Slow

> and steady wins the race. " And for those of us who walk in a fog, slow and

> steady keeps us on our feet instead of flat on our faces!

>

> God bless you today!

>

> in Texas

>

> Joy <jhoorm01@... <jhoorm01%40>> wrote:

> Does fatigue make you feel like it is hard to walk? Like your muscles just

> don't want

> to co operate. My kids and hubby say how slow I walk and how I should be

> walking

> faster and not like a grandma. Almost like if I walk to fast I will fall.

> My feet do swell and hurt but now it just feels like I amwalking in a fog.

> Do any of you feel like this? I hate going shopping or on events like a

> festival etc. Just the thought of walking puts me off.

> Joy

>

>

[Guest guest]

I love your stories. They make me feel like my promblems are normal

for this RA. I write grocery lists - one itime at a time - and leave

the list on the middle of the table. Then, I get to the store I have

to read the list 10 times or so in each isle to make sure I get

everything. It would be faster if I just sent somebody!

> > Does fatigue make you feel like it is hard to walk? Like your

muscles just

> > don't want

> > to co operate. My kids and hubby say how slow I walk and how I

should be

> > walking

> > faster and not like a grandma. Almost like if I walk to fast I

will fall.

> > My feet do swell and hurt but now it just feels like I amwalking

in a fog.

> > Do any of you feel like this? I hate going shopping or on events

like a

> > festival etc. Just the thought of walking puts me off.

> > Joy

> >

> >

[Guest guest]

I'm not sure if its comforting, nerve racking or just pathetic. I

just sat here reading everyones posts and I'm crying uncontrollably.

I think it has to do with feeling each of your issues as my own, the

comfort of knowing that I'm not alone (all though it really feels that

way at times) or possibly because I'm just completely tired of trying

to hide all my symptoms (when its possible)so as not to make anyone

uncomfortable around me.

I don't have a strait diagnosis yet... but I've been dealing with this

since march and I'm already sick and tired of being sick and tired....

and I'm just waiting to get fired for falling asleep when I should be

typing or writing at work.

Tomorrow I'm suppose to go to a flee market with an old co-worker/long

distant friend (she knows I'm having problems, but she hasn't actually

seen them because I'm always too tired to venture out and would

rather hide then deal with people's pity or sympathy) I still don't

know what I'm going to do after we're there for 20 minutes and I

become exhausted and over whelmed with pain. Even my Husband hates

making plans to go out, because he says that he can't stand to see me

struggling and he knows that going out only makes me worse later in

the day.

I can also relate to the grocery store horrors. My husband has been

going along to help, and I finally got it through his head that I need

to push the cart, because I use it to lean on. Then last week the

cart was only 3/4 full and I could no longer push it and had to ask

him to take over due to the fatigue, joint pain and muscle weakness.

Wouldn't you know, he then wanted to proceed to argue with me that I

need to push it to walk....Ahhhh! Then in the middle of the crowded

store I had to explain to him that I was physically incapable. He got

it, but then wanted to make jokes about wishing he had a tape recorder

so that he'd have proof that I actually gave in and admitted

defeat... Sorry guys..... But will men ever learn, or are they just

incapable! When he finally realized that I had tears in my eyes, he

offered to leave the store to run me home and he said he would come

back later (which was nice but we live 40 minutes away)... needless to

say, I just went to the car and took a nap until he was done... Lord

I hate this!!!!!

Sorry, I guess I needed to let off some steam.... God only knows that

this list saves my hubby alot of complaining.

Thanks for letting me rant...

Bonnie

[Guest guest]

Joy, when fatigue hits me, I feel like I am walking around with a huge

load of bricks in my pockets. I can hardly move and if I wake up with

it, then it takes me twice as long if not longer to get out of bed or

even reach for the phone on the bedside when it is ringing. You are

not alone in this, though it is difficult to get those who don't go

through it to understand. I haven't come across anything that helps.

Heck, I used to work in surgery and as a nurse I tried to get my

manager to understand that there is a huge difference between being

tired/exhausted and being fatigued. She's a nurse and didn't have a

clue. Thankfully I worked primarely with orthopedic surgeons and they

new what I was going through and did everything they could to help me.

Just like RA or Lupus, if you don't have it then you will never

understand what the person with it is going through. Hang in there.

You are not alone. Hugs and prayers, Marina

>

> Does fatigue make you feel like it is hard to walk? Like your muscles

just don't want

> to co operate. My kids and hubby say how slow I walk and how I

should be walking

> faster and not like a grandma. Almost like if I walk to fast I will

fall. My feet do swell and hurt but now it just feels like I amwalking

in a fog. Do any of you feel like this? I hate going shopping or on

events like a festival etc. Just the thought of walking puts me off.

> Joy

>

>

>

[Guest guest]

Re the flea market. We took a light weight folding chair and attatched a luggage

strap to it so I could carry on my shoulder. It allows me to go to flea markets

and festivals and sit when I need to. Good luck but do not stop living. Who

cares if strangers stare.

Bonnie <tiredtaz@...> wrote: I'm not sure if its comforting,

nerve racking or just pathetic. I

just sat here reading everyones posts and I'm crying uncontrollably.

I think it has to do with feeling each of your issues as my own, the

comfort of knowing that I'm not alone (all though it really feels that

way at times) or possibly because I'm just completely tired of trying

to hide all my symptoms (when its possible)so as not to make anyone

uncomfortable around me.

I don't have a strait diagnosis yet... but I've been dealing with this

since march and I'm already sick and tired of being sick and tired....

and I'm just waiting to get fired for falling asleep when I should be

typing or writing at work.

Tomorrow I'm suppose to go to a flee market with an old co-worker/long

distant friend (she knows I'm having problems, but she hasn't actually

seen them because I'm always too tired to venture out and would

rather hide then deal with people's pity or sympathy) I still don't

know what I'm going to do after we're there for 20 minutes and I

become exhausted and over whelmed with pain. Even my Husband hates

making plans to go out, because he says that he can't stand to see me

struggling and he knows that going out only makes me worse later in

the day.

I can also relate to the grocery store horrors. My husband has been

going along to help, and I finally got it through his head that I need

to push the cart, because I use it to lean on. Then last week the

cart was only 3/4 full and I could no longer push it and had to ask

him to take over due to the fatigue, joint pain and muscle weakness.

Wouldn't you know, he then wanted to proceed to argue with me that I

need to push it to walk....Ahhhh! Then in the middle of the crowded

store I had to explain to him that I was physically incapable. He got

it, but then wanted to make jokes about wishing he had a tape recorder

so that he'd have proof that I actually gave in and admitted

defeat... Sorry guys..... But will men ever learn, or are they just

incapable! When he finally realized that I had tears in my eyes, he

offered to leave the store to run me home and he said he would come

back later (which was nice but we live 40 minutes away)... needless to

say, I just went to the car and took a nap until he was done... Lord

I hate this!!!!!

Sorry, I guess I needed to let off some steam.... God only knows that

this list saves my hubby alot of complaining.

Thanks for letting me rant...

Bonnie

Raniolo

[Guest guest]

Bonnie,

I do not have RA- hubby does. However, due to a toxic poisoning at work and

the associated health issues, I did not see the back of a store for 2-3

years.

Finally, I realized that I could continue to miss out on life.... Shopping,

family fun trips, festivals, visiting neighbors..... Or I could just ignore

my upbringing tapes - i.e.: buck up and move on, push through it and stop

giving up......and ride the cart. I thought it was for old folks and I was

still in my 30's.....

WOW! A whole new world opened up! I could keep up w/ my family and friends

and they were so happy to see me doing things that they did not mind being

with the lady on the cart.

We finally bought one. Bought a van and ramps and now, 11 years later, it is

a part of my life- and - because of it ( and other aids) I have a life! (

still not a life as it was before- but at least I am not always tired and

unable to go anywhere)

My niece and nephew always want to ride w/ auntie on the cart, little kids

all wish they could ride it- so I try and wave and smile at them as I ride

past! LOL

There comes a point where ya look at the available tools and decide to let

go of all of the " Brain messages- tapes " and use them.

I also take B-12 - used to take shots but now use the mega dose sublingual.

I also take Co-Q-10 as recommended by the Chronic Fatigue folks. For

several years I did well with a shot called Kutapressin- but it became to

expensive.

I say all this to make the point that there are aids to help- we just often

are to proud or unaware to grab hold and utilize them.

I hope this makes sense and offers hope ( if not- chaulk it up to brain fog

and 4:30 am - can't sleep ramblings)

Hang in there-

God Bless

Karolyn

-- [ ] Re: fatigue

I'm not sure if its comforting, nerve racking or just pathetic. I

just sat here reading everyones posts and I'm crying uncontrollably.

I think it has to do with feeling each of your issues as my own, the

comfort of knowing that I'm not alone (all though it really feels that

way at times) or possibly because I'm just completely tired of trying

to hide all my symptoms (when its possible)so as not to make anyone

uncomfortable around me.

I don't have a strait diagnosis yet... but I've been dealing with this

since march and I'm already sick and tired of being sick and tired....

and I'm just waiting to get fired for falling asleep when I should be

typing or writing at work.

Tomorrow I'm suppose to go to a flee market with an old co-worker/long

distant friend (she knows I'm having problems, but she hasn't actually

seen them because I'm always too tired to venture out and would

rather hide then deal with people's pity or sympathy) I still don't

know what I'm going to do after we're there for 20 minutes and I

become exhausted and over whelmed with pain. Even my Husband hates

making plans to go out, because he says that he can't stand to see me

struggling and he knows that going out only makes me worse later in

the day.

I can also relate to the grocery store horrors. My husband has been

going along to help, and I finally got it through his head that I need

to push the cart, because I use it to lean on. Then last week the

cart was only 3/4 full and I could no longer push it and had to ask

him to take over due to the fatigue, joint pain and muscle weakness.

Wouldn't you know, he then wanted to proceed to argue with me that I

need to push it to walk....Ahhhh! Then in the middle of the crowded

store I had to explain to him that I was physically incapable. He got

it, but then wanted to make jokes about wishing he had a tape recorder

so that he'd have proof that I actually gave in and admitted

defeat... Sorry guys..... But will men ever learn, or are they just

incapable! When he finally realized that I had tears in my eyes, he

offered to leave the store to run me home and he said he would come

back later (which was nice but we live 40 minutes away)... needless to

say, I just went to the car and took a nap until he was done... Lord

I hate this!!!!!

Sorry, I guess I needed to let off some steam.... God only knows that

this list saves my hubby alot of complaining.

Thanks for letting me rant...

Bonnie

[Guest guest]

I'd be concerned about getting tired faster due to the extra weight...

Does it really help?

Bonnie

I'm not sure if its

comforting, nerve racking or just pathetic. I

> just sat here reading everyones posts and I'm crying uncontrollably.

> I think it has to do with feeling each of your issues as my own, the

> comfort of knowing that I'm not alone (all though it really feels that

> way at times) or possibly because I'm just completely tired of trying

> to hide all my symptoms (when its possible)so as not to make anyone

> uncomfortable around me.

> I don't have a strait diagnosis yet... but I've been dealing with this

> since march and I'm already sick and tired of being sick and tired....

> and I'm just waiting to get fired for falling asleep when I should be

> typing or writing at work.

> Tomorrow I'm suppose to go to a flee market with an old co-worker/long

> distant friend (she knows I'm having problems, but she hasn't actually

> seen them because I'm always too tired to venture out and would

> rather hide then deal with people's pity or sympathy) I still don't

> know what I'm going to do after we're there for 20 minutes and I

> become exhausted and over whelmed with pain. Even my Husband hates

> making plans to go out, because he says that he can't stand to see me

> struggling and he knows that going out only makes me worse later in

> the day.

> I can also relate to the grocery store horrors. My husband has been

> going along to help, and I finally got it through his head that I need

> to push the cart, because I use it to lean on. Then last week the

> cart was only 3/4 full and I could no longer push it and had to ask

> him to take over due to the fatigue, joint pain and muscle weakness.

> Wouldn't you know, he then wanted to proceed to argue with me that I

> need to push it to walk....Ahhhh! Then in the middle of the crowded

> store I had to explain to him that I was physically incapable. He got

> it, but then wanted to make jokes about wishing he had a tape recorder

> so that he'd have proof that I actually gave in and admitted

> defeat... Sorry guys..... But will men ever learn, or are they just

> incapable! When he finally realized that I had tears in my eyes, he

> offered to leave the store to run me home and he said he would come

> back later (which was nice but we live 40 minutes away)... needless to

> say, I just went to the car and took a nap until he was done... Lord

> I hate this!!!!!

>

> Sorry, I guess I needed to let off some steam.... God only knows that

> this list saves my hubby alot of complaining.

> Thanks for letting me rant...

> Bonnie

>

>

>

>

>

>

>

> Raniolo

>

>

[Guest guest]

I doubt it weighs more than 2 pounds but have not verfied that.

If I get tired faster, I simply find shade and tell those I am with we will

meet later.

Bonnie <tiredtaz@...> wrote:

I'd be concerned about getting tired faster due to the extra weight...

Does it really help?

Bonnie

I'm not sure if its

comforting, nerve racking or just pathetic. I

> just sat here reading everyones posts and I'm crying uncontrollably.

> I think it has to do with feeling each of your issues as my own, the

> comfort of knowing that I'm not alone (all though it really feels that

> way at times) or possibly because I'm just completely tired of trying

> to hide all my symptoms (when its possible)so as not to make anyone

> uncomfortable around me.

> I don't have a strait diagnosis yet... but I've been dealing with this

> since march and I'm already sick and tired of being sick and tired....

> and I'm just waiting to get fired for falling asleep when I should be

> typing or writing at work.

> Tomorrow I'm suppose to go to a flee market with an old co-worker/long

> distant friend (she knows I'm having problems, but she hasn't actually

> seen them because I'm always too tired to venture out and would

> rather hide then deal with people's pity or sympathy) I still don't

> know what I'm going to do after we're there for 20 minutes and I

> become exhausted and over whelmed with pain. Even my Husband hates

> making plans to go out, because he says that he can't stand to see me

> struggling and he knows that going out only makes me worse later in

> the day.

> I can also relate to the grocery store horrors. My husband has been

> going along to help, and I finally got it through his head that I need

> to push the cart, because I use it to lean on. Then last week the

> cart was only 3/4 full and I could no longer push it and had to ask

> him to take over due to the fatigue, joint pain and muscle weakness.

> Wouldn't you know, he then wanted to proceed to argue with me that I

> need to push it to walk....Ahhhh! Then in the middle of the crowded

> store I had to explain to him that I was physically incapable. He got

> it, but then wanted to make jokes about wishing he had a tape recorder

> so that he'd have proof that I actually gave in and admitted

> defeat... Sorry guys..... But will men ever learn, or are they just

> incapable! When he finally realized that I had tears in my eyes, he

> offered to leave the store to run me home and he said he would come

> back later (which was nice but we live 40 minutes away)... needless to

> say, I just went to the car and took a nap until he was done... Lord

> I hate this!!!!!

>

> Sorry, I guess I needed to let off some steam.... God only knows that

> this list saves my hubby alot of complaining.

> Thanks for letting me rant...

> Bonnie

>

>

>

>

>

>

>

> Raniolo

>

>

[Guest guest]

I doubt it weighs more than 2 pounds but have not verfied that.

If I get tired faster, I simply find shade and tell those I am with we will

meet later.

Bonnie <tiredtaz@...> wrote:

I'd be concerned about getting tired faster due to the extra weight...

Does it really help?

Bonnie

I'm not sure if its

comforting, nerve racking or just pathetic. I

> just sat here reading everyones posts and I'm crying uncontrollably.

> I think it has to do with feeling each of your issues as my own, the

> comfort of knowing that I'm not alone (all though it really feels that

> way at times) or possibly because I'm just completely tired of trying

> to hide all my symptoms (when its possible)so as not to make anyone

> uncomfortable around me.

> I don't have a strait diagnosis yet... but I've been dealing with this

> since march and I'm already sick and tired of being sick and tired....

> and I'm just waiting to get fired for falling asleep when I should be

> typing or writing at work.

> Tomorrow I'm suppose to go to a flee market with an old co-worker/long

> distant friend (she knows I'm having problems, but she hasn't actually

> seen them because I'm always too tired to venture out and would

> rather hide then deal with people's pity or sympathy) I still don't

> know what I'm going to do after we're there for 20 minutes and I

> become exhausted and over whelmed with pain. Even my Husband hates

> making plans to go out, because he says that he can't stand to see me

> struggling and he knows that going out only makes me worse later in

> the day.

> I can also relate to the grocery store horrors. My husband has been

> going along to help, and I finally got it through his head that I need

> to push the cart, because I use it to lean on. Then last week the

> cart was only 3/4 full and I could no longer push it and had to ask

> him to take over due to the fatigue, joint pain and muscle weakness.

> Wouldn't you know, he then wanted to proceed to argue with me that I

> need to push it to walk....Ahhhh! Then in the middle of the crowded

> store I had to explain to him that I was physically incapable. He got

> it, but then wanted to make jokes about wishing he had a tape recorder

> so that he'd have proof that I actually gave in and admitted

> defeat... Sorry guys..... But will men ever learn, or are they just

> incapable! When he finally realized that I had tears in my eyes, he

> offered to leave the store to run me home and he said he would come

> back later (which was nice but we live 40 minutes away)... needless to

> say, I just went to the car and took a nap until he was done... Lord

> I hate this!!!!!

>

> Sorry, I guess I needed to let off some steam.... God only knows that

> this list saves my hubby alot of complaining.

> Thanks for letting me rant...

> Bonnie

>

>

>

>

>

>

>

> Raniolo

>

>

[Guest guest]

I guess I'll be on the look out for a light weight chair...

Thanks, I'll try anything once...

Bonnie

I'm not sure if its

> comforting, nerve racking or just pathetic. I

> > just sat here reading everyones posts and I'm crying uncontrollably.

> > I think it has to do with feeling each of your issues as my own, the

> > comfort of knowing that I'm not alone (all though it really feels that

> > way at times) or possibly because I'm just completely tired of trying

> > to hide all my symptoms (when its possible)so as not to make anyone

> > uncomfortable around me.

> > I don't have a strait diagnosis yet... but I've been dealing with this

> > since march and I'm already sick and tired of being sick and tired....

> > and I'm just waiting to get fired for falling asleep when I should be

> > typing or writing at work.

> > Tomorrow I'm suppose to go to a flee market with an old co-worker/long

> > distant friend (she knows I'm having problems, but she hasn't actually

> > seen them because I'm always too tired to venture out and would

> > rather hide then deal with people's pity or sympathy) I still don't

> > know what I'm going to do after we're there for 20 minutes and I

> > become exhausted and over whelmed with pain. Even my Husband hates

> > making plans to go out, because he says that he can't stand to see me

> > struggling and he knows that going out only makes me worse later in

> > the day.

> > I can also relate to the grocery store horrors. My husband has been

> > going along to help, and I finally got it through his head that I need

> > to push the cart, because I use it to lean on. Then last week the

> > cart was only 3/4 full and I could no longer push it and had to ask

> > him to take over due to the fatigue, joint pain and muscle weakness.

> > Wouldn't you know, he then wanted to proceed to argue with me that I

> > need to push it to walk....Ahhhh! Then in the middle of the crowded

> > store I had to explain to him that I was physically incapable. He got

> > it, but then wanted to make jokes about wishing he had a tape recorder

> > so that he'd have proof that I actually gave in and admitted

> > defeat... Sorry guys..... But will men ever learn, or are they just

> > incapable! When he finally realized that I had tears in my eyes, he

> > offered to leave the store to run me home and he said he would come

> > back later (which was nice but we live 40 minutes away)... needless to

> > say, I just went to the car and took a nap until he was done... Lord

> > I hate this!!!!!

> >

> > Sorry, I guess I needed to let off some steam.... God only knows that

> > this list saves my hubby alot of complaining.

> > Thanks for letting me rant...

> > Bonnie

> >

> >

> >

> >

> >

> >

> >

> > Raniolo

> >

> >

[Guest guest]

CVS sells a backpack chair for under 20 dollars. It was not good for me because

it was too close to ground. I would never get up....GRIN

Bonnie <tiredtaz@...> wrote: I guess I'll be on the look out

for a light weight chair...

Thanks, I'll try anything once...

Bonnie

I'm not sure if its

> comforting, nerve racking or just pathetic. I

> > just sat here reading everyones posts and I'm crying uncontrollably.

> > I think it has to do with feeling each of your issues as my own, the

> > comfort of knowing that I'm not alone (all though it really feels that

> > way at times) or possibly because I'm just completely tired of trying

> > to hide all my symptoms (when its possible)so as not to make anyone

> > uncomfortable around me.

> > I don't have a strait diagnosis yet... but I've been dealing with this

> > since march and I'm already sick and tired of being sick and tired....

> > and I'm just waiting to get fired for falling asleep when I should be

> > typing or writing at work.

> > Tomorrow I'm suppose to go to a flee market with an old co-worker/long

> > distant friend (she knows I'm having problems, but she hasn't actually

> > seen them because I'm always too tired to venture out and would

> > rather hide then deal with people's pity or sympathy) I still don't

> > know what I'm going to do after we're there for 20 minutes and I

> > become exhausted and over whelmed with pain. Even my Husband hates

> > making plans to go out, because he says that he can't stand to see me

> > struggling and he knows that going out only makes me worse later in

> > the day.

> > I can also relate to the grocery store horrors. My husband has been

> > going along to help, and I finally got it through his head that I need

> > to push the cart, because I use it to lean on. Then last week the

> > cart was only 3/4 full and I could no longer push it and had to ask

> > him to take over due to the fatigue, joint pain and muscle weakness.

> > Wouldn't you know, he then wanted to proceed to argue with me that I

> > need to push it to walk....Ahhhh! Then in the middle of the crowded

> > store I had to explain to him that I was physically incapable. He got

> > it, but then wanted to make jokes about wishing he had a tape recorder

> > so that he'd have proof that I actually gave in and admitted

> > defeat... Sorry guys..... But will men ever learn, or are they just

> > incapable! When he finally realized that I had tears in my eyes, he

> > offered to leave the store to run me home and he said he would come

> > back later (which was nice but we live 40 minutes away)... needless to

> > say, I just went to the car and took a nap until he was done... Lord

> > I hate this!!!!!

> >

> > Sorry, I guess I needed to let off some steam.... God only knows that

> > this list saves my hubby alot of complaining.

> > Thanks for letting me rant...

> > Bonnie

> >

> >

> >

> >

> >

> >

> >

> > Raniolo

> >

> >

[Guest guest]

hi I'm new to the group. I know what you're talking about with the

fatigue. I've had it for 16 yrs now among other things.

(OA,Fibromyalgia,chronic pain,inflamation of the spine,etc.)

I don't know of anything that will give me any energy. If any of you

know what could give me energy,I sure would appreciate it..

thanks,carol

[Guest guest]

Co-Q-10.... what is this?

How often do you get the B12 shots??

God is Great! from Karolyn <bluedune@...> wrote:

Bonnie,

I do not have RA- hubby does. However, due to a toxic poisoning at work and

the associated health issues, I did not see the back of a store for 2-3

years.

Finally, I realized that I could continue to miss out on life.... Shopping,

family fun trips, festivals, visiting neighbors..... Or I could just ignore

my upbringing tapes - i.e.: buck up and move on, push through it and stop

giving up......and ride the cart. I thought it was for old folks and I was

still in my 30's.....

WOW! A whole new world opened up! I could keep up w/ my family and friends

and they were so happy to see me doing things that they did not mind being

with the lady on the cart.

We finally bought one. Bought a van and ramps and now, 11 years later, it is

a part of my life- and - because of it ( and other aids) I have a life! (

still not a life as it was before- but at least I am not always tired and

unable to go anywhere)

My niece and nephew always want to ride w/ auntie on the cart, little kids

all wish they could ride it- so I try and wave and smile at them as I ride

past! LOL

There comes a point where ya look at the available tools and decide to let

go of all of the " Brain messages- tapes " and use them.

I also take B-12 - used to take shots but now use the mega dose sublingual.

I also take Co-Q-10 as recommended by the Chronic Fatigue folks. For

several years I did well with a shot called Kutapressin- but it became to

expensive.

I say all this to make the point that there are aids to help- we just often

are to proud or unaware to grab hold and utilize them.

I hope this makes sense and offers hope ( if not- chaulk it up to brain fog

and 4:30 am - can't sleep ramblings)

Hang in there-

God Bless

Karolyn

-- [ ] Re: fatigue

I'm not sure if its comforting, nerve racking or just pathetic. I

just sat here reading everyones posts and I'm crying uncontrollably.

I think it has to do with feeling each of your issues as my own, the

comfort of knowing that I'm not alone (all though it really feels that

way at times) or possibly because I'm just completely tired of trying

to hide all my symptoms (when its possible)so as not to make anyone

uncomfortable around me.

I don't have a strait diagnosis yet... but I've been dealing with this

since march and I'm already sick and tired of being sick and tired....

and I'm just waiting to get fired for falling asleep when I should be

typing or writing at work.

Tomorrow I'm suppose to go to a flee market with an old co-worker/long

distant friend (she knows I'm having problems, but she hasn't actually

seen them because I'm always too tired to venture out and would

rather hide then deal with people's pity or sympathy) I still don't

know what I'm going to do after we're there for 20 minutes and I

become exhausted and over whelmed with pain. Even my Husband hates

making plans to go out, because he says that he can't stand to see me

struggling and he knows that going out only makes me worse later in

the day.

I can also relate to the grocery store horrors. My husband has been

going along to help, and I finally got it through his head that I need

to push the cart, because I use it to lean on. Then last week the

cart was only 3/4 full and I could no longer push it and had to ask

him to take over due to the fatigue, joint pain and muscle weakness.

Wouldn't you know, he then wanted to proceed to argue with me that I

need to push it to walk....Ahhhh! Then in the middle of the crowded

store I had to explain to him that I was physically incapable. He got

it, but then wanted to make jokes about wishing he had a tape recorder

so that he'd have proof that I actually gave in and admitted

defeat... Sorry guys..... But will men ever learn, or are they just

incapable! When he finally realized that I had tears in my eyes, he

offered to leave the store to run me home and he said he would come

back later (which was nice but we live 40 minutes away)... needless to

say, I just went to the car and took a nap until he was done... Lord

I hate this!!!!!

Sorry, I guess I needed to let off some steam.... God only knows that

this list saves my hubby alot of complaining.

Thanks for letting me rant...

Bonnie

[Guest guest]

Hi Joy

I used to get B-12 shots, 1cc 1 time a week, we combined it w/ thiamine 1cc

also in the same needle- IM. Later when the fatigue was less, we moved it to

1 time a month.

Now I buy sublingual B-12 mega dose from walmart. Seems to almost do as well

Co Q 10 is available at any place that sells vitamins. It helps the heart

and cells. I do not know how it helps the fatigue- but it does- ya might

want to Google CO Q-10 and fatigue and see what ya get.....

Karolyn

-- [ ] Re: fatigue

I'm not sure if its comforting, nerve racking or just pathetic. I

just sat here reading everyones posts and I'm crying uncontrollably.

I think it has to do with feeling each of your issues as my own, the

comfort of knowing that I'm not alone (all though it really feels that

way at times) or possibly because I'm just completely tired of trying

to hide all my symptoms (when its possible)so as not to make anyone

uncomfortable around me.

I don't have a strait diagnosis yet... but I've been dealing with this

since march and I'm already sick and tired of being sick and tired....

and I'm just waiting to get fired for falling asleep when I should be

typing or writing at work.

Tomorrow I'm suppose to go to a flee market with an old co-worker/long

distant friend (she knows I'm having problems, but she hasn't actually

seen them because I'm always too tired to venture out and would

rather hide then deal with people's pity or sympathy) I still don't

know what I'm going to do after we're there for 20 minutes and I

become exhausted and over whelmed with pain. Even my Husband hates

making plans to go out, because he says that he can't stand to see me

struggling and he knows that going out only makes me worse later in

the day.

I can also relate to the grocery store horrors. My husband has been

going along to help, and I finally got it through his head that I need

to push the cart, because I use it to lean on. Then last week the

cart was only 3/4 full and I could no longer push it and had to ask

him to take over due to the fatigue, joint pain and muscle weakness.

Wouldn't you know, he then wanted to proceed to argue with me that I

need to push it to walk....Ahhhh! Then in the middle of the crowded

store I had to explain to him that I was physically incapable. He got

it, but then wanted to make jokes about wishing he had a tape recorder

so that he'd have proof that I actually gave in and admitted

defeat... Sorry guys..... But will men ever learn, or are they just

incapable! When he finally realized that I had tears in my eyes, he

offered to leave the store to run me home and he said he would come

back later (which was nice but we live 40 minutes away)... needless to

say, I just went to the car and took a nap until he was done... Lord

I hate this!!!!!

Sorry, I guess I needed to let off some steam.... God only knows that

this list saves my hubby alot of complaining.

Thanks for letting me rant...

Bonnie

[Guest guest]

Time to consult a doctor and don't rule-out a geneticist.-- In

, " eglove " <eglove@...> wrote:

>

> Hi everyone,

>

> Anyone have any advice for a child that always seems fatigued. I know

> all kids get tired, need plenty of sleep etc etc. My 6 yr old will

> just want to lay down on the sidelines of his soccer game, it was

> extremely hot. At PE yesterday he was the only kid that was laying on

> the grass. Just thought he needs an extra boost of something. If

> anyone has something to try please let me know. The only thing he

> takes right now is B12 injections.

>

> Thanks!

>

[Guest guest]

>

> Hi everyone,

>

> Anyone have any advice for a child that always seems fatigued. I know

> all kids get tired, need plenty of sleep etc etc. My 6 yr old will

> just want to lay down on the sidelines of his soccer game, it was

> extremely hot. At PE yesterday he was the only kid that was laying on

> the grass. Just thought he needs an extra boost of something. If

> anyone has something to try please let me know. The only thing he

> takes right now is B12 injections.

>

> Thanks!

>

maybe some type of folic acid

Wanda

[Guest guest]

.. Fatigue is common to neural damage (autism or whatever). Our son was so

fatigued (and depressed) he could barely function. He is well now from the

DAN protocol.

He needs diet, supplement support, then maybe chelatiion, too.

</message/106433;_ylc=X3oDMTJz

NmI4N2dzBF9TAzk3MzU5NzE1BGdycElkAzMyOTc1MzEEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lk

AzEwNjQzMwRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMTkwMTgyNDM2> Fatigue

Posted by: " eglove " <mailto:eglove@...?Subject=%20Re%3AFatigue>

eglove@... <eglove> eglove

Tue Sep 18, 2007 2:06 pm (PST)

Hi everyone,

Anyone have any advice for a child that always seems fatigued. I know

all kids get tired, need plenty of sleep etc etc. My 6 yr old will

just want to lay down on the sidelines of his soccer game, it was

extremely hot. At PE yesterday he was the only kid that was laying on

the grass. Just thought he needs an extra boost of something. If

anyone has something to try please let me know. The only thing he

takes right now is B12 injections.

Thanks!

[Guest guest]

HI, Just popping in here.

I agree with stansmum, about checking the thyroid.

Laying down on the sidelines sounds really bad. I would immediately

take him to the dr and ask for a complete blood workup. My thyroid is

bad, (just found out) and I cannot stand to even be in the sun as it

feels like I am baking in an oven. It is a horrible sensation.

>

> Hi everyone,

>

> Anyone have any advice for a child that always seems fatigued. I know

> all kids get tired, need plenty of sleep etc etc. My 6 yr old will

> just want to lay down on the sidelines of his soccer game, it was

> extremely hot. At PE yesterday he was the only kid that was laying on

> the grass. Just thought he needs an extra boost of something. If

> anyone has something to try please let me know. The only thing he

> takes right now is B12 injections.

>

> Thanks!

>

[Guest guest]

> Anyone have any advice for a child that always seems fatigued. I know

> all kids get tired, need plenty of sleep etc etc. My 6 yr old will

> just want to lay down on the sidelines of his soccer game, it was

> extremely hot. At PE yesterday he was the only kid that was laying on

> the grass. Just thought he needs an extra boost of something. If

> anyone has something to try please let me know. The only thing he

> takes right now is B12 injections.

For adults [and a few kids] with phenol intolerance issues, high

phenol foods, and certain supplements, can cause this issue. B

vitamins is one of those supplements. When do you give the shots?

My kids required folic acid and carnitine before they tolerated B12.

It also did tend to cause yeast overgrowth for a few months.

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

Hi Dana,

And thanks everyone else too. I give his shots at night while he

sleeps. You know I mentioned he'll lay down on the sidelines at a

game, just kinda being lazy rolling in the grass but then if I get

him home he'll just be running around like normal. I know I need to

start giving something else besides B12, we have other things RX

from his DAN but because of $ haven't started yet. He's been on B12

for over a year, don't know if they are working so well now. Just

took a urine sample yesterday to do the full OAT testing again.

Thanks again.

> > Anyone have any advice for a child that always seems fatigued.

I know

> > all kids get tired, need plenty of sleep etc etc. My 6 yr old

will

> > just want to lay down on the sidelines of his soccer game, it

was

> > extremely hot. At PE yesterday he was the only kid that was

laying on

> > the grass. Just thought he needs an extra boost of something.

If

> > anyone has something to try please let me know. The only thing

he

> > takes right now is B12 injections.

>

>

> For adults [and a few kids] with phenol intolerance issues, high

> phenol foods, and certain supplements, can cause this issue. B

> vitamins is one of those supplements. When do you give the shots?

>

> My kids required folic acid and carnitine before they tolerated

B12.

> It also did tend to cause yeast overgrowth for a few months.

>

> http://www.danasview.net/phenol.htm

>

> Dana

>