Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 Steph, I was told that I will probably develop Lupus - trust me, scared me to death. I may still develop it?? Who knows. I have HORRIBLE HORRIBLE joint pains and so many other Lupus symptoms. I don't want Lupus but if it happens, I will have to learn to live with it. I can't worry about it now though, I will just leave it in God's hands and know that he won't give me anything I can't handle. Lynn Re: Fatigue I know that i have to stop worrying but I can't help it. I really didn't know what lupus was and now I'm scared I have it! I don't have any joint pain so I don't know why I'm making myself worry!> > > >> > > > Hi, I've also been experiencing fatigue. Are there any > > supplements or > > > > something that has helped that anyone knows of? I couldn't find > > any > > > > info on it. Thanks!> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 LOL !! We are the queens. It isn't too fun of a club to be a member of though - I wouldn't recommend it. Lynn Re: Fatigue I thought Lynn and I were the queens of "scary health issue researchon the Internet." You can join our club if you want... but it isprobably too early after surgery to be concerned with fatigue. I wasso prone to it for about 6 weeks after surgery. There were days whenI would have to go back to bed... I would just crash. I haven't hadthat happen in a few weeks now. So... give it time. No supplementshelped with my energy level... time helped.Take care.> > >> > > Hi, I've also been experiencing fatigue. Are there any > supplements or > > > something that has helped that anyone knows of? I couldn't find > any > > > info on it. Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 A rheumatologist would be the one to see if you think you have Lupus. You need to get your ANA checked. Mine was postive and going up each time I was seen. This is why I was told that I will probably have Lupus one day, just not yet - oh, joy joy. Lynn Re: Fatigue I'm not sure but I suppose I could ask. When I went to my dr's today she had me to more blood work for CBC and Sed Rate, but that's it. I guess I should just wait since it's only been a week since I've been explanted.> > > > > >> > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > supplements or > > > > > > something that has helped that anyone knows of? I couldn't > > find > > > > any > > > > > > info on it. Thanks!> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Stephie ~ There is no place on the web that talks about breast implant illness and all the symptoms besides the groups that have lived with the condition. Like us and others like us. No medical site, doctor site, or drug company site, or even collage of medicine such as Harvard or any of them, have any knowledge on breast implant illness. You cant learn about something if you dont acknowledge it exists ! They are the biggest group of people with monetary denial I can think of. Denial earns them money..... Just know, you are in the right place to learn, right here. Hugs N Prayers ~ DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Thanks, it is tough to be patient but I have no other choice but in the meantime I'm not going to research the symptoms anymore. > > > > > > Hi, I've also been experiencing fatigue. Are there any > supplements or > > > something that has helped that anyone knows of? I couldn't find > any > > > info on it. Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Steph, I have been diagnosed with Lupus. I have the positive blood tests, the symptoms, the skin rash that was biopsied which said it was Lupus. Do I really have it? I don't know. Maybe I have an autoimmune disease that is from the implants that causes lupus like symptoms... or maybe I have Lupus as a result of the damage the implants did to my body. I trust that if I have it, I can make it better, reduce the flares and severity of the flares by diet etc. As Lynn said, I have to leave this in Gods hands. I have had a blood test for leukemia/lymphoma and a liver/spleen scan in the past week (because my blood counts were dropping), I don't have problems with either.... no leukemia, lymphoma, no problems with my liver or spleen... all great news. I'm celebrating those things these days. > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > supplements or > > > > > something that has helped that anyone knows of? I couldn't > find > > > any > > > > > info on it. Thanks! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Lynn, No not fun when you decide you have all these rare diseases however... I still believe that knowledge is power. I was a teacher for 30 years.. I have to learn things, and right now, learning things about my health is what I do.... this might decrease with time but I only began getting really sick about 18 months ago, had abnormal tests almost a year ago, was diagnosed with lupus finally in Aug. and found out what damage my implants were doing in Aug... still all pretty new to me. I have tried not to get worried about each new disease things point to though... doesn't do anything but cause stress.. which we don't need. > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > supplements or > > > > something that has helped that anyone knows of? I couldn't find > > any > > > > info on it. Thanks! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 That is great news! What were you're symptoms and what kind of a skin rash did you have? > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > supplements or > > > > > > something that has helped that anyone knows of? I couldn't > > find > > > > any > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Hi Lynn, if you don't mind me asking besides the horrible joint pain what other symptoms do you have? > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > supplements or > > > > > something that has helped that anyone knows of? I couldn't > find > > > any > > > > > info on it. Thanks! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Stephie, Some of the symptoms crept in slowly. I began having more and more joint pain. This was a big issue after awhile. I became sensitive to things I had no problems with previously.... like pool chemicals and nail products. My skin rash was primarily on my arms. It was itchy patches or small bumps like bites... it remained for months though and so my skin stayed a blotchy pink in some places. They finally did 2 biopsy's on it after I had it for 4 months. One they sent to a local lab the other to the Mayo clinic. Both came back as a positive for Lupus or a connective tissue disease. I was disappointed... I wanted it to be nothing... but the rash is pretty much gone now. They tell me to stay out of the sun, or it will come back. I'll see when it gets warmer. > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > > supplements or > > > > > > > something that has helped that anyone knows of? I > couldn't > > > find > > > > > any > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 , I am so very happy that your tests came back normal!! Oh, this must give you such mental relief! Hugs, Lynn Re: Fatigue Steph,I have been diagnosed with Lupus. I have the positive blood tests,the symptoms, the skin rash that was biopsied which said it was Lupus.Do I really have it? I don't know. Maybe I have an autoimmunedisease that is from the implants that causes lupus like symptoms...or maybe I have Lupus as a result of the damage the implants did to mybody. I trust that if I have it, I can make it better, reduce theflares and severity of the flares by diet etc. As Lynn said, I haveto leave this in Gods hands. I have had a blood test forleukemia/lymphoma and a liver/spleen scan in the past week (because myblood counts were dropping), I don't have problems with either.... noleukemia, lymphoma, no problems with my liver or spleen... all greatnews. I'm celebrating those things these days. > > > > >> > > > > Hi, I've also been experiencing fatigue. Are there any > > > supplements or > > > > > something that has helped that anyone knows of? I couldn't > find > > > any > > > > > info on it. Thanks!> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Amen ! Lynn Re: Fatigue Lynn,No not fun when you decide you have all these rare diseases however...I still believe that knowledge is power. I was a teacher for 30years.. I have to learn things, and right now, learning things aboutmy health is what I do.... this might decrease with time but I onlybegan getting really sick about 18 months ago, had abnormal testsalmost a year ago, was diagnosed with lupus finally in Aug. and foundout what damage my implants were doing in Aug... still all pretty newto me.I have tried not to get worried about each new disease things point tothough... doesn't do anything but cause stress.. which we don't need.> > > >> > > > Hi, I've also been experiencing fatigue. Are there any > > supplements or > > > > something that has helped that anyone knows of? I couldn't find > > any > > > > info on it. Thanks!> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Lupus wise... joint and arthritic pain (BAD), pleuritic chest pain (for a couple of months), photsensitivity on my skin. I had fatigue too. After I got my thyroid staightened out, the fatigued is better. But you just had surgery. I was pretty sick after surgery. Who did your surgery? Here is a website I found on symptoms of Lupus: http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutintroduction.aspx?articleid=74 & zoneid=9 Achy joints / arthralgia (95 percent) Fever of more than 100 degrees F / 38 degrees C (90 percent) Arthritis / swollen joints (90 percent) Prolonged or extreme fatigue (81 percent) Skin Rashes (74 percent) Anemia (71 percent) Kidney Involvement (50 percent) Pain in the chest on deep breathing / pleurisy (45 percent) Butterfly-shaped rash across the cheeks and nose (42 percent) Sun or light sensitivity / photosensitivity (30 percent) Hair loss (27 percent) Abnormal blood clotting problems (20 percent) Raynaud's phenomenon / fingers turning white and/or blue in the cold (17 percent) Seizures (15 percent) Lynn Re: Fatigue Hi Lynn, if you don't mind me asking besides the horrible joint pain what other symptoms do you have?> > > > >> > > > > Hi, I've also been experiencing fatigue. Are there any > > > supplements or > > > > > something that has helped that anyone knows of? I couldn't > find > > > any > > > > > info on it. Thanks!> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 I've noticed for the past couple of days that if I'm in the sun my face will get red but then it goes away. That never happened to me before. That's why I'm scared about it because I know it's a symptom. > > > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > > > supplements or > > > > > > > > something that has helped that anyone knows of? I > > couldn't > > > > find > > > > > > any > > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Thanks I seen that too. I noticed that for the past couple of days if I'm in the sun my face gets red but then it disappears. But no where else but my face. I don't have any joint pain, just the fatigue. > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > supplements or > > > > > > something that has helped that anyone knows of? I couldn't > > find > > > > any > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 If you are super worried about it, I would go the a rheumatologist to get tests run. Even if it is just for the peace of mind of knowing it is negative. Rest and do try not to worry - I know it is much easier said than done. Hugs, Lynn Re: Fatigue Thanks I seen that too. I noticed that for the past couple of days if I'm in the sun my face gets red but then it disappears. But no where else but my face. I don't have any joint pain, just the fatigue. > > > > > >> > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > supplements or > > > > > > something that has helped that anyone knows of? I couldn't > > find > > > > any > > > > > > info on it. Thanks!> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Lynn, I am so happy too. With each " negative " test, I have something new to celebrate. > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > supplements or > > > > > > something that has helped that anyone knows of? I couldn't > > find > > > > any > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Stephie, This could be from your antibiotics or the meds lingering in your system after surgery. It sometimes takes a long time to get the effects of meds out of your system. http://arthritis.about.com/od/arthritismedications/a/sun_sensitivity.htm > > > > > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there > any > > > > > > > supplements or > > > > > > > > > something that has helped that anyone knows of? I > > > couldn't > > > > > find > > > > > > > any > > > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 I agree with Lynn... have the tests done for your peace of mind. Knowledge is power... and can be comforting. > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > > supplements or > > > > > > > something that has helped that anyone knows of? I > couldn't > > > find > > > > > any > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Thanks, I just checked info on keflex and it does show skin rash for one of the side effects. Do you know how long it takes for the antibiotics to get out of your system? In , " bnincongo " <bnincongo@...> wrote: > > Stephie, > > This could be from your antibiotics or the meds lingering in your > system after surgery. It sometimes takes a long time to get the > effects of meds out of your system. > > http://arthritis.about.com/od/arthritismedications/a/sun_sensitivity.h tm > > > > > > > > > > > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there > > any > > > > > > > > supplements or > > > > > > > > > > something that has helped that anyone knows of? I > > > > couldn't > > > > > > find > > > > > > > > any > > > > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Stephie- Try not to worry. The same thing happened with me and I was told I had lupus. The redness disappeared within a couple months and tests came back negative. Right now you still have lots of the medications in you from surgery which can give weird symptoms. Try not to stress...I know, easier said than done. The others can attest that I was a wreck in the beginning, obsessing about everything...worrying doesn't solve much. Your body has it's own built-in healing mechanisms. When things seem strange, it's usually just doing what needs to be done. - PH > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > > supplements or > > > > > > > something that has helped that anyone knows of? I > couldn't > > > find > > > > > any > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 So far I don't have to be back into work until the beginning of Dec so hopefully at least I won't have the fatigue by then. > > > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are there any > > > > > > supplements or > > > > > > > > something that has helped that anyone knows of? I > > couldn't > > > > find > > > > > > any > > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Amen Miss Dede. Lynn Re: Re: Fatigue Lynn, and All ~Ya, I think we all have been members of the club.... I tell ya, I was for sure for years and years. I now love the research and dont believe a word most doctors say......so, it is weird how your mindthoughts change with time. Love Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 My sons, girlfriends, doctor said it can take up to 4 weeks for some antibiotics to get out of our systems. Hang in there, > > > > > > > > > > > > > > > > > > > > > > Hi, I've also been experiencing fatigue. Are > there > > > any > > > > > > > > > supplements or > > > > > > > > > > > something that has helped that anyone knows of? I > > > > > couldn't > > > > > > > find > > > > > > > > > any > > > > > > > > > > > info on it. Thanks! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 I know it's such a shame. Today I have a weird feeling in my left had and my fingers feel tingley. This is new and I don't know what to do. I am so depressed over this. > > Stephie ~ > There is no place on the web that talks about > breast implant illness and all the symptoms > besides the groups that have lived with the > condition. Like us and others like us. > No medical site, doctor site, or drug company > site, or even collage of medicine such as > Harvard or any of them, have any knowledge > on breast implant illness. You cant learn about > something if you dont acknowledge it exists ! > They are the biggest group of people with > monetary denial I can think of. Denial earns > them money..... > Just know, you are in the right place to learn, > right here. > Hugs N Prayers ~ Dede > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
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