Fatigue

November 17, 2007

Stephie,

I'm sorry you're feeling depressed...we have all been there as it

goes along with this illness. It will pass though. What helps me

get through is reading inspirational quotes, praying, journaling,

listening to spiritual music or watching a comedy. You will find

what works for you. It's tough, I know, especially in the

beginning.

Many of us have felt suicidal at times but as Patty has said, the

clouds will lift. Regrettably, I wanted to end it all 1 month after

explant. Five months later though, I can't believe how things are

looking up and can't believe I was even thinking that. Just give it

time. Things will improve.

I had the same numbness, tingling, weird feelings and they have

diminished a great deal. They are occurring fewer and farther

between so I know my body is healing.

I think one of the things I did in the beginning was I focused on all

the strange symptoms and fear. Now instead of googling possible

diseases and reading horror stories, I google stories of recovery.

When I feel sad or scared, I reread some of the things written by

women who have recovered (Patty, Rogene, P and others). I

sometimes go to Patty's Myspace account because of the happy music

and photos. It reassures me that everything will be ok. Knowing

that they've fought this and won is hope and encouragment for us all.

Hang in there. We're all here for you. Love, - PH

> >

> > Stephie ~

> > There is no place on the web that talks about

> > breast implant illness and all the symptoms

> > besides the groups that have lived with the

> > condition. Like us and others like us.

> > No medical site, doctor site, or drug company

> > site, or even collage of medicine such as

> > Harvard or any of them, have any knowledge

> > on breast implant illness. You cant learn about

> > something if you dont acknowledge it exists !

> > They are the biggest group of people with

> > monetary denial I can think of. Denial earns

> > them money.....

> > Just know, you are in the right place to learn,

> > right here.

> > Hugs N Prayers ~ Dede

> >

> > ************************************** See what's new at

> http://www.aol.com

> >

>

November 17, 2007

What is the numbness and tingling from? It's so hard for me to talk

to my husband about it because he doesn't understand. I try to forget

about it but the tingling reminds me of what's going on.

> > >

> > > Stephie ~

> > > There is no place on the web that talks about

> > > breast implant illness and all the symptoms

> > > besides the groups that have lived with the

> > > condition. Like us and others like us.

> > > No medical site, doctor site, or drug company

> > > site, or even collage of medicine such as

> > > Harvard or any of them, have any knowledge

> > > on breast implant illness. You cant learn about

> > > something if you dont acknowledge it exists !

> > > They are the biggest group of people with

> > > monetary denial I can think of. Denial earns

> > > them money.....

> > > Just know, you are in the right place to learn,

> > > right here.

> > > Hugs N Prayers ~ Dede

> > >

> > > ************************************** See what's new at

> > http://www.aol.com

> > >

> >

>

November 17, 2007

How much Provigil do you take? Do you have any trouble with your insurance

company?

November 17, 2007

Steph,

I had all of what you are talking about. Weakness in my hand so bad I couldn't write with a pen. Then tingling in my hand. Also, my neck muscles were so weak it was hard to hold up my head - - I wanted to buy one of those foam neck collars.

Things have slowly improved but I still relapse. It is very very scary. I turned to the Lord and it helped with my depression.

Patience - again, it took me months to see any improvement and you are only a week or so out.

Hugs, Lynn

Re: Fatigue

I know it's such a shame. Today I have a weird feeling in my left had and my fingers feel tingley. This is new and I don't know what to do. I am so depressed over this.>> Stephie ~> There is no place on the web that talks about> breast implant illness and all the symptoms > besides the groups that have lived with the > condition. Like us and others like us.> No medical site, doctor site, or drug company> site, or even collage of medicine such as > Harvard or any of them, have any knowledge> on breast implant illness. You cant learn about> something if you dont acknowledge it exists ! > They are the biggest group of people with > monetary denial I can think of.

Denial earns> them money.....> Just know, you are in the right place to learn,> right here. > Hugs N Prayers ~ Dede> > > > ************ ********* ********* ******** See what's new at http://www.aol. com>

November 20, 2007

Very precious ! !

Hugs DCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

January 13, 2008

Ellen, i'm also tired and have adrenal exhaustion. i'd love to

hear what diet and supplements helped you out. thanks apkjacks

>

> Dear ,

>

> I'm sorry you're feeling that way.

> I know exactly what you mean. When I first had Lyme, I had to

husband

> my energy. So if I was able to prepare breakfast, that might be it

for

> the day.

> Then as I improved, I fixed breakfast AND washed the dishes.

> (Boy I remember - that was a big step!)

>

> Don't know if you saw my post- I found CoQ-10 made a big difference

> for my Lyme-fatigue.

> Is there any possibility that you have adrenal exhaustion which is

> what I have now?

> Abx can cause it. If you think you do, I could post the diet and

> supplements which have worked for me.

> I am already feeling better than before, altho not yet 100

percent.

>

> People have also found, and Buhner recommends, Siberian ginseng,

which

> I have not tried, altho I find any ginseng to be good for energy.

>

> regards,

> ellen

>

January 13, 2008

I personally could not take the Siberian Ginseng.

###

rasheedaas <rasheedaas@...> wrote:

Dear ,

I'm sorry you're feeling that way.

I know exactly what you mean. When I first had Lyme, I had to husband

my energy. So if I was able to prepare breakfast, that might be it for

the day.

Then as I improved, I fixed breakfast AND washed the dishes.

(Boy I remember - that was a big step!)

Don't know if you saw my post- I found CoQ-10 made a big difference

for my Lyme-fatigue.

Is there any possibility that you have adrenal exhaustion which is

what I have now?

Abx can cause it. If you think you do, I could post the diet and

supplements which have worked for me.

I am already feeling better than before, altho not yet 100 percent.

People have also found, and Buhner recommends, Siberian ginseng, which

I have not tried, altho I find any ginseng to be good for energy.

regards,

ellen

January 14, 2008

Couple things I took for fatigue way back when: malic acid with magnesium,

about 200mg at a time. I remember being able to go from the slow lane of the

swimming pool to the fast lane immediately. I also recall taking Cernitin bee

pollen - got good energy. Company is out of business, but how about the idea

of bee pollen for energy, I guess if it doesn't have allergens that bother us.

-- Robin

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

January 23, 2008

Gretchen,

Which medications are you on?

How's your diet?

What have you been doing to detox?

Have you been checked for adrenal fatigue?

Has your thyroid been checked?

There are so many things that can be affected.

I'd suggest that, first get fungal issues under control . . those issues an mimic many diseases.

Then follow a very healthy diet . . . It's very important that your body get high quality nutrients to build healthy cells.

Eercise, - - - but I'm sure you're already doing everything possible there.

Then start checking for possible causes of your symptoms.

You may benefit from a variety of detox programs . . .

And, when you start feeling better, try to start tapering off those meds. They all have side effects.

Hugs,

Rogene

January 23, 2008

Hi Gretchen,

I know you've posted in the past that detox didn't help you as much

as you had hoped. Maybe now that you're stronger, you could try some

of it again. I just did a liver flush and the effect it has had on

my vision, brain clarity and energy is huge. I've also been juice

fasting for a couple days...mostly veggies, some fruits. Definitely

not back to my old self, but I feel these both have been beneficial

for me. Also, don't laugh at this, but coffee enemas give me

increased energy. Didn't think I'd ever do anything like it, but on

the days I do, I have twice the energy from the days I don't.

Also, Dr. Kolb recommends Corvalen M for pain and fatigue.

http://www.youqa.com/diseases-conditions/1652-2-youqa.html

Good luck. Love, PH

--- In , " foxygretchy " <boobtruth@...>

wrote:

>

> I hope everyone is doing well over here.

>

> I came to ask a question about fatigue. As most of you know, my main

> symptom was memory loss and brain fog with the sickness.

>

> I am now almost 1 year post explant.. WOW~! But, I still suffer

> severe fatigue. I am back at work, but by the end of the day I want

> to just lay on the couch as my body kind of tries to re-coup from

the

> day - it is followed by a lot of muscle spasms and twitching.. and

> gets even worse if i havent taken my medications or eaten yet.

>

> On the weekends, I have to say that I am glued to the couch and am

> very tired and sick feeling.

>

> Any advice or experience on this? I guess it is just hard for me

> because before implants.. December 2006 - I was doing fitness shows

> and working out so much.. I want to ease back into a light program

> just to try to feel more normal.. but I can't get up in the morning

I

> am so tired and in the evening all I want to do is rest too.

>

> Thanks ladies.

>

> Love Gretchen

>

January 23, 2008

Honey, are you getting enough sleep? Please take care of our Angel and get plenty of rest.

Thank you for all of the great work that you are doing...Love you...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

Fatigue

I hope everyone is doing well over here.I came to ask a question about fatigue. As most of you know, my mainsymptom was memory loss and brain fog with the sickness.I am now almost 1 year post explant.. WOW~! But, I still suffersevere fatigue. I am back at work, but by the end of the day I wantto just lay on the couch as my body kind of tries to re-coup from theday - it is followed by a lot of muscle spasms and twitching.. andgets even worse if i havent taken my medications or eaten yet.On the weekends, I have to say that I am glued to the couch and amvery tired and sick feeling.Any advice or experience on this? I guess it is just hard for mebecause before implants.. December 2006 - I was doing fitness showsand working out so much.. I want to ease back into a light programjust to try to feel more normal.. but I can't get up in the morning Iam so tired and in the evening all I want to do is rest too.Thanks ladies.Love Gretchen

January 24, 2008

Gretchen, I am so sorry that you suffer from horrible fatigue. I still get very tired with a lack of desire to do anything at the end of the day. I am almost two years post explant, my hubby finally pushed me to go see a trainer at the health club. I do a very light weight routine, and walk on the treadmill, I alternate these every other day. I still have my fibro pain, and fatigue, but neither is as severe as it was before I started. I didn't think I was ready for it, but I started to make my hubby happy. I am doing better then i thought. I am so glad that I gave it a try. I hope you feel better, foxygretchy <boobtruth@...> wrote: I hope everyone is doing well over here.I came to ask a question about fatigue. As most of you know, my mainsymptom was memory loss and brain fog with the sickness.I am now almost 1 year post explant.. WOW~! But, I still suffersevere fatigue. I am back at work, but by the end of the day I wantto just lay on the couch as my body kind of tries to re-coup from theday - it is followed by a lot of muscle spasms and twitching.. andgets even worse if i havent taken my medications or eaten yet.On the weekends, I have to say that I am glued to the couch and amvery tired and sick feeling.Any advice or experience on this? I guess it is just hard for mebecause before implants..

December 2006 - I was doing fitness showsand working out so much.. I want to ease back into a light programjust to try to feel more normal.. but I can't get up in the morning Iam so tired and in the evening all I want to do is rest too.Thanks ladies.Love Gretchen-

Never miss a thing. Make your homepage.

January 24, 2008

Gretchen,

Unsure if this could be it but have you had your thyroid checked? I

had a sluggish thyroid and now that I am on thyroid meds my energy

level is almost to high. I can't sleep in anymore or take naps.

Lynn

--- In , " foxygretchy " <boobtruth@...>

wrote:

>

> I hope everyone is doing well over here.

>

> I came to ask a question about fatigue. As most of you know, my main

> symptom was memory loss and brain fog with the sickness.

>

> I am now almost 1 year post explant.. WOW~! But, I still suffer

> severe fatigue. I am back at work, but by the end of the day I want

> to just lay on the couch as my body kind of tries to re-coup from

the

> day - it is followed by a lot of muscle spasms and twitching.. and

> gets even worse if i havent taken my medications or eaten yet.

>

> On the weekends, I have to say that I am glued to the couch and am

> very tired and sick feeling.

>

> Any advice or experience on this? I guess it is just hard for me

> because before implants.. December 2006 - I was doing fitness shows

> and working out so much.. I want to ease back into a light program

> just to try to feel more normal.. but I can't get up in the morning

I

> am so tired and in the evening all I want to do is rest too.

>

> Thanks ladies.

>

> Love Gretchen

>

January 24, 2008

So glad to hear this !

Patty

> I hope everyone is doing well over here.

>

> I came to ask a question about fatigue. As most of you know, my main

> symptom was memory loss and brain fog with the sickness.

>

> I am now almost 1 year post explant.. WOW~! But, I still suffer

> severe fatigue. I am back at work, but by the end of the day I want

> to just lay on the couch as my body kind of tries to re-coup from

the

> day - it is followed by a lot of muscle spasms and twitching.. and

> gets even worse if i havent taken my medications or eaten yet.

>

> On the weekends, I have to say that I am glued to the couch and am

> very tired and sick feeling.

>

> Any advice or experience on this? I guess it is just hard for me

> because before implants.. December 2006 - I was doing fitness shows

> and working out so much.. I want to ease back into a light program

> just to try to feel more normal.. but I can't get up in the morning

I

> am so tired and in the evening all I want to do is rest too.

>

> Thanks ladies.

>

> Love Gretchen

>

> -

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

February 19, 2008

brought up a good question that I have never really found an answer to.

What do you do for fatigue?

I was started on Plaquenil in November, which is just starting to help some.

But, it still takes me a couple of hours to really start feeling better in the

morning and I used to be a morning person! I started Olive leaf extract a month

ago. This weekend I stopped it. I was very dizzy, lightheaded and nauseated.

I am not sure if it is directly related to the OLE, but i stopped it just in

case. I have tried B12, CoQ10 which helps some, but nothing has really given me

the energy boost I am looking for.

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

February 19, 2008

and ,

I am also on plaquenil, but I feel constantly drained. I used to

take efedra before it was banned. I have tried multiple vitamins,

energy drinks, caffine, etc with no luck. Efedra has been the only

thing that has worked for me. I am seeing a pulmonary doctor next

week to see if I can get on provigil, which is used to treat

nacrolepsy to help combat the chronic fatigue that I feel. Most

days, taking a shower takes all the energy that I have. I asked this

question a few weeks ago and a few people have been prescribed

provigil (which is why I asked for it) or ADHD medications. The

problem with those is they are considered " stimulants " and not many

doctors are willing to prescribe amphetamines to combat fatigue.

I have tried everything that I can think of, so I am hopeful I can

get a prescription for provigil.

When I get really tired, I lie down, but it seems like it never ends.

I will let you know what happens next week. Take care.

--- In , Merlich <cruisintheseas@...>

wrote:

>

> brought up a good question that I have never really found an

answer to. What do you do for fatigue?

> I was started on Plaquenil in November, which is just starting to

help some. But, it still takes me a couple of hours to really start

feeling better in the morning and I used to be a morning person! I

started Olive leaf extract a month ago. This weekend I stopped it.

I was very dizzy, lightheaded and nauseated. I am not sure if it is

directly related to the OLE, but i stopped it just in case. I have

tried B12, CoQ10 which helps some, but nothing has really given me

the energy boost I am looking for.

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

February 19, 2008

Ephedra worked for me too!

To bad it might kill me. I'd take it (I still have a huge bottle) if

I didn't have high blood pressure/heart rate. I can bearly drink

redbull without having a stroke, j/k! These " stimulant " medicines, do

you think they would have the same effect?

> >

> > brought up a good question that I have never really found

an

> answer to. What do you do for fatigue?

> > I was started on Plaquenil in November, which is just starting to

> help some. But, it still takes me a couple of hours to really

start

> feeling better in the morning and I used to be a morning person! I

> started Olive leaf extract a month ago. This weekend I stopped

it.

> I was very dizzy, lightheaded and nauseated. I am not sure if it

is

> directly related to the OLE, but i stopped it just in case. I have

> tried B12, CoQ10 which helps some, but nothing has really given me

> the energy boost I am looking for.

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

> Search.

> >

February 20, 2008

,

I think " stimulant " medication has the same effect. When I was still

working and I had a " bad " day and I couldn't call in, so my husband

let me try one of his adderall pills (he has been diagnosed w/ ADHD)

and I was able to function like I normal person who didn't tire so

easily. I didn't feel like my heart was going to explode, or any

other side effects. I helped me. I knew my PCP and rheumatologist

wouldn't prescribe it to me, so I figured I was S.O.L...until I read

someone who has tried provigil. I figure it is worth a try...

> > >

> > > brought up a good question that I have never really

found

> an

> > answer to. What do you do for fatigue?

> > > I was started on Plaquenil in November, which is just starting

to

> > help some. But, it still takes me a couple of hours to really

> start

> > feeling better in the morning and I used to be a morning person!

I

> > started Olive leaf extract a month ago. This weekend I stopped

> it.

> > I was very dizzy, lightheaded and nauseated. I am not sure if it

> is

> > directly related to the OLE, but i stopped it just in case. I

have

> > tried B12, CoQ10 which helps some, but nothing has really given

me

> > the energy boost I am looking for.

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with

>

> > Search.

> > >

April 26, 2008

There can be several reasons for the fatigue; the medication, being

sedentary, and depression to name a few. The body does a lot of

healing when we sleep so when we don't feel well, our body is telling

us to rest. In addition, sleep is a common factor in depression.

Sometimes I can sleep off and on for days. The way I overcome the

urge just to sleep is by getting up and doing something even if it

hurts. Most of the time it's in little spurts but I find focusing on

something other than myself and my illness' tends to relieve some of

the " tired all the time " feeling. I know, easier said than done and I

don't always take my own advice. It's important not to over do but

work within the parameters of your illness. I guess it's the old

saying about learning to live with your illness.

Hugz

PeggyH

> I notice constant fatigue... I can't do anything and I feel so

> depressed about this. I feel mentally and physically tired in huge

> proportions.

April 26, 2008

Yes, yes, yes!!! It was the fatigue that caused me to not be able to work

full-time, not the

pain. You are not imagining it, it is real. Your body is telling you what it

needs. I know how

depressing it feels to no longer feel like you are the person you always were.

Hang in there

and go back to your specialist and describe the exhaustion. Keep going regularly

if you

have to in order to be heard. I actually broke down and cried in my rheumy's

office and

said, " I just want my life back! " At that point, she put me on Enbrel. My energy

level was

beginning to come back in a matter of weeks. I still have bouts of exhaustion,

but it is

much, much better. You are not alone!!! Please let me know how you are doing. I

really,

truly understand.

Pat

>

> I have been worrying about this a lot, I see some have mentioned here

> struggling with this too... how many of us deal with this?

>

> I notice constant fatigue... I can't do anything and I feel so

> depressed about this. I feel mentally and physically tired in huge

> proportions. I have been officially diagnosed with RA for nearly two

> years, though it took a year to find a Rheumatologist that took it

> seriously. All my blood work and symptoms said RA, but the first

> doctor my GP sent me too didn't believe it. (I have no idea why). I'm

> on mtx injection, sulfasalzine, and hydroxychloroquin. It has really

> cut my pain down, but my feet still always hurt. But I am ALWAYS

> tired, I can't get myself to do anything! Where I used to be a mover

> and shaker, now I sit most of the time, and have to lie down a couple

> times a day. Some days my ankles, knees, and hands hurt or mostly

> just ache, but I can't see how that would be tireing! Especially

> since I am getting so sedentary! Does the disease process itself do

> this, or what? How many of you out there deal with this daily? I

> think I'm in a terrible cycle... feel worn out, feel like I can't do

> anything, feel depressed, so I feel more worn out!

>

> Thanks in advance for input!

>

April 26, 2008

This is my number one complaint right now! I am sooo tired. I went to my GP

wth the c/o numbess and needles and pins mostly in my arms but in my feet

too. With stiffness and swelling in the joints of my hands and feet. He did

a bunch of labs and I had a bunch of xrays and an EMG. The neurologist who

did my EMG told me to be sure he tests me for RA and lupus. After

researching I seem to fit the RA pattern more. But the fatigue is really bad

right now and the pins and needles feeling is now aching or throbbing in my

joints. I am an ICU nurse and it is very difficult to work right now. Monday

is my follow up and I am so glad I am armed with knowledge before I see him.

On Sat, Apr 26, 2008 at 8:12 AM, Margaret schindler <mask1936@...>

wrote:

> If you can find the right treatment for you, the fatigue WILL get

> better. Remember, you are SICK, and when you are having a flare up, your

> immune system is at war no different from if you were fighting the flu. When

> your rheumy finds the right way to calm your immune system down, you won't

> feel as sick.

> The fatigue is debilitating for all of us at times, and does alter your

> life. I have an extremely active, physical career and life style and the

> fatigue was the first thing that sent me to a rheumy(my GP's kept telling me

> my problem was I worked too hard). What works for me is probably not ideal

> for most folks, but the treatment has allowed me to continue to pursue my

> lifestyle goals. Unfortunately at a price, and eventually the side effects

> of the drugs will put me literally out of business. I am on Remicade every

> other month, methotrexate at 15 mg once a week, Celebrex BID and prednisone

> PRN. My version of the disease is VERY steroid dependent-I can not get off

> of it and have been on a relatively high dose for two years. But it allows

> me to feel relatively good and move. The first sign I need to raise my pred

> dose is....fatigue. When I say " I'm tired " , my husband always asks me if I

> forgot to take my pred and that is usually the solution.

> So if you are still feeling fatigued, then your Rheumy has not found the

> complete treatment for you. Keep looking at options. There are a number of

> treatments out there, and one of them should help you feel better.

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile. Try it

> now.

>

April 26, 2008

>

> I have been worrying about this a lot, I see some have mentioned here

> struggling with this too... how many of us deal with this?

Tha fatigue for me has felt more disabling than the pain for the most

part. I've learned that my past responses to fatigue just don't cut it

anymore. I too was very active before this all started and I am slowed

down in a way that seems surreal. But before, when I was tired, I would

give in, rest more and that helped. I always said I didn't get sick as

often as others because I would rest when needed while others tend to

burn at both ends till their bodies cave in to whatever virus is making

the rounds. Now things are different - I find that I have to ignore my

body's fatigue messages quite a bit. It's a fine line I am still

learning, but pushing through the initial fatigue for some time, then

resting (more than would have been necessary before), then more

activity despite feeling like I want to never move again, that's what

helps the most. I have more energy when I FORCE myself to be active.

It's all so counterintuitive!! I sleep more at night and have to take

rests during the day that I would never have needed before even on the

most active days. But if I pace those rests, and force myself through

some activity between rests, overall my energy level increases

dramatically and life seems to get done. At work I have a great boss

and she lets me take serval short breaks instead of my normal punched

out lunch, otherwise I do not think I would be able to work right now.

Even on my best days, I have to plan things and plan the rests between.

But giving in to the fatigue messages at the get-go is a mistake, at

least for me. Then the fatigue, rather than decreasing due to rest,

just expands to enconpass eveything. Like I said, I am still learning.

And despite feeling like I am barely functioning some times, I am in

early, mild RA (someone tell my joints that LOL) so not sure how

someone worse off would be able to do this. I have read things that

make me think it is still necessary to fight the fatigue, but later on

I think it would take more effort and be much slower going probably.

Have had a few issues with meds but I think I may be on a plan that

will work for me, but really still adjusting and it's in the act of

kicking in......so I really have to consciously think about PUSHING

through that heavy weight of fatigue. Something as simply as walking a

few blocks twice a day might really help, unless knees and feet are

really bad. Swimming is great beause of the weight off joints but hard

for me to manage. The idea is to do something when your body is telling

you to crawl into bed and stay there. When I stay on top of fighting

those fatigue messages, I find at the end of the week I have

accomplished much more and have had more energy that when I give in to

the fatigue.

April 26, 2008

There are hundreds of reasons we experience fatigue. There is even syndromes

just for that, CFS. I just try to take rest breaks, monitor my activities to see

when I am most alert (and prioritize my tasks that need to be done with thinking

clearly). Nap if able to. I take a sleeping medication at night. Medications

contribute to making us sleepy as well.

peggyhcrafts <peggyhcrafts@...> wrote: There

can be several reasons for the fatigue; the medication, being