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Hi Judy,

Careful with the high blood pressure. Don't want to depress you, but it can

mean kidney problems in scleroderma patients. I'd go and get it checked out

and if it's due to the last few days' activities, not so much of a problem.

Better to be sure.

Chris.

>Hi Group,

> Boy I sound like a whiner.....Hair shedding, sores on scalp,

>now my Bp is up. It has been running around 115 over 70 for a couple of

>months and I was thrilled got off BP meds and etc. A few days ago it started

>up again to 140's 150's and today 184 over 90. I had gone back on my norvasc

>recently because of the change. I have been fighting systemic scleroderma,

>systemic lupus, miositis, RA, and raynards. I was doing great.

>Disfigurement gone and muscle pain only slight and still have joint pain

>though. In past months I some times have the red butterfly on my face. I

>allways have lung conjestion and have for 2 years. I started on AP in feb

>1999. At that time I was at the end, with enlarged heart , BP over 200

>,disfigured and on and on. I have made slow steady progress since. Now I

am

>yo yoing with multitudes of problems. I am on 2 ivs a week and doxy and

>biaxin alternate 3 days a week. No prednisone and no mtx. Was on prednisone

>and finally got weaned off gradually by june of 1999. On 1.75 of synthroid,

>water pills, norvasc 2.5, previcid, and zantac 300mg. My esophagus is

>damaged from the sclero. Lots of supplements and juicing. No red meat.

>Fish some chicken. Mostly macrobiotic diet. I cheated on my diet recently

>with out of town co. Maybe that is my problem????? I drink water and green

>tea. I have alot of swelling now holding lots of fluid. Sorry to whine

>......Just ;looking for help....Any answers would be greatly appreciated.

By

>the way, any one with lupus out there???? Judy Duncan/florida

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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  • 4 weeks later...

eeer not to be a pain but the smoking is not helping the P or PA.

I wouldn;t do aerobics right away it might shock your system!

-Adriel

> From: " Gillian Rowe " <roweg@...>

> Reply- egroups

> Date: Fri, 18 Aug 2000 02:04:23 +0100

> " " < egroups>

> Subject: [ ] Blood pressure

>

> Hi Jayne

> Thankfully NO, I have gone the other way, LOW Blood pressure.

> You think that is strange, try being my Physician. Come on I have high

> cholesterol, a few cigarettes, a glass of wine, although beer now and have

> arthritis. Heart attack/Stroke here I come. I am not on medication for the

> cholesterol, so by now my arteries should be furring up rather well. That

> will induce high blood pressure as the heart has to really pump to get the

> blood through the narrow arteries and veins. That should lead to high blood

> pressure.

> However I am at 110/70, which is low. Confused? Well as I said to my

> Physician, " Blame Hermes! " Yes I have all the bad lifestyle habits, but I

> also walk Hermes. The walking means I am keeping fit and fit people are

> known to have low blood pressure. Therefore I am a fit sufferer of PA?

> Just to add to the confusion, I understand they are now stating that

> aerobics classes can cure Fibromyalgia. However would my joints stand the

> trauma?????

> Love and God Bless

> Gillian

> Friendship can only exist between persons with similar interests and points

> of view.

> Man and woman by the conventions of society are born with different

> interests and different points of view.

>

>

> THEY also say you can get cancer from eatting eggs and bacon cooked in a cast

> iron skillet. Be careful who you listen and listen to your body. hee hee Pat B

>

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> We are currently discussing new chat times. moderates a chat on

> arthritis at

> www.about.com on Thursday evenings, so check that

> out in the meantime! E mail at RA@... for details.

>

>

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  • 7 months later...
Guest guest

Inderal, which I take for portal vein hypertension (look Ma, I can

spell) lowers my blood pressure, sometimes to around 90/50. It generally

stays around 104/59.

I wnder if this is due to the fact that my blood pressure had always

been excellent before my liver went out.

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  • 2 years later...
Guest guest

costello@... writes:

> Good point about blood pressure and Vioxx. Mine was up 20 points and my

> doctor said it had nothing to do with Vioxx. I lost 15 pounds and cut

> Vioxx in half. My blood pressure went back to normal. Dr says it is weight

> loss--I say Vioxx! I had been that heavy before with no increase in blood

> pressure. Ks Di

KS Di -

I have the same blood pressure issue with Celebrex, however I can't seem to

cut the dosage!

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Guest guest

The last time I was at my GP's office my blood pressure was high (and I am only

26). I asked if it could be from the vioxx. They said since it was only

borderline high (159/90) that they would monitor it. If it stays high then we

will make changes (I only take 25mg vioxx). Mine isn't a weight issue since I

am small. The only other thing it could be for me is stress.

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  • 2 months later...
Guest guest

Has anyone had any problems with their blood pressure dropping after taking

imuran,

zanaflex - or effenxer. It's done this the past 2 nights.

Thanks,

Jan

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Guest guest

In a message dated 7/16/03 7:26:15 PM Eastern Daylight Time,

JNJSewing@... writes:

> Has anyone had any problems with their blood pressure dropping after taking

> imuran,zanaflex - or effenxer. It's done this the past 2 nights.

> Thanks, Jan

Jan,

Zanaflex will lower your BP some after taking it as it depresses the CNS.

Most meds with warning labels that state, " Don't operate Machinery... " will

depress the CNS at thus your BP will drop and you will be sleepy. Just be extra

careful with taking it and if it lowers it a great bit mention it to your doc

as it may not be suited for you! Good luck!

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  • 6 months later...

Take your blood pressure several different times and on several different

days. Lots of things affect pressure from meds and illness, to age and stress.

Also make sure you are taking it correctly. Because I had mine taken at

Wal-mart and it showed 150/90 I was very upset. My pressure had always been on

the low side.

I purchased a wrist monitor to do at home thinking that was great.

Everytime I took my reaading it was different. My husband took his and it said

90/45 he wanted to know what that meant....I told him it sounded like he was

about to kick the bucket!!!!

After all else failed....I read the fine print at the end of the

instructions (should have done that first). Seems the monitor must be at the

same

level as the heart for accurate reading. DUH!!! There are days I am not the

brightest color in the box.

Finally took it with my wrist elevated to heart level and guess

what....the last six readings, over a period of sesveral days, have all been

about

112/70...or there abouts. Went back to walmart and you guessed it...theirs was

still at 150/90. I think they need to recalibrate their machine.

I would get a recheck on another machine and at a time when you

are relaxed and not stressed out. You can buy the digital wrist blood pressure

moinitors on Ebay brand new for about 70% less than at the drug store. If

you are diabetic and taking meds for that it will affect blood pressure. I

have never known anyone that AP raised their blood pressure. It is a side

effect

for other meds. Stopping smoking, Low salt diet, losing weight, exercise

and meditation will bring it down if you are willing to try that route.

Sometimes heredity kicks in as we age and it just goes up anyway. Just my

thoughts

on this subject.

I worried for about three months, thanks to the @#*#@# walmart

machine!!!!! Martha

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You asked for suggestions as to why your Blood Pressure has spiked so bad.

There are several reasons for this, some of which could be obesity (which is

a major problem in the USA today), Cholesterol problem, and diabetes to just

names a few. Go to your MD immediately and get a good medical work up and

begin working of this problem ASAP. Since we have never met I am only

guessing but this is nothing to ignore.

/Polymyositis

rheumatic Blood pressure

This might be off topic, but here goes. I have been on the AP for

five years and it has worked wonderfully for me. I have not taken

any antinflammatory medication, DMARD, etc., other than Zithromax and

Monicin for over four years. At Christmas time this year I noticed

that my blood pressure spiked up from a usual 140/90 to 170/105.

Anyone else have this happen or can offer suggestions?

To unsubscribe, email: rheumatic-unsubscribeegroups

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<< ...my blood pressure spiked up from a usual 140/90 to 170/105. Anyone else

have this happen or can offer suggestions? >>

My blood pressure did this once, for a few months. I was later diagnosed

with fibromyalgia and I believe all the muscle tension made the vessels contract

and shot the pressure up. Once I started muscle stretches twice a day to

relax the muscles, and control the pain, the B/P returned to normal.

It was very weird. It's the only thing I could ever figure out as to what

was going on!

M.

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My $00.02.......

My experience is the some units have as much as 10% inaccuracy. Couple that

with another 10% normal physiological fluctuation....there you have your

" spike. " Of course if the " spike " is a regular occurrence, then maybe

something else is going on. My doctor will not entertain any BP opinions or

treatments unless has at least a month's worth of data to assess.

The notion that " muscle tension made the vessels contract and shot the

pressure up, " is exactly the opposite of what occurs physiologically. We

used to actually measure this in class. Capillaries in muscles generally

run parallel to the muscle fibers, each fiber being surrounded by a few

capillaries, depending on which type of muscle fiber.  The close proximity

of the capillaries and fibers leads to very short diffusion distances,

leading to a very efficient exchange of gasses and minerals between the

blood and muscle.

During rest the muscle has no relative demand for oxygen, and blood flow is

at a mininum, and kept at a mininum by vasoconstrictor factors. Under

contraction or muscle tension blood flow increases by as much as 25x and the

vasodillation influences take over, thereby resulting in a localized

decrease in capillary surface tension and blood pressure.

Though the exact mechamism at a cellular level is not 100% completely

inderstood, it effects can easily be measured. For that matter, my doctor

told me that the vast majority of occurrences of elevated blood pressure

cannot yet be explained conclusively, though some things as kidney problems,

salt intake, etc. have been identified as either primary or secondary

factors.

jeff

----Original Message Follows----

From: eson@...

rheumatic

Subject: Re: rheumatic Blood pressure

Date: Fri, 6 Feb 2004 22:48:53 EST

<< ...my blood pressure spiked up from a usual 140/90 to 170/105. Anyone

else

have this happen or can offer suggestions? >>

My blood pressure did this once, for a few months. I was later diagnosed

with fibromyalgia and I believe all the muscle tension made the vessels

contract

and shot the pressure up. Once I started muscle stretches twice a day to

relax the muscles, and control the pain, the B/P returned to normal.

It was very weird. It's the only thing I could ever figure out as to what

was going on!

M.

_________________________________________________________________

Find great local high-speed Internet access value at the MSN High-Speed

Marketplace. http://click.atdmt.com/AVE/go/onm00200360ave/direct/01/

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  • 2 months later...
Guest guest

No, 117 is a good reading to have. Infact your pulse and lower bp

reading look good to. Perhaps it was a respiratory matter?

> last night i felt i was having an anxiety attack and i took my

pressure nad

> it was 117/70 70 pulse.. isnt 117 really bad?

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Guest guest

no this is perfect---120/80 ---to 100/ 70 is ok--anything lower than

100 is very adrenal---high starts at 140/80 and above

> last night i felt i was having an anxiety attack and i took my

pressure nad

> it was 117/70 70 pulse.. isnt 117 really bad?

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Guest guest

well im also 100 pounds voerweight so i think technically it should be

higher espcially when im having an anxiety attack.. damnit nothing every

shows up wrong with me

Re: blood pressure

> No, 117 is a good reading to have. Infact your pulse and lower bp

> reading look good to. Perhaps it was a respiratory matter?

>

>

>

> > last night i felt i was having an anxiety attack and i took my

> pressure nad

> > it was 117/70 70 pulse.. isnt 117 really bad?

>

>

>

>

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Guest guest

I don't think anyone is implying that nothing is wrong with you.

You just need to explore other factors for the anxiety attack - you

will see lots of posts about adrenal fatigue, for exmaple.

My bp hovers around 105/68 and occassionally goes to 112/73 so 117

would be indicative of stress. This too can be individualistic within

reason.

> > > last night i felt i was having an anxiety attack and i took my

> > pressure nad

> > > it was 117/70 70 pulse.. isnt 117 really bad?

> >

> >

> >

> >

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Guest guest

a pulse of 117 is kinda high I think but I may be wrong.

----Original Message Follows----

From: " Girlie " <kckim@...>

Reply-hypothyroidism

<hypothyroidism >

Subject: Re: Re: blood pressure

Date: Tue, 27 Apr 2004 13:56:33 -0700

well im also 100 pounds voerweight so i think technically it should be

higher espcially when im having an anxiety attack.. damnit nothing every

shows up wrong with me

----- Original Message -----

_________________________________________________________________

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Guest guest

yes, it does seem pretty high. sheila

K a r e n P <karlynn17@...> wrote:a pulse of 117 is kinda high I think

but I may be wrong.

----Original Message Follows----

From: " Girlie " <kckim@...>

Reply-hypothyroidism

<hypothyroidism >

Subject: Re: Re: blood pressure

Date: Tue, 27 Apr 2004 13:56:33 -0700

well im also 100 pounds voerweight so i think technically it should be

higher espcially when im having an anxiety attack.. damnit nothing every

shows up wrong with me

----- Original Message -----

_________________________________________________________________

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Guest guest

I think the original post said 117 was the BP systolic reading.

Pulse was in the 70's if I recall. Both appear to be normal

reading.

> a pulse of 117 is kinda high I think but I may be wrong.

>

>

> ----Original Message Follows----

> From: " Girlie " <kckim@c...>

> Reply-hypothyroidism

> <hypothyroidism >

> Subject: Re: Re: blood pressure

> Date: Tue, 27 Apr 2004 13:56:33 -0700

>

> well im also 100 pounds voerweight so i think technically it should

be

> higher espcially when im having an anxiety attack.. damnit nothing

every

> shows up wrong with me

> ----- Original Message -----

>

> _________________________________________________________________

> Check out the coupons and bargains on MSN Offers!

http://youroffers.msn.com

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  • 3 weeks later...
Guest guest

Speaking of blood pressure -- mine is always low and I thought that was good &

I'm finding it's not necessarily so. When I go for blood work they usually use

a baby needle to get into my vein. I took mine at Walmart last week 3 times

in a row - it was:

Systolic 121 Diastolic 71 Pulse 76

Systolic 110 Diastolic 72 Pulse 78

Systolic 110 Diastolic 73 Pulse 77

I'm not sure what these numbers mean - on the chart at the machine I was below

normal. Is there anything you can do for low blood pressure besides adding sea

salt? I take the Fatigued to Fantastic Raw Adrenal Everyday -- pulse is up a

bit from a few months ago......

Thanks!

Re: garcia

High BP can be found in many other areas of the body---but when you

think of low BP this is not so---this is the problem here for the Low

BP people who are told they should be so happy when in reality they

have a condition they are not even aware of---finding this problem

and treating it is a big problem when it's not diagnosied by the

majority of doctors. Low BP's have a hard time finding a vein to even

take a blood test becasue of the low blood volume caused by this un-

treated adreanl condition that is never tested for.

-- In hypothyroidism , " Gracia " <circe@g...> wrote:

>

> high bp can be found in adrenal hyperplasia. Also thyroid hormone

lowers

> bp. In my case every time I added a hormone (DHEA, progesterone,

estrogen)

> it took stress off adrenals and lowered bp. Also I have read that

just by

> adding cortisol, aldosterone will become normal. But I fit the

profile of

> adrenal insufficiency that Tinterra talks about--salt loser, low

sodium and

> high potassium.

> Gracia

>

>

> > " Higher levels can

> > be seen in Cushing's syndrome, primary hyperaldosteronism,

malignant

> > hypertension, severe swelling in congestive heart failure, and

> > nephrotic syndrome. "

> >

> >

> > this is assuming of course that you have aldosteronism as well---

but

> > we know you don't have cushings--and you no longer have high bp--

so

> > most likely you never had this problem associated with

aldosteronisum-

> > --just cortisol problems---but you wonder though with the high

bp????

> >

> > something to think about!!! tina

> >

> >

> >

> >

> >

> >

> >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Autoimmune disorder Cause:

> > > > > Selective hypoaldosteronism has been frequently associated

with

> > > > > autoimmune disorders associated with the polyglandular

> > autoimmune

> > > > > endocrine deficiency syndromes, such as isolated ACTH

> > deficiency,

> > > > > hypoparathyroidism, Hashimoto thyroiditis, and vitiligo.

> > Therefore,

> > > > a

> > > > > primary autoimmune-mediated adrenal defect in the zona

> > glomerulosa

> > > > > secretion of aldosterone may be initially subclinical and

only

> > > > become

> > > > > clinically manifest when superimposed hyporeninemia results

in

> > more

> > > > > profound decreases in aldosterone secretion.

> > > >

> > > >

> > > >

> > > >

> > > >

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Guest guest

susan these are great numbers---it gets concerned under 100 for

systolic and for diastolic under 60 is it--for example M's was 80/40

at her almost lowest--that was her norm and pulse would be 50 at it's

lowest--and temp she hit 95 a few times but her norm was 96-we were

happy when it hit 97 and it's only been a few weeks at 98 after over

two years !!!!! but that doesn't mean you don't have a blood volume

problem as well---M has multiple conditions--have to have the test

for this as well to determine blood volumes very few doctors bother--

we had one or two posters who had this done in the past.

norm is 100/60 at it's lowest--average is 110/70 or 120/80

upper range 130/90 anything higher depends on your age of course but

that is pushing it 140/90 and the doctor is thinking you are prone to

high blood pressure (but depending on your age)--

oh just remembered an athlete will have lower BP than the normal

person!!!!

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > Autoimmune disorder Cause:

> > > > > > Selective hypoaldosteronism has been frequently

associated

> with

> > > > > > autoimmune disorders associated with the polyglandular

> > > autoimmune

> > > > > > endocrine deficiency syndromes, such as isolated ACTH

> > > deficiency,

> > > > > > hypoparathyroidism, Hashimoto thyroiditis, and vitiligo.

> > > Therefore,

> > > > > a

> > > > > > primary autoimmune-mediated adrenal defect in the zona

> > > glomerulosa

> > > > > > secretion of aldosterone may be initially subclinical

and

> only

> > > > > become

> > > > > > clinically manifest when superimposed hyporeninemia

results

> in

> > > more

> > > > > > profound decreases in aldosterone secretion.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Guest guest

Hi Tina!!!

Many thanks!!!!! ---good to know -- I'll have to print your information out as a

reference because as far as blood pressure is concerned I had no idea what is

considered good or bad!!!

take care! Is M home for the summer?

Re: blood pressure

susan these are great numbers---it gets concerned under 100 for

systolic and for diastolic under 60 is it--for example M's was 80/40

at her almost lowest--that was her norm and pulse would be 50 at it's

lowest--and temp she hit 95 a few times but her norm was 96-we were

happy when it hit 97 and it's only been a few weeks at 98 after over

two years !!!!! but that doesn't mean you don't have a blood volume

problem as well---M has multiple conditions--have to have the test

for this as well to determine blood volumes very few doctors bother--

we had one or two posters who had this done in the past.

norm is 100/60 at it's lowest--average is 110/70 or 120/80

upper range 130/90 anything higher depends on your age of course but

that is pushing it 140/90 and the doctor is thinking you are prone to

high blood pressure (but depending on your age)--

oh just remembered an athlete will have lower BP than the normal

person!!!!

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > Autoimmune disorder Cause:

> > > > > > Selective hypoaldosteronism has been frequently

associated

> with

> > > > > > autoimmune disorders associated with the polyglandular

> > > autoimmune

> > > > > > endocrine deficiency syndromes, such as isolated ACTH

> > > deficiency,

> > > > > > hypoparathyroidism, Hashimoto thyroiditis, and vitiligo.

> > > Therefore,

> > > > > a

> > > > > > primary autoimmune-mediated adrenal defect in the zona

> > > glomerulosa

> > > > > > secretion of aldosterone may be initially subclinical

and

> only

> > > > > become

> > > > > > clinically manifest when superimposed hyporeninemia

results

> in

> > > more

> > > > > > profound decreases in aldosterone secretion.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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  • 10 months later...
Guest guest

My blood pressure is normally quite low . . . I've

never know it to be quite that low though. It's gone

up from time to time 135/85 was as high as I can

remember, but always returns to the neighborhood of

105/65. I feel better when it's low. It seems to go up

when I'm stressed or feeling bad.

I also have a low body temperature . . . I haven't

checked it lately, but it was running about 97.8 on

rising. I attribute that to a low basic metabolic

rate. I do not need much food either. I would gain

weight eating as much as most people eat.

Considering all factors, the charts put me at a risk

level of less than 5% for a heart attack. So, I guess

that's good!

Hugs,

Rogene

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Guest guest

Yes, my blood pressure is `also very low. I was in hospital once, during the night the nurse took my blood pressure and had to wake me up because it was so low she was concerned i was dying or something. My blood pressure is still low but not nearly as bad.

Sue

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Guest guest

I have also had low blood pressure for years along with the low body temperature. Twice my blood pressure was in the forties! Anita Re: blood pressure Yes, my blood pressure is `also very low. I was in hospital once, during the night the nurse took my blood pressure and had to wake me up because it was so low she was concerned i was dying or something. My blood pressure is still low but not nearly as bad. SueOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

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  • 1 year later...
Guest guest

>

> > Has anyone ever experienced elevated blood pressure while

taking

> > Arava?

> My blood pressure has always been extremely low, but since RA it's

> gotten much higher.

My BP was always low now I am on meds for that too.. It just might be

the RA or the meds we take..

Janet IN IL

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