Re: Dr. Talpaz visit-Beth

[Guest guest]

Hi Beth,

Now I know where you're at in your journey. I asked in the other email so you

don't need to explain all that again.   I'm happy that you're back on the

drug controlling the persistent beast. Every 3 months for follow up is awesome -

you and Bobby definitely deserve it.

 

Take care,

Jackie

From: bethgalliart@... <bethgalliart@...>

Subject: Re: [ ] Dr. Talpaz visit

Date: Tuesday, February 22, 2011, 1:46 PM

 

Bobby,

Wow! Never a dull moment. Very scary update. I am so glad to hear you are

feeling better and getting back on track. Yikes!!!

(I am on the 3 month schedule; although in close touch with my study coordinator

at the moment as I re-started about a week and a half ago and we're carefully

watching to make sure no side effects kick in...I did go through the bone pain

all over again on re-entry which was a nightmare, but the pain did pass after 72

hours.)

Hang in there! You are an amazing woman.

BethG

[ ] Dr. Talpaz visit

 

Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr.

Talpaz.  Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. 

Not this time.  The good Dr. Talpaz said my ekg was indicative of a heart

attack and sent me to the ER.  I did not leave until Wed. afternoon!!

The good news is 1) I did not have a heart attack, I had a stress test and the

heart is fine. 2) the cardioversion (shock the heart back into normal) worked

and I am no longer in Afib.

Not sure why the ekg read that way, I think one of the doctors said it could

have been due to the cardioversion,.  Anyway, they did help with the shortness

of breath.  They said I had too much fluid in my body, heart and lungs

included, and loaded me up with lasix.  I have lost 11 lbs since Mon. am.  I

feel much better, have not been short of breath , just a wee bit on occasion.

They said there was not enough oxygen in my blood and that is what made the

heart work harder, causing SOB.  So, 11 lbs lighter, I feel better.

3) the other good news is I don't go back until May, and will finally be on a 6

month visit schedule.  they sort of flew by the 3 month ones. 

Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules?

Have a great day everyone, the sun is out here in Ohio and the snow has melted,

looks great to be gone, but now they are worried about flooding.  Always

something,  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club