Pneumonia

June 23, 2005

I got pnumonia 3x last winter. I could tell by the deep cough that I had it before I even went in. I got the pnumonia shot this Fall and made it thru winter w/out getting it (but did get bronchitis!)

Stacey in MA

pneumonia

I have pneumonia. Woke up the other night with a high fever and chills and went to the ER. But did not even think of pneumonia and I even refused the chest x-ray at first until all of the other tests came back negative (I've had over 100 chest x-rays in the past 16 years and then developed breast cancer, so I don't let them do routine x-rays anymore). They did one film and they said right away I have pneumonia.It's weird because I just don't have many respiratory symptoms! Anyone ever had pneumonia with few symptoms? Well at least I don't feel that bad, just very tired.Lori

June 24, 2005

Lori

Rest well and feel better soon...

Maybe you're so used to having severe respiratory symptoms that what seems mild to you could be notable to someone else?

I've been told a couple of times I had viral pneumonia (usually at the coughing up blood phase) but the chest xrays didn't show it.

Liz truelori <lori@...> wrote:

I have pneumonia. Woke up the other night with a high fever and chills and went to the ER. But did not even think of pneumonia and I even refused the chest x-ray at first until all of the other tests came back negative (I've had over 100 chest x-rays in the past 16 years and then developed breast cancer, so I don't let them do routine x-rays anymore). They did one film and they said right away I have pneumonia.It's weird because I just don't have many respiratory symptoms! Anyone ever had pneumonia with few symptoms? Well at least I don't feel that bad, just very tired.Lori

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June 29, 2005

Hi Lori and Liz,

I too have just been diagnosed as having pneumonia. I had a cold on hols, but still went in the v cold sea every day (pressure from my kids!). When I got home I started to feel very unwell and had an awful, deep cough. The mistake I made was thinking "oh no, another bad chest infection" and taking antibiotics that were in my cupboard, and not seeing my GP. The ab's helped, but I became worse when I finished the course. Pressure from hubby and freinds made me go to the doctors who said my temp was high and that I had pneumonia! I'm now on more antibiotics. The thing is that I thought I may have had it, but was waiting for the bad pain -I had a dull ache between my shoulderblades a nasty compulsive cough, and horrid frothy stuff from my lungs, felt very dizzy and weak, totally lost my appetite, etc, but was expecting awful pain. If that had happened, I would have been straight to the doctors. I've had pleuracy lots of times and even broken ribs from bad coughs, but never

pneumonia before. I wish I'd have known earlier so I would have been allowed to rest, but no chance!!

I think it's definately true that we are so used to having to cope with nasty infections while carrying on with life (in my case looking after 3 young children, studying, trying to move house and so on) that we just carry on regardless. If I rested or stayed in bed (fat chance) when ill, then I would have no life at all.

Becky Boston <elizabethboston@...> wrote:

Lori

Rest well and feel better soon...

Maybe you're so used to having severe respiratory symptoms that what seems mild to you could be notable to someone else?

I've been told a couple of times I had viral pneumonia (usually at the coughing up blood phase) but the chest xrays didn't show it.

Liz truelori <lori@...> wrote:

I have pneumonia. Woke up the other night with a high fever and chills and went to the ER. But did not even think of pneumonia and I even refused the chest x-ray at first until all of the other tests came back negative (I've had over 100 chest x-rays in the past 16 years and then developed breast cancer, so I don't let them do routine x-rays anymore). They did one film and they said right away I have pneumonia.It's weird because I just don't have many respiratory symptoms! Anyone ever had pneumonia with few symptoms? Well at least I don't feel that bad, just very tired.Lori

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November 30, 2005

- our oldest daughter (13 non-PID) has had problems in the

last year with pneumonia. She's had it 4 times in 18 months. We were very

concerned that since she was entering puberty that her immune system was

going the way of her sister (CVID) and her dad (CVID). This summer her ped

gave her a Prevnar and tested her. She responded to all but 2. She just

seems prone right now to pneumonia. Maybe it's the age, maybe it's her

going going going all the time. She has taken Rocephin for each of her

pneumonias but her oxygen has only dropped once. We did daily Rocephin

shots (1.5 gms-several syringe shots) and an incentive spirometer at home

because she was so opposed to going into the hospital. The pneumonias

cleared each time. Right now she is battling a deep seeded sinus infection

and it is aggravating her heart. The ped started her on Omnicef yesterday

but she () refused a shot of Rocephin. So she's home from school again

today and is learning that the shot isn't all that bad. I told her she'd

feel like a new person if she'd just get it (it would just be the one 1 gm)

but she had so many last year she doesn't even want to hear the drug's name

anymore. During 's pneumonias Macey only got it once out of the 4.

Probably the one in the fall when the weather was fickle anyway and Macey

was just as suseptible as everyone else.

I hope she feels better soon and her breathing is better.

Ursula

December 1, 2005

Thanks for all of the responses about Kelsey's pneumonia. I'm feeling much

less stressed about it now that I know that so many " healthy " kids get it

too. I did wonder if Kelsey could have scarlet fever, she's had it before

and she had strep just a couple of months ago. When she got sick with the

pneumonia, she never once complained of a sore throat and I even asked her a

couple of times if her throat hurt and she said it didn't. I do wonder

about her being a " strep carrier " and just wonder if this could have played

a role in this. The nurse came yesterday and showed me how to administer

the Rocephin via the IV. Not exactly a fun thing to do, I was so worried I

would mess it up, but I guess if I can do SCIG for months on end, I can do

this too! Anyway, thanks again for calming my nerves! Now I just to figure

out what we're going to do about school! She will be out for a minimum of

three weeks if she recovers quickly... that's a lot of homework!

Take care,

Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

Hashimoto's disease, hypogammaglobulinemia, complement deficiency, antibody

deficiency, NK cell defect, and resolved adrenal insufficiency),

Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, asthma and mild hearing loss/unaided),

and Kelsey - (9 going on 19!)

Please visit us at www.caringbridge.org/in/connersmith

December 2, 2005

:

Our school district provides a free homebound tutor with 10 consecutive days

of absence. It's Illinois law. If you can start having a classmate nearby

bring home her work (when she's well enough to do it), you will probably not

have

to get really behind.

I am sorry it was so scary and am glad she's recovering. I thought the

sandpaper rash sounded " strep-y " too.

On a lighter note, I don't think I ever told you how very much I enjoyed your

previous signature line comment that Kelsey was " hearing... but not

listening! " . Loved it!

Good luck --

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

December 22, 2005

>

> Bob,

>

> have you taken antibiotics in recent years? this will be

interesting to see how you react to them. I always feel better when

on them, some do, some don't. Let us know how you do!

I will. I haven't taken any in years. I took them then for my sinus

infection. I did feel better while on them but didn't last long and I

still have my sinus infection.

That reminds me, I tested positive for Lyme antigens and antibodies a

couple of years ago. the neurologist in Dallas gave me something

which I gave myself shots but I saw no improvement. I recently read a

book on Lyme Disease and it said there are no types of LD, one with

physical symptoms such as arthritis and the other was neuro symptoms.

The book said that Zithromax and others wouldn't work for the LD with

neuro symptoms. something was needed which penetrates nerve tissue

such as Rocephin IV and Ceftin orally. The book also said that most

people's immune system cannot fight off LD without help from

antibitoics. That would make me think that if we have antibodies then

we most likely have LD. The spirochettes would be inside out tissue

by now, wouldn't they? I wonder why doctors do not take some tissue

from somewhere and check it for disease also?

Bob

December 23, 2005

Bob

That is called fungal pneumonia usually characterized by a milky white thick

mucous. As I recall you reported green, which suggests bacterial instead of

fungal, but the fungal may be lurking disguised.

mjh

In a message dated 12/23/2005 5:10:14 PM Eastern Standard Time,

blue74730@... writes:

My cough and lungs have not gotten any better though two days of abx

and breathing treatments. On the mold list I am on, several people

posted studies showing that mold can cause pneumonia. If I am not well

by Monday, I can go to my CFS doctor and talk with him about it. The

first few times I went to him about the mold, I got the look that he

didn't believe me. He would have to if a culture shows mold. I may

finally have some proof that mold is killing me in this mobile home.

My cousins's wife's son wants to rent it from me. He knows about the

mold but probably does not believe it either. He is about 33, wife

about the same and a 12 year old son. I don't want anyone else to get

ill.

Bob

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

December 24, 2005

Bob,

I'm sure you know that not everyone gets ill from mold. Only a quarter

of the population has the bad mold gene, per Shoemaker. So I would not

assume that renters would become ill. And even if they have the bad

gene, if they are not already sick, the level of mold may not be high

enough to make them ill. There is toxic mold everywhere, I don't think

there are many people who actually live mold-free, other than the

extreme avoiders.

I think that self-diagnosing the cause of your pneumonia is a bit risky,

you could be wrong. It could be a bacteria that just needs a different

abx. But of course, the mold exposure weakens your immune, so maybe

everything is interrelated a bit. Have you been tested for mycoplasma?

I have a lot of related issues, carry mycoplasma pneumoniae, and get it

regularly when I get worn down. Pharmaceutical ABX did not work against

this for me. This is a strange illness (mycoplasma phneumonia). Some

non-traditional things that help me:

Heat over the bronchiole tubes and lungs (hot packs, or FIR lights if

you have those available, you can make a hot pack with rice and an

athletic sock). This can really help a lot, I think it even kills some

things and/or boosts immune strength. But not too hot, this is

sensitive tissue. I prefer mild heat for a longer time.

North pole magnets over the bronchiole tubes and lungs.

Inhale a high quality colloid silver. I just use a cheap atomizer

spray. Better would be a nebulizer. I have read that an all plastic

air brush (for painting) is the best (there is a website on this

somewhere, talking about how even the toughest cases of pneumonia are

treated successfully with nebulized CS).

Massive herbal immune-boosting and abx. I 'throw the kitchen sink' at

bronchitis/pneumonia, and that usually works, along with the other

measures. My natural treatments generally include GSE,

Echinacea/C/Zinc, Olive Leaf Extract, Oregano Oil, and sometimes I add

Cat's Claw (Samento). Also, this sometimes creates die-off herx, so I

also boost some detox supplements (whey protein, recancostat, bentonite

clay, phosphatidylcholine).

Also, loads of enzymes and extra salt (natural unprocessed sea salt

only) and vitamin C.

I realize you probably do not have all of this, but maybe you can get

some ideas. I really do have a bad situation with this, and these steps

have helped to control the problem. This is the infection that

activated my long-term Lyme and precipitated CFS. So it is my

'nemesis.' Sounds like it is one of your major battles as well. Good

luck!

--Kurt

SPAM-MED: Pneumonia