From the beginning

[Guest guest]

Dear Penny,

A most interesting history, thanks for sharing. You did the right thing, you

started at the beginning. LOL

That is quite a history you have had with Gleevec. I know it must have been

hard, because it sounds very much like INF, but I'm sure you are glad you hung

in and now the side effects are at a minimum. I read an article recently that

said some people drop out because of side effects and then there is no record of

them trying anything else. Others just take meds part time. I take my meds

100% of the time when I am supposed to, I don't think it is to our advantage to

be haphazard about it.

We will look forward to your next post. Moving back and forth could not be that

easy. I know what you mean about the crime, it sounds like New Orleans. Good

luck with the twins going away to college. Hopefully one day you will be a

grandmother like some of us and you will have more stories about them. You

know, yours are always the most beautiful in the world. Well they are, kinda,

after your own children, of course. LOL I have 7 grandchildren and lost count

of the greats, but I have a great great grandson. I was talking to my

granddaughter on the phone and he was running around when she told him I was on

the phone, so he stopped long enough to shout in the receiver, " I love you maw

maw " , laughed and went on about his business. I thought that was so cute, if I

could have, I would have reached down into the phone and hugged him. He was so

bad when he was younger, cried all the time for his mom and never said anything

but " no " . He's nearly two, so we are awaiting the terrible 2's for the next

change.

Carpe Diem,

Lottie Duthu

[Guest guest]

Hi, thank you so much for this heart warming news. In my own case, starting from

january 2009 that i have been on glivec i have missed only 800g. I am on 400

daily. The side effect did not bug me my concern has always been low pcv of

28-30, and i am 42years. Now i write from my bed, down with malaria and

headaches. A year ago i had less of this. Well, i was dx 21 oct. 2008 went on

hydra. By january 2009 glivec came in.

On Thu, 24 Mar 2011 06:36 GMT Lottie Duthu wrote:

>Dear Penny,

>A most interesting history, thanks for sharing. You did the right thing, you

started at the beginning. LOL

>

>That is quite a history you have had with Gleevec. I know it must have been

hard, because it sounds very much like INF, but I'm sure you are glad you hung

in and now the side effects are at a minimum. I read an article recently that

said some people drop out because of side effects and then there is no record of

them trying anything else. Others just take meds part time. I take my meds

100% of the time when I am supposed to, I don't think it is to our advantage to

be haphazard about it.

>

>We will look forward to your next post. Moving back and forth could not be

that easy. I know what you mean about the crime, it sounds like New Orleans.

Good luck with the twins going away to college. Hopefully one day you will be a

grandmother like some of us and you will have more stories about them. You

know, yours are always the most beautiful in the world. Well they are, kinda,

after your own children, of course. LOL I have 7 grandchildren and lost count

of the greats, but I have a great great grandson. I was talking to my

granddaughter on the phone and he was running around when she told him I was on

the phone, so he stopped long enough to shout in the receiver, " I love you maw

maw " , laughed and went on about his business. I thought that was so cute, if I

could have, I would have reached down into the phone and hugged him. He was so

bad when he was younger, cried all the time for his mom and never said anything

but " no " . He's nearly two,

so we are awaiting the terrible 2's for the next change.

>Carpe Diem,

>Lottie Duthu

>

>