Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Could you please get me the web site address, I did not get it in your post. Thank you toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 Hi Toni, Your message did not state which website you are looking to find. Can you be more specific? Thanks, Mike Cinelli ======================================= At 07:23 PM 10/21/00 EDT, you wrote: >Could you please get me the web site address, I did not get it in your post. > >Thank you toni > > >Learn more about cancer: >http://home.online.no/~dusan/diseases/cancer/ >http://home.online.no/~dusan/diseases/cancer/faq.htm >http://www.geocities.com/~mycleanse/ >http://www.geocities.com/HotSprings/1158 > >You are receiving this email because you elected to subscribe to the egroups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 Here you go Toni http://homestead.juno.com/slaf9999/risotriene.html _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 Annette, Sounds serious. I would try Gookinaid 1 qt. a day 858-689-1859. Buy powder form and make your own. Next, you may want to get a bounce-back chair to improve your autonomic tone 800-437-1765. Only two ideas I have. Good luck, Steve B. Re: Digest Number 1364 > RE: Mount Everest Altitude > > I don't know how to reply to an egroup, so I just pressed reply. I live > in WI and suddenly in August got very SOB and started fainting. Well > normally we thought, it is my POTS and it is time to change the dosage. > We cut it down twice. Then I had the tilt table which after 11 years was > surprisingly negative. I received a Vasoconstrictor by the cardiologist > to bring up my BP. Well all it did was swell me up w/ 35 # of fluid. > Anyway since August I am still on Oxygen 2 1/2 liters. At this I am > about 92%. When I stand up it just keeps dropping: > 80's.......70's...then we put it back on. So far nobody knows what to > do. I need to be on 2 1/2 Liters of O2 24 hours a day. Anyone have any > ideas?? > > Thanks, > Annette > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Annette, What sulphur supplement do you take? Gail snip: > I also saw a Homeopath last week and she > recommended... > Sulphur. I have just started taking it at a low > potency. Too early to tell if benficial. > > Regards, > Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Thanks for your help nne. I will have a browse and see what I can find. I don't know whether I want to buy online, would prefer personal shopping. Thanks for the link though. I'm interested in soaps, lip balm, hand cream, anything and everything really. I'm starting to get really interested in this. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 In a message dated 09/29/01 5:32:23 PM Central Daylight Time, salvation@... writes: > You wrote; > I have been on capryllic > acid, black walnut, pumpkin seed, > and pau d'arco for several months now and > recently had > muscle testing that indicated I was no longer needing those. > > > Tell me ~ the muscle testing you had ~ what is this called, > medically? Also, is it a regular GP that does this, or do > you have the blessing of a professional who has a passion to > kill Candida? hee hee....Basically, what I'm asking is ~ > what has muscle testing to do with Candida? > > And further you wrote: > > > > However, I tested strongly for colostrum and a homeopathic > candida remedy. > > > What does the colostrum have to do with Candida, and how did > the homeopathic remedy work? > > I'm grateful for any help, Annette, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Sorry for the blank messages, but aol has a bad habit of doing that on my computer....sending before I even type anything! lol > Tell me ~ the muscle testing you had ~ what is this called, > medically? Its called kinesiology. Do an internet search to find out more information on it, but basically you hold herbs against your body and hold your thumb and index fingers together, then someone pulls on them to determine the strength of the bond...if the two fingers are easily released then your body doesn't need this....if the two fingers are hard to break apart then your body does need them. Also, is it a regular GP that does this, or do > you have the blessing of a professional who has a passion to > kill Candida? Some naturopaths do this, however my herbalist is the one who does this for me. I was seeing a naturopath as my regular doctor doesn't subscribe to the candida theory. However, I found that the herbalist I use is much better than the naturopath. I won't go into all the details but a lot of what he prescribed made me sick, and not in a good way, ie wasn't die off. Also, he failed to recognize my situation as a candida problem even though I went to him for just that reason and emphatically stated to him that that was why I was there. All I really wanted from the naturopath was the great smokies stool test, but it wasn't until after he had run 4 other tests that I insisted on the one test he didn't order: the ONLY one that I wanted in the first place! I may go back to the naturopath to have more testing done later, but I feel so confident with ther herbalist who also does iridology. In fact last week she let me look at my eyes through her high powered magnifying lense and I was shocked to see how " green " my brown eyes were around the edges. I have done a lot of cleansing and its apparently working. Who knows...I may turn out to be green eyed afterall! lol hee hee....Basically, what I'm asking is ~ > what has muscle testing to do with Candida? Muscle testing doesn't diagnose a problem, it only helps " prescribe " the remedy, sort of speak. Iridology is really what helpd diagnose....do a search on that as well as its such an interesting subject. > What does the colostrum have to do with Candida, and how did > the homeopathic remedy work? > > Colostrum kills tons of things including yeast. The stool test that I did > showed I had high levels of a certain pathogenic bacteria and colostrum > will kill this as well. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Sorry I forgot to address the homeopathic remedy part: homeopathy works kinda like vaccines....like cures like. A minute amount of candida is in the remedy and its supposed to jump start your immune system to kill off candida. Not sure which one was more powerful as I started the colostrum and the homeopathic remedy at the same time. I have run out of the remedy but will get more on Monday, so perhaps I will see whether or not its making a difference when I again incorporate it into my protocol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 please delete my name from list Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Hi Annette My doc told me that muscle twitches can be caused by a lack of magnesium, which is good for the muscles. It is also known as " The Great Relaxer " . Hey, it works for me! Helen www.geocities.com/hheartchange I'm > of the opinion that the muscle twitching is a mineral deficiency. I have cut > back on a lot of the vitamins/minerals I was taking, and as a result these > twitches have increased in frequency. > > annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 In a message dated 10/15/2001 9:33:02 AM Central Daylight Time, salvation@... writes: > My doc told me that muscle twitches can be caused by a lack > of magnesium, which is good for the muscles. It is also > known as " The Great Relaxer " . Hey, it works for me! > Glad you sent this, because that is exactly what I thought I was lacking. I am taking a cal/mag supplement, but apparently it lacks enough magnesium for me. Also, since I've changed my protocol I've exeperienced a reoccurrence of other problems, ie cracked corners of my mouth and bruising of my legs.....guess its time to go back to square one which includes more vitamin C and B complex. lol annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 LeighAnn, Darn, I replied to this already and hit the wrong key and lost it. Here goes again (in a much shorter version). Come on over and visit us! It's nice and cool compared to the valley. Thanks for all the info...I'll check it out. Excellent advice! Do you know the difference between a will, a living will, and a medical directive? I'd travel +-50 miles. Have been going about 30 already. Love, Net How far North/South are you willing to travel to see a good Dr?...You can either make a will, or a living will, or just write up your wishes and have them notorized and keep a copy in a safe place. You can also put a copy in your glove box in your car too. Make sure someone else close to you also knows all your wishes, and I'd even give them a copy. Also alert your Dr to whatever your wishes are too. There is a thing called a Medical Directive, which will tell medical personnel what you want done if you are incapacitated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Annette, A will is something that can be contested and goes through probate. A living will or trust does NOT go through probate nor can it be contested. A Medical Directive tells Drs, hosps, and family what your wishes are if you should become incapacitated. Hope this answers your questions. I do plan do come over that way soon so I'll let ya know when!! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Annette, I was at Oceano State Beach 4/24-27 and Montana De Oro State Beach 6/19-22. Great places both. It was a nice to wear long pants and sweatshirts during the summer for a change. It was somewhere between 105 and 109 here today. Glenn > How far North/South are you willing to travel to see a good > Dr?...You can either make a will, or a living will, or just write up > your wishes and have them notorized and keep a copy in a safe place. > You can also put a copy in your glove box in your car too. Make sure > someone else close to you also knows all your wishes, and I'd even > give them a copy. Also alert your Dr to whatever your wishes are > too. There is a thing called a Medical Directive, which will tell > medical personnel what you want done if you are incapacitated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Debra- I would usually have the pleurisy flare up when I was experiencing other symptoms as well. I rarely experienced pleuritic pain without joint pain, extreme fatigue, GI distress, pelvic pain, or a combination of all of them. By the time I was diagnosed by a rheumy, I had joint pain/stiffness in various parts of my body, uterine inflammation with no apparent cause (even had laparascopic surgery to investigate), bouts of diarrhea & vomiting, pleurisy that would radiate into my arm & back so much that I went to ER thinking I was having a heart attack, and corneal inflammation/irritation. All of this was due to AS.....when I think of all the doctors I saw for each individual problem, I get angry. I am angry with myself for not knowing better, for not realizing there was a bigger issue at hand. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 Debra, I read a study that said when they did echocardiograms on people with reactive arthritis they found a high incidence of mild heart valve abnormalities. I have a rapid heartbeat and nobody knows why. Last April I walked into the rheumy's office feeling fine and they found my heart rate was 129. The rheumy heard a murmur, so sent me for an EKG and echo. They were both normal. They recently put me on atenolol for my blood pressure and that will also bring my heart rate down. I hope they do another echo on you and an EKG since it's been a long time since you had them done. They can't do you any harm, so I figure why not do it? Good luck. It would be interesting to do a poll on how many of us have rapid heartbeat. Janet in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 I have heard the same thing about heart valve abnormalities in reactive arthritis patients. The first heart abnormality was diagnosed when I was a young child but the second one was diagnosed after I had my daughter. Coincidentally, that is also when the pleurisy, joint pain, and general malaise began. I have EKGs and echos done yearly but since my current rheumy seemed particularly interested in my heart valve problems, he may want me to do them more often. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Annette, What bio-meds did you start him on? S S <p>Jan<br> <br> Could you please post what all you have done for your son? I am fairly new to all this. My son is 4 and we are currently doing Diflucan. We will start Chelation soon. My son was diagnosed PDD/mild autism a little over a year ago. I just started bio-meds in October. My son has been a emotional rollercoaster the last couple of weeks! <br> <br> Thanks<br> <br> Annette<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Dear Annette, I don't think I was aware of your having a myeloprolific disease as well as CML. I met a woman who had 3 myeloprolific diseases. I think I read somewhere that they were a precurser to CML. Not a nice place to be, but we have to live with whatever was handed us. It would seem that one would be fighting the other if you were taking meds for any of them. I am in acute renal failure from all the CML drugs and I sometimes wonder what will happen if I have to have dialysis, wherein it would wash out the CML meds every time. Then I tell myself that I should not be projecting and worrying about something that may never happen. I am sure you have found a way to live with what you personally have. It's just hard to imagine if you don't have it. Thanks for sharing that part of you. Does it make it more difficult to treat your CML and are you being treated for both, is that possible? Carpe Diem, Lottie Duthu As I said I never heard of pegasus for CML, but I have known people who were on pegalyated inteferon for CML, sometimes called Peg Intron A. I took Inteferon, but don't understand all the implications of the pegaylated intron and how it differs. I do know there are several different types of INF and even human inteferon. When I was on INF, I didn't really know much about my disease and even less about INF, just that it made you feel like you had the flu all of the time and everything tasted metallic. Quote Link to comment Share on other sites More sharing options...
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