Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Pegasus is a form of interferon. That supposedly will help with Myelofibrosis and CML that I am both dxed with. I never heard of it being used for CML, but thought I would ask. Tks for all the info on Tasigna. My heart already beats strange and hard. I had an EKG today as baseline before starting Tasigna and the tech said I had extra beats. I don't recall ever having that said to me before. I am very weak lately and progressing continually in that direction which is not pleasant. I am on Hydrea now. White count was 103,000 and is coming down last count 77,000. Hemoglobin coming down of course too. At 9.3 now. I usually get transfused at 9. I just need some encouragement ..My CML count with the BCR ABL hangs around 3%. The Myelofibrosis has been ongoing since 11/98 with a 4 + fibrosis since the beginning and had my spleen removed couple of years ago. The white count went up after spleen removal. Been thru the mill and back..and continue to live.interesting. I appreciate you all.oh yeah.I'm southern USA Annette Livingston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi, I have heard of pegylated , not spelled right, interferon, but not pegasus. Think they are similar? Bobby On Tue, Mar 22, 2011 at 5:56 PM, Annette Livingston < thoughtsfromannette@...> wrote: > > > Pegasus is a form of interferon. That supposedly will help with > Myelofibrosis and CML that I am both dxed with. I never heard of it being > used for CML, but thought I would ask. Tks for all the info on Tasigna. My > heart already beats strange and hard. I had an EKG today as baseline before > starting Tasigna and the tech said I had extra beats. I don't recall ever > having that said to me before. I am very weak lately and progressing > continually in that direction which is not pleasant. I am on Hydrea now. > White count was 103,000 and is coming down last count 77,000. Hemoglobin > coming down of course too. At 9.3 now. I usually get transfused at 9. I > just need some encouragement ..My CML count with the BCR ABL hangs around > 3%. The Myelofibrosis has been ongoing since 11/98 with a 4 > > + fibrosis since the beginning and had my spleen removed couple of years > ago. The white count went up after spleen removal. Been thru the mill and > back..and continue to live.interesting. I appreciate you all.oh yeah.I'm > southern USA > > Annette Livingston > > Quote Link to comment Share on other sites More sharing options...
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