Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Vicky, I am so sorry to hear about the blood donating... I have never heard that before... Where was he going to give blood??? That is a real disgrace. -dz-, Jan, Vicky and anyone who is really down at this point.... I am saying a special prayer for you ... This Hepatitis is brutal and it has no mercy... I have been thru so many phases, that nothing surprises me at all........ Keep a good attitude. That truly helps.... Dennis has been there too, as well as S.J. Terri, , and the rest of us.....We need to share our feelings with each other, and lean on each other... That is how we gain the courage and strength to go on!!!!! Now lets get our true feelings out here..... Not what we think someone wants to hear.... To tell you the truth I am really pissed off about my health..... I don't smoke, drink and haven't for 12-13 years and I eat healthy.... Now they are diagnosing me with emphysema and a hardening of the stomach Aorta.....I have a inhaler now to use x's a day and quite frankly I am really pissed off because I do al the right things and it still didn't help... There!!!!!!! Now I feel better...... ;o Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Vicki this is the new Red Cross guideline. Mt daughter, 19, who lives with me was told that too. She could, however, move out for one year then she could give blood. We know how careful we are about possibly giving this disease to our loved ones but the RC doesn't. On the other had, I belive I contracted hep c from blood transfusions in 1985, and wish that these stiffer guidelines had been in place at that time-but then I wouldn't have gotten to meet all you nice folks....Diane, please keep in mind that we are not given more than we have the stregth to bare-and you must be Herculean. From: Sent: 10/2/01 6:34:24 PM Subject: [ ] Blood Donors Hey everyone, I learned something new today. My Husband went to give blood and he had to fill out a questionaire. One of the questions was do you live with anyone who has hepatitis. (Keep in mind that he's been tested 2 x and both times he was negative). After filling it out and waiting one hour, he was told that not only can't he give blood, but anyone else who lives with me can't either. (this would include my 21 yr old son). I could tell he was upset about not being able to donate even though he tried to hide it from me. This really made me sad Has this happened to anyone else? Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Thanks Diane for the prayers. My husband (jim) was going to give blood at the Red Cross. You keep hanging in there Diane. You are someone I look up to. Love and Prayers, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Yeah, thats what they told Jim too. If he wanted to move out for a year then he'd be eligible. He thought that was funny. I gave him THE LOOK! Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 , I have been Herculean!! ;o I am not giving up.... Then I would be the loser. I try and have been keeping positive thoughts....... Thanks ((())) I also got my Hep C from transfusions.... But don't know which year.. Got them in the late 60's, 70's and the last was 1981... I myself think it was 81 because I was always sick after that.... Thought I had the flu for almost a year...... Must have been the Hep C. Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 I never heard that one before. I thought their initial finger poke would tell them whether it was ok or not, like even if you or I went to give blood and didn't tell them we had had hepatitis, they would detect it. I haven't attempted to give blood since I got hav in 1981, so I wouldn't know how it may have changed. (My wife is afraid to give blood) -dz- --- VicLea227@... wrote: > Hey everyone, I learned something new today. My > Husband went to give blood > and he had to fill out a questionaire. One of the > questions was do you live > with anyone who has hepatitis. (Keep in mind that > he's been tested 2 x and > both times he was negative). After filling it out > and waiting one hour, he > was told that not only can't he give blood, but > anyone else who lives with me > can't either. (this would include my 21 yr old son). > I could tell he was > upset about not being able to donate even though he > tried to hide it from me. > This really made me sad Has this happened to > anyone else? > > Vicky > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Thanks Diane, you're absolutely right, it's nice to share positive thoughts in our moments of strength, but it's ok to reach out and vent in our weakness, too. That's what we're here for. I admire your strength. I thought it was ironic also, that I had quit drinking and using drugs, living a healthier lifestyle and 5 years later I learn that I have liver disease. Does anybody remember Savoy Brown? their song: Well I know there's folk in hospitals Who are far worse off than me Oh, but that don't mean too much When my spirit don't feel free And I'm crying --- diane214@... wrote: > Vicky, > I am so sorry to hear about the blood donating... > I have never heard > that before... Where was he going to give blood??? > That is a real > disgrace. > -dz-, Jan, Vicky and anyone who is really down at > this point.... I am > saying a special prayer for you ... This Hepatitis > is brutal and it has > no mercy... I have been thru so many phases, that > nothing surprises me > at all........ Keep a good attitude. That truly > helps.... Dennis has > been there too, as well as S.J. Terri, , > and the rest of > us.....We need to share our feelings with each > other, and lean on each > other... That is how we gain the courage and > strength to go on!!!!! Now > lets get our true feelings out here..... Not what we > think someone wants > to hear.... To tell you the truth I am really pissed > off about my > health..... I don't smoke, drink and haven't for > 12-13 years and I eat > healthy.... Now they are diagnosing me with > emphysema and a hardening of > the stomach Aorta.....I have a inhaler now to use > x's a day and quite > frankly I am really pissed off because I do al the > right things and it > still didn't help... There!!!!!!! Now I feel > better...... ;o > > Angel Hugs, > Diane > > May Rainbow Dreams Color Your World With Love, Hope, > Peace & Unity > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 I agree it's better to err on the side of caution, but it makes me a little bit nervous if they have to depend on a person's word as to whether they are a potential risk to the blood supply. I thought they were more confident in their ability to screen out infected blood. -dz- --- alamedic <alamedic@...> wrote: Vicki this is the new Red Cross guideline. Mt daughter, 19, who lives with me was told that too. She could, however, move out for one year then she could give blood. We know how careful we are about possibly giving this disease to our loved ones but the RC doesn't. On the other had, I belive I contracted hep c from blood transfusions in 1985, and wish that these stiffer guidelines had been in place at that time-but then I wouldn't have gotten to meet all you nice folks....Diane, please keep in mind that we are not given more than we have the stregth to bare-and you must be Herculean __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 My turn....It's more personal though...I am tired of always being home like I'm suppose to doing exactly as supposed to and never getting any appreciation...In fact I get criticized....put down and accused of things I don't do......Now the SS office is pissing me off again....wedding ring is too tight now, had to get it sized again......dog needs his nails cut...and they didn't have any damn tan school pants for Kristy......Thanks for listening but I don't feel better...Now I feel like an ass for spilling my guts and to top it all off I think my wonderful hubby is seeing someone..No not just silly doubts...he even made a slight comment about it..of course he said later that he just said it to hurt me...well it worked!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Did you all hear that from all the people that donated blood for the terror attacks that many were notified later that they had HIV or HCV......How sad that there are so many more of us out there that have been in the dark too.....They went out of the goodness of their hearts to help others and had to find this out but when I was first diagnosed just at the clinic I go to there were 40 people who were notified and didn't show for return appts....That is even more sad.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 On the plus side, thier kindness helped them find out sooner rather than later, and may have helped improve their long term chances for recovery. -dz- --- Jannewilms42@... wrote: > Did you all hear that from all the people that > donated blood for the terror > attacks that many were notified later that they had > HIV or HCV......How sad > that there are so many more of us out there that > have been in the dark > too.....They went out of the goodness of their > hearts to help others and had > to find this out but when I was first diagnosed just > at the clinic I go to > there were 40 people who were notified and didn't > show for return > appts....That is even more sad.... > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Dear & Caron, I was a blood donor, and when I went to give blood they asked why I was at the hospital at that time, I said to get a MRI of my sinuses. They said they would not take my blood because I might need surgery. The next week when the doctor looked at the MRI, he had ordered a CBC and he said there was something wrong, but they would wait a month and re-take my blood. That is when I was diagnosed with CML. No we cannot give blood. Unfortunately, there is no place on the DL to suggest that your organs be given to someone with CML. They might be in remission. I was told not to, because even if you are PCRU, it hides and it is in your body, maybe in the organ they transplant. Also, I read a story (maybe in Reader's Digest) that a man had lymphoma and had a BMT. When he died, he was considered cured, so his family donated all of his organs to 5 people. Each person was later diagnosed with lymphoma and ultimely died from it. I would not want to take the chance, even if it was someone with CML, unless they fully agreed to take the chance and there were no other donors. My 2 cents, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Lottie, I would never want to take that chance either. I think for me it was sad because that was a way for me to give back if by chance I were to die in a way that my organs could be of use to someone else. Caron Sent from my Verizon Wireless BlackBerry [ ] Blood donors Dear & Caron, I was a blood donor, and when I went to give blood they asked why I was at the hospital at that time, I said to get a MRI of my sinuses. They said they would not take my blood because I might need surgery. The next week when the doctor looked at the MRI, he had ordered a CBC and he said there was something wrong, but they would wait a month and re-take my blood. That is when I was diagnosed with CML. No we cannot give blood. Unfortunately, there is no place on the DL to suggest that your organs be given to someone with CML. They might be in remission. I was told not to, because even if you are PCRU, it hides and it is in your body, maybe in the organ they transplant. Also, I read a story (maybe in Reader's Digest) that a man had lymphoma and had a BMT. When he died, he was considered cured, so his family donated all of his organs to 5 people. Each person was later diagnosed with lymphoma and ultimely died from it. I would not want to take the chance, even if it was someone with CML, unless they fully agreed to take the chance and there were no other donors. My 2 cents, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
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