Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 sharon.......i love nj but the weather kills me ....i live in morris county....know of ur doc..(docG) have heard she is going thru the ringer.....u may want to check out my support group in morristown on the third tues.of the mont .....the morris county support group in morristown .........if u want direstion call me at 973-627-0345....Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 In a message dated 10/18/99 4:57:52 PM Eastern Daylight Time, RMcmur3194@... writes: << sharon.......i love nj but the weather kills me ....i live in morris county....know of ur doc..(docG) have heard she is going thru the ringer.....u may want to check out my support group in morristown on the third tues.of the mont .....the morris county support group in morristown ........if u want direstion call me at 973-627-0345....Reid >> Hi Reid what is happening with this doctor " she is going thru the ringer.... " thank you best, lea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 she is being pressured by the powers trhat be ......like dr b....on the over dx and over treatment of lyme the normal political stuff that llmd 's go thru.......i happens alot in the state of NJ..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Reid: I am so discouraged with all the politics of lyme. Not only do we have an invisible debiliting disease, but those trying to help us are bothered by insurance, government etc.;therefore, the doctors don't want to help us any longer----insurance companies are getting what they want!! I live in an area where there is no aggressive llmd, and when I try to go elsewhere to a llmd who takes insurance, I get the " I don't want to see a patient unless they live close by " . thank you for the info. Maybe someday a test like Dr. will be availabe so that we don't have to go thru this anymore. take care best, lea << she is being pressured by the powers trhat be ......like dr b....on the over dx and over treatment of lyme the normal political stuff that llmd 's go thru.......i happens alot in the state of NJ..... Reid >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 In a message dated 10/19/99 4:02:46 PM Eastern Daylight Time, Namkrats3@... writes: << Why won't a LLMD see you if you don't live nearby...afraid you'll be late for your app't.? If so, that's disgraceful! >> kinf of hard to attend to a patient in an emergency who lives 100 miles away...b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 In a message dated 10/19/99 5:08:42 PM Eastern Daylight Time, Namkrats3@... writes: << Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> In a perfect world....yes.. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 In a message dated 10/19/1999 4:14:29 PM Eastern Daylight Time, BratDet@... writes: << kinf of hard to attend to a patient in an emergency who lives 100 miles away...b >> My LLMD lives 110 miles away, treatment is as easy as picking up the phone. For other medical problems I see my PCP. Deb- Richmond VA Husband hunts on deer populated area, this where I believe the tick came from First contracted Lyme 1989, bull's eye rash on stomach, flu-like symptoms, treated with Doxy for 21 days and recovered. Re-bitten in Sept, 1998, ringworm like rash, flu-like symptoms in 11-98, went undiagnosed until Aug 1999, symptoms multiplied and become worse. Started on Amoxicillin 500mg and Probenicid 500mg, developed an ulcer. I am now taking IV Rocephen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 In a message dated 10/19/1999 5:08:42 PM Eastern Daylight Time, Namkrats3@... writes: << B, Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> Joan, great minds think a like! Deb-VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Joan That is exactly how I feel about this. I believe it is all the problems that llmd's are getting from treating too many lyme patients. lea ct << B, Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 This is the policy of the office " not to book new patient appts. unless living in area " . best, lea << I think her doctor just made that up as an excuse, because he didn't want to treat her. Re: [Lyme-aid] relapse >From: BratDet@... > >In a message dated 10/19/99 5:08:42 PM Eastern Daylight Time, >Namkrats3@... writes: > ><< Couldn't her PCP attend to her in an emergency and confer with her LLMD > as a specialist...work together,,,I know it's not a perfect world...just > a thought. It's better than not getting the proper tx for LD at > all...Joan LI NY >> >In a perfect world....yes.. B > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Lea, Why won't a LLMD see you if you don't live nearby...afraid you'll be late for your app't.? If so, that's disgraceful! Hang in there, Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 From: Memyo@... Hi Reid: I am so discouraged with all the politics of lyme. Not only do we have an invisible debiliting disease, but those trying to help us are bothered by insurance, government etc.;therefore, the doctors don't want to help us any longer----insurance companies are getting what they want!! I live in an area where there is no aggressive llmd, and when I try to go elsewhere to a llmd who takes insurance, I get the " I don't want to see a patient unless they live close by " . thank you for the info. Maybe someday a test like Dr. will be availabe so that we don't have to go thru this anymore. take care best, lea << she is being pressured by the powers trhat be ......like dr b....on the over dx and over treatment of lyme the normal political stuff that llmd 's go thru.......i happens alot in the state of NJ..... Reid >> Send to -Offtopiconelist messages unrelated to lyme, please. /archive/lyme-aid /archives.cgi/Lyme-Documents To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 B, Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 From: BratDet@... In a message dated 10/19/99 4:02:46 PM Eastern Daylight Time, Namkrats3@... writes: << Why won't a LLMD see you if you don't live nearby...afraid you'll be late for your app't.? If so, that's disgraceful! >> kinf of hard to attend to a patient in an emergency who lives 100 miles away...b Send to -Offtopiconelist messages unrelated to lyme, please. /archive/lyme-aid /archives.cgi/Lyme-Documents To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 I think her doctor just made that up as an excuse, because he didn't want to treat her. Re: [ ] relapse >From: BratDet@... > >In a message dated 10/19/99 5:08:42 PM Eastern Daylight Time, >Namkrats3@... writes: > ><< Couldn't her PCP attend to her in an emergency and confer with her LLMD > as a specialist...work together,,,I know it's not a perfect world...just > a thought. It's better than not getting the proper tx for LD at > all...Joan LI NY >> >In a perfect world....yes.. B > >>Send to -Offtopiconelist messages unrelated to lyme, please. >/archive/lyme-aid >/archives.cgi/Lyme-Documents >To unsubscribe, send email to -unsubscribeonelist >You may substitute " subscribe " , or " digest " or " normal " for >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 In a message dated 10/19/99 7:37:02 PM Eastern Daylight Time, DJinMECH@... writes: << Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> you know...if one is paying out of pocket for your LLMD, it will easily work.. ..BUT if your LLMD is your primary care Dr. like mine is.. ..if you are ill...that is who attends you at your local hospital.... ..if you are not local, the Dr. can't possibly travel to take care of you.... so there are no simple answers.... someone suggested I change my kids pedi to a Lyme Literate one 40 miles away...nice idea...unless they need to be hospitalized.....for any reason...or need emergency care...b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 B, I agree that having a LLPCP who is not local is not a good idea for the reasons that you stated...however, my LLMD is an infectious disease specialist, so I am able to have a local PCP if I want to, and see the specialist, and both are covered by my insurance. Another option that some insurance companies have, is the option of changing your PCP on a daily basis. This allows one to " scout out " a PCP to one's liking...hopefully a LLMD or one who will refer to a Lyme specialist. Take care, Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 From: BratDet@... In a message dated 10/19/99 7:37:02 PM Eastern Daylight Time, DJinMECH@... writes: << Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> you know...if one is paying out of pocket for your LLMD, it will easily work.. ..BUT if your LLMD is your primary care Dr. like mine is.. ..if you are ill...that is who attends you at your local hospital.... ..if you are not local, the Dr. can't possibly travel to take care of you.... so there are no simple answers.... someone suggested I change my kids pedi to a Lyme Literate one 40 miles away...nice idea...unless they need to be hospitalized.....for any reason...or need emergency care...b Send to -Offtopiconelist messages unrelated to lyme, please. /archive/lyme-aid /archives.cgi/Lyme-Documents To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Deb, I'm glad to see that you are able to use a LLMD who is 110 miles away, and it works for you. It would be nice if eveyone else who needed a LLMD, but didn't live nearby, could work it out, too. It's disgraceful that it can be so difficult for so many people to find a LLMD who will accept them as a patient...Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 From: DJinMECH@... In a message dated 10/19/1999 4:14:29 PM Eastern Daylight Time, BratDet@... writes: << kinf of hard to attend to a patient in an emergency who lives 100 miles away...b >> My LLMD lives 110 miles away, treatment is as easy as picking up the phone. For other medical problems I see my PCP. Deb- Richmond VA Husband hunts on deer populated area, this where I believe the tick came from First contracted Lyme 1989, bull's eye rash on stomach, flu-like symptoms, treated with Doxy for 21 days and recovered. Re-bitten in Sept, 1998, ringworm like rash, flu-like symptoms in 11-98, went undiagnosed until Aug 1999, symptoms multiplied and become worse. Started on Amoxicillin 500mg and Probenicid 500mg, developed an ulcer. I am now taking IV Rocephen Send to -Offtopiconelist messages unrelated to lyme, please. /archive/lyme-aid /archives.cgi/Lyme-Documents To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Lea, I seem to recall that you are now on IV abx. Were you able to find a local LLMD? Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 From: Memyo@... Hi Joan That is exactly how I feel about this. I believe it is all the problems that llmd's are getting from treating too many lyme patients. lea ct << B, Couldn't her PCP attend to her in an emergency and confer with her LLMD as a specialist...work together,,,I know it's not a perfect world...just a thought. It's better than not getting the proper tx for LD at all...Joan LI NY >> Send to -Offtopiconelist messages unrelated to lyme, please. /archive/lyme-aid /archives.cgi/Lyme-Documents To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 Hello I'm avoiding my laundry and getting ready for work lol anyways In my first year I responded well and my liver test were normal really quickly, I had no symptoms for the first year, After this I started having a few and as the year went on I had a page of symptoms I believe these are symptoms (or most ) from the medications and not from the illness it self. (sad trade off). When I went on entocort, almost all my symptoms went away, even when liver function test were still high. Now they are normal and my symptoms are nausea, pain at night (everywhere) and fever and migraines. But if I rest and take it easy when necessary I can control them a bit. Sometimes I cheat and take a tylenol 3 that I'm aloud a day and use it a bed time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 , I hope you aren't having a relapse? I've never had one and hope not to in the future, but it seems to me that relapse would mean the inflammation process begins again thus additional liver damage. Depending on how much cirrhosis was already there, this would increase the liver damage. But, don't take my word for it. This just seems logical to me. Are you alright? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 Dear Geri, Thanks for your response...I'm ok. I'm not relapsing, in fact, I haven't quite reached remission. Almost there though! I've been on pred and imuran for about 5 months now. 12.5 mg of pred currently. My levels have been petering around 50, and my doctor wants to increase my imuran to 100mg, but I've had a mouth infection so she said to hold off. Actually, I now also have a yeast infection (sorry all), and I'm absolutely EXHAUSTED! I'm enjoying everyone's messages..though I don't often write. Geri, you're an inspiration to all. Everyone take care of yourselves..my best to all. >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: Re: [ ] Relapse >Date: Mon, 08 Nov 1999 02:54:20 -0800 > >, >I hope you aren't having a relapse? I've never had one and hope not to in >the future, but it seems to me that relapse would mean the inflammation >process begins again thus additional liver damage. Depending on how much >cirrhosis was already there, this would increase the liver damage. But, >don't take my word for it. This just seems logical to me. > >Are you alright? >Take care, >Geri > > > >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 , Wonder why your doctor's increasing your Imuran? I was told mine would probably be increased but it wasn't. Probably because my labs stabilized over a 6-8 month periods without even spiking once. You should be able to get rid of the yeast infection with Monostat, shouldn't you? Have you tried it? I wonder if women with AIH are especially vulnerable since I've had a couple the past few months, but before that it had been at least 20 years. Thanks for the kind words. If I ever reach the point where I can go back to work part-time, maybe I can get references here? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 1999 Report Share Posted November 13, 1999 Hi Geri, My doctor's increasing my Imuran because my labs have petered at 50 and are no longer going down. She wants to get my levels to normal, and get me OFF of prednisoneo, which is why she's increasing my Imuran. As far as the yeast infection, we are definitely more prone to them being on corticosteroids. Just another wonderful side effect. I've never had one before, and I am using Monostat. Seems to be working. As far as the mouth infection goes, the penicillin couldn't get rid of it, so my wisdom teeth are going to be pulled within the next two weeks! AH!! I think I'll be getting IV sedation, and it will be done in the hospital.. I hope it doesn't mess up my labs! It has to be done, or I'll keep on getting infections..boo. Anyways, need a reference Geri? I'll write you one anytime! Take care of yourself.. >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: Re: [ ] Relapse >Date: Fri, 12 Nov 1999 02:23:58 -0800 > >, >Wonder why your doctor's increasing your Imuran? I was told mine would >probably be increased but it wasn't. Probably because my labs stabilized >over a 6-8 month periods without even spiking once. > >You should be able to get rid of the yeast infection with Monostat, >shouldn't you? Have you tried it? I wonder if women with AIH are >especially vulnerable since I've had a couple the past few months, but >before that it had been at least 20 years. > >Thanks for the kind words. If I ever reach the point where I can go back to >work part-time, maybe I can get references here? > >Take care, >Geri > > > >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 JANET I JUST ALSO RECENTLY RELAPSED AND WHAT YOU EXPLAINED IS EXACTLY HOW I FELY TO A T. THE BLOOD TESTS YOU WANT TO KEEP AN EYE ON ARE THE ALT AND AST. NORNAL ALT IS;9-52 NORMAL AST IS: 8-39. ABOUT THREE WEEKS AGO MINE WERE ALT 1350 AND AST 968.AND THATS WHEN I WAS FEELING LIKE I COULD NOT GET OUT OF BED.I WAS YELLOW AND I HAD A SOR THROAT WHIICH TURNED OUT TO BE A REALLY BAD CASE OF THRUSH. I GOT THAT THE LAST TIME I WAS PUT ON HIGH DOSE OF PREDNISONE. BUT AS SOON AS I WAS GIVEN MYCELEX TABLETS THAT DISSOLVE IN YOUR MOUTH IT WENT AWAY IN ABOUT 12 HRS. IF YOU HAVE ANY QUESTIONS ABOUT BLOOD WORK PLEASE FEEL FREE TO ASK I AM PRETTY GOOD AT READING MY OWN LABS.FEEL FREE TO E-MAIL ME DIRECTLY IF YOU WOULD LIKE. KOOLMOM@... hope this helps HEIDI >< egroups> >From: " janetelmes " <janetelmes@...> >Date: Sat, 4 Nov 2000 22:46:38 -0000 >Reply- egroups >Subject: [ ] Relapse > >Beth, > >Sorry to hear of your recent diagnosis. You are now one of the AIH club - >only the best people are, and the real cream belong to this group so you are >in the finest company! > >The way I define a relapse in myself is when I get jaundiced again with the >accompanying yuck feelings and assorted other problems. I do not know much >about blood test figures as I have only recently asked to be told them (and >am not really sure what they should be anyway). They do not seem to relate >in any way to those I have read from others in the group - maybe a >difference between countries? - or maybe my own misunderstanding. > >I can usually tell when I am about to get jaundiced as for a while >beforehand I feel extra tired, get a funny taste in my mouth, darker urine >and then the whites of my eyes start to get a yellowish tinge. This >develops into a really repulsive yellow all over my body and I feel >breathless (swollen liver I think) and then I begin to feel sick. The >doctor does blood tests of course and tells from the results - and my >outward physical signs - that I am, as I call it, 'on the turn again' > >How do others in the group define a relapse? > >Janet >UK > > [ ] New Member >> > >> > >> > > I am an individual who has had autoimmune hepatitis for about 12 >> > > years. I have been very fortunate in that most of my liver tests >> > > have been nearly normal. I was on Imuran and prednisone for a few >> > > years. Currently, I am on 5mg. of prednisone and feel I am doing >> > > very well. One attempt was made to take away meds, but that lasted >> > > all of 3 weeks when I went back to pre-treatment levels. I do feel >> > > that prednisone has affected me especially emotionally, although I'm >> > > not sure my doctor believes me. >> > > Currently, I am employed as a speech pathologist, but I need to >> > > get out of that field. I'm haveing a hard time coping with all of >> > > the illness and chronic disability I face every day. >> > > I would appreciate being in contact with others who have had the >> > > disease for long periods of time and see what some of their struggles >> > > have been. I've had my ups and downs and would like to relate to >> > > others who may have had similar issues. >> > > I look forward to participating. >> > > >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Heidi, It depends...<ggg> How's that for an answer. Any inflammation is potentially harmful. But, long term damage depends on how severe the inflammation and how long it lasts. Some people are able to go into remission and not suffer any permanent damage. Those who do go into remission should have regular liver panels to catch any increased inflammation early. I'm currently in remission ( I'm not one of the fortunate ones...I do have permanent damage ) and I have my LFT's done every 6 months. Don Terradon Unlimited http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 Re: [ ] New Member>>Welcome>>I have had AIH since 1967. At present I am taking Prednisolone 5mgs and>Azathioprine (Imuran) 50 mgs per day as well as other medication for>complications associated with the AIH. I have had 6 relapses since the>first time when AIH was diagnosed, all a result of reduction in Prednisolone>I think.>>I will be happy to exchange info and experiences with you any time.>>Regards>Janet>UK> [ ] New Member>>>> I am an individual who has had autoimmune hepatitis for about 12>> years. I have been very fortunate in that most of my liver tests>> have been nearly normal. I was on Imuran and prednisone for a few>> years. Currently, I am on 5mg. of prednisone and feel I am doing>> very well. One attempt was made to take away meds, but that lasted>> all of 3 weeks when I went back to pre-treatment levels. I do feel>> that prednisone has affected me especially emotionally, although I'm>> not sure my doctor believes me.>> Currently, I am employed as a speech pathologist, but I need to>> get out of that field. I'm haveing a hard time coping with all of>> the illness and chronic disability I face every day.>> I would appreciate being in contact with others who have had the>> disease for long periods of time and see what some of their struggles>> have been. I've had my ups and downs and would like to relate to>> others who may have had similar issues.>> I look forward to participating.>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Thanks I have LFT's every week so I quess I am safe. Heidi >< egroups> >From: " Don Hanson " <donhanson@...> >Date: Sat, 11 Nov 2000 13:40:15 -0600 >Reply- egroups >Subject: RE: [ ] RELAPSE > >Heidi, > >It depends...<ggg> How's that for an answer. Any inflammation is potentially >harmful. But, long term damage depends on how severe the inflammation and >how long it lasts. > >Some people are able to go into remission and not suffer any permanent >damage. Those who do go into remission should have regular liver panels to >catch any increased inflammation early. I'm currently in remission ( I'm not >one of the fortunate ones...I do have permanent damage ) and I have my LFT's >done every 6 months. > >Don >Terradon Unlimited >http://www.TerradonUnlimited.com > " People who ask me how we can still have such a positive attitude after all >we've been through, have it all wrong.We've been able to get through all >that we have BECAUSE we have a positive attitude " . Don Hanson 8/2000 > Re: [ ] New Member > > > >Welcome > > > >I have had AIH since 1967. At present I am taking Prednisolone 5mgs and > >Azathioprine (Imuran) 50 mgs per day as well as other medication for > >complications associated with the AIH. I have had 6 relapses since the > >first time when AIH was diagnosed, all a result of reduction in >Prednisolone > >I think. > > > >I will be happy to exchange info and experiences with you any time. > > > >Regards > >Janet > >UK > > [ ] New Member > > > > > >> I am an individual who has had autoimmune hepatitis for about 12 > >> years. I have been very fortunate in that most of my liver tests > >> have been nearly normal. I was on Imuran and prednisone for a few > >> years. Currently, I am on 5mg. of prednisone and feel I am doing > >> very well. One attempt was made to take away meds, but that lasted > >> all of 3 weeks when I went back to pre-treatment levels. I do feel > >> that prednisone has affected me especially emotionally, although I'm > >> not sure my doctor believes me. > >> Currently, I am employed as a speech pathologist, but I need to > >> get out of that field. I'm haveing a hard time coping with all of > >> the illness and chronic disability I face every day. > >> I would appreciate being in contact with others who have had the > >> disease for long periods of time and see what some of their struggles > >> have been. I've had my ups and downs and would like to relate to > >> others who may have had similar issues. > >> I look forward to participating. > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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