Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 , I have to be real honest with you. You have to quit dwelling on dying and start putting all your strength into living. I'm a great believer in, we draw to us that which we keep in our head. In other words, you keep thinking about dying and worrying and it will come. Focus on what you can do to stay well. This disease doesn't have to kill you!!! In fact, most learn to live with it. I can't say it's always fun but you can do it. I know you're scared. We were all scared when first dx. The unknown is scary to everyone. Educate yourself. Ask questions. Read but be careful to not focus on the negative. I was dx in Nov. 2000 and I'm currently in remission. It was a hard 2 yrs but I made it. I can't tell you I feel great and everything is wonderful but the reason I can't has nothing to do with my AIH. I'm also diabetic and have fibromyalgia (just got dx with that today). As far as my liver is concerned I'm OK. I'm not trying to tell you you shouldn't be scared or that everything will be fine. I don't know. I do know that you have a great support system here and you need to use it to help you get through your fear. I worry about your daughter. You're right, she shouldn't have to worry about this. You can take that worry away by just telling her that you believe everythings going to be OK even if you don't. Practice that thinking. You have to be strong for her. My daughter is 22yrs old and when I first told her she got very scared. She was old enough to do some research herself but I still have to reassure her that I believe I'm going to be OK. I'm her mother and that's my job. I wish I could give you a big hug right now. You sure sound like you need one. I'm sending one to you. {{{{{{{{{{{}}}}}}}}}}} Please be gentle with yourself. Lots of Love, Debbie/FL > Hi friends.... > I am sitting here waiting for the MD to call me with more info on my > labs. There was a mix up at the lab, and my results were sent to one > of my other md's. I had to pick them up from that office and take > them to the correct MD. Of course I took a look at them. Everything > looked great except my sed rate was elevated. It was 26 and normal > was 0-20. I am of course very concerned. I had hoped beyond hope that > they would come back normal. I have never had the sed rate drawn in > this last year, so I don't have anything to compare it with. What is > the sed rate? What does this mean for me?? I am so scared I am going > to die. I have been crying all day. I am so angry that my body won't > get well! I have been sick since I had that first m/c back in aug of > 99. It's been one thing after another, but when I delivered my son, > the problems really began. He was such an answer to prayer. We > thought we would never be able to have another child. He is my little > miracle. Now I need a miracle. Please pray for me and my family. This > is all really starting to take it's toll. My 6 yr old daughter is > afraid I am going to die. It's not fair that she has to worry like > this. > > I am so sorry to unload. I am at a really low point right now. You > are all in my thoughts and prayers. I'll write when I hear from the > Md. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Hi, I will definitely pray for you and your family. My question is: What is the " sed rate " and what does it have to do with AIH? Sorry - I am new to the group but would like to contribute positively as much as I can. Take care, Aisha >From: " greggren " <greggren@...> >Reply- > >Subject: [ ] lab results >Date: Thu, 27 Jun 2002 16:57:51 -0000 > >Hi friends.... >I am sitting here waiting for the MD to call me with more info on my >labs. There was a mix up at the lab, and my results were sent to one >of my other md's. I had to pick them up from that office and take >them to the correct MD. Of course I took a look at them. Everything >looked great except my sed rate was elevated. It was 26 and normal >was 0-20. I am of course very concerned. I had hoped beyond hope that >they would come back normal. I have never had the sed rate drawn in >this last year, so I don't have anything to compare it with. What is >the sed rate? What does this mean for me?? I am so scared I am going >to die. I have been crying all day. I am so angry that my body won't >get well! I have been sick since I had that first m/c back in aug of >99. It's been one thing after another, but when I delivered my son, >the problems really began. He was such an answer to prayer. We >thought we would never be able to have another child. He is my little >miracle. Now I need a miracle. Please pray for me and my family. This >is all really starting to take it's toll. My 6 yr old daughter is >afraid I am going to die. It's not fair that she has to worry like >this. > >I am so sorry to unload. I am at a really low point right now. You >are all in my thoughts and prayers. I'll write when I hear from the >Md. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 , Keep your head up. I'm sending you a BIIIIIG Hug. /Il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Debbie-- Thanks so much for your kind words. Forgive me for sounding like such a flake earlier. I really am normally very levelheaded and rational. I think the fatigue is starting to get to me. I agree that I do need to be more positive. This last year my emotions have been a rollercoaster. It's seems to follow my illness with all the ups and downs. The " not knowing " is just taking it's toll. After more than a year, I had hoped to be feeling better, or to at least know why I wasn't feeling better. It's really in God's hand. I think that is the hardest part. Not having any control over my health. I like to be able to fix things! } God is good, and He'll see us all thru the rough spots! I am just going to sit tight and let the Md's run their tests. Hopefully when it's all said and done I'll have some answers. You are all such a wonderful group of people! I am so blessed to have such a wonderful group of friends! }I am going to draw my strength from God and all of you! } Hugs- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 HI , I wonder if you've had a chance to read my email about my diet and protocol. Would you consider trying the carrot-beet juice, rice bran mixture, no fried or high fat foods, and make sure to have good bowel movements? It seems so simple, but I'd like to believe that every little bit helps. I don't know if w/o prednisone I will suffer a relapse later, but with this diet and 75mg Imuran I hope not, and for now at least, my enzymes are in the teens and I work 3 jobs, and feel great. Hang in there...see if you want to try that...and hope to get great news from you soon about feeling better. I'll pray for you too. aisha >From: " greggren " <greggren@...> >Reply- > >Subject: [ ] Re: lab results >Date: Fri, 28 Jun 2002 00:56:30 -0000 > >Debbie-- >Thanks so much for your kind words. Forgive me for sounding like such >a flake earlier. I really am normally very levelheaded and rational. >I think the fatigue is starting to get to me. I agree that I do need >to be more positive. This last year my emotions have been a >rollercoaster. It's seems to follow my illness with all the ups and >downs. The " not knowing " is just taking it's toll. After more than a >year, I had hoped to be feeling better, or to at least know why I >wasn't feeling better. It's really in God's hand. I think that is the >hardest part. Not having any control over my health. I like to be >able to fix things! } God is good, and He'll see us all thru the >rough spots! I am just going to sit tight and let the Md's run their >tests. Hopefully when it's all said and done I'll have some answers. >You are all such a wonderful group of people! I am so blessed to have >such a wonderful group of friends! }I am going to draw my strength >from God and all of you! } > >Hugs- > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Thanks -- I am sending a big hug back at you! } How have you been feeling? How far along are you now?? I am praying for you and your little miracle! } Hugs- jennifer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Larry, You definitely should go on treatment, if for no other reason than to stop the progression of the liver disease. Your liver enzymes, ALT, looks good actually. I would still wait till the Pegasys comes out in January. 3 months won't make much difference really. Remember that the viral load really isn't an indicator of damage or disease, so don't worry about that one too much. The goal is to be totally undetected after treatment. Genotype 1's are very hard to treat, in that we tend not to go undetected, but if it slows down the progression to cirrhosis, you have added yrs to your life!! By the way, my last biopsy was the same as yours! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Larry, You definitely should go on treatment, if for no other reason than to stop the progression of the liver disease. Your liver enzymes, ALT, looks good actually. I would still wait till the Pegasys comes out in January. 3 months won't make much difference really. Remember that the viral load really isn't an indicator of damage or disease, so don't worry about that one too much. The goal is to be totally undetected after treatment. Genotype 1's are very hard to treat, in that we tend not to go undetected, but if it slows down the progression to cirrhosis, you have added yrs to your life!! By the way, my last biopsy was the same as yours! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Larry, I was told the sooner treated the better the odds. But I have been through treatment 3 times. And I am going to talk to my Specialist on the 3rd about Pegasys. I am not really sure what the suite means. But I hope to find out. Dana Echinvar wrote: I called my doctor again and this time they were very cooperative about providing me with a copy of the lab results. Biopsy: Chronic hepatitis C, moderate activity, with periportal fibrosis, grade III, stage II. Genotype: 1a Viral Load: (there were two results here) HEP C PCR CO/ML >1620000 range less than 1620 HEP C VIRAL PCR >600000 range less than 600 ALT 56Hf I'm still not really sure how to interpret all this. I've been to the page about interpreting lab results, and still don't know what to make of it. The real issue is whether I should be worried enough to start PEG-INTRON now or wait for Jan. and go for Pegasys instead. Or does the law suit filed by Ribapharm against Roche affect the availability of Pegasys? Thanks Echinvar aka Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Larry, I was told the sooner treated the better the odds. But I have been through treatment 3 times. And I am going to talk to my Specialist on the 3rd about Pegasys. I am not really sure what the suite means. But I hope to find out. Dana Echinvar wrote: I called my doctor again and this time they were very cooperative about providing me with a copy of the lab results. Biopsy: Chronic hepatitis C, moderate activity, with periportal fibrosis, grade III, stage II. Genotype: 1a Viral Load: (there were two results here) HEP C PCR CO/ML >1620000 range less than 1620 HEP C VIRAL PCR >600000 range less than 600 ALT 56Hf I'm still not really sure how to interpret all this. I've been to the page about interpreting lab results, and still don't know what to make of it. The real issue is whether I should be worried enough to start PEG-INTRON now or wait for Jan. and go for Pegasys instead. Or does the law suit filed by Ribapharm against Roche affect the availability of Pegasys? Thanks Echinvar aka Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 > Can anyone help me decipher some lab results I just received on my son? > > We had a urine toxic metals test pre and post IV glutathione. The lab we used was Doctors Data. The pre test showed a creatinine of 40mg/dl and the post test showed 88. The reference range is 21-76. > > The metals came up as follows: > > Aluminum pretest=22, post=22, reference range=<35 > Arsenic pretest=15, post=20, ref range=<100 > Cadmium pretest=.9, post=.4, ref range=<2 > Mercury pretest=2.8, post=2.7, ref range=<3 > Nickel pretest=2.5, post=5.1, ref range=12 > Tin pretest=5.4, post=4.7, ref range=<6 > > We also had a blood test for cysteine, plasma drawn and it came back 4.10 which was out of the range (3.10-3.90 mg/dl). > > I'm so out of my league with all these tests. I really appreciate everyone's help. This is a very clear indication you need to see a different doctor before your kid gets hurt really bad! 1. There are never any circumstances iv glutathione should be administered BEFORE knowing the cysteine level. 2. IV glutathione is not a chelator, and as you can see from the test results pre and post, very little changed. The extent of change is well within what you'd expect from random variation. The test procedure of urine elements, iv glutathione, urine elements was really quite random and doesn't tell you anything about your kid (though it does cost money and tell you all you need to know about the doctor). With an elevated cysteine, you should not have any more iv glutathione no matter what the doc says, AND you should put your kid on a sulfur exclusion diet. He should get noticeably better within a week from doing that. Andy. . .. . . . . . . . . . . . . . .. > > Thank you, > > > > [Non-text portions of this message hav Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Welcome to the group. What's your dosing schedule? How much does your son weigh? Do you use probiotics? S From: fabfashions2002 [mailto: fabfashions2002@...]To: @...: Wed, 18 Sep 2002 02:09:02 -0000Subject: [ ] lab resultsI'm new to this website and would like to post a few questions.My son has been chelating for approx. 3 months now using DMSA. We have seen improvements but the last round (2 weeks ago) we saw marked regression. He started watching pieces of movies over and over again and we saw behaviors that we haven't seem in a very long time as well. He is extremely sensitive to all supplements. We have to start out with pinch dosing and then work our way up. He is currently only doing 100mg/dose of the DMSA. We just rec'd his urine lab results from Doctor's Data and it showed very high levels of Arsenic coming out but not really anything else, especially not mercury. Can anyone recommend any other labs that might be useful for us to run? Is it possible that we have stirred up yeast and that's why he is having so much difficulty or could he be excreting too fast and we should try lowering the dose. I would appreciate any insight at this point. Thanks so much, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Important things we need to know are your son's age and weight, how often you give the DMSA, how often you give the other supplements, what they are, etc. A test that might be informative with him is the COMPREHENSIVE DETOXIFICATION PROFILE by Great Smokies Diagnostic Laboratories. Andy . .. . . . .. . > I'm new to this website and would like to post a few questions. > My son has been chelating for approx. 3 months now using DMSA. We > have seen improvements but the last round (2 weeks ago) we saw marked > regression. He started watching pieces of movies over and over again > and we saw behaviors that we haven't seem in a very long time as > well. He is extremely sensitive to all supplements. We have to > start out with pinch dosing and then work our way up. He is > currently only doing 100mg/dose of the DMSA. We just rec'd his urine > lab results from Doctor's Data and it showed very high levels of > Arsenic coming out but not really anything else, especially not > mercury. Can anyone recommend any other labs that might be useful > for us to run? Is it possible that we have stirred up yeast and > that's why he is having so much difficulty or could he be excreting > too fast and we should try lowering the dose. I would appreciate any > insight at this point. Thanks so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Andy - my son is 6 1/2 years old approx. 60 lbs. He is on probiotics (jarrodoph.) and 15 other supplements. He receives all of his supplements except zinc on the days he is chelating. He seems to have a very difficult time the initial 3-4 days after chelating. We have been dosing 100mg every 7-8 hours 3x/day for three days and then off for 11 per his DAN doctors. Thanks for your response. Tracie --- In @y..., " andrewhallcutler " <AndyCutler@a...> wrote: > Important things we need to know are your son's age and weight, how > often you give the DMSA, how often you give the other supplements, > what they are, etc. > > A test that might be informative with him is the COMPREHENSIVE > DETOXIFICATION PROFILE by Great Smokies Diagnostic Laboratories. > > Andy . .. . . . .. . > > > I'm new to this website and would like to post a few questions. > > My son has been chelating for approx. 3 months now using DMSA. We > > have seen improvements but the last round (2 weeks ago) we saw > marked > > regression. He started watching pieces of movies over and over > again > > and we saw behaviors that we haven't seem in a very long time as > > well. He is extremely sensitive to all supplements. We have to > > start out with pinch dosing and then work our way up. He is > > currently only doing 100mg/dose of the DMSA. We just rec'd his > urine > > lab results from Doctor's Data and it showed very high levels of > > Arsenic coming out but not really anything else, especially not > > mercury. Can anyone recommend any other labs that might be useful > > for us to run? Is it possible that we have stirred up yeast and > > that's why he is having so much difficulty or could he be excreting > > too fast and we should try lowering the dose. I would appreciate > any > > insight at this point. Thanks so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 Hey! I'm new here but I can answer that! So far I only know for sure that my son has hypogammaglobulinemia, and developemental delays, epilepsy, asthma, and other learning and behavior problems. But since the hypogammglobulinemia diagnosis, I do know what those tests are for! IgA is the part of your immune system that works in the mucus areas of your body. Example, your sinuses. If you have low to no IgA you would be very susceptable to sinus infections, ear infections, and quite commonly you would have GI infections. IgG's come in 4 subclasses, IgG 1, IgG 2, IgG 3, IgG4, Not much is know about IgG 1 and 4, but IgG 2 is what fights bacteria and IgG 3 is what fights viruses. (my son has very little IgG 2 and 3). IgE is the part of your immune system that causes allergic reactions, this one you WANT to be low, if you have high IgE you are most likely allergic to something. IgM is trickier and is one of those things you don't want to low of but too high is not a good thing either. From the way I understand it, IgM helps the Ig's fight what they need to fight. Too little and you can't fight infections and too much and your body attacks itself and causes auto immune problems. You can find awesome information on the immune system etc on these two websites: www..com and www.primaryimmune.org I joined this list because Kody has autistic tendancies albeit very high functioning. His learning problems are getting much worse, and his behavior is changing daily. And this list was the first place that has ever connected his developemental issues with his immune deficiencies. I am totally floored, and will be bringing tons of information I copied off the website to my Dr asap!!! January 9th Kody sees a psychologist for the first time, we went that route because of the behavior, but now I just can't help but think that this is the root of all his problems! Amazing. We do have autoimmune disorders in our family, I have fibromyalgia, and my grandmother had alzheimers. We also have two older children with ADD. It is unbelieveable to me how much Kody fits a diagnosis. Wow. Diane, Mom to Kody age 6.5, Di Syndrome, Hypogammaglobulinemia, Epilepsy, Asthma, developmental disorders, and learning disorders Please feel free to visit my website for parents of children with multiple special needs : www.geocities.com/schmidtzoo/SNAK.index.html -- lab results i wonder if anyone can tell me what igg,iga,igm,ige refer to in general. what do high or low indications potentially indicate? thank you Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 http://www.bloodbook.com/test-result.html I like this site. It explains quite a bit. A.C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Sue, That is very good news. I'm glad you are doing so well. As far as the eosinophil percentage goes - it's usually more meaningful to look at both the percentage and the absolute count of a subgroup of the white cells while keeping in mind what the other components are and what the total white blood cell count is. Your clinical situation weighs heavily on the interpretation, too. I doubt it means much, but if you are curious, ask your physician about it. This is a good explanation of white blood cell count entitled, " White Blood Cell Count (WBC) and Differential " : http://www.rnceus.com/cbc/cbcwbc.html Links on WBC and eosinophils from Medline: http://www.nlm.nih.gov/medlineplus/ency/article/003657.htm http://www.nlm.nih.gov/medlineplus/ency/article/003649.htm [ ] Lab Results > Today I got back the results of my recent bloodwork. My WBC count has gone > up from 2.8 to 3.2 (normal 4.0-10.5) since I have discontinued mtx and take > only Arava and Bextra. That is still low, but at least it is coming up. My > liver profile was wonderful, everything within normal limits. Everything > else was normal except the Eosinophil %, which was 7 (normal 0-5). I'm not > sure of the significance of that. I looked it up but still couldn't figure > it out. > > Anyway, I am pleased with my results. > > And the pain is still being held at bay, also. Life is good. > > Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Sue, Great new that your WBC is going up. I hope the upward climb continues. Maybe the links sent will help you to understand the Eosinophil count better, but from what I¹ve read it is common for it to be abnormal in RA patients. I hope life continues to be good or you. a > Today I got back the results of my recent bloodwork. My WBC count has gone > up from 2.8 to 3.2 (normal 4.0-10.5) since I have discontinued mtx and take > only Arava and Bextra. That is still low, but at least it is coming up. My > liver profile was wonderful, everything within normal limits. Everything > else was normal except the Eosinophil %, which was 7 (normal 0-5). I'm not > sure of the significance of that. I looked it up but still couldn't figure > it out. > > Anyway, I am pleased with my results. > > And the pain is still being held at bay, also. Life is good. > > Sue in NC > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 My Eosinophil count is always off, and the rhemy said it’s because of allergies. Love and hugs, Carol Re: [ ] Lab Results Sue, Great new that your WBC is going up. I hope the upward climb continues. Maybe the links sent will help you to understand the Eosinophil count better, but from what I¹ve read it is common for it to be abnormal in RA patients. I hope life continues to be good or you. a > Today I got back the results of my recent bloodwork. My WBC count has gone > up from 2.8 to 3.2 (normal 4.0-10.5) since I have discontinued mtx and take > only Arava and Bextra. That is still low, but at least it is coming up. My > liver profile was wonderful, everything within normal limits. Everything > else was normal except the Eosinophil %, which was 7 (normal 0-5). I'm not > sure of the significance of that. I looked it up but still couldn't figure > it out. > > Anyway, I am pleased with my results. > > And the pain is still being held at bay, also. Life is good. > > Sue in NC > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Excellent news! Keep smiling D [ ] Lab Results Hi Guys - Well, so far my lab results are good. Via phone, doc says all is normal. AST is 27 and ALT 61. About the same as last time. CBC and everything else is fine. However, she hasn't gotten viral load test results yet; so I have to wait on that til next Monday 'cause she's gonna be out. That's what I'm anxious to hear about - anticipating good news as always. Love & blessings. karolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 To Karolyn47, Very Happy for you....You deserve it. Margie. [ ] Lab Results > Hi Guys - Well, so far my lab results are good. Via phone, doc says > all is normal. AST is 27 and ALT 61. About the same as last time. CBC > and everything else is fine. However, she hasn't gotten viral load > test results yet; so I have to wait on that til next Monday 'cause > she's gonna be out. That's what I'm anxious to hear about - > anticipating good news as always. Love & blessings. karolyn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 Take a look at post 5456. has a great post along with Dr. Shippens hCG protocol and stimuation test. Its very clear and precise as to what your next step should be. If you have secondary hypogonadism (usually low LH and FSH levels can tell you this), then you may respond to hCG therapy. Instead of rehashing s post, take a look at it for yourself Very informative. > Hi, gang. I'd like to get some feedback on my levels: > > October - total 250 > February - total 265, free 2.34% (62.0 PG/ML) > March - Total 398, free 2.37% (94.1 PG/ML), Estradiol 60 > > Sorry, I don't have the LSH/FSH amounts, and March was the first time > he tested E (at my request). Seems high to me, even though I'm taking > DIM and zinc and am using soy protein to get the flavanoids. > > I'd like to get my T levels up to at least 700. I'd also like to take > HCG, which my endo is very open to. Should I request HCG along with > the AG 5g I'm taking now, or replace the AG with HCG? > > I'm also still unclear on the free/total ratio thing. I have > Shippen's book, but perhaps someone can refresh my memory before I > find the book. > > Meanwhile, at least my T has risen since October. I'm not as > depressed as I was, but rather than losing weight I'm gaining. I also > feel LESS confident in general and I think my morning wood has > decreased. I'm on the right track - just need to keep going. Tell you > the truth, though, after 6 months of this I'm wondering if it's worth > the trouble. > > Your thoughts? > > Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 Jim, how old are you? Those total numbers are on the low end of " normal " , and the free numbers are quite low. Did you get SHBG measured? Sex hormone binding globulin binds testosterone and keeps it from being used in your body. If you want to follow a program like what Dr. Shippen has talked about, you need to find a doctor that specializes in testosterone replacement therapy. The average endocrinologist doesn't seem to understand " male menopause " . Aka " andropause " . After going to 4 other endos, I finally found testosterone replacement therapy. I have been on the program for a few weeks, and it definitely has made a difference. After 10 weeks of testosterone shots, I will take 2 weeks off then take hCG for 10 days. I am also taking a couple anti-estrogens so that my estrogen doesn't go up as well. You may be gaining weight as either in increase in lean muscle mass, or bloating which comes from the estrogen that comes with testosterone therapies. That's my speculation. SM _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Where is your endo located? Thanks. Lab results Hi, gang. I'd like to get some feedback on my levels: October - total 250 February - total 265, free 2.34% (62.0 PG/ML) March - Total 398, free 2.37% (94.1 PG/ML), Estradiol 60 Sorry, I don't have the LSH/FSH amounts, and March was the first time he tested E (at my request). Seems high to me, even though I'm taking DIM and zinc and am using soy protein to get the flavanoids. I'd like to get my T levels up to at least 700. I'd also like to take HCG, which my endo is very open to. Should I request HCG along with the AG 5g I'm taking now, or replace the AG with HCG? I'm also still unclear on the free/total ratio thing. I have Shippen's book, but perhaps someone can refresh my memory before I find the book. Meanwhile, at least my T has risen since October. I'm not as depressed as I was, but rather than losing weight I'm gaining. I also feel LESS confident in general and I think my morning wood has decreased. I'm on the right track - just need to keep going. Tell you the truth, though, after 6 months of this I'm wondering if it's worth the trouble. Your thoughts? Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 > Jim, how old are you? 44 > > Those total numbers are on the low end of " normal " , and > the free numbers are quite low. Did you get SHBG measured? > Sex hormone binding globulin binds testosterone and keeps > it from being used in your body. I had all the standard tests done - just can't put my hands on the results right now. > > If you want to follow a program like what Dr. Shippen has > talked about, you need to find a doctor that specializes > in testosterone replacement therapy. The average endocrinologist > doesn't seem to understand " male menopause " . Aka " andropause " . My endo - located in Gwinnett County, Georgia - seems pretty good to me, just a tad conservative. The fact that he's very open to HCG for me I felt was a positive sign. He switched me from AD to AG when i asked him to, he's responsive to my concerns about testicular atrophy, agreed to start monitoring my E levels, and I think he'll be okay with Arimidex if I point out the literature about proper E levels. He listens to me and responds well. I think I lucked out with him, the first endo I tried. > > After going to 4 other endos, I finally found testosterone > replacement therapy. I have been on the program for a few > weeks, and it definitely has made a difference. After 10 > weeks of testosterone shots, I will take 2 weeks off then > take hCG for 10 days. I am also taking a couple anti-estrogens > so that my estrogen doesn't go up as well. > > You may be gaining weight as either in increase in lean muscle > mass, or bloating which comes from the estrogen that comes > with testosterone therapies. That's my speculation. I suspect you're right. I don't know if my weight itself has gone up or down, but I know my clothes are tighter, my rings are tighter, and my face looks heavier. I was hoping the DIM and zinc and soy would help - guess I'll increase the DIM and see what happens. Thanks for your reply, Jim Quote Link to comment Share on other sites More sharing options...
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