Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 > > Jim, at least your T level has increased some. I would either consider the injections or try the patch or the HCG. I was on the gel for a little over a month and my T level dropped to below where I was before starting any TRT. I dislike the patch but it is doing the job getting me up to 634. I too had the depression and feeling that I could not do anything right. The loss of confidence was a big factor in my job. My Dr started me on Wellbutrin, and I am now feeling much better and even have some libido again. The Dr said that depression will strangle libido. I will say I have at least some libido since starting the AD, where I had none before. I too would like to start HCG and I am going to bring this up with my Endo next month. The gel shrivelled my balls to nothing. The patch is working for the moment.Good luck and keep me informed if you start >HCG and let us know how that goes. , I tried the patch in the fall, and it didn't seem to do much. I quit smoking at that time, cut way back on the beer. I also quit taking my ADs and Adderal, but I've decided to start back on the Wellbutrin at a half-dose. I have a hard time measuring my libido. Since I don't have much confidence these days I'm not asking anyone out (my last date was in August) and not being in a relationship I can't tell if my libido has changed much. I guess I'm, um, taking care of things more than I used to. I'm not nearly as concerned about my libido as my depression, self-esteem, energy level, weight, mental acuity, etc. I suspect that if those things improve my libido will take care of itself, and the few relationships I've been in during the past 5 years were sexually satisfying both for me and my partner. My endo has me going in for a sperm test, I think in order to get some data to back up prescribing HCG. I had high hopes for T therapy - still do, I'm just not quite as optimistic. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 >From: " jimevans_2000 " <jimevans_2000@...> >Reply- > >Subject: Re: Lab results >Date: Thu, 27 Mar 2003 03:42:02 -0000 > > >My endo - located in Gwinnett County, Georgia - seems pretty good to >me, just a tad conservative. The fact that he's very open to HCG for >me I felt was a positive sign. He switched me from AD to AG when i >asked him to, he's responsive to my concerns about testicular >atrophy, agreed to start monitoring my E levels, and I think he'll >be okay with Arimidex if I point out the literature about proper E >levels. He listens to me and responds well. I think I lucked out >with him, the first endo I tried. That's great that he listens and responds well. Not common among doctor's I've worked with. >I suspect you're right. I don't know if my weight itself has gone up >or down, but I know my clothes are tighter, my rings are tighter, >and my face looks heavier. Gee, that's exactly what happens to my wife when she retains water during certain parts of her monthly cycle. Good luck! SM _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Rupal, Your current labs show that you're hypothyroid. This is because your ATD dose was too high. If you stopped taking it and still have active GD, your thyroid hormone levels would eventually rise. The dose should be reduced slowly, but eventually after the first 8 weeks, most everyone can be maintained on 2.5-10.0 mg methimazole daily. You need to stay on meds until your immune system no long produces TSI. TSI are the thyroid antibodies that cause hyperthyroidism in GD. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 hi...recently my doc has put me on a course of valtrex (antiviral) beacuase of some puzzling symptoms. this drug is usally used for herpes family of virus ( and i have none that i know of) but is also i wide spectrum antiviral. i am also on clindy, mino, flagyl. but after a few days of the valtrex my sore throat, achey hands, stiff neck, lowgrade fever, have all subsided. it is now day 6 free of these things. after one year of these symptoms i am soooooo happy. he is also gonna give me zithromax to bring down my ASO titer (strep). it is a little high. smetimes it is more than one organism causing troubles. hope this helps!! i would ask him about doing a course of an antiviral to rule out the compliaction of a virus. take care. rachael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 Hey, ette, Sally here-I know lots of people do the Flagyl, but when I did it, I had a really hard time with it and Dr. Mirkin saw I'd been taking it when under the rheumy's care who would not switch me from Doxy to Mino. When he saw it he said " Do you realize that can cause arthritis? " I had read that joint pain was a common side effect.... I also took Biaxin under my rheumy and, of course, am taking Mino and Zithromax, under my current doc's care which was Dr. Mirkin's protocol. All of the aforementioned are antibiotics. Hate to hear about the pain and disability returning-I always feel that the horror of this disease is knocking at my door. Hugs! Sally in Little Rock rheumatic Lab Results > Hi, > > I've been on minocin for 11 years. First 10 years - I did great. This past year was very difficult. Maybe minocin stopped helping. Then I added Nizoral and flagyl 3 x a week. It seems to be helping. However, my blood work continues to be puzzling. My c reactive protein level is very high and my sed rate is high. I am still feeling stiff and my hand is very sore. I seem to need a lot of sleep - 10 hours. My energy is good during the day. > > Dr. Whitman changed minocin in the PM to doxy. Minocin in the AM. Flagyl 3 x a week and nizoral 3 x a week. I also take milk thistle and I am going to try adding oil of oreganol, which Dr. Whitman said I should try every other day. > > Any other ideas would be appreciated. > > Thanks, > ette > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 On Saturday, October 11, 2003, at 03:38 PM, tess_northwest@... wrote: > Hi...my rheumy sent my lab results... > HA1C 4.9 (4.0-6.0) - this is excellent!!! It is in the normal range for > non-diabetics!!! > Tess, that is a fantastic A1c! You go, girl! In spite of all the stress you've been through lately, you have still managed to keep control of the diabetes monster. My recent A1c was the lowest it's ever been: 4.8 (normal 4.5-6.4). It had been in the low 5's previously. I wanted to get in the 4's once just to prove that I could! Diabetes is way easier than RA, in my opinion. At least there are measures you can take to deal with it. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Tess, Good for you on the glyco (HA1C). Your diet has helped! From a lab perspective, the sedrate and CRP are definately elevated, but hopefully, when you get back to the meds, they'll go down. Your Hgb is low and even though having a lower hgb is normal with RA, I'd ask your doctor about iron supplement, if you aren't already on them. Post surgery this would be common too. (Hct, etc, are all related to the anemia. RDW being up means there are both small red cells and large red cells, instead of the more normal " mostly all the same size " ones) because your body is trying to make new ones, since your red cells and hemoglobin are low As far as the other test go, the lymphs are fine, just a normal variation. The bilirubin and AST are liver function tests, which are on the lower side, which is good news. Means your meds aren't affecting your liver, because that would make them go up. Noreen [ ] lab results Hi...my rheumy sent my lab results... HA1C 4.9 (4.0-6.0) - this is excellent!!! It is in the normal range for non-diabetics!!! All the rest are in the normal range except: C Reactive Protein 3.9 (0.0-1.8) Sed Rate 107 (0-20) HGB 9.9 (11.7-15.7) HCT 30.5 (34.9-46.9) MCV 79.9 (80.0-100.0) MCH 26.0 (26.4-34.0) RDW 18.4 (11.5-14.5) Lymphocytes 19.0 (20.0-53.0) Sodium 136 (137-145) Bilirubin 0.2 (0.4-1.1) AST (SGOT) 9 (11-39) Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Woo hoo! Way to go! I'll bet you feel like you just got an A+ on an important exam! I'm proud of you little sis! Judi > Hi...my rheumy sent my lab results... > HA1C 4.9 (4.0-6.0) - this is excellent!!! It is in the normal range for > non-diabetics!!! > > All the rest are in the normal range except: > C Reactive Protein 3.9 (0.0-1.8) > Sed Rate 107 (0-20) > HGB 9.9 (11.7-15.7) > HCT 30.5 (34.9-46.9) > MCV 79.9 (80.0-100.0) > MCH 26.0 (26.4-34.0) > RDW 18.4 (11.5-14.5) > Lymphocytes 19.0 (20.0-53.0) > Sodium 136 (137-145) > Bilirubin 0.2 (0.4-1.1) > AST (SGOT) 9 (11-39) > > Love... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Phil, Thanks, The Dr. we are using supposedly specializes in XXY and has been treating a few others for over 20 years. We didn't know where to start and got referred to him thru another online email group. I am going in armed with more information next visit. Thanks, LaVonne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Hi LaVonne, > Hi, > > My husband was recently told he has 47 xxy He started taking > 1cc 200 mg of Testosterone injected and his Endocrinologist > says to do that once a month until we see a change. Once a month is nonsense. The injections only have a life of two weeks! >His lab > results got mailed to me per my request and here is what they > show. Any help with interpretation would be appreciated. > > Oh, My husband is 45 years old and in pretty good health. > He's 6' 5 " and about 260 lbs. > > Ok > > These are the results at the bottom of the DYNA CARE LAB SHEET > > ALT 41 > AST 25 > Alk Ptase 82 > TSH 1.03 > FSH Serum 51.3 This one demonstrates that there is a serious Testosterone Deficiency. > > Testosterone, Tot Srm 180 As does this. > I don't know where to find the estrogen level or if they even > ran one. The top of the sheet says CBC with Differential, > Comp Metabolic Panel, TSH, FSH, Testosterone, Tot Srm > > I think they must have indicated he was female since along > side some of his levels it shows the normal range for female > The FSH shows Female normal ranges and says he is > Postmenopausal range which is 25.8 - 150.5 Then they wrote > in Male FSH 1.4 - 13.6 and Testosterone 241 - 827 Yes. I guess the software isn't up to scratch. Men do have FSH and all the other hormones and they are useful markers. In order to measure Testosterone's cycle properly, LH and FSH should be measured in conjunction with Serum Testosterone. Prolactin is also advised, as is SHBG. When there is sufficient Testosterone both LH and FSH should read close to 2. I hope this helps, Nick Nick O'Hara Publisher/Editor: The Androids Testosterone Deficiency Center Web: www.androids.org.uk Associate Editor: The Testicular Cancer Resource Center Web: tcrc.acor.org +44 (0)208 230 6869 > Any help interpretting this or any thought as to what other > numbers I should look at? > > Thanks, > > LaVonne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 I am not xxy, but I don't see why our case is any different. 1 cc of 200 once a month is pathetically too little. This doctor may have been treating xxy for 20 years, but in this case that is not necessarilly a good thing. He has probably been overly conservative for those twenty years and may be stuck in his ways. I am taking nearly 200 once a week, just have to watch out for estrogen conversion (should be taking arimidex with the shots if his estradiol test high). 200 once a month will leave his testosterone level WAY below normal for the bulk of the month and will not solve the problem. 200 once every two weeks is much more sensible and reasonable, 120 every week is even more ideal and is also reasonable. The more testosterone he can get into his system, the better off he will be, as long as he gets his estradiol checked and managed. Note, your Doctor appears to be quite old school and caught up in dated ways that he doesn't even bother to get estradiol checked... unfortunately, finding a good doctor who is PROGRESSIVE in hormone therapy, follows the LATEST trends etc. is not always the easiest task. Ask yourself, just because he is starting with a low level, is there any reason why they should replace it so it just hits the " normal " range, which means WAY lower than average for his age group. In my opinion, everyone on testosterone replacement should get as much testosterone as they need to feel good as long as they don't go way above the normal range. That normally means getting T levels in the 750s + and keeping them there. The benefits can be tremendous, but only with a Doctor who is focused on making the patient feel great, not a Doctor focused on just doing barely enough. That's my opinion anyway... Might want to consider Androgel at 7.5 or 10 G per day. It is good stuff and works well for allot of guys. > Phil, > > Thanks, The Dr. we are using supposedly specializes in XXY and has been treating a few others for over 20 years. We didn't know where to start and got referred to him thru another online email group. I am going in armed with more information next visit. Thanks, > > LaVonne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Ask yourself, just because he is starting with a low level, is > there any reason why they should replace it so it just hits > the " normal " range, which means WAY lower than average for his age > group. In my opinion, everyone on testosterone replacement should > get as much testosterone as they need to feel good as long as they > don't go way above the normal range. I have to say I see the point here where long term Hypogonadism has been a problem. Having said that: I am pretty sure I suffered long term Hypogonadism, (delayed puberty then bilateral Testicular cancer 20 years later) and probably suffered long term physical effects. I can't tell because it was so long ago and the TRT over 16 years prevents analysis now. I guess if somebody had said when I got TC, " look your body has been Testosterone deficient for X years so we need to overdose you to make up for it " , I'd have accepted it blindly. Now I am not so sure. My rationale is that my body had been out of whack ever since I was born. I want it to be normal for me now. I don't care about the physical elements, so much as I care about my metabolic balance. The body will be better off it is in balance than if I try to rush its recovery. At 51 I can honestly say I am very happy with my physical condition. I am 10 pounds heavier than I was at 35, but I carry it easily and maintain an active lifestyle. If I overdose on Testosterone, I risk Estrogen imbalance and excess DHT in certain circumstances. Health risks are attached to both. I do not want to take compensators if I can avoid it. There are other potential health effects to overdosing, not least an increased risk of cardio problems. I think it right to get the T level correct for the individual, using both blood tests and patient response as a guide. I hope this helps, Nick Nick O'Hara Publisher/Editor: The Androids Testosterone Deficiency Center Web: www.androids.org.uk Associate Editor: The Testicular Cancer Resource Center Web: tcrc.acor.org +44 (0)208 230 6869 >That normally means getting T > levels in the 750s + and keeping them there. The benefits can be > tremendous, but only with a Doctor who is focused on making the > patient feel great, not a Doctor focused on just doing barely > enough. That's my opinion anyway... > > Might want to consider Androgel at 7.5 or 10 G per day. It is good > stuff and works well for allot of guys. > > > > Phil, > > > > Thanks, The Dr. we are using supposedly specializes in XXY and > has been treating a few others for over 20 years. We didn't know > where to start and got referred to him thru another online email > group. I am going in armed with more information next visit. > Thanks, > > > > LaVonne > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Hi Nick, I see your point. From my side of the fence, I am 27 and for me, I feel pretty good when I have allot of it! As most 27 year olds might feel. I don't want to overdose either, but High Normal sounds about right to me. Of course, we are all different and there is no one solution that is best for everyone... unfortunately! It would be nice if it were that easy. Cheers, armyguy > > > Phil, > > > > > > Thanks, The Dr. we are using supposedly specializes in XXY and > > has been treating a few others for over 20 years. We didn't know > > where to start and got referred to him thru another online email > > group. I am going in armed with more information next visit. > > Thanks, > > > > > > LaVonne > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Hi Armyguy, I absolutely agree that each person's individual requirements differ. A responsible attitude towards our condition can only help get this subject out from under the rug and into the surgeries where it belongs. I'm not offering criticism at all, just making sure we can avoid being called testosterone abusers. It's the last thing we need considering all the rubbish in the media. Best wishes, Nick Nick O'Hara Publisher/Editor: The Androids Testosterone Deficiency Center Web: www.androids.org.uk Associate Editor: The Testicular Cancer Resource Center Web: tcrc.acor.org +44 (0)208 230 6869 > Hi Nick, > > I see your point. From my side of the fence, I am 27 and for me, I > feel pretty good when I have allot of it! As most 27 year olds might > feel. I don't want to overdose either, but High Normal sounds about > right to me. Of course, we are all different and there is no one > solution that is best for everyone... unfortunately! It would be > nice if it were that easy. > > Cheers, > armyguy > > > > > > Phil, > > > > > > > > Thanks, The Dr. we are using supposedly specializes in XXY and > > > has been treating a few others for over 20 years. We didn't > know > > > where to start and got referred to him thru another online email > > > group. I am going in armed with more information next visit. > > > Thanks, > > > > > > > > LaVonne > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Hello , Gosh you seem way to young (your my age by the way!) to have RA! My mother has that and will not go to a dr. because she doesn't want to be put on prescription meds that have contraindications and might make other things worse...wish they had an " armour " like drug for RA! Seems to me that your TSH is too high and that your tiredness probably stems from being Hypo. The sooner you take charge of your own illness the better. That may require going to a different doctor......The synthetic thyroid meds like synthroid are associated with bone loss and osteoperosis. My mom also has osteoperosis and believe me you don't want to have that on top of your RA. Hope that you learn a lot and arm yourself with it.... there are a lot of girls here that are so unbelievably knowlegeable here that I feel blessed being in this group, I know you will too! Warm Regards, Loriann > Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0-12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 So sorry to hear about all your pain---a lot of people with untreated thyroid only find out when they have other diseases and you are one of them. RA is a member of autoimmune diseases check and see if you also have Hashimoto's thyroid as well---ask if you have that kind. Go back to my post on autoimmune diseases and you can read up on them. Also if you use armour you will have some relief with your RA---some do. I know that is hard to believe but the natural hormone will relieve some of the arthritic pain. I have OA in my knees and since I've been on glandulars I have noticed a big difference. If I were you I would try it and see if it would help. No harm in trying. Some with Hashimoto's can have trouble with armour but only a rare few--so it's worth a try. You are very young to have RA--trust me on this one---get natural armour or natural glandulars and try them first---go back and read all the posts--this will help you!!! take care tina > Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 also test your tempertures in the mornings and Blood pressures---let us know what they are when you wake up and throughout the day--- sounds like you also have adrenal problems when you stand up and are dizzy this is a symptom as well. Also you need to be tested for antibodies for the thyroid to see if you have Hashimoto's. Knowing what kind you have can help you figure out how to treat it. > Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 I have no clue what the lab tests mean,, I am thinking it looked normal on the tsh, but what do i know- Lol- I am not good on lab results- I have to ask the group what mine mean to---lol- anyways, My endo refused me natural thyroid meds and I fired her!! My family doctor called in the prescribtion for me-- I hope things go good for you-- I was the same way better then before but still got tired easy when I was on synthroid, now I am on armour and my naps stoped!! oh lord I have not had a nap in four days!! before I had to have one every day girl!! armour is so much better in my opinion, so other people could disagree but in my exsperince it is great!! oh I hope the everyone reads this I want to let the whole group know that my doctor uped my armour to 60 mg!!!! I am happy-- keisha <suser@...> wrote:Hi all - I've been a lurker for a while - going through the saga of hypothyroid like many of you. A little about me.... I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. Have erosion in my toes & function very well, with birkinstocks & comfy sneakers - the RA is under control with Methotrexate, Enbrel, Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to counter act the methotrexate & sulfasalazine. I'll be getting rid of the sulfasalazine soon.... In August of 2002 I had an IUD inserted due to not being able to take B/C Pills - (I get occular migraines) & my Rheumatologist had told me while taking the methotrexate, if I ever were to become preganant she'd ask me to terminate. I already have 2 children (age 18 & 19) and did not want to have any more ....In January of 2003 I began spotting.... & had heavy cycles...thought it was the IUD. It went on for a couple of months, called my ob/gyn...they said that was not normal, went in for an exam & an internal ultrasound, all A o.k. - went for blood work - - we have a diagnosis for you.... you have hypothyroidism. Went to see the Endo - couldn't get in until July. Started 50 mg of Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months later, bumped up to 100 in January of 2004. Then I got a call last week from the Endo's office. The dr. was looking at recent bloodwork & wanted me to go up to Levoxyl 112. I asked for a copy of my bloodwork. I received it Saturday and it was dated 9/19/03. I had had bloodwork after this on 11/25/2003 & 1/6/2004. I called and inquired - I guess they received updated bloodwork from PathLabs for all of my prior bloodwork, with a modified result.... & only gave me a copy of the September bloodwork. The doctor reviewed all results & decided I should go up to Levoxyl 112. I was wondering if anyone had this happen to them? I know they changed the reference guidelines not too long ago - but this seems strange! They did ask me to not go to PathLabs anymore. My September results are: Hypothyroid Profile T-Uptake © results 1.31 H reference values 0.75-1.23 T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 FTI, Free Thyroxine Index © results 13.4 H reference values 5.0-12.0 Under that it has, Amended report Original result: 7.8 date 9/20/2003 Modified result: 13.4 date 1/30/2004 TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 I have no idea as to what all this means - any help understanding would be greatly appreciated! I know a lot of people do not go by labs - I asked if the Dr. prescribes " natural " thyroid hormone & the office person said no ( My cycles have improved slightly...and I feel more energetic - but tire easily. I have dry skin, always cold, dark circles under my eyes & I get a head rush sometimes when I stand up - feels like my head is caving in & what bugs me the most is my lack of motivation.....for cooking & simple tasks... & for enjoying some of the simple things in life, like going out at night - I'm ready for bed at 8:00 & I long to have the energy to want to do things at night - like go to concerts, etc.! Know what I mean? I eat in the Zone for most meals (balance of favorable carbs & protein http://www.zoneperfect.com/Site/Content/index.asp) I have eaten that way for over 5 years which probably is why I haven't gained all that much with the hypo. I was very angry when I found out that soy is awful for thyroid function. I had been using soy protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my daughter calls me the soy police ) ....I walk 2 miles in 30 mins, 5 X's per week. Well that's my story - it's nice to know that I have company with all this fun stuff going on!!!!! Guess I just had to vent a bit! I go for repeat blood work beginning of March & will be sure to get a copy.... & won't go to PathLabs! take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Keisha I must of missed this--tina has been busy again---but I am so happy he gave you 60mg---this is great news!!!!!!!!! keep us posted on how you feel!!!!!!!!! Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Tina, Hey how are you doin? me good- Doc just put me on 60 mg today-- I called him and he said okay-- I was excited--- and I told him about this group and he said you all seem to very nice people and he is glad I have you all to talk to - I will keep you all posted in a few days on how I feel- keisha tina83862 <tina83862@...> wrote:Keisha I must of missed this--tina has been busy again---but I am so happy he gave you 60mg---this is great news!!!!!!!!! keep us posted on how you feel!!!!!!!!! Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Good for you Keisha! I'm thinking I've got to go by my gut instincts & change Dr's as well! The one I have is on the top doctor's list & he did say he treats by symptoms mostly - but I heard from his office that he does not prescribe armour. take care & enjoy feeling well!!!! Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Hi Loriann, Hope your Mom is doing o.k.! How is she doing with not treating the RA? I feel so much better now than in the beginning. Hope she can find the confidence in someone to help her. Sure is scary out there! I'm going to check into a doctor that treats with Armour as opposed to Levoxyl. I am concerned with bone loss - my Rhuematologist is as well. Does Armour cause bone loss? You all have been so kind & helpful!!!! take care, > Hello , > > Gosh you seem way to young (your my age by the way!) to have RA! My mother > has that and will not go to a dr. because she doesn't want to be put on > prescription meds that have contraindications and might make other things > worse...wish they had an " armour " like drug for RA! Seems to me that your TSH is too > high and that your tiredness probably stems from being Hypo. The sooner you take > charge of your own illness the better. > > That may require going to a different doctor......The synthetic thyroid meds > like synthroid are associated with bone loss and osteoperosis. My mom also has > osteoperosis and believe me you don't want to have that on top of your RA. > Hope that you learn a lot and arm yourself with it.... there are a lot of girls > here that are so unbelievably knowlegeable here that I feel blessed being in > this group, I know you will too! > Warm Regards, > Loriann > > > Hi all - > > I've been a lurker for a while - going through the saga of > > hypothyroid like many of you. > > A little about me.... > > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > > Have erosion in my toes & function very well, with birkinstocks & > > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > > counter act the methotrexate & sulfasalazine. I'll be getting rid of > > the sulfasalazine soon.... > > > > In August of 2002 I had an IUD inserted due to not being able to take > > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > > while taking the methotrexate, if I ever were to become preganant > > she'd ask me to terminate. I already have 2 children (age 18 & 19) > > and did not want to have any more ....In January of 2003 I began > > spotting.... & had heavy cycles...thought it was the IUD. It went on > > for a couple of months, called my ob/gyn...they said that was not > > normal, went in for an exam & an internal ultrasound, all A o.k. - > > went for blood work - - we have a diagnosis for you.... you have > > hypothyroidism. > > Went to see the Endo - couldn't get in until July. Started 50 mg of > > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > > later, bumped up to 100 in January of 2004. Then I got a call last > > week from the Endo's office. The dr. was looking at recent bloodwork > > & wanted me to go up to Levoxyl 112. I asked for a copy of my > > bloodwork. I received it Saturday and it was dated 9/19/03. I had > > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > > inquired - I guess they received updated bloodwork from PathLabs for > > all of my prior bloodwork, with a modified result.... & only gave me a > > copy of the September bloodwork. The doctor reviewed all results & > > decided I should go up to Levoxyl 112. > > I was wondering if anyone had this happen to them? I know they > > changed the reference guidelines not too long ago - but this seems > > strange! They did ask me to not go to PathLabs anymore. > > My September results are: > > Hypothyroid Profile > > T-Uptake © results 1.31 H reference values 0.75-1.23 > > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > > Modified result: 13.4 date 1/30/2004 > > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35- 5.50 > > > > I have no idea as to what all this means - any help understanding > > would be greatly appreciated! > > > > I know a lot of people do not go by labs - I asked if the Dr. > > prescribes " natural " thyroid hormone & the office person said no ( > > > > My cycles have improved slightly...and I feel more energetic - but > > tire easily. I have dry skin, always cold, dark circles under my > > eyes & I get a head rush sometimes when I stand up - feels like my > > head is caving in & what bugs me the most is my lack of > > motivation.....for cooking & simple tasks... & for enjoying some of > > the simple things in life, like going out at night - I'm ready for > > bed at 8:00 & I long to have the energy to want to do things at > > night - like go to concerts, etc.! Know what I mean? > > > > I eat in the Zone for most meals (balance of favorable carbs & > > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > > eaten that way for over 5 years which probably is why I haven't > > gained all that much with the hypo. I was very angry when I found > > out that soy is awful for thyroid function. I had been using soy > > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > > 5 X's per week. > > > > Well that's my story - it's nice to know that I have company with all > > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > > for repeat blood work beginning of March & will be sure to get a > > copy.... & won't go to PathLabs! > > take care, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 count yourself extremely lucky to have a doctor who will listen to you!!! I hope you do very well on this dose--remember to also take vitamins that helps with the energy levels as well!!!! tina Hi all - > > I've been a lurker for a while - going through the saga of > > hypothyroid like many of you. > > A little about me.... > > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > > Have erosion in my toes & function very well, with birkinstocks & > > comfy sneakers - the RA is under control with Methotrexate, > Enbrel, > > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > > counter act the methotrexate & sulfasalazine. I'll be getting rid > of > > the sulfasalazine soon.... > > > > In August of 2002 I had an IUD inserted due to not being able to > take > > B/C Pills - (I get occular migraines) & my Rheumatologist had told > me > > while taking the methotrexate, if I ever were to become preganant > > she'd ask me to terminate. I already have 2 children (age 18 & 19) > > and did not want to have any more ....In January of 2003 I began > > spotting.... & had heavy cycles...thought it was the IUD. It went > on > > for a couple of months, called my ob/gyn...they said that was not > > normal, went in for an exam & an internal ultrasound, all A o.k. - > > went for blood work - - we have a diagnosis for you.... you have > > hypothyroidism. > > Went to see the Endo - couldn't get in until July. Started 50 mg > of > > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > > later, bumped up to 100 in January of 2004. Then I got a call last > > week from the Endo's office. The dr. was looking at recent > bloodwork > > & wanted me to go up to Levoxyl 112. I asked for a copy of my > > bloodwork. I received it Saturday and it was dated 9/19/03. I had > > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > > inquired - I guess they received updated bloodwork from PathLabs > for > > all of my prior bloodwork, with a modified result.... & only gave me > a > > copy of the September bloodwork. The doctor reviewed all results & > > decided I should go up to Levoxyl 112. > > I was wondering if anyone had this happen to them? I know they > > changed the reference guidelines not too long ago - but this seems > > strange! They did ask me to not go to PathLabs anymore. > > My September results are: > > Hypothyroid Profile > > T-Uptake © results 1.31 H reference values 0.75-1.23 > > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- > 12.0 > > Under that it has, Amended report Original result: 7.8 date > 9/20/2003 > > Modified result: 13.4 date 1/30/2004 > > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35- 5.50 > > > > I have no idea as to what all this means - any help understanding > > would be greatly appreciated! > > > > I know a lot of people do not go by labs - I asked if the Dr. > > prescribes " natural " thyroid hormone & the office person said no ( > > > > My cycles have improved slightly...and I feel more energetic - but > > tire easily. I have dry skin, always cold, dark circles under my > > eyes & I get a head rush sometimes when I stand up - feels like my > > head is caving in & what bugs me the most is my lack of > > motivation.....for cooking & simple tasks... & for enjoying some of > > the simple things in life, like going out at night - I'm ready for > > bed at 8:00 & I long to have the energy to want to do things at > > night - like go to concerts, etc.! Know what I mean? > > > > I eat in the Zone for most meals (balance of favorable carbs & > > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > > eaten that way for over 5 years which probably is why I haven't > > gained all that much with the hypo. I was very angry when I found > > out that soy is awful for thyroid function. I had been using soy > > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > > daughter calls me the soy police ) ....I walk 2 miles in 30 > mins, > > 5 X's per week. > > > > Well that's my story - it's nice to know that I have company with > all > > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > > for repeat blood work beginning of March & will be sure to get a > > copy.... & won't go to PathLabs! > > take care, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi , If you really like your doc, you could always just check it out with him...just to be sure. You never know... There are things about my endo that I don't like, but he does treat according to symptoms, and when I asked him to switch me to Armour, he did--without me having to make a case for it like I thought I'd have to do. I was surprised. do you have copies of your labs that he ran?? I started getting copies of ALL my labs. It's important. For instance, they tested me for ANA antibodies, and it came back " borderline. " When I called the office, the medical assistant told me my labs were " fine. " Now I don't know about this. I have Hashi's, and I've read that folks with Hashi's oftentimes show higher ANA antibodies without necessarily having lupus, sceroderma, Sjogren's, and other autoimmune diseases. Here's the thing though...I have symptoms of Sjogren's and sceroderma...mostly symptoms of Sjogren's. gonna ask to find out what this " borderline " thing means. I wonder if it means I might be in the beginning stages of another autoimmune disease. Also, I was just reading the other day that folks with Chronic Fatigue Syndrome often have " borderline " ANA antibodies. I still don't understand what it all means though. If I hadn't had a copy of my labs though, I would never know it came back borderline. anyway, feel free to post your lab results. I plan on posting mine when I get a copy of them today. take care, sheila <suser@...> wrote: Good for you Keisha! I'm thinking I've got to go by my gut instincts & change Dr's as well! The one I have is on the top doctor's list & he did say he treats by symptoms mostly - but I heard from his office that he does not prescribe armour. take care & enjoy feeling well!!!! Hi all - > I've been a lurker for a while - going through the saga of > hypothyroid like many of you. > A little about me.... > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > Have erosion in my toes & function very well, with birkinstocks & > comfy sneakers - the RA is under control with Methotrexate, Enbrel, > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > counter act the methotrexate & sulfasalazine. I'll be getting rid of > the sulfasalazine soon.... > > In August of 2002 I had an IUD inserted due to not being able to take > B/C Pills - (I get occular migraines) & my Rheumatologist had told me > while taking the methotrexate, if I ever were to become preganant > she'd ask me to terminate. I already have 2 children (age 18 & 19) > and did not want to have any more ....In January of 2003 I began > spotting.... & had heavy cycles...thought it was the IUD. It went on > for a couple of months, called my ob/gyn...they said that was not > normal, went in for an exam & an internal ultrasound, all A o.k. - > went for blood work - - we have a diagnosis for you.... you have > hypothyroidism. > Went to see the Endo - couldn't get in until July. Started 50 mg of > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > later, bumped up to 100 in January of 2004. Then I got a call last > week from the Endo's office. The dr. was looking at recent bloodwork > & wanted me to go up to Levoxyl 112. I asked for a copy of my > bloodwork. I received it Saturday and it was dated 9/19/03. I had > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > inquired - I guess they received updated bloodwork from PathLabs for > all of my prior bloodwork, with a modified result.... & only gave me a > copy of the September bloodwork. The doctor reviewed all results & > decided I should go up to Levoxyl 112. > I was wondering if anyone had this happen to them? I know they > changed the reference guidelines not too long ago - but this seems > strange! They did ask me to not go to PathLabs anymore. > My September results are: > Hypothyroid Profile > T-Uptake © results 1.31 H reference values 0.75-1.23 > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- 12.0 > Under that it has, Amended report Original result: 7.8 date 9/20/2003 > Modified result: 13.4 date 1/30/2004 > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35-5.50 > > I have no idea as to what all this means - any help understanding > would be greatly appreciated! > > I know a lot of people do not go by labs - I asked if the Dr. > prescribes " natural " thyroid hormone & the office person said no ( > > My cycles have improved slightly...and I feel more energetic - but > tire easily. I have dry skin, always cold, dark circles under my > eyes & I get a head rush sometimes when I stand up - feels like my > head is caving in & what bugs me the most is my lack of > motivation.....for cooking & simple tasks... & for enjoying some of > the simple things in life, like going out at night - I'm ready for > bed at 8:00 & I long to have the energy to want to do things at > night - like go to concerts, etc.! Know what I mean? > > I eat in the Zone for most meals (balance of favorable carbs & > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > eaten that way for over 5 years which probably is why I haven't > gained all that much with the hypo. I was very angry when I found > out that soy is awful for thyroid function. I had been using soy > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > daughter calls me the soy police ) ....I walk 2 miles in 30 mins, > 5 X's per week. > > Well that's my story - it's nice to know that I have company with all > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > for repeat blood work beginning of March & will be sure to get a > copy.... & won't go to PathLabs! > take care, > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 HI Sheila - Unknowing about this post of yours - I had emailed you earlier that I think I'll try to work with my Dr., instead of just cutting & running!!! Hope you don't have another auto-immune disease rearing it's ugly head!!! I found out that people with RA are suseptable to developing hypothyroid - don't know if it goes the other way.....I'm thankful my doctor has never had to prescribe steroids....but sometimes it's the only option when diseases are out of control. From now on I am going to ask for copies of all lab work - I'm learning!!!! take care, Hi all - > > I've been a lurker for a while - going through the saga of > > hypothyroid like many of you. > > A little about me.... > > I'm 41, have known I have RA (rheumatoid arthritis) for 3+ years. > > Have erosion in my toes & function very well, with birkinstocks & > > comfy sneakers - the RA is under control with Methotrexate, > Enbrel, > > Sufasalazine, & I also take 3-5 1 mg. of folic acid each day to > > counter act the methotrexate & sulfasalazine. I'll be getting rid > of > > the sulfasalazine soon.... > > > > In August of 2002 I had an IUD inserted due to not being able to > take > > B/C Pills - (I get occular migraines) & my Rheumatologist had told > me > > while taking the methotrexate, if I ever were to become preganant > > she'd ask me to terminate. I already have 2 children (age 18 & 19) > > and did not want to have any more ....In January of 2003 I began > > spotting.... & had heavy cycles...thought it was the IUD. It went > on > > for a couple of months, called my ob/gyn...they said that was not > > normal, went in for an exam & an internal ultrasound, all A o.k. - > > went for blood work - - we have a diagnosis for you.... you have > > hypothyroidism. > > Went to see the Endo - couldn't get in until July. Started 50 mg > of > > Levoxyl, bumped up to 75 2 months later, bumped up to 88 2 months > > later, bumped up to 100 in January of 2004. Then I got a call last > > week from the Endo's office. The dr. was looking at recent > bloodwork > > & wanted me to go up to Levoxyl 112. I asked for a copy of my > > bloodwork. I received it Saturday and it was dated 9/19/03. I had > > had bloodwork after this on 11/25/2003 & 1/6/2004. I called and > > inquired - I guess they received updated bloodwork from PathLabs > for > > all of my prior bloodwork, with a modified result.... & only gave me > a > > copy of the September bloodwork. The doctor reviewed all results & > > decided I should go up to Levoxyl 112. > > I was wondering if anyone had this happen to them? I know they > > changed the reference guidelines not too long ago - but this seems > > strange! They did ask me to not go to PathLabs anymore. > > My September results are: > > Hypothyroid Profile > > T-Uptake © results 1.31 H reference values 0.75-1.23 > > T-4, Total Thyroxine © results 10.2, reference values 4.5-12-0 > > FTI, Free Thyroxine Index © results 13.4 H reference values 5.0- > 12.0 > > Under that it has, Amended report Original result: 7.8 date > 9/20/2003 > > Modified result: 13.4 date 1/30/2004 > > TSH, Thyrotropin © results 4.68, reference values uU/mL 0.35- 5.50 > > > > I have no idea as to what all this means - any help understanding > > would be greatly appreciated! > > > > I know a lot of people do not go by labs - I asked if the Dr. > > prescribes " natural " thyroid hormone & the office person said no ( > > > > My cycles have improved slightly...and I feel more energetic - but > > tire easily. I have dry skin, always cold, dark circles under my > > eyes & I get a head rush sometimes when I stand up - feels like my > > head is caving in & what bugs me the most is my lack of > > motivation.....for cooking & simple tasks... & for enjoying some of > > the simple things in life, like going out at night - I'm ready for > > bed at 8:00 & I long to have the energy to want to do things at > > night - like go to concerts, etc.! Know what I mean? > > > > I eat in the Zone for most meals (balance of favorable carbs & > > protein http://www.zoneperfect.com/Site/Content/index.asp) I have > > eaten that way for over 5 years which probably is why I haven't > > gained all that much with the hypo. I was very angry when I found > > out that soy is awful for thyroid function. I had been using soy > > protein powder with my a.m. oatmeal & drank soy milk, ugh! Now my > > daughter calls me the soy police ) ....I walk 2 miles in 30 > mins, > > 5 X's per week. > > > > Well that's my story - it's nice to know that I have company with > all > > this fun stuff going on!!!!! Guess I just had to vent a bit! I go > > for repeat blood work beginning of March & will be sure to get a > > copy.... & won't go to PathLabs! > > take care, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.