Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 , I am relieved for you that you have finally gotten answers on what is going on with - I know that the CAPPS parents (I think someone has given you this info already?) will help you get through the surgery with - as this group will as well- and he will do just great with flying colors! I have seen other parents web pages on the surgeries for their children with cranio, and despite some swelling of the eyes, they have all been success stories that will surely help you get through this with hope and knowledge that will be just fine. My heart goes out to you and your family for having to go through this, but I think you must feel a sense of relief to finally be able to get help for something that for sometime was a mystery. looks like just the sweetest little boy, and he's a handsome kid that is getting the very best from his courageous parents. May God bless and your family in this time and please keep us posted on the process. I'll surely be thinking of your cutie! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Oh , I'm so sorry to hear this news, but at least you know what the problem is and how it can be corrected. You should check out www.CAPSKIDS.org - this group has a support group like ours for children with craniosynostosis and could provide you with tons of insight and support during the pre and post surgery questions and concerns. Of course, we are all here for you too and I want you to know that there will be prayers for you and from me. We have had members in this group whose children had surgery for cranio and while it was quite stressful their children all came through with flying colors and with better prospects of normal growth and development. will do just fine because he has a mother who is an advocate for him. Please keep us posted on when the surgery will be. Best wishes your way! Marci (mom to ) oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Hi everyone, I wanted to thank you all for you support and advice . ty for the canio links also. you guys are wonderful!!!! Well s surgery is set fot Sept 4. I'm still very nervous about it but its helping to find out more about it! :-) well i will keep you gus up dated on how the surgery goes! thanks again s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 : I'm sure you'll be a cranio expert in no time, I hope some of the links you got will help you. Please keep us updated, thanks for letting us know his surgery date. You're still in Abby's & mine prayers. Give your cutie a big old hug from Michigan!!! Debbie Abby's mom DOCGrad MI > Hi everyone, > I wanted to thank you all for you support and advice . ty for the canio > links also. you guys are wonderful!!!! Well s surgery is set fot Sept 4. > I'm still very nervous about it but its helping to find out more about it! > :-) well i will keep you gus up dated on how the surgery goes! thanks again > > > s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 , I'm glad you have the appointment and things are moving ahead. You and will be in my thoughts and prayers. If you can please keep us posted! I know that you will have bigger concerns on your mind! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 , Please do keep us posted on 's surgery- my heartfelt prayers are with you and I wish you all the best. Take care and give that big guy a squeeze from me & Quote Link to comment Share on other sites More sharing options...
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