Re: Giving up hope with his STAR band..

[Guest guest]

Amie -

Dr. Witt has wrote scripts for DOC Bands for other members of this

board. I believe he is Grant's dr as well. If you decide to switch

to RDA, I would hope he could accomadate you by writing a script

since you are having issues.

That is so cute about how the girl you are babysitting likes the

band!

Good luck

Dane's mom DOC Grad

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> Well, still no word from the plastic surgeon who was going to stop

at

> nothing to find glasses that would work with his helmet, so I am

sort

> of stuck right now. The other day I picked up Dakota's glasses,

and

> they are not only terribly (in know it doesn't really matter..)

ugly,

> but still very big! Once again I took someone's word (the lady who

> fit the glasses), and as it turns out she doesn't 'really know' if

> they'll work, but 'thinks' they might fit!! Before she was SO

> confident, and 'experienced'. Now on our 2nd pair of glasses in a

> month, and they STILL won't fit under the helmet. Again in about 2

> weeks we will go back, and see if they can adjust the helmet or

not

> to accomidate them. Funny, when he has needed to be squezed in to

the

> ortho's office in the past he's gotten right in, but now to re-

> schedule his appt it's going to take 2 weeks!?! The receptionist

will

> NOT let me talk directly to the orthodist, but I can relay

messages.

>

> Dr. Witt the plastic surgeon is only for the STAR band, so I am

going

> to have to change drs once again! This is just so frustrating (and

> expensive), and I am to the point where I wanna just give up. He

has

> shown some correction, and I realise he can get more. Still he can

> get more with OUT the helmet too!? Where do we just stop, and say

> we've had enough? My suggestion the the surgeon was to have Dakota

> stay in the helmet full time like he is now for another 6-8 weeks

> untill we see the most correction, and then go from there. After

> that point he would wear his helmet when sleeping, and the glasses

> w/o the helmet when he's playing. Well, the ortho, and I thought

that

> was a good idea, but he about flew out the building on that

> suggestion! I agree that he's growning all the time, but we have

to

> compromize somewhere! Geez.. he's NOT the one seeing how bad this

is

> getting to be, and that it's going to be next to impossible to do

> this.

>

> Still his helmet hangs down so low that he's looking at it, and

> she refuses to adjust that untill we see her with the glasses in

> hand. Poor guy keeps strainging so hard looking up to see what it

is

> that he falls over backwards, and tries to grab at it. At least

it's

> not over his ears anymore? Right now I don't know what one was

> worse.. The one over the ear, or this one that's just so big! Not

to

> worry, because I haven't given up completly yet. HOpefully,

between

> all these appts I will be able to get into soo Rehab. designs of

> america, or find another dr that doesn't have a 3 months waiting

> list! Next week we see the ped for a 9 month check up, and I am

going

> to ask for her opinion (something she's GREAT at!).

>

> On a postitive note I started babysitting a little girl just 4

days

> younger than mine, and she just gets a kick out of Dakota's

helmet!

> They will sit there, and laugh at eachother all day. Dayton of

course

> is still in such awe of being able to see that he's fallen quiet,

but

> you can see the smile on his face!

>

> Amie, mommy to Dakota (STAR), and Dayton!

[Guest guest]

Amie:

Wow, sounds like you're getting a bit of a run around right now. Why

in the world can't your orthotist get you in for 2 weeks? That's

totally unacceptable, you're having problems with all of this, you

need to be seen asap, not 2 wks from now. It's also funny how they

aren't letting you talk directly to your orthotist right now. I can

totally understand how frustrated you are with all of this right now.

It definitely sounds like his band is sitting way too low on his

forehead which is affecting his vision some, this area sounds like it

needs to be trimmed a bit.

If they can't get you in before 2 wks, ask for some money back or

something! That totally amazes me they refuse to see you before then!

I just cannot understand why fitting a band & glasses at the same

time is so difficult, I must be missing something there.

I would have to agree with 's & 's suggestion to maybe

call Rehab Designs (Cranial Tech) and talk to them about your

situation with glasses & a band.

Don't give up just yet! I've been where you are (kind of) and know

how you are just soooo sick of dealing with this, wondering what is

the point, etc.......

Debbie Abby's mom DOCgrad

MI

p.s....did you ever meet the mom who had a child in glasses & a

band? I know you were gonna meet her a couple wks or so ago, if so

how'd it go?

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> Well, still no word from the plastic surgeon who was going to stop

at

> nothing to find glasses that would work with his helmet, so I am

sort

> of stuck right now. The other day I picked up Dakota's glasses, and

> they are not only terribly (in know it doesn't really matter..)

ugly,

> but still very big! Once again I took someone's word (the lady who

> fit the glasses), and as it turns out she doesn't 'really know' if

> they'll work, but 'thinks' they might fit!! Before she was SO

> confident, and 'experienced'. Now on our 2nd pair of glasses in a

> month, and they STILL won't fit under the helmet. Again in about 2

> weeks we will go back, and see if they can adjust the helmet or not

> to accomidate them. Funny, when he has needed to be squezed in to

the

> ortho's office in the past he's gotten right in, but now to re-

> schedule his appt it's going to take 2 weeks!?! The receptionist

will

> NOT let me talk directly to the orthodist, but I can relay messages.

>

> Dr. Witt the plastic surgeon is only for the STAR band, so I am

going

> to have to change drs once again! This is just so frustrating (and

> expensive), and I am to the point where I wanna just give up. He

has

> shown some correction, and I realise he can get more. Still he can

> get more with OUT the helmet too!? Where do we just stop, and say

> we've had enough? My suggestion the the surgeon was to have Dakota

> stay in the helmet full time like he is now for another 6-8 weeks

> untill we see the most correction, and then go from there. After

> that point he would wear his helmet when sleeping, and the glasses

> w/o the helmet when he's playing. Well, the ortho, and I thought

that

> was a good idea, but he about flew out the building on that

> suggestion! I agree that he's growning all the time, but we have to

> compromize somewhere! Geez.. he's NOT the one seeing how bad this

is

> getting to be, and that it's going to be next to impossible to do

> this.

>

> Still his helmet hangs down so low that he's looking at it, and

> she refuses to adjust that untill we see her with the glasses in

> hand. Poor guy keeps strainging so hard looking up to see what it

is

> that he falls over backwards, and tries to grab at it. At least

it's

> not over his ears anymore? Right now I don't know what one was

> worse.. The one over the ear, or this one that's just so big! Not

to

> worry, because I haven't given up completly yet. HOpefully, between

> all these appts I will be able to get into soo Rehab. designs of

> america, or find another dr that doesn't have a 3 months waiting

> list! Next week we see the ped for a 9 month check up, and I am

going

> to ask for her opinion (something she's GREAT at!).

>

> On a postitive note I started babysitting a little girl just 4 days

> younger than mine, and she just gets a kick out of Dakota's helmet!

> They will sit there, and laugh at eachother all day. Dayton of

course

> is still in such awe of being able to see that he's fallen quiet,

but

> you can see the smile on his face!

>

> Amie, mommy to Dakota (STAR), and Dayton!