Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 , My has had her band for just a couple of weeks now and most people haven't said anything. I do notice that they look at her a lot, but we do have a sticker on the front of her band that has words on it, so they may just be trying to read what it says. Most of the time, we still get the same reactions to her that we always used to...."what a cutie," etc. and no one ever mentions the band. ) I did hear one child walk by once and say, "Mommy, that poor baby had brain surgery." And we have had one woman actually come out and ask if she had surgery. When I explained it and said what the band was for, she said it was a cool thing, she didn't even know they existed, and that in a way it was great because she's going to hurt herself less when learning to crawl and walk. She was really great about it. Quite honestly, I wish more people had the courage to actually ask questions. I know it can be difficult for others because they are curious but don't want to offend us. I'd be more than happy to share 's story! Kerri and Baby (Chicago) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 - Most people are really nice about it. They might be curious. I got a lot of " Is that a crash helmet? " Kids with seizures wear special helmets too. I was asked that a couple of times from people who had friends' child had seizures. All in all, most people were very interested, or just stared. Take it as an opportunity to educate others on plagio. In doing this, I talked to many people who were concerned about the shape of a baby's head and never heard the word plagiocephaly. It can be difficult when people are staring at your baby, but is young and will NOT notice it at all. Hey, she might even like the attention. Dane did! Occasionally I encountered a rude person. After I was done with them, I highly doubt they would be doing this to anyone else. Soon you won't even notice it. We went to the zoo. My husband and I kept saying, " Why are people looking at us? " It wasn't until we got home that we remembered about the band! LOL! There are some little handouts in the bookmark section you can give to people who have questions. Decorating it helps a TON! The band doesn't seem sterile and many people will think it is a decoration or a " footbal helmet. " The time in the band will fly! Dane's mom DOC Grad > will be getting her STARband on the 26th. I was just curious > about what kind of reactions to expect from people when we are out in > public. I don't really mind if people stare but are there any > questions that people seem to ask on a regular basis when you are > out? I'd like to be able to answer them intelligently. has > been so nosy lately I have the feeling she'd like the extra > attention, if any, wearing the band may bring! > > > Mother of (will be banded 8/26/02) > California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 I am just stupid and new here, but is a band the same thing as a helmet? was dx three weeks ago with tort and plagio and we are concentrating on getting the tort fixed right now and I plan on asking our PT if she believes 's plagio requires banding. I just want to clarify things..sorry if I make you laugh with my dumb question!!! Taryn Indiana Re: Re: Reactions to bands , My has had her band for just a couple of weeks now and most people haven't said anything. I do notice that they look at her a lot, but we do have a sticker on the front of her band that has words on it, so they may just be trying to read what it says. Most of the time, we still get the same reactions to her that we always used to...."what a cutie," etc. and no one ever mentions the band. )I did hear one child walk by once and say, "Mommy, that poor baby had brain surgery." And we have had one woman actually come out and ask if she had surgery. When I explained it and said what the band was for, she said it was a cool thing, she didn't even know they existed, and that in a way it was great because she's going to hurt herself less when learning to crawl and walk. She was really great about it. Quite honestly, I wish more people had the courage to actually ask questions. I know it can be difficult for others because they are curious but don't want to offend us. I'd be more than happy to share 's story!Kerri and Baby (Chicago) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Taryn, That's not a stupid question, that's actually a great question!! I hope someone will correct me here, but I always thought a band had an opening on the top, and a helmet was fully enclosed. But, that's not to say I haven't called ' DOC band a helmet before, because I certainly have interchanged both words, just as a habit I guess. I hope someone can elaborate better for you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 : I see you've already rec'd a ton of great replies to your question. For me, I hated the staring people did & loved when they actually asked me what the band was for instead of jumping to their own conclusions. Just tell people the band is like braces for crooked teeth, it's being used to correct 's crooked little head....... Sounds like is a little ham huh? LOL....she sounds so sweet. Good luck with the band, one week from today! Wow. Debbie Abby's mom DOCGrad MI > will be getting her STARband on the 26th. I was just curious > about what kind of reactions to expect from people when we are out in > public. I don't really mind if people stare but are there any > questions that people seem to ask on a regular basis when you are > out? I'd like to be able to answer them intelligently. has > been so nosy lately I have the feeling she'd like the extra > attention, if any, wearing the band may bring! > > > Mother of (will be banded 8/26/02) > California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 I feel the same way as Kerry... I wish more people had the courage to ask. Maybe I've just been lucky, but I haven't head any negative reactions in the 2 months Cole has been wearing his STARBand. And I don't even give it a second thought anymore. You really do get used to it fast... Kia (mom to Cole, born 11/18/02, STARBand 6/18/02) -----Original Message-----From: Baracus4@... [mailto:Baracus4@...]Sent: Monday, August 19, 2002 9:01 AMPlagiocephaly Subject: Re: Re: Reactions to bands, My has had her band for just a couple of weeks now and most people haven't said anything. I do notice that they look at her a lot, but we do have a sticker on the front of her band that has words on it, so they may just be trying to read what it says. Most of the time, we still get the same reactions to her that we always used to...."what a cutie," etc. and no one ever mentions the band. )I did hear one child walk by once and say, "Mommy, that poor baby had brain surgery." And we have had one woman actually come out and ask if she had surgery. When I explained it and said what the band was for, she said it was a cool thing, she didn't even know they existed, and that in a way it was great because she's going to hurt herself less when learning to crawl and walk. She was really great about it. Quite honestly, I wish more people had the courage to actually ask questions. I know it can be difficult for others because they are curious but don't want to offend us. I'd be more than happy to share 's story!Kerri and Baby (Chicago) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 , For the most part, people were actually pretty cool with the twins in their bands. Some of our members carried handouts with them for when they were encountered, but didn't have time or didn't feel like explaining. You can find some sample handouts in our Files section under 'Help Folder'. Good luck to you! Niki Kaylie & Danny (STAR grads) Phila., PA > will be getting her STARband on the 26th. I was just curious > about what kind of reactions to expect from people when we are out in > public. I don't really mind if people stare but are there any > questions that people seem to ask on a regular basis when you are > out? I'd like to be able to answer them intelligently. has > been so nosy lately I have the feeling she'd like the extra > attention, if any, wearing the band may bring! > > > Mother of (will be banded 8/26/02) > California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Thanks so much for the wonderful advice. I am a member of the tort group and they referred me here. I love all of you guys for being so supportive and helpful. I know it's going to be a long road but my husband and I are committed to 's well being and will do anything to get this resolved. I have been positioning her and using props, etc. in the crib and also in her car seat, etc. She has been tilting the opposite way the last few days which is driving me nuts. She has been C-shaping lately too and when I try to straighten her out there seems to be so much resistance. I will definitely keep everyone posted. I appreciate everyone listening and offering such great advice. I am actually fortunate enough to have a MT friend who plans on teaching me massage for . She is on Tues. and Thurs. and I am thinking about going in tomorrow to have her checked out and to get her input. She also works for a chiropractor friend of mine who knows a pediatric chiro. That's another avenue I am considering as the other tort parents have had good results with that. Taryn Indiana Taryn,Ok, scratch that last email asking you to share your story with me!! That is really great that is starting pt this week. Make sure you learn as much as you can from the pt so that you can incorporate doing daily stretches as well. You will be 's biggest pt- so your job will be tough as you need to stretch out that muscle, make sure the posture is correct (midline) with props, etc. You are doing a great job already by concentrating on the tort- chances are, the tort is either causing the plagio, or making any existing plagio worse with constant favoring of the non-tort side. You have to address the tort first because a helmet/band will only be as good for as long as she wears it if the tort is allowed to continue. Also be aware that sometimes with tort they tend to pull up on that side with their hip, shoulder, even rib cage. did the shoulder and rib cage was shifting already by two months, but with pt and massage to pull those extremeties back downwards, he resolved those issues with flying colors. If has left tort, reposition her on the left side as she is probably favoring the right, and vice versa. If she has limited ROM to the left, turn her head towards the left when sleeping, etc. as much as possible. We had the greatest luck with stretches when was fast asleep, but always take stretches slowly. I will attach a link with some great exercises and a carrying hold. Also, if you haven't already, check into www.torticolliskids for some great advice and support from more tort parents. If I can help you with tips, advice, support as well, please know you have my ear too! Good luck and keep us posted on how is doing! Info on TorticollisStretches/ HoldBaby Massage(for the baby massage, try to use that in a way that will help give the neck muscle some stimulation, in a downward motion- very lightly- but if any facial asymmetry is present, we found massage upwards also beneficial for the facial features as the muscle pulls down the facial and ear features, and will pull up the upper torso (shoulder, rib cage). Hope this helps a little!! I know your at the beginning of your journey, hang in there, your hard work and worry will pay off in no time!' Mom (dx with severe tort at 2mnths, pt 2x week from 3-9/10 months (also daily stretches/massage with Mom or Dad), DOC band from 5-8 months- whew!) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Taryn, The massage therapist sounds great, she should really be able to work out that " c " shape posture with some light pulls downward in a massage type of way that should help get the " kink " out! I have also heard great things about pediatric chiro, and am still keeping that option open for us if seems to regress at all. Good luck! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Taryn, Aw- what a good Daddy!!! Anything that will work on entertaining while having her rotate her head in both directions will surely help! Way to go Dad! 'Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 awesome taryn what good hubby you have give him hugs from us for being so innovative! beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 I am really psyched to get rolling on all of this. My husband came up with an idea. He has a mini Maglite flashlight that you can remove the tip of and it looks like a candle. follows this intently with her eyes. He is always coming up with new ways to entertain her. He is such a great guy and a wonderful daddy. Taryn Indiana Re: Re: Reactions to bands Taryn,The massage therapist sounds great, she should really be able to work out that "c" shape posture with some light pulls downward in a massage type of way that should help get the "kink" out! I have also heard great things about pediatric chiro, and am still keeping that option open for us if seems to regress at all. Good luck!' MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Thank you...I feel very blessed to have him in our lives. He is such a wonderful husband and father. was just crying before he got home and as soon as he got here she's all smiles and giggles. Kind of makes me jealous but also happy because she has such an incredible bond with him. Taryn Re: Re: Reactions to bands awesome taryn what good hubby you have give him hugs from us for being so innovative!beckFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 He is great!!!! You guys really know how to butter me up, don't you?! Taryn Indiana Re: Re: Reactions to bands Taryn,Aw- what a good Daddy!!! Anything that will work on entertaining while having her rotate her head in both directions will surely help! Way to go Dad! 'MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.