Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 In a message dated 8/16/2002 1:44:27 PM Eastern Daylight Time, taime@... writes: getting 's tort dx. (4 months and 3 diff drs) He asked me if ever had a vision test , Some tort can be caused by vision impairment, if one eye is having vision problems, I'm told that they will use that tilted posture to compensate with the vision problems. I think your Doc MAY be mixing apples and oranges. If you definetly felt that the muscle was tight, your probably talking only muscular tort. Sometimes hip displasia causes tort, and they compensate their posture because of it. Has been going to pt? Has it helped? Is there any indication of a problem with her vision? He may be saying that since it was so hard to detect, the vision may be the underlying cause, and he may be right if you haven't seen results with pt. How old is again (11 mos.?) ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, taime@... writes: Another member also suggested have her vision tested b/c she was put on a respirator at birth and then on CPAP for over a week. Oh I'm glad you mentioned this- I was going to post and totally forgot this came up. I think was telling you to get this done because of the oxygen level for preemies? Not to scare you with too much information, but I was watching a quip on Stevie Wonder and was surprised to learn that he actually lost his vision due to too much oxygen when he was a preemie! It can be very toxic if too much is used or something to that effect. If was a preemie, it would be a good idea to just get it checked out, if not just to rule this out. If her tort is resolved, I wonder if perhaps vision could be causing delays? Are you talking motor skills delays? I know some tort kids do not use that side of the body, and have balance issues. Is this what's going on? ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi All, At the new dr yesterday I was telling him what a hard time I had getting 's tort dx. (4 months and 3 diff drs) He asked me if ever had a vision test. I said no why, he said b/c it's ususally a good idea to check the vision of a baby that has had/has tort. Anyone ()) ever hear of this? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi , was in physical therapy for 3 months X 2x a week. She's getting PT now..for the next 6 months through early intervention b/c she is delayed in her fine and gross motor skills. Her tort is resolved. Yea!!! It wasn't b/c her tort was hard to detect, it's that the drs were WRONG! I knew from the time she came home from the NICU that something was wrong! I was told twice " it isn't what you think it is' But I knew what it was. These LI doctors just don't have a clue! Another member also suggested have her vision tested b/c she was put on a respirator at birth and then on CPAP for over a week. I guess at her next well baby check up, I'll ask about it. Thanks, > In a message dated 8/16/2002 1:44:27 PM Eastern Daylight Time, > taime@o... writes: > > > > getting 's tort dx. (4 months and 3 diff drs) He asked me if > > ever had a vision test > > , > Some tort can be caused by vision impairment, if one eye is having vision > problems, I'm told that they will use that tilted posture to compensate with > the vision problems. I think your Doc MAY be mixing apples and oranges. If > you definetly felt that the muscle was tight, your probably talking only > muscular tort. Sometimes hip displasia causes tort, and they compensate > their posture because of it. Has been going to pt? Has it helped? > Is there any indication of a problem with her vision? He may be saying that > since it was so hard to detect, the vision may be the underlying cause, and > he may be right if you haven't seen results with pt. How old is again > (11 mos.?) > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 , Our specialist automatically ordered an appointment with an eye doctor when he diagnosed plagio. He said there was often a condition called " vision field neglect " present in plagio babies. did not have this, but we did go to the appointment with the specialist. also did not have tort. Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi , No, wasn't a preemie. I'm going to ask her ped about getting her a vision test!! She has a delay in her fine motor skills and her gross motor skills. She also has a problem with balance. > In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, > taime@o... writes: > > > > Another member also suggested have her > > vision tested b/c she was put on a respirator at birth and then on > > CPAP for over a week. > > > > Oh I'm glad you mentioned this- I was going to post and totally forgot this > came up. I think was telling you to get this done because of the > oxygen level for preemies? Not to scare you with too much information, but I > was watching a quip on Stevie Wonder and was surprised to learn that he > actually lost his vision due to too much oxygen when he was a preemie! It > can be very toxic if too much is used or something to that effect. If > was a preemie, it would be a good idea to just get it checked out, if not > just to rule this out. If her tort is resolved, I wonder if perhaps vision > could be causing delays? Are you talking motor skills delays? I know some > tort kids do not use that side of the body, and have balance issues. Is this > what's going on? > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Marci, Unfortunately isn't under a doctors care for her plagio. I'm going by the expertise and advice of CT. I'm going to talk to 's ped and see what she thinks. > , > > Our specialist automatically ordered an appointment with an eye doctor when he diagnosed plagio. He said there was often a condition called " vision field neglect " present in plagio babies. did not have this, but we did go to the appointment with the specialist. also did not have tort. > > Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No one has ever mentioned this do I need to be concerned. He has both plagio and tort. Caleb 2 and Lucas 6mths (soon to be in a starband) Re: Torticollis and vision In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, taime@... writes: Another member also suggested have her vision tested b/c she was put on a respirator at birth and then on CPAP for over a week.Oh I'm glad you mentioned this- I was going to post and totally forgot this came up. I think was telling you to get this done because of the oxygen level for preemies? Not to scare you with too much information, but I was watching a quip on Stevie Wonder and was surprised to learn that he actually lost his vision due to too much oxygen when he was a preemie! It can be very toxic if too much is used or something to that effect. If was a preemie, it would be a good idea to just get it checked out, if not just to rule this out. If her tort is resolved, I wonder if perhaps vision could be causing delays? Are you talking motor skills delays? I know some tort kids do not use that side of the body, and have balance issues. Is this what's going on?' MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi , I really don't know if you should be concerned or not. I'm going to mention it to my NEW ped and see what he has to say, I'll probably ask to have a vision test done,just to err on the side of caution! I'd rather be safe than sorry! > Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No one has ever mentioned this do I need to be concerned. He has both plagio and tort. > > Caleb 2 and Lucas 6mths (soon to be in a starband) > > Re: Torticollis and vision > > > In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, taime@o... writes: > > > > Another member also suggested have her > vision tested b/c she was put on a respirator at birth and then on > CPAP for over a week. > > > > Oh I'm glad you mentioned this- I was going to post and totally forgot this came up. I think was telling you to get this done because of the oxygen level for preemies? Not to scare you with too much information, but I was watching a quip on Stevie Wonder and was surprised to learn that he actually lost his vision due to too much oxygen when he was a preemie! It can be very toxic if too much is used or something to that effect. If was a preemie, it would be a good idea to just get it checked out, if not just to rule this out. If her tort is resolved, I wonder if perhaps vision could be causing delays? Are you talking motor skills delays? I know some tort kids do not use that side of the body, and have balance issues. Is this what's going on? > > ' Mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Okay how do they do a vision test on a 6mth old. He seems to track well with eyes, but I remember it seemed like it was a little late in Lucas being able to do that well. Re: Torticollis and vision> > > In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, taime@o... writes:> > > > Another member also suggested have her > vision tested b/c she was put on a respirator at birth and then on > CPAP for over a week.> > > > Oh I'm glad you mentioned this- I was going to post and totally forgot this came up. I think was telling you to get this done because of the oxygen level for preemies? Not to scare you with too much information, but I was watching a quip on Stevie Wonder and was surprised to learn that he actually lost his vision due to too much oxygen when he was a preemie! It can be very toxic if too much is used or something to that effect. If was a preemie, it would be a good idea to just get it checked out, if not just to rule this out. If her tort is resolved, I wonder if perhaps vision could be causing delays? Are you talking motor skills delays? I know some tort kids do not use that side of the body, and have balance issues. Is this what's going on?> > ' Mom> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 , I don't have any idea! LOL Sorry, I'm just as stumped as you are. Hopefully someone that knows will fill us in! > > Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No > one has ever mentioned this do I need to be concerned. He has both > plagio and tort. > > > > Caleb 2 and Lucas 6mths (soon to be in a starband) > > > > Re: Torticollis and vision > > > > > > In a message dated 8/16/2002 2:36:51 PM Eastern Daylight Time, > taime@o... writes: > > > > > > > > Another member also suggested have her > > vision tested b/c she was put on a respirator at birth and then > on > > CPAP for over a week. > > > > > > > > Oh I'm glad you mentioned this- I was going to post and totally > forgot this came up. I think was telling you to get this done > because of the oxygen level for preemies? Not to scare you with too > much information, but I was watching a quip on Stevie Wonder and was > surprised to learn that he actually lost his vision due to too much > oxygen when he was a preemie! It can be very toxic if too much is > used or something to that effect. If was a preemie, it would > be a good idea to just get it checked out, if not just to rule this > out. If her tort is resolved, I wonder if perhaps vision could be > causing delays? Are you talking motor skills delays? I know some > tort kids do not use that side of the body, and have balance issues. > Is this what's going on? > > > > ' Mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/19/2002 12:47:12 AM Eastern Daylight Time, aleys@... writes: Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No one has ever mentioned this do I need to be concerned. , I really don't know anything about this- I was just commenting on Stevie Wonder's dilemma- I don't know how much oxygen was too much or how exactly he was exposed to it. It sure wouldn't hurt to ask your ped about this, especially as your other post said he was a little late with tracking. I don't know how well other than tracking they can determine vision, but I would think better safe than sorry too. Didn't mean to panic you! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/16/2002 4:10:32 PM Eastern Daylight Time, taime@... writes: Does she favor using the non-tort side? Totally!! , Work on making her use that tort side with her arms, legs- have reach high up with her tort sided arm, and make sure when crawling she's pushing that leg forward- try helping her if its dragging. If I can help with any tips, please let me know. ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/16/2002 5:47:50 PM Eastern Daylight Time, marcisch@... writes: He said that babies with plagio often "neglect" one side or the other as far as vision goes. You can wave something around on the right side and then on the left and see if your baby notices it on one side and not the other. Marci, Thanks for elaborating on this for me- I have always heard that plagio may cause vision problems, but I never knew how/why, just assumed since the back of the head is responsible for vision, flatness may have damaged something. This sounds much less worrisome! Thanks! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/19/2002 10:48:23 AM Eastern Daylight Time, aleys@... writes: I took Lucas for his 6mth check up last week and the Dr made it obvious she didnt agree with what we were doing but she didnt say she would not give the referalls for EI either. , Hang in there, and push for any referral you feel is necessary. My Doc was the exact same, not with us, but not against us either, so she wrote the rx for the DOC band. Does she not want to give the referral for pt for tort? ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 indy, No you didnt really panic me. I am just soooo frustrated with everything concerning the palgio. I took Lucas for his 6mth check up last week and the Dr made it obvious she didnt agree with what we were doing but she didnt say she would not give the referalls for EI either. I just wish she was more supportive, up unitl now she has been the best Ped. Re: Torticollis and vision In a message dated 8/19/2002 12:47:12 AM Eastern Daylight Time, aleys@... writes: Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No one has ever mentioned this do I need to be concerned. ,I really don't know anything about this- I was just commenting on Stevie Wonder's dilemma- I don't know how much oxygen was too much or how exactly he was exposed to it. It sure wouldn't hurt to ask your ped about this, especially as your other post said he was a little late with tracking. I don't know how well other than tracking they can determine vision, but I would think better safe than sorry too. Didn't mean to panic you!' MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 , What I'm just starting to realize is, as long as you agree w/your ped everything is fine. The minute you disagree and want to do something more to help your child (banding/PT/OT and so on) or request a referral for something you feel strongly about, but the ped disagrees, you have a problem! In my opinion if you have to " fight " for what you want for your child,than you don't have the support of your ped. Why go to a dr that can't be supportive? Just my 2 cents! > indy, > No you didnt really panic me. I am just soooo frustrated with everything concerning the palgio. I took Lucas for his 6mth check up last week and the Dr made it obvious she didnt agree with what we were doing but she didnt say she would not give the referalls for EI either. I just wish she was more supportive, up unitl now she has been the best Ped. > Re: Torticollis and vision > > > In a message dated 8/19/2002 12:47:12 AM Eastern Daylight Time, aleys@t... writes: > > > > Oh my ...Lucas was a preemie and was on oxyen for 3 or 4 days. No one has ever mentioned this do I need to be concerned. > > > , > I really don't know anything about this- I was just commenting on Stevie Wonder's dilemma- I don't know how much oxygen was too much or how exactly he was exposed to it. It sure wouldn't hurt to ask your ped about this, especially as your other post said he was a little late with tracking. I don't know how well other than tracking they can determine vision, but I would think better safe than sorry too. Didn't mean to panic you! > > ' Mom > > Quote Link to comment Share on other sites More sharing options...
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