Re: Comparison of DOC and STAR band

[Guest guest]

On Tue, 13 Aug 2002 03:03:36 -0000 ca_sweet_pea <jenferh@...> wrote:

> Is there any opinions that one is BETTER than

> the other?  If yes what

> would the differences be?  Just curious.

HI There!!!

My daughter Sky has been in Star band for 9 wks. I wondered alot about the

difference & asked my orthotist questions. I think DOC is the original & has

been around alot longer. My orthotist uses Star band b/c she also works w/

other things - such as amputtees. She said DOC you have to work for Cranial

Tech. But, what I believe is the most IMPORTANT - hopefully other parents

agree - is that you have a great orthotist that knows what they are doing.

Ours has been GREAT - available by beeper on weekends, answers all questions,

explains rounding & changes I don't really see,tells us what to expect etc. I

think no matter how good a helmet is if the orthotist is incompetent you have

problems so you have to trust them like your DR, go w/ instinct.

We just had our 8 wk follow up w/ our plastic surgeon at Childrens Hospital

of Phili. He uses a scale of severity of 1- 4 (0 being normal). She went from

a 4 to a 1 in 8 wks!!! She was 7 1/2 months when she got it - so hopefully

that makes you feel good. You are starting even younger.

And, most say their babies adjust very easily. Sky didn't & still does fight

it sometimes. So if you end up having a " fighter " like me - just hang in

there- it is worth it!!!

Kim & Sky

>

>

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>

>

>

>

>

>

>

>

[Guest guest]

Hey Kim, what pediatric plastic surgeon did you see at CHOP? We went

to Dr. Whitaker. I am so glad that the band is working for you!

-/Logan 6months

PA

>

>

> On Tue, 13 Aug 2002 03:03:36 -0000 ca_sweet_pea <jenferh@h...>

wrote:

>

> > Is there any opinions that one is BETTER than

> > the other?  If yes what

> > would the differences be?  Just curious.

>

>

> HI There!!!

>

>

> My daughter Sky has been in Star band for 9 wks. I wondered alot

about the

> difference & asked my orthotist questions. I think DOC is the

original & has

> been around alot longer. My orthotist uses Star band b/c she also

works w/

> other things - such as amputtees. She said DOC you have to work for

Cranial

> Tech. But, what I believe is the most IMPORTANT - hopefully other

parents

> agree - is that you have a great orthotist that knows what they are

doing.

> Ours has been GREAT - available by beeper on weekends, answers all

questions,

> explains rounding & changes I don't really see,tells us what to

expect etc. I

> think no matter how good a helmet is if the orthotist is

incompetent you have

> problems so you have to trust them like your DR, go w/ instinct.

>

> We just had our 8 wk follow up w/ our plastic surgeon at Childrens

Hospital

> of Phili. He uses a scale of severity of 1- 4 (0 being normal).

She went from

> a 4 to a 1 in 8 wks!!! She was 7 1/2 months when she got it - so

hopefully

> that makes you feel good. You are starting even younger.

>

> And, most say their babies adjust very easily. Sky didn't & still

does fight

> it sometimes. So if you end up having a " fighter " like me - just

hang in

> there- it is worth it!!!

>

> Kim & Sky

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

On Tue, 13 Aug 2002 16:42:38 -0000 iamaltobum <iammichelle@...>

wrote:

> Hey Kim, what pediatric plastic surgeon did you

> see at CHOP?  We went

> to Dr. Whitaker.  I am so glad that the

> band is working for you!

>

> -/Logan 6months

> PA

We also saw Dr Whitaker. And we are using the orthotist he recommended -

- is that who you are using??? I found Dr W.. on CHoP website - my

ped gave me no idea where to go. I hope the band is working for you too.

Kim

>

>

> >

> > > Is there any opinions that one is

> BETTER than

> > > the other?  If yes what

> > > would the differences be?  Just

> curious.

> >

> >

> > HI There!!!

> >

> >

> > My daughter Sky has been in Star band for

> 9 wks.  I wondered alot

> about the

> > difference & asked my orthotist

> questions.  I think DOC is the

> original & has

> > been around alot longer.  My

> orthotist uses Star band b/c she also

> works w/

> > other things - such as amputtees. She said

> DOC you have to work for

> Cranial

> > Tech. But, what I believe is the most

> IMPORTANT - hopefully other

> parents

> > agree - is that you have a great orthotist

> that knows what they are

> doing.

> > Ours has been GREAT - available by beeper

> on weekends, answers all

> questions,

> > explains rounding & changes I don't

> really see,tells us what to

> expect etc. I

> > think no matter how good a helmet is if

> the orthotist is

> incompetent you have

> > problems so you have to trust them like

> your DR, go w/ instinct.

> >

> > We just had our  8 wk follow up w/

> our plastic surgeon at Childrens

> Hospital

> > of Phili. He uses a scale of severity of

> 1- 4 (0 being normal). 

> She went from

> > a 4 to a 1 in 8 wks!!!  She was 7 1/2

> months when she got it - so

> hopefully

> > that makes you feel good. You are starting

> even younger.

> >

> > And, most say their babies adjust very

> easily.  Sky didn't & still

> does fight

> > it sometimes. So if you end up having a

> " fighter " like me - just

> hang in

> > there- it is worth it!!!

> >

> > Kim & Sky

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Kim,

You REALLY hit the nail on the head and you said it so well. The orthotist does

make the difference! We had a locally made helmet and even though it was not the

DOCband, the ortho was incredibly skilled and experienced and we had a good

experience with the helmet because of him. You really just summed it up so well.

I'm glad to hear that Skye is doing so well - that is excellent news. Thanks for

sharing your insight.

Marci (Mom to )

Oklahoma

[Guest guest]

Dr. Whitaker was really nice! He was our third opinion. We decided

to go with the DOC band and will be making the two hour trip to NJ

once a week. He gets his helmet next week.

-/Logan 6 months

PA

> > >

> > > > Is there any opinions that one is

> > BETTER than

> > > > the other?  If yes what

> > > > would the differences be?  Just

> > curious.

> > >

> > >

> > > HI There!!!

> > >

> > >

> > > My daughter Sky has been in Star band for

> > 9 wks.  I wondered alot

> > about the

> > > difference & asked my orthotist

> > questions.  I think DOC is the

> > original & has

> > > been around alot longer.  My

> > orthotist uses Star band b/c she also

> > works w/

> > > other things - such as amputtees. She said

> > DOC you have to work for

> > Cranial

> > > Tech. But, what I believe is the most

> > IMPORTANT - hopefully other

> > parents

> > > agree - is that you have a great orthotist

> > that knows what they are

> > doing.

> > > Ours has been GREAT - available by beeper

> > on weekends, answers all

> > questions,

> > > explains rounding & changes I don't

> > really see,tells us what to

> > expect etc. I

> > > think no matter how good a helmet is if

> > the orthotist is

> > incompetent you have

> > > problems so you have to trust them like

> > your DR, go w/ instinct.

> > >

> > > We just had our  8 wk follow up w/

> > our plastic surgeon at Childrens

> > Hospital

> > > of Phili. He uses a scale of severity of

> > 1- 4 (0 being normal). 

> > She went from

> > > a 4 to a 1 in 8 wks!!!  She was 7 1/2

> > months when she got it - so

> > hopefully

> > > that makes you feel good. You are starting

> > even younger.

> > >

> > > And, most say their babies adjust very

> > easily.  Sky didn't & still

> > does fight

> > > it sometimes. So if you end up having a

> > " fighter " like me - just

> > hang in

> > > there- it is worth it!!!

> > >

> > > Kim & Sky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

On Tue, 13 Aug 2002 23:59:56 -0000 iamaltobum <iammichelle@...>

wrote:

> Dr. Whitaker was really nice!  He was our

> third opinion.  We decided

> to go with the DOC band and will be making the

> two hour trip to NJ

> once a week.  He gets his helmet next

> week.

>

> -/Logan 6 months

> PA

>

WOW!!!!!!! Three opinions! We only went to Dr. Whitaker. I KNEW she needed

a helmet - it was obvious - and just prayed it wasn't cranio (they did a scan

& it wasn't). I was just SOOO happy when we finally got to see Dr W. & he

wrote the presc. for the helmet!!!!!!!!!

We are in Starband, like I said. We go to an office in Marlton, NJ. Dr. W.

referred us to at the Phili office but when I called they explained

she was in NJ every Monday. It is a little under 2hr trip but easier drive

for us then going to Phili. (you get used to making the trip really fast) If

for some reason you don't like where you go I HIGHLY recommend her.

We don't have to go back to see DR. W. He said Sky had made enough progress

we could decide w/ when to stop treatment - unless there was a

question or we are unsure. Everyone at CHoP was wonderful to us but it is a

really sad place to go so I am very glad not to have to go back.

Good luck w/ the band - I hope you get good & quick results!!!!!!

Kim

>

> > > >

> > > > > Is there any opinions that

> one is

> > > BETTER than

> > > > > the other?  If yes what

> > > > > would the differences be? 

> Just

> > > curious.

> > > >

> > > >

> > > > HI There!!!

> > > >

> > > >

> > > > My daughter Sky has been in Star

> band for

> > > 9 wks.  I wondered alot

> > > about the

> > > > difference & asked my

> orthotist

> > > questions.  I think DOC is the

> > > original & has

> > > > been around alot longer.  My

> > > orthotist uses Star band b/c she also

>

> > > works w/

> > > > other things - such as

> amputtees. She said

> > > DOC you have to work for

> > > Cranial

> > > > Tech. But, what I believe is the

> most

> > > IMPORTANT - hopefully other

> > > parents

> > > > agree - is that you have a great

> orthotist

> > > that knows what they are

> > > doing.

> > > > Ours has been GREAT - available

> by beeper

> > > on weekends, answers all

> > > questions,

> > > > explains rounding & changes

> I don't

> > > really see,tells us what to

> > > expect etc. I

> > > > think no matter how good a

> helmet is if

> > > the orthotist is

> > > incompetent you have

> > > > problems so you have to trust

> them like

> > > your DR, go w/ instinct.

> > > >

> > > > We just had our  8 wk follow up

> w/

> > > our plastic surgeon at Childrens

> > > Hospital

> > > > of Phili. He uses a scale of

> severity of

> > > 1- 4 (0 being normal). 

> > > She went from

> > > > a 4 to a 1 in 8 wks!!!  She was

> 7 1/2

> > > months when she got it - so

> > > hopefully

> > > > that makes you feel good. You

> are starting

> > > even younger.

> > > >

> > > > And, most say their babies

> adjust very

> > > easily.  Sky didn't & still

> > > does fight

> > > > it sometimes. So if you end up

> having a

> > > " fighter " like me - just

> > > hang in

> > > > there- it is worth it!!!

> > > >

> > > > Kim & Sky

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

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