Re: diagnosis confirmed..we are home

[Guest guest]

-

Wow! What a productive trip! How did the casting go? It sounds as

though Lucas is in excellent hands!

Curious as to how your dad reacted to the news? At least they will

get to see more often over the next few months.

Dane's mom DOC Grad

> Hello,

> i aplogize for not letting you all know the day we found out but I

did not have access to computer. We made it to OKC, we saw a

pediatirc neuroligist, a pediatric neurosurgeon and we now have a

diagnosis of plagio and torticollis. I was so relieved to finally

have someone tell me what I have known all along. A lot of mixed

emotions went threw me. I was relieved but also scared in a way, I

knew what the furture would be. In the end we decieded to do the

star band. The DR said the facial asmatry was quite severe compared

to the palgio and he had never seen a case like it beofre. We went

to the orthotist's office on Thursday not expecting to get the

casting done but their first appt of the day didn't show so they

took us.......YIPEE. It saved us having to go back in 12 days.

Instead we go back on the 26 when Lucas's helmet will be ready. They

were able to give us the documentation so it will be paid for and we

dont have to go through the hassel of insurance. We should no more

on Tuesday.

> Marci you were right we saw a collegue of Dr.Francel's a Dr.

Honeycutt, we also saw a Dr.Parke (ped. neurologist). They were both

very good and we were pleased. Bill Barringer was very good and he

was very reassuring. Thanks for all your help and support.

> I will returning every two weeks to OKC, a 5-6 hour drive, for

adjustments but to me it is worth it.

> Take care,

>

> PS If their were any specific emails I needed to read they did not

get downloaded, my server had problem.

[Guest guest]

:

Thanks for your update. How did Lucas handle the casting? That's

great they were able to cast him right away w/o having you go thru

another long drive 2 wks from now. That's done & over with, the rest

will be a piece of cake!

I am sure Lucas will get good correction of both his flatness & his

assymetries while in the band.

It sounds like you won't have any ins. troubles, that's great!

Let us know when the band is in & how it goes. Best of luck.

Debbie Abby's mom DOCGrad

MI

> Hello,

> i aplogize for not letting you all know the day we found out but I

did not have access to computer. We made it to OKC, we saw a

pediatirc neuroligist, a pediatric neurosurgeon and we now have a

diagnosis of plagio and torticollis. I was so relieved to finally

have someone tell me what I have known all along. A lot of mixed

emotions went threw me. I was relieved but also scared in a way, I

knew what the furture would be. In the end we decieded to do the star

band. The DR said the facial asmatry was quite severe compared to the

palgio and he had never seen a case like it beofre. We went to the

orthotist's office on Thursday not expecting to get the casting done

but their first appt of the day didn't show so they took

us.......YIPEE. It saved us having to go back in 12 days. Instead we

go back on the 26 when Lucas's helmet will be ready. They were able

to give us the documentation so it will be paid for and we dont have

to go through the hassel of insurance. We should no more on Tuesday.

> Marci you were right we saw a collegue of Dr.Francel's a Dr.

Honeycutt, we also saw a Dr.Parke (ped. neurologist). They were both

very good and we were pleased. Bill Barringer was very good and he

was very reassuring. Thanks for all your help and support.

> I will returning every two weeks to OKC, a 5-6 hour drive, for

adjustments but to me it is worth it.

> Take care,

>

> PS If their were any specific emails I needed to read they did not

get downloaded, my server had problem.