diagnosis confirmed..we are home

[Guest guest]

Hello,

i aplogize for not letting you all know the day we found out but I did not have access to computer. We made it to OKC, we saw a pediatirc neuroligist, a pediatric neurosurgeon and we now have a diagnosis of plagio and torticollis. I was so relieved to finally have someone tell me what I have known all along. A lot of mixed emotions went threw me. I was relieved but also scared in a way, I knew what the furture would be. In the end we decieded to do the star band. The DR said the facial asmatry was quite severe compared to the palgio and he had never seen a case like it beofre. We went to the orthotist's office on Thursday not expecting to get the casting done but their first appt of the day didn't show so they took us.......YIPEE. It saved us having to go back in 12 days. Instead we go back on the 26 when Lucas's helmet will be ready. They were able to give us the documentation so it will be paid for and we dont have to go through the hassel of insurance. We should no more on Tuesday.

Marci you were right we saw a collegue of Dr.Francel's a Dr. Honeycutt, we also saw a Dr.Parke (ped. neurologist). They were both very good and we were pleased. Bill Barringer was very good and he was very reassuring. Thanks for all your help and support.

I will returning every two weeks to OKC, a 5-6 hour drive, for adjustments but to me it is worth it.

Take care,

PS If their were any specific emails I needed to read they did not get downloaded, my server had problem.

[Guest guest]

,

Hooray!!! I'm glad you were able to accomplish so much during your visit to

OKC. That is awesome! It sounds like your experience was a good one and I'm

so happy to hear it.

Did your parents come around to the idea after you had an official diagnosis

from a specialist? I hope so. Let us know how the fitting goes on the 26th!

Marci (Mom to )

Oklahoma