Re: I hope we're not too late!

[Guest guest]

and are just gorgeous!!!! I notice the same forehead bossing on that I see on . Good luck in all your efforts!!

Taryn

's mom

I hope we're not too late!

HiI've been reading the files for this group, and have some hope that I can get some successful treatment for my daughter, who will turn 1 year old on Sept 20 (that will be 10.5 months corrected, if thatgains us any time).Here are pictures of my twins:http://home.earthlink.net/~ladelfe/Twins/index.htmlThe photo of my daughter is almost fully face on, but you'll notice her right ear is barely visable. I don't have a picture of her from the top down right now, but her right ear is distinctly back from the left, and her forehead and cheek show similar differences. She wasmy "A" twin, and was head down and squashed by her bigger brother for most of my pregnancy. The were born at 33 weeks, forceps delivery. Her head was out of shape when she was born, but I was repeatedlytold to reposition her (difficult because of tight neck muscles, but she was never diagnosed officially with a muscular problem), and that it would get better. I even made a special appointment at 5 months, concerned that we were losing the chance to correct the shape, butthe doctor dismissed my concern, saying she had seen 3 babies for head shape that day and my daughter's was the least out of shape. I let myself be reasured by the doctor and didn't think much more about her head shape until last month when I re-met an old acquaintance whose now-4-year-old was born with facial and scull malformations, and who has been going through a lot of medical intervention. In passing I made some comment about the only problem my daughter will have is different length ear-pieces when she is fitted for glasses some day. Robyn was not amused, and pointed out possible jaw problems in the future, among other things. That made me wonder if the problems I am already having getting her to take solid foods might be related toher current jaw position (okay, maybe not); and if her chronic ear-aches, which do NOT appear to be caused by infection, are related. Her pediatrician is still telling me I'm a silly worried parent, and everything is fine.For the last month, I have made a few efforts to get a second opinion with another pediatrician (they said see a neurologist), with a pediatric neurologist (he said he doesn't deal with plagiocephaly, so call the university hospital in Albuquerque), and so on. She has an appointment with a pediatric dentist tomorrow, to get his opinion on the jaw question (interestingly, the dentist has 2 year old twins). I'm still playing phone tag with the university pediatric center. ly, though, I thought I had left it too late to do much, so I haven't been as persistant as I could have been. Today, though, I read an article about DOC-banding success in older children, and I'm thinking it may still work! My next problem is finding a doctor who can help, or who has worked with banding and who agrees that my daughter doesn't need it.So, does anyone here know of a doctor in New Mexico (Santa Fe, preferably, Albuquerque okay) who consults on plagiocephaly?Of course, my next problem would then be my insurance company, but first things first...., mom to and (b. 9/20/2001)For more plagio info

[Guest guest]

They are so adorable, Gail!!!

Taryn

's mom

I hope we're not too late!

HiI've been reading the files for this group, and have some hope that I can get some successful treatment for my daughter, who will turn 1 year old on Sept 20 (that will be 10.5 months corrected, if thatgains us any time).Here are pictures of my twins:http://home.earthlink.net/~ladelfe/Twins/index.htmlThe photo of my daughter is almost fully face on, but you'll notice her right ear is barely visable. I don't have a picture of her from the top down right now, but her right ear is distinctly back from the left, and her forehead and cheek show similar differences. She wasmy "A" twin, and was head down and squashed by her bigger brother for most of my pregnancy. The were born at 33 weeks, forceps delivery. Her head was out of shape when she was born, but I was repeatedlytold to reposition her (difficult because of tight neck muscles, but she was never diagnosed officially with a muscular problem), and that it would get better. I even made a special appointment at 5 months, concerned that we were losing the chance to correct the shape, butthe doctor dismissed my concern, saying she had seen 3 babies for head shape that day and my daughter's was the least out of shape. I let myself be reasured by the doctor and didn't think much more about her head shape until last month when I re-met an old acquaintance whose now-4-year-old was born with facial and scull malformations, and who has been going through a lot of medical intervention. In passing I made some comment about the only problem my daughter will have is different length ear-pieces when she is fitted for glasses some day. Robyn was not amused, and pointed out possible jaw problems in the future, among other things. That made me wonder if the problems I am already having getting her to take solid foods might be related toher current jaw position (okay, maybe not); and if her chronic ear-aches, which do NOT appear to be caused by infection, are related. Her pediatrician is still telling me I'm a silly worried parent, and everything is fine.For the last month, I have made a few efforts to get a second opinion with another pediatrician (they said see a neurologist), with a pediatric neurologist (he said he doesn't deal with plagiocephaly, so call the university hospital in Albuquerque), and so on. She has an appointment with a pediatric dentist tomorrow, to get his opinion on the jaw question (interestingly, the dentist has 2 year old twins). I'm still playing phone tag with the university pediatric center. ly, though, I thought I had left it too late to do much, so I haven't been as persistant as I could have been. Today, though, I read an article about DOC-banding success in older children, and I'm thinking it may still work! My next problem is finding a doctor who can help, or who has worked with banding and who agrees that my daughter doesn't need it.So, does anyone here know of a doctor in New Mexico (Santa Fe, preferably, Albuquerque okay) who consults on plagiocephaly?Of course, my next problem would then be my insurance company, but first things first...., mom to and (b. 9/20/2001)For more plagio info

[Guest guest]

Gail,

They are so cute!

' Mom

[Guest guest]

,

Welcome to the group! Your twins are absolutely adorable!!! Honestly, from

the pic with those big blue eyes and chubby cheeks looking at me- the facial

asymmetry or ear misalignment did not stick out like a sore thumb to me like

it did when I noticed it on my son- I mean, I reallllly had to look for it.

Is there severe flatness on the back of her head? I will say that if you

feel its a concern, pursue this until you get satisfaction. I know that my

son benefitted greatly from the DOC band, and it did realign his ears. Check

out www.cranialtech.com and see if you have a center near you for a free

eval. They may even tell you that its not necessary to band, and even though

TMJ can be a jaw complication with plagio, in my opinion the severity may

play a key role in that. I hope other members can chime in with some Docs

near you. Let us know what your Dentist thinks, it will be interesting to

get his/her perspective. Good luck to you and keep us posted!

' Mom

[Guest guest]

> Hi ,

> I have boy/girl twins born on 10/16/2001, and after reading your

website, they are a lot like and . My daughter was

also twin A and was squashed by her big brother. They wore DOC bands

from 5.5 to 7 months of age and got great correction. There are many

parents of twins on this site, and many people with good advice about

plagio. You will be bombarded with links about how to find the help

you are looking for, but unfortunately, I'm not a " link lady " and

can't help there. And don't worry, you're not too late. You'll soon

be on your way with the help your babies need and deserve. Keep up

the good work Mom!

>

> Gail, Sam and Sara's mom, DOC grads

They're cuties! (Mine are IVF twins, too.)

, mom to and (b. 9/20/2001)