Re: Kady's ped appt (no referral)

[Guest guest]

I've been meaning to say how beautiful Kady is, thanks for adding

the " cute face " photo, what a doll!!!!

Let me answer some of your questions below your questions...

>

> Did your baby spit up excessively before treatment?

A)No, I've never heard of excess spit up & plagio being related, has

your Dr. ever mentioned " reflux " ? The spit up has nothing to do with

plagio.

> Did your baby's head change from a more one sided flatness to a

> complete back flatness?

A) No, is there still flatness on one of her sides as well as the

back of her head? Maybe the back of her head has flattened some with

yuor repositioning efforts?

> Did you have to get a catscan or head x-ray? Would that be the

> referral to the neuro?

A) Yes, Abby had Xrays done at 6 wks of age to rule out cranio, this

is a good thing to have done to be safe & sure that your child does

not have cranio.. I highly suggest getting this done, just to be

safe. Abby's ped. referred her for the Xrays first, then after that

referred us to a ped. neuro. for an evaluation and recommendation for

a band.

I hope you see some improvment over the next month with

repositioning. Good luck and please keep us updated!

Debbie Abby's mom DOCGrad

MI

[Guest guest]

just had a cat scan done at 10 1/2 mos. We've been asking our

doctor about it since he was about 3 or 4 mos. We did our best to

reposition - without any kind of guidance like you can get here and

although it hasn't gotten any worse - it certainly hasn't gotten any

better. I should also mention that was sitting up by 5 mos,

and even before that he loved the exersaucer and jhonny jump up and

so didn't spend a lot of time on his head during the day. Hence, I

believe the comment that it'll round out on its own once they're

sittin up/rolling over/crawling, is a bunch of hooey (if you will).

The cat scan wasn't a big deal, although I was very scared about it.

The sedative they give is NOT a general anesthesia. It is an oral

(or suppository) medication that has the side effect of extreme

drowsiness. fell asleep with the lowest possible dose - they

start out low and add a little every 1/2 hr till they fall asleep (up

to a maximum based on the baby's weight and age) It really was very

easy (for us). I, too, recommend the scan - just to be 100% sure. I

am glad we did it. It also helps if you have to see a bunch of

different drs (like we have) in order to get the rx for a band. Each

time I had to make a new appt, I had to wait several weeks, then when

the scan was finally ordered, it took a couple weeks to get that

appt - this way you have it done up front. Plus, you can be doing

active repositioning while waiting to have the scan and evaluation. I

do remember that spit up a lot more as an infant than my 4

year old did at that age - whether or not its related, I don't know.

Good luck to you and keep us posted!

Kristi

(4) (10 3/4mos)

OH

> Well, we went to the new peds today. He gave the expected speech

> about flat heads being normal and the baby rounding once rolling

and

> masking w/hair. He did say, however that her's was the worst case

> he'd seen. He said none of their patients were in bands. He

pretty

> much ruled out craniosynthesis (sp) except for the fact that she

has

> been spitting up like crazy. He said that if I'd like, he could

call

> for a catscan and x-ray to ensure the skull hasn't fused or

something

> like that. But they'd have to sedate Kady. I have to go back in 3

> weeks for her shots, so I agreed to wait it out and see if there is

> any improvement.

>

> So, I have a few questions if anyone could answer them for me:

>

> Did your baby spit up excessively before treatment?

> Did your baby's head change from a more one sided flatness to a

> complete back flatness?

> Did you have to get a catscan or head x-ray? Would that be the

> referral to the neuro?

>

> Thanks in advance! I have pictures of Kady in a folder here under

> photos. She is 16 weeks old and we first noticed the mishapen head

> around 6-10 weeks.

[Guest guest]

You mentioned a lot of spitting up. Does Kady have reflux (GER)?

Both of my kids had it and outgrew it at about 8 months.

Dane didn't have a CT Scan. The ped could tell he didn't have

craniosynotosis. He is 11 months old and his soft spot is about as

big as a quarter.

His flat spot was on the right side.

Does Kady have torticollis?

Dane's mom DOC Grad

-- In Plagiocephaly@y..., " sheilae98 " <sheilae98@y...> wrote:

> Well, we went to the new peds today. He gave the expected speech

> about flat heads being normal and the baby rounding once rolling

and

> masking w/hair. He did say, however that her's was the worst case

> he'd seen. He said none of their patients were in bands. He

pretty

> much ruled out craniosynthesis (sp) except for the fact that she

has

> been spitting up like crazy. He said that if I'd like, he could

call

> for a catscan and x-ray to ensure the skull hasn't fused or

something

> like that. But they'd have to sedate Kady. I have to go back in

3

> weeks for her shots, so I agreed to wait it out and see if there

is

> any improvement.

>

> So, I have a few questions if anyone could answer them for me:

>

> Did your baby spit up excessively before treatment?

> Did your baby's head change from a more one sided flatness to a

> complete back flatness?

> Did you have to get a catscan or head x-ray? Would that be the

> referral to the neuro?

>

> Thanks in advance! I have pictures of Kady in a folder here under

> photos. She is 16 weeks old and we first noticed the mishapen

head

> around 6-10 weeks.

[Guest guest]

It seems to me that if you baby's head changed from flatteness on the

side (plagiocephaly) to flatteness across the whole back

(bracheocephaly) that maybe the side flattening was present at birth

and the back flattening from lying on firm surfaces after birth. (My

daughter has both of these head shapes.

If you can, I would suggest just going ahead and getting the referral

without the catscans or x-rays. Some specialists are knowledgeable

enough about the subtle differences between positional plagio &

lamboid cranio that they can make a diagnosis without an x-ray or Ct

scan.

BTW, if you have a choice, you might want to check for specialists in

your area that are 'plagio friendly' (see www.plagiocepahly.org or

www.cappskids.org). Generally, these are doctors who will consider

both banding and repositioning as viable treatments. Some

specialists are just anti-band.

-

> Did your baby spit up excessively before treatment?

> Did your baby's head change from a more one sided flatness to a

> complete back flatness?

> Did you have to get a catscan or head x-ray? Would that be the

> referral to the neuro?

>

> Thanks in advance! I have pictures of Kady in a folder here under

> photos. She is 16 weeks old and we first noticed the mishapen head

> around 6-10 weeks.