Re: daughter Caitlin-Delilah

[Guest guest]

Hi Delilah,

I am so sorry to hear about Caitlin's diagnosis. From what I've read

lamboid craniosyntosis, is the rarest form of craniosyntosis.

Here are some web sites that you can check out, to educate yourself

about cranio.

http://www.muhealth.org/~neuromedicine/craniosynostosis.shtml

The above web site is about endoscopic strip craniectomy, which is a

less invasive type of surgery for cranio. I think the oldest baby

that had endocopic surgery for lamboid cranio was a little over six

months. The baby has to be very young for this type of surgery.

http://www.health.adelaide.edu.au/paed-neuro/craniofacial.html

http://www.kidsplastsurg.com/craniosynostosis.html

http://www.craniosupport.com/

http://www.cappskids.org/

I hope you'll stick around and keep us updated on Caitlin.

You and your family are in my prayers.

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> Greetings

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> Well I recv the results of my daugter's cat scan today and she has

been diagnosed with lambdoid craniosyntosis and the doctor is

suggesting surgery to correct this condition and then the doc band

for a month or two. I do not know alot about this condition yet but

I will meet with the doctor soon to discuss the surgery. I would

appreciate any input or first hand experience with this condition. I

was so much expecting just to be told she would need a doc band and

not surgery. I will let everyone know what happens after I meet with

her doctor.

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> delilah

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