Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Delilah, I'm sorry to hear of the craniosynostosis diagnosis. I'm glad, however, that you have some answers now and you know what must be done to help your baby. You should definitely check into www.cappskids.org. It is a group like this one whose members have all been through a cranio diagnosis with their children. They should be able to give you all the answers and support you need. Of course, you will get all the support and good wishes you could want here too!!!! I hope you will let us know how things are going and you will be in my thoughts and prayers. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Delilah, I'm so sorry to hear of the dx of cranio for Caitlin. We have had several members come through this Board first and then on to CAPPS (for cranio) and they have shared their experience with us of the surgery at hand. All had very positive outcomes and the surgery was very successful in all those I have read. There is some temporary severe swelling of the eyes, and I think if you check into the cranio board (I'm sure someone has already given you this addy- let me know if you need help there and I'll find it) you can talk with several parents that have been there done that and they can reassure you that it will be the best thing you ever did for Caitlin. My heartfelt prayers go out to Caitlain and your family, only because I know that surgery is something we never anticipate for our children, but know that this is what's best for your little girl. Good luck and please keep us posted on the surgery and post op. ' Mom Quote Link to comment Share on other sites More sharing options...
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