Re: New member seeking advice

[Guest guest]

hi Becky,

i live in Edison,my son goes to Dr. oleada in Bridgewater office in catholic charities. i know it is really hard to find board certified child pschiatrist, even though she is out of network. i do not think she is OCD specialist, she is a great child psychiatrist. i am looking for CB therspist. i hav not been able to find one yet.

good luck! sarah

[Guest guest]

Hello Becky:

Oh boy! Do our situations sound ever so similiar and we live very close to eachother. I am in Bergen County, NJ. My son has recently turned 17, has been on some of the same medications, has shown violent mood swings at home, and his grades have also plumented. I am also extremely worried about upcoming college plans, however I am alot closer to that point since my son is a junior. And what is this deal with doctors? We have switched three times in a year. I would love to talk with you in more detail. You can e-mail me : Peachgarden14@...

Marsha

[Guest guest]

Welcome to the list Becky!

It sounds as if your son needs to be on at least a 504 plan if not an IEP. A

superb reference for types of accommodations is Teaching the Tiger -- available

at bookstores and at amazon.com. What you will need to do is request, IN

WRITING, a meeting to discuss setting up a 504 plan for your son. It helps to

have a letter from the therapist or psychiatrist as well. I always put in my

letters that I expect a reply within 5 business days. You also have the option

of requesting an MFE (multifactored evaluation) which would determine

eligibility for an IEP under IDEA. I would also refer you to the following

website which offers an excellent tutorial in effective parent advocacy.

http://www.tourettesyndrome.net/Advocacy/SpecEd/advocacy_selfhelp_intro.htm

I chose a therapist on the OCF list, and he has been wonderful. I knew I was in

the right place when I walked in the waiting room

and he had the ocf and adda newsletters on his bulliten board.

Jule in Cleveland

[Guest guest]

Hi Dawn & welcome to our group!

We have had other Aussie members in our group in the past, I hope at

least one of them will read your post & offer local info for you.

Repositioning does work for some babies, but not all. If you begin

repositioning at a younger age, like Riley, you have a better chance

for correction. With Riley being only 3 mos old yet, you could get

good improvement with repositioning alone.Have you noticed any

improvement yet with repositioning. While repositioning, I highly

suggest you take weekly photos of Riley's head to compare progress

to. The best view of the plagio is usually from the top of the

baby's head.

I searched our group archives & found a Sydney Drs name who treats

plagio babies, just in case you'd ever be interested in contacting him

Debbie Abby's mom DOCGrad

MI

Here's the info:

From: timlittlefield@...

Date: Tue Feb 20, 2001 3:47 pm

Subject: Re: Anyone know of treatment available in Australia?

Hi ,

Unfortunately, the DOC Band is not available in Australia, but I can

refer you to craniofacial surgeons familiar with positional

plagiocephaly.

J. is, I believe, practicing in Sydney (in the Journal of

Craniofacial Surgery he is listed in Adelaide). Dr. is a world

renowned craniofacial surgeon. Unfortunately, I was unable to find an

address or phone number for him. If you cannot locate it through your

local directory, please contact me. The second is Dr. Tristan De

Chalain in New Zealand. Dr. Chalain is also very knowledgeable about

positional plagiocephaly and its treatment. Dr. Chalain's address

and phone:

Cranio Facial Clinic

Middlemore Hospital

South Auckland Health

Private Bag 93311

Otahuhu

Auckland, New Zealand

Phone: (09) 522-0652

I hope this helps, please stay in touch.

Tim Littlefield

littlefi@...

Cranial Technologies, Inc.

> Hi, My name is Dawn. My son Riley was born in May this year.

Shortly

> after his birth he developed a Cephalhematoma on the side/back of

his

> head. We were assured that it would right its self and not to

worry.

> This was true,however due to sleeping facing the same way all the

> time because of the swelling he was left with a very mishaped head.

> He has a flat spot on the back right and face asymetry and

misaligned

> ear.

> I have started repositioning with information I gained from this

> group and other sites. I would like to know if repositioning is

> successful in comparison to bands and helmets.

> I look forward to talking to you all.

>

> Dawn

> Sydney,Australia.

[Guest guest]

Hi Dawn,

I saw your post but as it's very late here I'll be short, will post

more later....

I'm an Aussie too, but currently living in Montreal (well for another

4 weeks or so, then we return to Melbourne, after 2 yrs here).

There's a really good repositioning website by a couple of other

Montrealers incidentally that you may find useful - it's at

http://www.geocities.com/alittleone2000/plagiopage.htm

Annick ('s mum) posts on another plagio group which I have

been a member of for a few mos. I have only been lurking here on

this plagio group, saw your note and had to drop a line to a fellow

compatriot!. My daughter is now in a helmet at 12 mos, but I have to

say that if I'd known more about repositioning in the early mos I'm

sure we could've avoided it. Repositioning can work, there are

success stories out there. Because Riley is so young, you have a

great chance.

Anyway, will send more later, in the meantime check out 's story

and don't stress!

regards

Tarli in Montreal (mum to Alice)

> Hi, My name is Dawn. My son Riley was born in May this year.

Shortly

> after his birth he developed a Cephalhematoma on the side/back of

his

> head. We were assured that it would right its self and not to

worry.

> This was true,however due to sleeping facing the same way all the

> time because of the swelling he was left with a very mishaped head.

> He has a flat spot on the back right and face asymetry and

misaligned

> ear.

> I have started repositioning with information I gained from this

> group and other sites. I would like to know if repositioning is

> successful in comparison to bands and helmets.

> I look forward to talking to you all.

>

> Dawn

> Sydney,Australia.

[Guest guest]

Thank you to everyone who replied to me. We have seen our local doctor

(he had never heard of plagio!) and we have an appointment in 5 weeks

with a pediatrician. We will keep going with the repositioning and

hopefully see some improvment by then. We just got a digital camera

so I will post some photos of my little handsome man soon.

Dawn (Rileys Mum)

> Hi, My name is Dawn. My son Riley was born in May this year.

Shortly

> after his birth he developed a Cephalhematoma on the side/back of

his

> head. We were assured that it would right its self and not to

worry.

> This was true,however due to sleeping facing the same way all the

> time because of the swelling he was left with a very mishaped head.

> He has a flat spot on the back right and face asymetry and

misaligned

> ear.

> I have started repositioning with information I gained from this

> group and other sites. I would like to know if repositioning is

> successful in comparison to bands and helmets.

> I look forward to talking to you all.

>

> Dawn

> Sydney,Australia.