Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hello... You know what's weird....every day i see something else. Whenever we take 's helmet off to clean it and bathe him..i look at his head....and one day i'll think man it's not working...i don't see any improvements...and the next day i'll think that I see it working...and his head is starting to round out. But then the next day i'm back to thinking it's not working. I know it's hard b/c i see his head every day..and i know it's not going to take 2 weeks..but i can't tell if it's working. I want to believe it is..and i try to look at pictures and i can't tell. I guess i'm just hoping that has a really big growth spurt and i'll see a huge difference..LOL.... And he wears the helmet 23 hours a day. He's been wearing it that long since the beginning..so i know it's good that he has it on all the time..and i'm so thankful that so far we have no problems and he isn't affected by it. But i want to see improvement...i guess it's that instant gratification thing..LOL. I just wish i knew that he was having some good growth. And i know the first week we went she said she could see some growth in the occipital bone on the bottom of his head...but i'm afraid we are going to go back next Thursday (which will be 2 weeks from our last visit...3 weeks with the helmet on) and Charlotte will say that there has been no growth..and i'll be so disappointed. I know the dr told us he would have to wear it for 2 months and Charlotte said most babies his age wears it for 2-3 months..and i know those are just averages..but i guess i'm hoping that it doesn't take longer than that...and obviously i'm hoping that we get good correction. I just wish i could tell that it's definitely working... Anyway, just needed to vent... Thanks, Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 you re calling every one of us moms weird-you know that. I did the same thing with I still look at his head and think is it flat and run him around the house with a wet head saying to hubby is his head flat again-then tomorrow it looks as beautiful as a bowling ball-not weird at all. Just our eyes playing tricks on us-when you see the headsicle you will know. Hang in there momma it is working- now grow grow:-) beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 LOL Beck!! Thanks!! I'm glad to know it's not just me... I'm setting my expectations too high and part of me is expecting to take that helmet off one day and see this perfectly nice round head...LOL..and i know in reality that's not going to happen. At least not yet... It's just hard not knowing whether it's working...and i'll find out next Thursday if it is.... Thanks again!! You made me feel better!! Mom to In a message dated 8/29/2002 12:41:46 PM Pacific Daylight Time, bbbhand@... writes: you re calling every one of us moms weird-you know that. I did the same thing with I still look at his head and think is it flat and run him around the house with a wet head saying to hubby is his head flat again-then tomorrow it looks as beautiful as a bowling ball-not weird at all. Just our eyes playing tricks on us-when you see the headsicle you will know. Hang in there momma it is working- now grow grow:-) beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 In a message dated 8/29/2002 3:41:56 PM Eastern Daylight Time, bbbhand@... writes: I did the same thing with I still look at his head and think is it flat and run him around the house with a wet head saying to hubby is his head flat again-then tomorrow it looks as beautiful as a bowling ball- LOL Beck!!!! I still do the same with - some days I'm like, uh-oh, looks a little flat- other days I'm like, look at that round head! I still look at his head shape wet in the bathtub from above, just to make sure those ears don't move again- all clear there too!! Are we destined to a life of head shape scrutiny or what! I was also doing that during treatment with the DOC band- your eyes really do play tricks on you- don't worry! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 LOL Ken!! Yep...when first got the helmet...the second day...i also thought i already saw improvement..lol and kept checking. LOL. I'm telling you..it's that instant gratification thing....lol. Mom to In a message dated 8/29/2002 1:37:41 PM Pacific Daylight Time, jungle_buns@... writes: I'm right there with you ! And my Zack has only been wearing the helmet for two days!! I found myself looking last night to see if there was any improvement. Our tech said it was reasonable to expect 50% correction from our locally made passive helmet (which would take Zack from 12-14mm to 6-7-> more like his sister is now). I must have thought all of this correction would take place in the first night! Also -> funny helmet story with Zack. Zack has always been a dedicated back sleeper. I could reposition him onto his round side..and he'd stay that way usually..but he was always on his back. Since he got the helmet he's flipped himself over both night to sleep on his stomach! Apparently it's easier to roll over with the rounded back of the helmet, than his flat back of head! What a silly boy. Ken Zack and Zoey's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 In a message dated 8/29/2002 1:41:55 PM Pacific Daylight Time, rella1234@... writes: I was also doing that during treatment with the DOC band- your eyes really do play tricks on you- don't worry! ' Mom Thanks !! LOL..i believe that.... One thing i do have to say is the helmet is great for protecting 's head though!! He sits up really good now on his own..but of course he's all over the place..falling back on his head...rolling all over..and without the helmet...his head would get hurt..but with the helmet...he's protected..LOL. When we have the helmet off for the hour..i get so paranoid and am right behind him in case he falls back..lol...when the helmet is on...i feel so much safer...I've heard people say that before..but it's so true... Anway, thanks! Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I'm right there with you ! And my Zack has only been wearing the helmet for two days!! I found myself looking last night to see if there was any improvement. Our tech said it was reasonable to expect 50% correction from our locally made passive helmet (which would take Zack from 12-14mm to 6-7-> more like his sister is now). I must have thought all of this correction would take place in the first night! Also -> funny helmet story with Zack. Zack has always been a dedicated back sleeper. I could reposition him onto his round side..and he'd stay that way usually..but he was always on his back. Since he got the helmet he's flipped himself over both night to sleep on his stomach! Apparently it's easier to roll over with the rounded back of the helmet, than his flat back of head! What a silly boy. Ken Zack and Zoey's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 : We've all been where you are! Like you said, one day you think you see improvement, the next day you don't see any at all! It's very frustrating. But at your next appt I would think CT will have 's original head mold in, so that will definitely give you concrete evidence if his head has improved or not. Hang in there!!! Debbie Abby's mom DOCGrad MI > Hello... > > You know what's weird....every day i see something else. Whenever we take > 's helmet off to clean it and bathe him..i look at his head....and one > day i'll think man it's not working...i don't see any improvements...and the > next day i'll think that I see it working...and his head is starting to round > out. But then the next day i'm back to thinking it's not working. I know > it's hard b/c i see his head every day..and i know it's not going to take 2 > weeks..but i can't tell if it's working. I want to believe it is..and i try > to look at pictures and i can't tell. I guess i'm just hoping that has > a really big growth spurt and i'll see a huge difference..LOL.... > > And he wears the helmet 23 hours a day. He's been wearing it that long since > the beginning..so i know it's good that he has it on all the time..and i'm so > thankful that so far we have no problems and he isn't affected by it. But i > want to see improvement...i guess it's that instant gratification thing..LOL. > I just wish i knew that he was having some good growth. And i know the > first week we went she said she could see some growth in the occipital bone > on the bottom of his head...but i'm afraid we are going to go back next > Thursday (which will be 2 weeks from our last visit...3 weeks with the helmet > on) and Charlotte will say that there has been no growth..and i'll be so > disappointed. I know the dr told us he would have to wear it for 2 months > and Charlotte said most babies his age wears it for 2-3 months..and i know > those are just averages..but i guess i'm hoping that it doesn't take longer > than that...and obviously i'm hoping that we get good correction. > > I just wish i could tell that it's definitely working... > > Anyway, just needed to vent... > > Thanks, > > Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 In a message dated 8/29/2002 10:58:10 PM Eastern Daylight Time, niki_jay175@... writes: But then there are other times, like tonight's bath, when I am just in awe of how wonderful her head looks! I sometimes think that she might even be getting more correction as time goes on because her head has been encouraged to grow in the proper direction. But then again, there are times when I don't think that. Niki, Did i just write that? I feel the same way about - its so aggravating! ' mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 In a message dated 8/29/2002 4:49:12 PM Eastern Daylight Time, Av@... writes: but of course he's all over the place..falling back on his head...rolling all over..and without the helmet...his head would get hurt..but with the helmet...he's protected..LOL , It sure does come in handy sometimes, doesn't it!? I know it saved a few knots on little ' head too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 Jo, I haven't signed the petition as I am not in the U.S. nor am American. But I am curious about this so could you send me the link and I will try it from here in Europe. [ ] Weird My mother-in-law got the web address from me, but when she tried to open it, there was a skull and crossbones on the screen that said if she continued on then it would damage her computer---something to that effect.....don't know what that is about....hopefully others are not getting that same message with the website. If anyone else is having this problem or any other problems getting to the petition, please e-mail me all of your information personally to <A HREF= " JPiker@... " > JPiker@...</A> and I'll enter it manually. Hmmm, you think someone is trying to sabotage us? Jo Representative for Unlocking Autism in South Carolina www.unlockingautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 Jo, All fine from my vantage point. Got right through to the petition. Re: [ ] Weird In a message dated 9/9/2002 10:05:19 AM Eastern Daylight Time, rp46285@... writes: > Jo, > > I haven't signed the petition as I am not in the U.S. nor am American. But > I am curious about this so could you send me the link and I will try it > from here in Europe. > > Click on this <A HREF= " http://www.gopetition.com/region/238/1433.html " >petition</A> or go to http://www.gopetition.com/region/238/1433.html Jo Representative for Unlocking Autism in South Carolina www.unlockingautism.org Quote Link to comment Share on other sites More sharing options...
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