Re: update on delylah/gail(long)

[Guest guest]

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Wow what a busy time! Good luck on Tuesday.

If you do decide to band and don't want to wait to see yet another

doctor, I would suggest printing off copies of supportive articles

and fax them to this dr. He doesn't seem completely close minded.

You could tell him that you weren't aware that he wasn't familiar

with banding. Otherwise you wouldn't have bothered coming to see

him, right? Time is of the essence. Maybe he can learn from you

and you can get the prescription - and help future patients of his.

did this. It isn't completely a cosmetic issue. I can tell

you Dane had a several ear infections while his ears, but as soon as

they were symmetrical, they have not reoccured. And so what if it

was simply cosmetic? I wouldn't hesitate to get my kids braces, why

wouldn't I want them to have a " normal " headshape?

It is such a hard decision! Our dr. told us " He will probably be

ok. " I left feeling better about it. A week later I called and

told her that I didn't feel so comfortable with the " probably " and

that I wanted to go ahead with the band. ly, I was also sick

of repositioning him day and night! With the band, that worry

wasn't as present.

Good luck!

Dane's mom DOC Grad

> Hey everyone,

> i just wanted to tell you that delylah just had her first trip out

of

> state on tues. & her ped. neuro. appt on wed....OH AM I VERY

> TIRED....i didn't think it would be that hard..i didn't think

about

> changing diapers or anything...well, looks like my sis-in-law will

> have to come with me....but here it goes...we left 9 am and got

there

> 1pm to dallas, 4 hrs., which is pretty good timing.....our appt

was

> at 4:15, i called in & told them that we were there & they said to

> come on in....well, the OT, jennifer said that her head was not

> severe compared to all the other bbs she band, but that she has

> treated bbs like D...they took pics so i could show her pd.

neuro.,

> the ppl there were very nice ...that was mostly all and she said

to

> call & update her...

> well on wed., we saw her pd. neuro. at 3pm..he was a mid-sized

jolly

> o fellow...he was actually friendly & i felt very comfortable

talking

> w/him..he examined & took measurements... & later said that it was

due

> to her sleeping position..and he told me that one of her lambdoid

(sp?

> correct if wrong) might have close, but that most neuro. surg.

would

> not have surgury on it... & ordered a CT scan for tues. at 8:00

am ..i

> hope it has not closed tho bc it could lead to more abnormality,

> urgh!!...so would anybody have surg? he said that he doesn't

> recommend a band for her bc. he can't recommend something that he

> isn't familiar with, but that he will help refer me to someone

who

> is familiar with p. plagio.; i asked him if he would band for his

> child if they were like D's & he said no..he also said that it was

> cosmetic & she will never notice unless someone has pointed it out

to

> her..i told him you know i don't care if it's cosmetic..i'm

willing

> to put $$ out, i will pay for it, it's just that i need a Rx. &

ppl

> have pointed it out, she don't know it but i do.. & the thought of

ppl

> who knows now could say something when she's older.....i asked him

a

> couple times if he's going to recommend a Rx...but he said he will

> not recommend, but will help me if i want to pursue that...oh

another

> month!!...i'm going to try & ask my ped. if he will... & i'm going

to

> try to ask the pd.neuro. if he could recommend me out of

> state....which i think will be a tough one...i'm just hoping that

all

> her sutures are all open & that ct will go okay..i feel like i'm

in

> the dead end..in AR

> -mary mom to D (almost 8 mths)