Septembers Star

[Guest guest]

Hi there. Well finally I have a minute to type up our story. WEll

during my pregnancy the last 3 months of it anyway I had extreme pain

everytime Mya moved it hurt so bad I was in tears. I told my midwife

but she said it was normal. Mya was born premature at 36 weeks but

was healthy and was a good 6 lb baby girl. In the hospital I couldnt

lay her flat in the bassinet or she would scream. when we got her

home the same thing she couldnt lay flat. I just said well maybe shes

just used to the womb so she needs to be all scrunched up so we let

her sleep in her carseat or swing because as long as she was in one

of them she would sleep. Otherwise she was a very happy pleasant

baby. At her two month visit the doctors couldnt get a good head

measurement because her head was so flat. Her head had been flat like

that from the beginning but Ijust figured it would round out because

I didnt know otherwise. The doctor told me to reposition her I told

her I couldnt because she screams. She still insisted I reposition.

So we tried that but Mya just cried any time i would try to move her

head to lay her in different postions. She would only look one way to

her right. Looking back at video tape I see Mya laying down and me

calling MYa mya look at momma mya and shes looking with her eyes but

her head is not moving. I should have seen this but I had no idea

there was such a thing as plagio or tort. At her 4 month visit I

mentioned to the doctor about her head flatness and her neck problem.

She agreed it was a problem and sent us over to the hospital for a

better trained doctor to look at her. So a month later we have an

appointment with the better doctor and immediately she tells me your

daughter has congenital plagiocephaly and torticollis. I was so

confused and had no idea what any of this was. She told me cranio had

to be ruled out first so we needed a CT. They first tried to do the

CT without sedation. What a dummy I was. Because this was not going

to happen. It took 3 weeks to get that appt and when it failed we had

to wait another month to get a CT with sedation. Finally she had her

Ct and it confirmed Plagio and ruled out cranio. So thats when our

fight with Tricare began. We had our evaluation done in Charlotte and

Dr Mathews recomended Mya get a DOC band. From there we had to fight

Tricare to death. WE ended up going ahead with Casting without

approval from Tricare because Myas age was already at 8 1/2 months

and we couldnt wait any longer. Mya was recieving PT for the tort

during all of this and I was doing neck stretches at home. Mya was

casted on Feb 19 2001. And got her first band on March 6 2001. I

wrote 10 different letters to senators and congressmen sending each

of them a huge packet of information on myas condition. Mya husband

went up his chain of command and ultimately went to the commander of

the military hospital who then contacted the chief of pediatrics of

the hospital who then helped us with Tricare. She found a loop hole.

Tricares policy states it doesnt cover the band for positional plagio

but because they were calling Myas congenital plagio Tricare paid for

Myas first band. During all of this My church raised 1700 dollars to

help pay for Myas treatment and travel. It is a 3 hour drive each way

for us to Charlotte. On Aug 1 mya was casted for her second band and

was fitted on aug 15. she is doing well in her band and we are hoping

her ears will shift since those are still the problem that doesnt

seem to want to correct. I am hoping this will be myas last band. SHe

is now 14 months old and has had no problems in her band whatso ever.

Tricare has paid for the second band as well although it did take a

tiny little bit of work for that one but no where near what it took

for the first one. I have two other children age 7 and Chloe

age 5. And thats our story. I think thats all of it anyway!

Christi

[Guest guest]

What a frustrating story with a wonderful ending!! I bet you were so upset in the beginning and that is wonderful that the insurance finally paid. I wish you all the best of luck and that Mya continues to improve. How is Mya's tort now? We are beginning PT on Thurs. for and have been doing stretches since we got the evaluation. We see a neurosurgeon on the 26th. Thanks for sharing your story....it helps me to realize this will get better and I just have to be patient.

Taryn

's mom

Septembers Star

Hi there. Well finally I have a minute to type up our story. WEll during my pregnancy the last 3 months of it anyway I had extreme pain everytime Mya moved it hurt so bad I was in tears. I told my midwife but she said it was normal. Mya was born premature at 36 weeks but was healthy and was a good 6 lb baby girl. In the hospital I couldnt lay her flat in the bassinet or she would scream. when we got her home the same thing she couldnt lay flat. I just said well maybe shes just used to the womb so she needs to be all scrunched up so we let her sleep in her carseat or swing because as long as she was in one of them she would sleep. Otherwise she was a very happy pleasant baby. At her two month visit the doctors couldnt get a good head measurement because her head was so flat. Her head had been flat like that from the beginning but Ijust figured it would round out because I didnt know otherwise. The doctor told me to reposition her I told her I couldnt because she screams. She still insisted I reposition. So we tried that but Mya just cried any time i would try to move her head to lay her in different postions. She would only look one way to her right. Looking back at video tape I see Mya laying down and me calling MYa mya look at momma mya and shes looking with her eyes but her head is not moving. I should have seen this but I had no idea there was such a thing as plagio or tort. At her 4 month visit I mentioned to the doctor about her head flatness and her neck problem. She agreed it was a problem and sent us over to the hospital for a better trained doctor to look at her. So a month later we have an appointment with the better doctor and immediately she tells me your daughter has congenital plagiocephaly and torticollis. I was so confused and had no idea what any of this was. She told me cranio had to be ruled out first so we needed a CT. They first tried to do the CT without sedation. What a dummy I was. Because this was not going to happen. It took 3 weeks to get that appt and when it failed we had to wait another month to get a CT with sedation. Finally she had her Ct and it confirmed Plagio and ruled out cranio. So thats when our fight with Tricare began. We had our evaluation done in Charlotte and Dr Mathews recomended Mya get a DOC band. From there we had to fight Tricare to death. WE ended up going ahead with Casting without approval from Tricare because Myas age was already at 8 1/2 months and we couldnt wait any longer. Mya was recieving PT for the tort during all of this and I was doing neck stretches at home. Mya was casted on Feb 19 2001. And got her first band on March 6 2001. I wrote 10 different letters to senators and congressmen sending each of them a huge packet of information on myas condition. Mya husband went up his chain of command and ultimately went to the commander of the military hospital who then contacted the chief of pediatrics of the hospital who then helped us with Tricare. She found a loop hole. Tricares policy states it doesnt cover the band for positional plagio but because they were calling Myas congenital plagio Tricare paid for Myas first band. During all of this My church raised 1700 dollars to help pay for Myas treatment and travel. It is a 3 hour drive each way for us to Charlotte. On Aug 1 mya was casted for her second band and was fitted on aug 15. she is doing well in her band and we are hoping her ears will shift since those are still the problem that doesnt seem to want to correct. I am hoping this will be myas last band. SHe is now 14 months old and has had no problems in her band whatso ever. Tricare has paid for the second band as well although it did take a tiny little bit of work for that one but no where near what it took for the first one. I have two other children age 7 and Chloe age 5. And thats our story. I think thats all of it anyway! :)ChristiFor more plagio info

[Guest guest]

Thanks so much for sharing Mya's story Christi. Yours is a pretty

interesting story to me for some reason, probably becuz of how Mya

hated to lay in any other direction w/o totally screaming. How does

she sleep now? Is her tort fully resolved now or are you still doing

PT?

Glad things have gone so well for you ---- now if only we could move

those ears some huh???

Debbie Abby's mom

MI

--- In Plagiocephaly@y..., " Christi Zepp (Marsh) " <christiz75@a...>

wrote:

> Hi there. Well finally I have a minute to type up our story. WEll

> during my pregnancy the last 3 months of it anyway I had extreme

pain

> everytime Mya moved it hurt so bad I was in tears. I told my

midwife

> but she said it was normal. Mya was born premature at 36 weeks but

> was healthy and was a good 6 lb baby girl. In the hospital I

couldnt

> lay her flat in the bassinet or she would scream. when we got her

> home the same thing she couldnt lay flat. I just said well maybe

shes

> just used to the womb so she needs to be all scrunched up so we let

> her sleep in her carseat or swing because as long as she was in one

> of them she would sleep. Otherwise she was a very happy pleasant

> baby. At her two month visit the doctors couldnt get a good head

> measurement because her head was so flat. Her head had been flat

like

> that from the beginning but Ijust figured it would round out

because

> I didnt know otherwise. The doctor told me to reposition her I told

> her I couldnt because she screams. She still insisted I reposition.

> So we tried that but Mya just cried any time i would try to move

her

> head to lay her in different postions. She would only look one way

to

> her right. Looking back at video tape I see Mya laying down and me

> calling MYa mya look at momma mya and shes looking with her eyes

but

> her head is not moving. I should have seen this but I had no idea

> there was such a thing as plagio or tort. At her 4 month visit I

> mentioned to the doctor about her head flatness and her neck

problem.

> She agreed it was a problem and sent us over to the hospital for a

> better trained doctor to look at her. So a month later we have an

> appointment with the better doctor and immediately she tells me

your

> daughter has congenital plagiocephaly and torticollis. I was so

> confused and had no idea what any of this was. She told me cranio

had

> to be ruled out first so we needed a CT. They first tried to do the

> CT without sedation. What a dummy I was. Because this was not going

> to happen. It took 3 weeks to get that appt and when it failed we

had

> to wait another month to get a CT with sedation. Finally she had

her

> Ct and it confirmed Plagio and ruled out cranio. So thats when our

> fight with Tricare began. We had our evaluation done in Charlotte

and

> Dr Mathews recomended Mya get a DOC band. From there we had to

fight

> Tricare to death. WE ended up going ahead with Casting without

> approval from Tricare because Myas age was already at 8 1/2 months

> and we couldnt wait any longer. Mya was recieving PT for the tort

> during all of this and I was doing neck stretches at home. Mya was

> casted on Feb 19 2001. And got her first band on March 6 2001. I

> wrote 10 different letters to senators and congressmen sending each

> of them a huge packet of information on myas condition. Mya husband

> went up his chain of command and ultimately went to the commander

of

> the military hospital who then contacted the chief of pediatrics

of

> the hospital who then helped us with Tricare. She found a loop

hole.

> Tricares policy states it doesnt cover the band for positional

plagio

> but because they were calling Myas congenital plagio Tricare paid

for

> Myas first band. During all of this My church raised 1700 dollars

to

> help pay for Myas treatment and travel. It is a 3 hour drive each

way

> for us to Charlotte. On Aug 1 mya was casted for her second band

and

> was fitted on aug 15. she is doing well in her band and we are

hoping

> her ears will shift since those are still the problem that doesnt

> seem to want to correct. I am hoping this will be myas last band.

SHe

> is now 14 months old and has had no problems in her band whatso

ever.

> Tricare has paid for the second band as well although it did take a

> tiny little bit of work for that one but no where near what it took

> for the first one. I have two other children age 7 and Chloe

> age 5. And thats our story. I think thats all of it anyway!

> Christi

[Guest guest]

Debbie

Mya now sleeps every which way she can possibly think of. Soon after

we started the PT we could see her sleeping easier. Within a month

she was sleeping flat and then finally was able to roll over at 6 1/2

months something she couldnt even try to do before we started the PT.

Her Physical therapist said its fully resolved but for me to keep an

eye out to make sure Im not seeing any more tilt or her looking in

only one direction. So Im still aware of it and keep an eye out for

it. Her last pt appt was last week so the exercises have now stopped.

Yes Im am sooo hoping to get those stubborn ears back to where they

belong

Christi

> > Hi there. Well finally I have a minute to type up our story. WEll

> > during my pregnancy the last 3 months of it anyway I had extreme

> pain

> > everytime Mya moved it hurt so bad I was in tears. I told my

> midwife

> > but she said it was normal. Mya was born premature at 36 weeks

but

> > was healthy and was a good 6 lb baby girl. In the hospital I

> couldnt

> > lay her flat in the bassinet or she would scream. when we got her

> > home the same thing she couldnt lay flat. I just said well maybe

> shes

> > just used to the womb so she needs to be all scrunched up so we

let

> > her sleep in her carseat or swing because as long as she was in

one

> > of them she would sleep. Otherwise she was a very happy pleasant

> > baby. At her two month visit the doctors couldnt get a good head

> > measurement because her head was so flat. Her head had been flat

> like

> > that from the beginning but Ijust figured it would round out

> because

> > I didnt know otherwise. The doctor told me to reposition her I

told

> > her I couldnt because she screams. She still insisted I

reposition.

> > So we tried that but Mya just cried any time i would try to move

> her

> > head to lay her in different postions. She would only look one

way

> to

> > her right. Looking back at video tape I see Mya laying down and

me

> > calling MYa mya look at momma mya and shes looking with her eyes

> but

> > her head is not moving. I should have seen this but I had no idea

> > there was such a thing as plagio or tort. At her 4 month visit I

> > mentioned to the doctor about her head flatness and her neck

> problem.

> > She agreed it was a problem and sent us over to the hospital for

a

> > better trained doctor to look at her. So a month later we have an

> > appointment with the better doctor and immediately she tells me

> your

> > daughter has congenital plagiocephaly and torticollis. I was so

> > confused and had no idea what any of this was. She told me cranio

> had

> > to be ruled out first so we needed a CT. They first tried to do

the

> > CT without sedation. What a dummy I was. Because this was not

going

> > to happen. It took 3 weeks to get that appt and when it failed we

> had

> > to wait another month to get a CT with sedation. Finally she had

> her

> > Ct and it confirmed Plagio and ruled out cranio. So thats when

our

> > fight with Tricare began. We had our evaluation done in Charlotte

> and

> > Dr Mathews recomended Mya get a DOC band. From there we had to

> fight

> > Tricare to death. WE ended up going ahead with Casting without

> > approval from Tricare because Myas age was already at 8 1/2

months

> > and we couldnt wait any longer. Mya was recieving PT for the tort

> > during all of this and I was doing neck stretches at home. Mya

was

> > casted on Feb 19 2001. And got her first band on March 6 2001. I

> > wrote 10 different letters to senators and congressmen sending

each

> > of them a huge packet of information on myas condition. Mya

husband

> > went up his chain of command and ultimately went to the commander

> of

> > the military hospital who then contacted the chief of pediatrics

> of

> > the hospital who then helped us with Tricare. She found a loop

> hole.

> > Tricares policy states it doesnt cover the band for positional

> plagio

> > but because they were calling Myas congenital plagio Tricare paid

> for

> > Myas first band. During all of this My church raised 1700 dollars

> to

> > help pay for Myas treatment and travel. It is a 3 hour drive each

> way

> > for us to Charlotte. On Aug 1 mya was casted for her second band

> and

> > was fitted on aug 15. she is doing well in her band and we are

> hoping

> > her ears will shift since those are still the problem that doesnt

> > seem to want to correct. I am hoping this will be myas last band.

> SHe

> > is now 14 months old and has had no problems in her band whatso

> ever.

> > Tricare has paid for the second band as well although it did take

a

> > tiny little bit of work for that one but no where near what it

took

> > for the first one. I have two other children age 7 and

Chloe

> > age 5. And thats our story. I think thats all of it anyway!

> > Christi

[Guest guest]

Taryn

Myas tort is fully resolved, her last pt appt was last week and so

now I just have to keep an eye on her to make sure I dont see the

tort coming back. good luck on the 26th!!

christi

> What a frustrating story with a wonderful ending!! I bet you were

so upset in the beginning and that is wonderful that the insurance

finally paid. I wish you all the best of luck and that Mya continues

to improve. How is Mya's tort now? We are beginning PT on Thurs.

for and have been doing stretches since we got the evaluation.

We see a neurosurgeon on the 26th. Thanks for sharing your

story....it helps me to realize this will get better and I just have

to be patient.

>

> Taryn

> 's mom

> Septembers Star

>

>

> Hi there. Well finally I have a minute to type up our story. WEll

> during my pregnancy the last 3 months of it anyway I had extreme

pain

> everytime Mya moved it hurt so bad I was in tears. I told my

midwife

> but she said it was normal. Mya was born premature at 36 weeks

but

> was healthy and was a good 6 lb baby girl. In the hospital I

couldnt

> lay her flat in the bassinet or she would scream. when we got her

> home the same thing she couldnt lay flat. I just said well maybe

shes

> just used to the womb so she needs to be all scrunched up so we

let

> her sleep in her carseat or swing because as long as she was in

one

> of them she would sleep. Otherwise she was a very happy pleasant

> baby. At her two month visit the doctors couldnt get a good head

> measurement because her head was so flat. Her head had been flat

like

> that from the beginning but Ijust figured it would round out

because

> I didnt know otherwise. The doctor told me to reposition her I

told

> her I couldnt because she screams. She still insisted I

reposition.

> So we tried that but Mya just cried any time i would try to move

her

> head to lay her in different postions. She would only look one

way to

> her right. Looking back at video tape I see Mya laying down and

me

> calling MYa mya look at momma mya and shes looking with her eyes

but

> her head is not moving. I should have seen this but I had no idea

> there was such a thing as plagio or tort. At her 4 month visit I

> mentioned to the doctor about her head flatness and her neck

problem.

> She agreed it was a problem and sent us over to the hospital for

a

> better trained doctor to look at her. So a month later we have an

> appointment with the better doctor and immediately she tells me

your

> daughter has congenital plagiocephaly and torticollis. I was so

> confused and had no idea what any of this was. She told me cranio

had

> to be ruled out first so we needed a CT. They first tried to do

the

> CT without sedation. What a dummy I was. Because this was not

going

> to happen. It took 3 weeks to get that appt and when it failed we

had

> to wait another month to get a CT with sedation. Finally she had

her

> Ct and it confirmed Plagio and ruled out cranio. So thats when

our

> fight with Tricare began. We had our evaluation done in Charlotte

and

> Dr Mathews recomended Mya get a DOC band. From there we had to

fight

> Tricare to death. WE ended up going ahead with Casting without

> approval from Tricare because Myas age was already at 8 1/2

months

> and we couldnt wait any longer. Mya was recieving PT for the tort

> during all of this and I was doing neck stretches at home. Mya

was

> casted on Feb 19 2001. And got her first band on March 6 2001. I

> wrote 10 different letters to senators and congressmen sending

each

> of them a huge packet of information on myas condition. Mya

husband

> went up his chain of command and ultimately went to the commander

of

> the military hospital who then contacted the chief of pediatrics

of

> the hospital who then helped us with Tricare. She found a loop

hole.

> Tricares policy states it doesnt cover the band for positional

plagio

> but because they were calling Myas congenital plagio Tricare paid

for

> Myas first band. During all of this My church raised 1700 dollars

to

> help pay for Myas treatment and travel. It is a 3 hour drive each

way

> for us to Charlotte. On Aug 1 mya was casted for her second band

and

> was fitted on aug 15. she is doing well in her band and we are

hoping

> her ears will shift since those are still the problem that doesnt

> seem to want to correct. I am hoping this will be myas last band.

SHe

> is now 14 months old and has had no problems in her band whatso

ever.

> Tricare has paid for the second band as well although it did take

a

> tiny little bit of work for that one but no where near what it

took

> for the first one. I have two other children age 7 and

Chloe

> age 5. And thats our story. I think thats all of it anyway!

> Christi

>

>

>

[Guest guest]

That is so wonderful and a lot of inspiration for us!!! Thanks so much...sometimes I feel we need all the luck we can get!!!

Taryn

Septembers Star> > > Hi there. Well finally I have a minute to type up our story. WEll > during my pregnancy the last 3 months of it anyway I had extreme pain > everytime Mya moved it hurt so bad I was in tears. I told my midwife > but she said it was normal. Mya was born premature at 36 weeks but > was healthy and was a good 6 lb baby girl. In the hospital I couldnt > lay her flat in the bassinet or she would scream. when we got her > home the same thing she couldnt lay flat. I just said well maybe shes > just used to the womb so she needs to be all scrunched up so we let > her sleep in her carseat or swing because as long as she was in one > of them she would sleep. Otherwise she was a very happy pleasant > baby. At her two month visit the doctors couldnt get a good head > measurement because her head was so flat. Her head had been flat like > that from the beginning but Ijust figured it would round out because > I didnt know otherwise. The doctor told me to reposition her I told > her I couldnt because she screams. She still insisted I reposition. > So we tried that but Mya just cried any time i would try to move her > head to lay her in different postions. She would only look one way to > her right. Looking back at video tape I see Mya laying down and me > calling MYa mya look at momma mya and shes looking with her eyes but > her head is not moving. I should have seen this but I had no idea > there was such a thing as plagio or tort. At her 4 month visit I > mentioned to the doctor about her head flatness and her neck problem. > She agreed it was a problem and sent us over to the hospital for a > better trained doctor to look at her. So a month later we have an > appointment with the better doctor and immediately she tells me your > daughter has congenital plagiocephaly and torticollis. I was so > confused and had no idea what any of this was. She told me cranio had > to be ruled out first so we needed a CT. They first tried to do the > CT without sedation. What a dummy I was. Because this was not going > to happen. It took 3 weeks to get that appt and when it failed we had > to wait another month to get a CT with sedation. Finally she had her > Ct and it confirmed Plagio and ruled out cranio. So thats when our > fight with Tricare began. We had our evaluation done in Charlotte and > Dr Mathews recomended Mya get a DOC band. From there we had to fight > Tricare to death. WE ended up going ahead with Casting without > approval from Tricare because Myas age was already at 8 1/2 months > and we couldnt wait any longer. Mya was recieving PT for the tort > during all of this and I was doing neck stretches at home. Mya was > casted on Feb 19 2001. And got her first band on March 6 2001. I > wrote 10 different letters to senators and congressmen sending each > of them a huge packet of information on myas condition. Mya husband > went up his chain of command and ultimately went to the commander of > the military hospital who then contacted the chief of pediatrics of > the hospital who then helped us with Tricare. She found a loop hole. > Tricares policy states it doesnt cover the band for positional plagio > but because they were calling Myas congenital plagio Tricare paid for > Myas first band. During all of this My church raised 1700 dollars to > help pay for Myas treatment and travel. It is a 3 hour drive each way > for us to Charlotte. On Aug 1 mya was casted for her second band and > was fitted on aug 15. she is doing well in her band and we are hoping > her ears will shift since those are still the problem that doesnt > seem to want to correct. I am hoping this will be myas last band. SHe > is now 14 months old and has had no problems in her band whatso ever. > Tricare has paid for the second band as well although it did take a > tiny little bit of work for that one but no where near what it took > for the first one. I have two other children age 7 and Chloe > age 5. And thats our story. I think thats all of it anyway! > Christi> > >

[Guest guest]

Christi,

Thanks so much for sharing your cutie pie's story with us, it brought back a

flood of emotion reading it since it was so close to my circumstances as far

as the dx and learning of plagio/tort- especially things you see in hindsight

look so clear now, but when we didn't have a clue of plagio/tort, it was not

so apparent. I am so happy to hear that Mya is finished with pt for the

tort!!!! Woo-hoo! Wishing her continued success with growth spurts and

kudos to you mom and dad for staying on top of this!

' Mom

[Guest guest]

Christi-

You should be soooo proud of how far you have both

come.

When you are pregnant you just think - Oh, tee-hee,

I'm having a baby - won't everything be so cute and

fun! Then this all happens - and it makes your first

years much harder -although they still remain joyous!

The work and dedication that you have shown as a

mother is tremendous and you should be commended. The

road has been so long, but look at where you've wound

up!

As they say - you have come a long way baby!

& Vivian

--- " Christi Zepp (Marsh) " <christiz75@...> wrote:

> Hi there. Well finally I have a minute to type up

> our story. WEll

> during my pregnancy the last 3 months of it anyway I

> had extreme pain

> everytime Mya moved it hurt so bad I was in tears. I

> told my midwife

> but she said it was normal. Mya was born premature

> at 36 weeks but

> was healthy and was a good 6 lb baby girl. In the

> hospital I couldnt

> lay her flat in the bassinet or she would scream.

> when we got her

> home the same thing she couldnt lay flat. I just

> said well maybe shes

> just used to the womb so she needs to be all

> scrunched up so we let

> her sleep in her carseat or swing because as long as

> she was in one

> of them she would sleep. Otherwise she was a very

> happy pleasant

> baby. At her two month visit the doctors couldnt get

> a good head

> measurement because her head was so flat. Her head

> had been flat like

> that from the beginning but Ijust figured it would

> round out because

> I didnt know otherwise. The doctor told me to

> reposition her I told

> her I couldnt because she screams. She still

> insisted I reposition.

> So we tried that but Mya just cried any time i would

> try to move her

> head to lay her in different postions. She would

> only look one way to

> her right. Looking back at video tape I see Mya

> laying down and me

> calling MYa mya look at momma mya and shes looking

> with her eyes but

> her head is not moving. I should have seen this but

> I had no idea

> there was such a thing as plagio or tort. At her 4

> month visit I

> mentioned to the doctor about her head flatness and

> her neck problem.

> She agreed it was a problem and sent us over to the

> hospital for a

> better trained doctor to look at her. So a month

> later we have an

> appointment with the better doctor and immediately

> she tells me your

> daughter has congenital plagiocephaly and

> torticollis. I was so

> confused and had no idea what any of this was. She

> told me cranio had

> to be ruled out first so we needed a CT. They first

> tried to do the

> CT without sedation. What a dummy I was. Because

> this was not going

> to happen. It took 3 weeks to get that appt and when

> it failed we had

> to wait another month to get a CT with sedation.

> Finally she had her

> Ct and it confirmed Plagio and ruled out cranio. So

> thats when our

> fight with Tricare began. We had our evaluation done

> in Charlotte and

> Dr Mathews recomended Mya get a DOC band. From there

> we had to fight

> Tricare to death. WE ended up going ahead with

> Casting without

> approval from Tricare because Myas age was already

> at 8 1/2 months

> and we couldnt wait any longer. Mya was recieving PT

> for the tort

> during all of this and I was doing neck stretches at

> home. Mya was

> casted on Feb 19 2001. And got her first band on

> March 6 2001. I

> wrote 10 different letters to senators and

> congressmen sending each

> of them a huge packet of information on myas

> condition. Mya husband

> went up his chain of command and ultimately went to

> the commander of

> the military hospital who then contacted the chief

> of pediatrics of

> the hospital who then helped us with Tricare. She

> found a loop hole.

> Tricares policy states it doesnt cover the band for

> positional plagio

> but because they were calling Myas congenital plagio

> Tricare paid for

> Myas first band. During all of this My church raised

> 1700 dollars to

> help pay for Myas treatment and travel. It is a 3

> hour drive each way

> for us to Charlotte. On Aug 1 mya was casted for her

> second band and

> was fitted on aug 15. she is doing well in her band

> and we are hoping

> her ears will shift since those are still the

> problem that doesnt

> seem to want to correct. I am hoping this will be

> myas last band. SHe

> is now 14 months old and has had no problems in her

> band whatso ever.

> Tricare has paid for the second band as well

> although it did take a

> tiny little bit of work for that one but no where

> near what it took

> for the first one. I have two other children

> age 7 and Chloe

> age 5. And thats our story. I think thats all of it

> anyway!

> Christi

>

>

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute