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Re: Gus Update

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Thanks for your update!

I am so happy to hear Gus was fortunate enough to have the laser

scanning cast done...that is terrific.

I know how sad it can be to think of your baby's days being spent in

a band for the next several mos., at first it can be very hard on us

parents, it was on me! But after a while you'll get used to it &

forget it's even on Gus's head. He'll be fine & he'll thank you for

it 10 yrs from now.

Why won't your ins. cover it? What ins. do yuo have? Don't give up

with out a fight.

Debbie Abby's mom DOCGrad

MI

> Thanks to everyone who replied to my first post. Our appointment at

> Stanford went very well. After waiting for a long time we met with

a

> pediatric plastic surgery nurse and then Dr. Lorenz. They were both

> very kind and confirmed the Plagiocephaly diagnosis. To our

surprise

> they said that we could probably make an appointment to be measured

> for a STAR band that same day. So we drove right to the Orthotist

in

> Palo Alto. They scanned his head in a laser scanner- so no casting.

> There is a 1.7cm difference between the low side and the high side.

> The helmet should be back in 10-14 days.

>

> Now, the only stumbling block is that our Insurance provider says

> they will not pay for the helmet, but luckily we can cover it out

of

> pocket if we have to.

>

> Also, the grim reality of having him in a helmet for 3-6 months is

> setting in. That period will include our trip to Hawaii,

> Thanksgiving and his first Christmas. I am going to miss kissing

his

> little head whenever I want to, eventhough it is flatter than a

> pancake!

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Our insurance company says that we have to go to an in network helmet

provider, but the nearest one is in LA... We are appealling.

> Why won't your ins. cover it? What ins. do yuo have? Don't give

up

> with out a fight.

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Thanks for the update on Gus! No matter how many times I hear about

the STARscanner, I get jealous each time! I really wish something

like that had been available before. When are you expecting to be

able to go in and get the band fitted? I wish you luck with it, and

with your insurance. I know it all seems very daunting right now and

that the time in the band is going to drag on forever, but it really

does fly by, at least that was my experience! Good luck, and keep us

posted!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Thanks to everyone who replied to my first post. Our appointment at

> Stanford went very well. After waiting for a long time we met with

a

> pediatric plastic surgery nurse and then Dr. Lorenz. They were both

> very kind and confirmed the Plagiocephaly diagnosis. To our

surprise

> they said that we could probably make an appointment to be measured

> for a STAR band that same day. So we drove right to the Orthotist

in

> Palo Alto. They scanned his head in a laser scanner- so no casting.

> There is a 1.7cm difference between the low side and the high side.

> The helmet should be back in 10-14 days.

>

> Now, the only stumbling block is that our Insurance provider says

> they will not pay for the helmet, but luckily we can cover it out

of

> pocket if we have to.

>

> Also, the grim reality of having him in a helmet for 3-6 months is

> setting in. That period will include our trip to Hawaii,

> Thanksgiving and his first Christmas. I am going to miss kissing

his

> little head whenever I want to, eventhough it is flatter than a

> pancake!

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> Our insurance company says that we have to go to an in network

helmet

> provider, but the nearest one is in LA... We are appealling.

Yeah, definitely appeal that, especially if there are NO in network

providers, you might have a good fight there. Good luck - keep us

posted.

Debbie Abby's mom DOCGrad

MI

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