Re: Needing to vent a little about SSDI

[Guest guest]

Janet,

There seems to bee little reason why the Govt does what it does

sometimes, it's just policy!! The VA works much the same way.

If you get an unfavorable ruling I suggest you appeal it and use your

Rheumies to re-enforce your arguement.

Best of luck and keep us informed,

Jay

--- In Rheumatoid Arthritis , " janetlou59 " <janmdtn@x>

wrote:

> Hi all,

> I was asked to update the group on my quest for social security

> disability determination. I was told by the medical review person

> from SS in Feb. that she was getting ready to make a favorable

> determination in my behalf. She did. And the Seattle office pulled

it

> for a quality assurance review. My guess is because I am now on

> Enbrel. Anyhow 6 weeks later I was informed that I would need to

see

> one of their doctors. I drove 5 hours to Anchoage and saw a family

> practice doctor there. He was very nice and told me first off that

he

> didn't really understand what I was doing there since they had more

> than enough information from 3 rheumatologists. They requested a

> range of motion study. He seemed more interested in my nystagmus

(my

> eyes move) than my joints. Anyhow he didn't have the right form and

> didn't have the right tool so he scrounged up a few rulers and

> measured the angles of my knees, ankles, wrists and elbows. Then

> traced the angles made by the rulers on a paper. He told me that

> later he would find a protactor and measure the degree. I only hope

> that if he errs it's in my favor. He did say that sometimes Social

> Security will say that even if there is significant joint damage

and

> the person is in alot of pain, if they can still move the part then

> they can still work!

> Ok gang. Help me out here. Am I the only one that thinks this a

very

> cruel and bad joke?

> Sorry. I just needed to talk to someone who understands. Thanks.

Janet

[Guest guest]

I, too, am worried about my SSDI. I got fired from my job after

becoming so sick, and looking for a job while being in a flare up for

about 5 months now is almost impossible, and I need the money.

I just got a letter from the SSDI saying I have to go to the hospital

in my local area to the " Business Center " for a check up before they

can give me a decision. My rheumy wants me to work so I can keep my

body in motion, my personal doc says no way I can work, and I have no

clue as to what this " Business Center " doc is going to do.

Has anybody here heard of this type of doc or center or whatever it

is? I'm thinking that since I'm a paralegal, and most of my work

experience is office related, maybe they're gonna test my typing,

writing and office skills????

I called the center, but they didn't tell me anything. I'm not sure

what to expect, but I do know one thing. Until the docs get me outta

this flare up that has been going on since I was diagnosed almost 6

months ago, there's no way I can work. Just getting up and dressed

exhausts me, never mind me walking like I've got a corn cob up the

butt from my hurting and swollen feet and ankles, and that's on the

good days, lol.

--- In Rheumatoid Arthritis , " janetlou59 " <janmdtn@x>

wrote:

> Hi all,

> I was asked to update the group on my quest for social security

> disability determination. I was told by the medical review person

> from SS in Feb. that she was getting ready to make a favorable

> determination in my behalf. She did. And the Seattle office pulled

it

> for a quality assurance review. My guess is because I am now on

> Enbrel. Anyhow 6 weeks later I was informed that I would need to

see

> one of their doctors. I drove 5 hours to Anchoage and saw a family

> practice doctor there. He was very nice and told me first off that

he

> didn't really understand what I was doing there since they had more

> than enough information from 3 rheumatologists. They requested a

> range of motion study. He seemed more interested in my nystagmus

(my

> eyes move) than my joints. Anyhow he didn't have the right form and

> didn't have the right tool so he scrounged up a few rulers and

> measured the angles of my knees, ankles, wrists and elbows. Then

> traced the angles made by the rulers on a paper. He told me that

> later he would find a protactor and measure the degree. I only hope

> that if he errs it's in my favor. He did say that sometimes Social

> Security will say that even if there is significant joint damage

and

> the person is in alot of pain, if they can still move the part then

> they can still work!

> Ok gang. Help me out here. Am I the only one that thinks this a

very

> cruel and bad joke?

> Sorry. I just needed to talk to someone who understands. Thanks.

Janet

[Guest guest]

dont give up. social security can be very nasty. i can recall when

my mom tried for years to get on they said she could still work (

she was having blackouts yet they felt she could do a desk hjob like

sewing etc - yeah right - ) anyhow - my mother died 5 years after

they kept denying her and my dad took them to court and won a FULL

settlement. not that i mean you will have to wait till you die but i

am just saying dont give up - ever. keep on em. keep at it no

mattyer what. they will hopefully give in. i will keep you in my

praywrers that they get wise. love ya. tracie in wi

> Hi all,

> I was asked to update the group on my quest for social security

> disability determination. I was told by the medical review person

> from SS in Feb. that she was getting ready to make a favorable

> determination in my behalf. She did. And the Seattle office pulled

it

> for a quality assurance review. My guess is because I am now on

> Enbrel. Anyhow 6 weeks later I was informed that I would need to

see

> one of their doctors. I drove 5 hours to Anchoage and saw a family

> practice doctor there. He was very nice and told me first off that

he

> didn't really understand what I was doing there since they had

more

> than enough information from 3 rheumatologists. They requested a

> range of motion study. He seemed more interested in my nystagmus

(my

> eyes move) than my joints. Anyhow he didn't have the right form

and

> didn't have the right tool so he scrounged up a few rulers and

> measured the angles of my knees, ankles, wrists and elbows. Then

> traced the angles made by the rulers on a paper. He told me that

> later he would find a protactor and measure the degree. I only

hope

> that if he errs it's in my favor. He did say that sometimes Social

> Security will say that even if there is significant joint damage

and

> the person is in alot of pain, if they can still move the part

then

> they can still work!

> Ok gang. Help me out here. Am I the only one that thinks this a

very

> cruel and bad joke?

> Sorry. I just needed to talk to someone who understands. Thanks.

Janet