Re: Update on Gianna--sorry long.

[Guest guest]

,

I'm really sorry to hear this ...i really thought that was out

of her band..goodness, i would be soo very worried myself, sorry i

don't have an answer for you=( i wished i did..now i'm kind of

worried. Where exactly is the bacterial infection??? Again, i'm

really sorry that isn't getting the correction that she should.

I hope everything starts going right.

-mary

> Hi All,

> I thought it was time to update you all on . As usual I don't

> have good news!! went to CT 2 weeks ago and again this week.

> She was out of her band for 5 days due to a bacterial infection.

Her

> ped thinks her band caused it. I went back to CT on Thursday and

told

> Charlotte that AGAIN has been out of her band because it is

> shifting so much, it's covering her right eye! And all she did was

> cry when it was on. Charlotte said it's not supposed to do that. I

> knew that (from reading the posts :-))that's why I kept her out of

> it. So Charlotte adjusted it again. This time in the front, which

she

> says weakens the band. She thinks that might have out grown

> her band in the 5 days she was out of it. I don't see how that is

> possible! She's 13 months old. She's really not growing all that

> much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

don't

> see how a baby her age can out grow a band in 2 months!!! Have any

of

> you ever heard of that? Charlotte also said that she is surprised

to

> see 's correction coming so slowly. She thought that for

being

> in the band for 2 months she would of seen more improvement. I

don't

> see any improvement. I wouldn't be going so crazy over this if my

ins

> was paying. They didn't and won't pay anything b/c Hanger orthotics

> is in network. I kind of knew that she'd need a second band.. but

the

> thought of a third never crossed my mind. Charlotte is going to

check

> it again in 2 weeks. But it is STILL shifting,covering her right

eye.

> So the adjustment Charlotte did, really didn't do much. Part of me

is

> so ready to just give up!

> Has anyone ever heard of a baby 's age out growing a band in

2

> months?? She got it at 11 months and 1 week and is now 13 months

and

> 1 week and 3 days.

> Thanks,

>

[Guest guest]

Thanks ! The bacterial infection started on the back of her neck.

Her band was rubbing A LOT. It did spread to her head and neck. The

doctor said that from her scratching..(as soon as I take her band off

she attacks the back of her head and neck, scratching like crazy!)she

must of scratched too hard and made a scrap/cut. Then she sweated

into it, causing a bacterial infection. It wasn't a pretty sight. Her

whole head it just dry skin now. It looks horrible. I've been putting

baby lotion on it.. it's not helping. I'm going to try baby oil. That

should be fun with all the hair she has!

> > Hi All,

> > I thought it was time to update you all on . As usual I

don't

> > have good news!! went to CT 2 weeks ago and again this

week.

> > She was out of her band for 5 days due to a bacterial infection.

> Her

> > ped thinks her band caused it. I went back to CT on Thursday and

> told

> > Charlotte that AGAIN has been out of her band because it

is

> > shifting so much, it's covering her right eye! And all she did

was

> > cry when it was on. Charlotte said it's not supposed to do that.

I

> > knew that (from reading the posts :-))that's why I kept her out

of

> > it. So Charlotte adjusted it again. This time in the front, which

> she

> > says weakens the band. She thinks that might have out

grown

> > her band in the 5 days she was out of it. I don't see how that is

> > possible! She's 13 months old. She's really not growing all that

> > much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

> don't

> > see how a baby her age can out grow a band in 2 months!!! Have

any

> of

> > you ever heard of that? Charlotte also said that she is surprised

> to

> > see 's correction coming so slowly. She thought that for

> being

> > in the band for 2 months she would of seen more improvement. I

> don't

> > see any improvement. I wouldn't be going so crazy over this if my

> ins

> > was paying. They didn't and won't pay anything b/c Hanger

orthotics

> > is in network. I kind of knew that she'd need a second band.. but

> the

> > thought of a third never crossed my mind. Charlotte is going to

> check

> > it again in 2 weeks. But it is STILL shifting,covering her right

> eye.

> > So the adjustment Charlotte did, really didn't do much. Part of

me

> is

> > so ready to just give up!

> > Has anyone ever heard of a baby 's age out growing a band

in

> 2

> > months?? She got it at 11 months and 1 week and is now 13 months

> and

> > 1 week and 3 days.

> > Thanks,

> >

[Guest guest]

Thanks ,

I've heard of infants 4-6 months old out growing it in 2 months. But

never a 13 month old! You would think, if she did out grow it in just

2 months,that she'd have some nice correction. But no. I'm just so

confused. I don't understand how she could of out grew it when I know

she hasn't really grown.

> ,

>

> Wow..how frustrating. Don't give up. I know it's hard especially

with the

> insurance not paying...but don't give up. I haven't heard of

anyone

> outgrowing it in 2 months..but then i'm not experienced with

this....

>

> If she outgrew the band..wouldn't that mean she had a lot of

correction?

>

> Hang in there,

>

> Mom to

>

> In a message dated 9/6/2002 7:06:21 PM Pacific Daylight Time,

> taime@o... writes:

>

>

> > Hi All,

> > I thought it was time to update you all on . As usual I

don't

> > have good news!! went to CT 2 weeks ago and again this

week.

> > She was out of her band for 5 days due to a bacterial infection.

Her

> > ped thinks her band caused it. I went back to CT on Thursday and

told

> > Charlotte that AGAIN has been out of her band because it

is

> > shifting so much, it's covering her right eye! And all she did

was

> > cry when it was on. Charlotte said it's not supposed to do that.

I

> > knew that (from reading the posts :-))that's why I kept her out

of

> > it. So Charlotte adjusted it again. This time in the front, which

she

> > says weakens the band. She thinks that might have out

grown

> > her band in the 5 days she was out of it. I don't see how that is

> > possible! She's 13 months old. She's really not growing all that

> > much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

don't

> > see how a baby her age can out grow a band in 2 months!!! Have

any of

> > you ever heard of that? Charlotte also said that she is surprised

to

> > see 's correction coming so slowly. She thought that for

being

> > in the band for 2 months she would of seen more improvement. I

don't

> > see any improvement. I wouldn't be going so crazy over this if my

ins

> > was paying. They didn't and won't pay anything b/c Hanger

orthotics

> > is in network. I kind of knew that she'd need a second band.. but

the

> > thought of a third never crossed my mind. Charlotte is going to

check

> > it again in 2 weeks. But it is STILL shifting,covering her right

eye.

> > So the adjustment Charlotte did, really didn't do much. Part of

me is

> > so ready to just give up!

> > Has anyone ever heard of a baby 's age out growing a band

in 2

> > months?? She got it at 11 months and 1 week and is now 13 months

and

> > 1 week and 3 days.

> > Thanks,

> >

> >

> >

> >

> >

[Guest guest]

,

Keep fighting and don't give up. Hey what kind of bb lotion do you

use? I used cetaphil (which is really good for eczema); it's gentle

on bb's skin. I hope the Ct specialist will work with you some how

and everything will start going smooth again. Just hang in there

and don't give uuuuuuupppp!!

-mary

> > > Hi All,

> > > I thought it was time to update you all on . As usual I

> don't

> > > have good news!! went to CT 2 weeks ago and again this

> week.

> > > She was out of her band for 5 days due to a bacterial

infection.

> > Her

> > > ped thinks her band caused it. I went back to CT on Thursday

and

> > told

> > > Charlotte that AGAIN has been out of her band because it

> is

> > > shifting so much, it's covering her right eye! And all she did

> was

> > > cry when it was on. Charlotte said it's not supposed to do

that.

> I

> > > knew that (from reading the posts :-))that's why I kept her out

> of

> > > it. So Charlotte adjusted it again. This time in the front,

which

> > she

> > > says weakens the band. She thinks that might have out

> grown

> > > her band in the 5 days she was out of it. I don't see how that

is

> > > possible! She's 13 months old. She's really not growing all

that

> > > much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

> > don't

> > > see how a baby her age can out grow a band in 2 months!!! Have

> any

> > of

> > > you ever heard of that? Charlotte also said that she is

surprised

> > to

> > > see 's correction coming so slowly. She thought that for

> > being

> > > in the band for 2 months she would of seen more improvement. I

> > don't

> > > see any improvement. I wouldn't be going so crazy over this if

my

> > ins

> > > was paying. They didn't and won't pay anything b/c Hanger

> orthotics

> > > is in network. I kind of knew that she'd need a second band..

but

> > the

> > > thought of a third never crossed my mind. Charlotte is going to

> > check

> > > it again in 2 weeks. But it is STILL shifting,covering her

right

> > eye.

> > > So the adjustment Charlotte did, really didn't do much. Part of

> me

> > is

> > > so ready to just give up!

> > > Has anyone ever heard of a baby 's age out growing a band

> in

> > 2

> > > months?? She got it at 11 months and 1 week and is now 13

months

> > and

> > > 1 week and 3 days.

> > > Thanks,

> > >

[Guest guest]

Yea...that's what i was saying too..if she outgrew it..then wouldn't she have gotten good correction? I really don't understand....But i hope that in the next 2 weeks has better growth and Charlotte says she was wrong...

In a message dated 9/6/2002 8:14:00 PM Pacific Daylight Time, taime@... writes:

Thanks ,

I've heard of infants 4-6 months old out growing it in 2 months. But

never a 13 month old! You would think, if she did out grow it in just

2 months,that she'd have some nice correction. But no. I'm just so

confused. I don't understand how she could of out grew it when I know

she hasn't really grown.

[Guest guest]

Dane has eczema and still had cradle cap when he was banded.

Everytime we gave him a bath, we used Aveeno oatmeal in the

pouches. We wold make a paste out of it and put it on his head. It

needs to be rinsed well, but my goodness that head shined! He never

had any skin issues while banded.

Dane's mom DOC Grad

> > > > Hi All,

> > > > I thought it was time to update you all on . As usual

I

> > don't

> > > > have good news!! went to CT 2 weeks ago and again

this

> > week.

> > > > She was out of her band for 5 days due to a bacterial

> infection.

> > > Her

> > > > ped thinks her band caused it. I went back to CT on Thursday

> and

> > > told

> > > > Charlotte that AGAIN has been out of her band because

it

> > is

> > > > shifting so much, it's covering her right eye! And all she

did

> > was

> > > > cry when it was on. Charlotte said it's not supposed to do

> that.

> > I

> > > > knew that (from reading the posts :-))that's why I kept her

out

> > of

> > > > it. So Charlotte adjusted it again. This time in the front,

> which

> > > she

> > > > says weakens the band. She thinks that might have out

> > grown

> > > > her band in the 5 days she was out of it. I don't see how

that

> is

> > > > possible! She's 13 months old. She's really not growing all

> that

> > > > much. In a month she's gained 7 ounces. She's now 19lbs 9oz.

I

> > > don't

> > > > see how a baby her age can out grow a band in 2 months!!!

Have

> > any

> > > of

> > > > you ever heard of that? Charlotte also said that she is

> surprised

> > > to

> > > > see 's correction coming so slowly. She thought that

for

> > > being

> > > > in the band for 2 months she would of seen more improvement.

I

> > > don't

> > > > see any improvement. I wouldn't be going so crazy over this

if

> my

> > > ins

> > > > was paying. They didn't and won't pay anything b/c Hanger

> > orthotics

> > > > is in network. I kind of knew that she'd need a second

band..

> but

> > > the

> > > > thought of a third never crossed my mind. Charlotte is going

to

> > > check

> > > > it again in 2 weeks. But it is STILL shifting,covering her

> right

> > > eye.

> > > > So the adjustment Charlotte did, really didn't do much. Part

of

> > me

> > > is

> > > > so ready to just give up!

> > > > Has anyone ever heard of a baby 's age out growing a

band

> > in

> > > 2

> > > > months?? She got it at 11 months and 1 week and is now 13

> months

> > > and

> > > > 1 week and 3 days.

> > > > Thanks,

> > > >

[Guest guest]

:

I was so hoping to hear a good update about 's head rounding :

( I can understand why you are so frustrated & discouraged. If you

haven't seen any improvment while in her band, then I have to agree

with you, how could she have outgrown it already? And if you haven't

see growing all that much while in the band, then I would too

be surprised if she has outgrown it. I really don't remember hearing

of any baby's 's age outgrowing their band in just 2 mos., I

know my Abby didn't.

What type of bacterial infection did she get? That's scary.

Did ever get a CTscan or Xray done to rule out cranio? Sorry,

I can't remember for sure. If not, then you might want to consider

getting one done, just to be absolutely positive. Not trying to

scare you here at all, I remember when Abby's STARband didn't work,

people kept telling me to get her another Xray or CTscan done (she

had one before her treatment), oh and I totally freaked out &

panicked!

I can see why you are ready to give it up, especially with all the

skin irritations & such, and now with no improvement. BUT, hang in

there, for at least one more month and pray some rounding starts.

Hugs to you......keep your chin up.

Debbie Abby's mom DOCgrad

MI

> Hi All,

> I thought it was time to update you all on . As usual I don't

> have good news!! went to CT 2 weeks ago and again this week.

> She was out of her band for 5 days due to a bacterial infection.

Her

> ped thinks her band caused it. I went back to CT on Thursday and

told

> Charlotte that AGAIN has been out of her band because it is

> shifting so much, it's covering her right eye! And all she did was

> cry when it was on. Charlotte said it's not supposed to do that. I

> knew that (from reading the posts :-))that's why I kept her out of

> it. So Charlotte adjusted it again. This time in the front, which

she

> says weakens the band. She thinks that might have out grown

> her band in the 5 days she was out of it. I don't see how that is

> possible! She's 13 months old. She's really not growing all that

> much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

don't

> see how a baby her age can out grow a band in 2 months!!! Have any

of

> you ever heard of that? Charlotte also said that she is surprised

to

> see 's correction coming so slowly. She thought that for

being

> in the band for 2 months she would of seen more improvement. I

don't

> see any improvement. I wouldn't be going so crazy over this if my

ins

> was paying. They didn't and won't pay anything b/c Hanger orthotics

> is in network. I kind of knew that she'd need a second band.. but

the

> thought of a third never crossed my mind. Charlotte is going to

check

> it again in 2 weeks. But it is STILL shifting,covering her right

eye.

> So the adjustment Charlotte did, really didn't do much. Part of me

is

> so ready to just give up!

> Has anyone ever heard of a baby 's age out growing a band in

2

> months?? She got it at 11 months and 1 week and is now 13 months

and

> 1 week and 3 days.

> Thanks,

>

[Guest guest]

Thanks .

At this point I'm willing to try anything.

> > > > > Hi All,

> > > > > I thought it was time to update you all on . As usual

> I

> > > don't

> > > > > have good news!! went to CT 2 weeks ago and again

> this

> > > week.

> > > > > She was out of her band for 5 days due to a bacterial

> > infection.

> > > > Her

> > > > > ped thinks her band caused it. I went back to CT on

Thursday

> > and

> > > > told

> > > > > Charlotte that AGAIN has been out of her band

because

> it

> > > is

> > > > > shifting so much, it's covering her right eye! And all she

> did

> > > was

> > > > > cry when it was on. Charlotte said it's not supposed to do

> > that.

> > > I

> > > > > knew that (from reading the posts :-))that's why I kept her

> out

> > > of

> > > > > it. So Charlotte adjusted it again. This time in the front,

> > which

> > > > she

> > > > > says weakens the band. She thinks that might have

out

> > > grown

> > > > > her band in the 5 days she was out of it. I don't see how

> that

> > is

> > > > > possible! She's 13 months old. She's really not growing all

> > that

> > > > > much. In a month she's gained 7 ounces. She's now 19lbs

9oz.

> I

> > > > don't

> > > > > see how a baby her age can out grow a band in 2 months!!!

> Have

> > > any

> > > > of

> > > > > you ever heard of that? Charlotte also said that she is

> > surprised

> > > > to

> > > > > see 's correction coming so slowly. She thought that

> for

> > > > being

> > > > > in the band for 2 months she would of seen more

improvement.

> I

> > > > don't

> > > > > see any improvement. I wouldn't be going so crazy over this

> if

> > my

> > > > ins

> > > > > was paying. They didn't and won't pay anything b/c Hanger

> > > orthotics

> > > > > is in network. I kind of knew that she'd need a second

> band..

> > but

> > > > the

> > > > > thought of a third never crossed my mind. Charlotte is

going

> to

> > > > check

> > > > > it again in 2 weeks. But it is STILL shifting,covering her

> > right

> > > > eye.

> > > > > So the adjustment Charlotte did, really didn't do much.

Part

> of

> > > me

> > > > is

> > > > > so ready to just give up!

> > > > > Has anyone ever heard of a baby 's age out growing a

> band

> > > in

> > > > 2

> > > > > months?? She got it at 11 months and 1 week and is now 13

> > months

> > > > and

> > > > > 1 week and 3 days.

> > > > > Thanks,

> > > > >

[Guest guest]

Thanks !!

> > > > Hi All,

> > > > I thought it was time to update you all on . As usual I

> > don't

> > > > have good news!! went to CT 2 weeks ago and again this

> > week.

> > > > She was out of her band for 5 days due to a bacterial

> infection.

> > > Her

> > > > ped thinks her band caused it. I went back to CT on Thursday

> and

> > > told

> > > > Charlotte that AGAIN has been out of her band because

it

> > is

> > > > shifting so much, it's covering her right eye! And all she

did

> > was

> > > > cry when it was on. Charlotte said it's not supposed to do

> that.

> > I

> > > > knew that (from reading the posts :-))that's why I kept her

out

> > of

> > > > it. So Charlotte adjusted it again. This time in the front,

> which

> > > she

> > > > says weakens the band. She thinks that might have out

> > grown

> > > > her band in the 5 days she was out of it. I don't see how

that

> is

> > > > possible! She's 13 months old. She's really not growing all

> that

> > > > much. In a month she's gained 7 ounces. She's now 19lbs 9oz.

I

> > > don't

> > > > see how a baby her age can out grow a band in 2 months!!!

Have

> > any

> > > of

> > > > you ever heard of that? Charlotte also said that she is

> surprised

> > > to

> > > > see 's correction coming so slowly. She thought that

for

> > > being

> > > > in the band for 2 months she would of seen more improvement.

I

> > > don't

> > > > see any improvement. I wouldn't be going so crazy over this

if

> my

> > > ins

> > > > was paying. They didn't and won't pay anything b/c Hanger

> > orthotics

> > > > is in network. I kind of knew that she'd need a second band..

> but

> > > the

> > > > thought of a third never crossed my mind. Charlotte is going

to

> > > check

> > > > it again in 2 weeks. But it is STILL shifting,covering her

> right

> > > eye.

> > > > So the adjustment Charlotte did, really didn't do much. Part

of

> > me

> > > is

> > > > so ready to just give up!

> > > > Has anyone ever heard of a baby 's age out growing a

band

> > in

> > > 2

> > > > months?? She got it at 11 months and 1 week and is now 13

> months

> > > and

> > > > 1 week and 3 days.

> > > > Thanks,

> > > >

[Guest guest]

Hey Debbie,

I really don't know what type of bacterial infection she had. She was

on antibiotics for 2 weeks. Yes, had a CT scan done and I took

the scans to 2 different ped NS. I'm very confused. Like I said, I

know she hasn't grown enough to out grow her band!! I think she's

gained a little over a pound in 2 months time. I was telling Niki,

that the reason had the CT scans done was b/c her head was

growing faster than her body and her fontanal(sp?) was very small.

The CT scan was done to rule out cranio. Her fontanal is closed and

has been since around the time she got her band. Could that be why,

her head isn't improving? I know when I go back in 2 weeks, I'm going

to be told she needs another band. It's shifting just like it was

before Charlotte adjustd it again. Poor looks like a pirate.

It covers her right eye. I just hope that if she does need a second

band so soon, it'll be the last one she needs! But at the rate she is

improving.. I don't see that happening. I think I'm going to write to

Tim Littlefield and see what he thinks.

Thanks so much Deb, I'd be lost without you all!

> > Hi All,

> > I thought it was time to update you all on . As usual I

don't

> > have good news!! went to CT 2 weeks ago and again this

week.

> > She was out of her band for 5 days due to a bacterial infection.

> Her

> > ped thinks her band caused it. I went back to CT on Thursday and

> told

> > Charlotte that AGAIN has been out of her band because it

is

> > shifting so much, it's covering her right eye! And all she did

was

> > cry when it was on. Charlotte said it's not supposed to do that.

I

> > knew that (from reading the posts :-))that's why I kept her out

of

> > it. So Charlotte adjusted it again. This time in the front, which

> she

> > says weakens the band. She thinks that might have out

grown

> > her band in the 5 days she was out of it. I don't see how that is

> > possible! She's 13 months old. She's really not growing all that

> > much. In a month she's gained 7 ounces. She's now 19lbs 9oz. I

> don't

> > see how a baby her age can out grow a band in 2 months!!! Have

any

> of

> > you ever heard of that? Charlotte also said that she is surprised

> to

> > see 's correction coming so slowly. She thought that for

> being

> > in the band for 2 months she would of seen more improvement. I

> don't

> > see any improvement. I wouldn't be going so crazy over this if my

> ins

> > was paying. They didn't and won't pay anything b/c Hanger

orthotics

> > is in network. I kind of knew that she'd need a second band.. but

> the

> > thought of a third never crossed my mind. Charlotte is going to

> check

> > it again in 2 weeks. But it is STILL shifting,covering her right

> eye.

> > So the adjustment Charlotte did, really didn't do much. Part of

me

> is

> > so ready to just give up!

> > Has anyone ever heard of a baby 's age out growing a band

in

> 2

> > months?? She got it at 11 months and 1 week and is now 13 months

> and

> > 1 week and 3 days.

> > Thanks,

> >