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Re: What to expect at 's neuro appt.?

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Taryn,

At 's NS appt all he did was feel her head. I had the CT scans

done prior to her appt, he looked at those also. He'll either just

look at and feel her head. Or he'll order a CT scan or x-rays. Is he a

" plagio friendly " NS? I took to 2 different NS and didn't get

anywhere with either of them. We have a Hanger company out here by me

also. I didn't go with them (even though there much, much closer) b/c

I didn't hear anything good about them. Only negative.That's not to

say the Hanger by you is bad. If you use them make sure you interview

the orthotist to make sure he or she is familiar with plagio. Ask him

or her how many babies they've treated, do they have before and after

pics to show you.

Good luck,

> What should I expect when we go to 's neurosurgeon appt.?

Will he do a CT scan or x-rays? I have no clue what we should expect

to be done and if we should bring any distraction items for her or

what. Any advice would be greatly appreciated. I noticed also we

have a Hanger in town her that says prosthetics and orthotics on

their sign. Does anyone know if they make helmets and about how much

they cost if anyone has dealt with them? It would be so nice to be

here locally since we will have to take her back there often.

>

> Taryn

> 's mom

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Hi Taryn,

's appointment was very quick and hassle free. The neurologist

felt 's head, looked her over thoroughly and then prescribed her

band. No CT or x-ray was ordered, I think mainly because her

condition was pretty obvious. Hope that input helps.

I can't wait for you to get to your appointment. It is such a relief

as each hurdle is jumped. Give a hug and kiss from me and

:)

& (5.5 months, banded 8/26/02)

> What should I expect when we go to 's neurosurgeon appt.?

Will he do a CT scan or x-rays? I have no clue what we should expect

to be done and if we should bring any distraction items for her or

what. Any advice would be greatly appreciated. I noticed also we

have a Hanger in town her that says prosthetics and orthotics on

their sign. Does anyone know if they make helmets and about how much

they cost if anyone has dealt with them? It would be so nice to be

here locally since we will have to take her back there often.

>

> Taryn

> 's mom

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Taryn,

Our neuro never ordered CT scans or X-rays. He pretty much felt

their heads a lot, and measured the head circumference. My twins

sutures were obviously still open when we saw him, so he knew by

observation only that we were dealing with plagio instead of cranio.

My neuro also checked to see how well they were able to follow

objects, turn their heads, and if theycould put weight on their

feet. They were five and a half months at our initial visit and we

were sent home with instructions to continue aggressively

repositioning for another month and then go back for another

evaluation.

When is 's appointment again?

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> What should I expect when we go to 's neurosurgeon appt.?

Will he do a CT scan or x-rays? I have no clue what we should expect

to be done and if we should bring any distraction items for her or

what. Any advice would be greatly appreciated. I noticed also we

have a Hanger in town her that says prosthetics and orthotics on

their sign. Does anyone know if they make helmets and about how much

they cost if anyone has dealt with them? It would be so nice to be

here locally since we will have to take her back there often.

>

> Taryn

> 's mom

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