Re: Ignorant pediatrician in Tucson

[Guest guest]

Your story is all too familiar here on this board!

Here is a link to preferred physicians. There is one in Tuscon.

Otherwise I would suggest getting on the cancellation list at the

neurologist.

It is not too late to get good correction at 12 months. You can

call Cranial Technologies and get a free evaluation.

http://www.cranialtech.com/clinic/az2.html

You also can check out plagiocephaly.org and CAPPSkids.org

Dane's mom DOC Grad

> Hello,

> I am new to this group but was wondering if anyone else has had

the

> same problems my husband and I have had with our son. He is our

> first child and after he was born, we used to lay him on the floor

a

> lot and sometimes he would be looking at the television, which

caused

> the left side of his head to become flat. We pointed this out to

our

> pediatrician at around 4-5 months of age, and he more or less

> dismissed it, telling us to just watch it and see if it gets

better.

> He never did officially diagnose him with plagiocephaly but

through

> my own personal research, I believed that it is what my son had.

His

> had has gotten a lot better than it was, though it is still kind

of

> flat on the left side. His ears are positioned correctly and he

does

> not have a bulge on the left side of his forehead, but I would

still

> like something to be done. So I am finally going to try to take

him

> to see a pediatric neurologist, though I hope it is not too late

to

> do something because my son is now a year old. I called to try and

> get an appt. but they didn't have anything until the end of

October!

> That is totally ridiculous so I am not going to try and find a

> different pediatrician to see if she can just give me a direct

> prescription for banding without having to go to the neurologist.

> Even at his 1 year appt. last week the Dr. casually mentioned how

he

> looked " top heavy " , meaning that his head looked big, and I

thought

> that was a pretty rude statement in itself. I am definitely now

> changing to a different pediatrician and was wondering if anyone

else

> has had any luck with good pediatricians in Tucson, AZ, especially

> anyone who is familiar with plagiocephaly. This whole process is

so

> frustrating! Thanks for letting me vent.

[Guest guest]

HI & welcome to our group!

Yes, yes , yes, your story is unfortunately all too common. SO many

pediatricians dismiss plagio as " no big deal " by giving parents

the " don't worry, it'll round on it's own " story, or " hair will cover

it " or my favorite " nobody's head is perfectly round " . I was lucky

enough to have a terrific ped who promptly noticed my daughter's

plagio at just her 2 week chk up. But for the most part, your

pediatrician is just one of many out there who play plagio off as

nothing to worry about.

What a great mom you are though to be doing all this research on your

own. I am not familiar with your area, but I do know that the

Cranial Technologies corporate headquarters is in Tempe, AZ and they

have a clinic is Phoenix AZ - the Phoenix # is 800-689-3402, and

their headquarters in Tempe is 866-DOC-BAND. Perhaps they could

point you in the direction of a plagio friendly Dr.. Is Tempe or

Phoenix near Tucson? (Hope so!).

Sorry to hear you have such a long wait for the specialist, this too

though is common. I would request to be put on a cancellation list,

so that if any appt cancels between now & when your appt is, they

could call you & have you take that appt..

Again, I am so sorry to hear of another idiot pediatrician. It is

really so frustrating reading stories like yours time & time again,

but you are doing a great job!

Good luck - please keep us posted.

Debbie Abby's mom DOCGrad

MI

> Hello,

> I am new to this group but was wondering if anyone else has had the

> same problems my husband and I have had with our son. He is our

> first child and after he was born, we used to lay him on the floor

a

> lot and sometimes he would be looking at the television, which

caused

> the left side of his head to become flat. We pointed this out to

our

> pediatrician at around 4-5 months of age, and he more or less

> dismissed it, telling us to just watch it and see if it gets

better.

> He never did officially diagnose him with plagiocephaly but through

> my own personal research, I believed that it is what my son had.

His

> had has gotten a lot better than it was, though it is still kind of

> flat on the left side. His ears are positioned correctly and he

does

> not have a bulge on the left side of his forehead, but I would

still

> like something to be done. So I am finally going to try to take

him

> to see a pediatric neurologist, though I hope it is not too late to

> do something because my son is now a year old. I called to try and

> get an appt. but they didn't have anything until the end of

October!

> That is totally ridiculous so I am not going to try and find a

> different pediatrician to see if she can just give me a direct

> prescription for banding without having to go to the neurologist.

> Even at his 1 year appt. last week the Dr. casually mentioned how

he

> looked " top heavy " , meaning that his head looked big, and I thought

> that was a pretty rude statement in itself. I am definitely now

> changing to a different pediatrician and was wondering if anyone

else

> has had any luck with good pediatricians in Tucson, AZ, especially

> anyone who is familiar with plagiocephaly. This whole process is

so

> frustrating! Thanks for letting me vent.

[Guest guest]

Hello and welcome to our group! Your story sounds so very similiar

to my own. My son will be one year on the 23rd and he was just cast

for his band on Aug 31. We finally got the prescription by asking

Cranial Tech for the name of a pediatrician in our area that had

referred to them. You may have to be very specific - like naming out

lying areas - subburbs around the main city. When we first asked for

a dr. in our area, they told us they didn't know anyone. Then,

thanks to someone here, we learned that there was a ped in one of the

subburbs who had referred to them. I don't think the people at CT

realized the subburb the doc was in, was part of the city I live in!!

Good luck to you and please let us know how it goes!

Kristi

(4) and (11mos)

OH

[Guest guest]

That's ridiculous that your pediatrician isn't current with

something that is so common. I hope you have good luck finding a

new pediatrician. You should try calling around yourself and maybe

set up an interview with them to discuss it with them. I live in

Arizona, but I'm up in sdale, so I can't really help to that

extent.

Best wishes,

Tina & Chase, 10 months (mild plagio and tort)