Re: Cole update

[Guest guest]

Kia:

Sounds like Cole is rounding very nicely already! I'm with you - keep

him in the band as long as you can to get as much rounding as

possible as long as the band still fits well! And yes, I've heard

that wearing helmets/bands does help hair grow more, something to do

with the moisture of the band I think. Glad the skin irritation has

cleared up & he's back in the band

Too bad to hear about your little niece. That's great you are

informing your sis in law with repositioning tips & such. Being more

aware of plagio as they are with Cole & his band, I'm sure they'll be

proactive now with the repoing. Great job Auntie Kia!!!

Please be sure to keep us updated - hopefully work slows down a bit

for you!

Debbie Abby's mom DOCGrad

MI

> Hi all,

>

> I've not been around lately... I've been super busy at work. I did

want to

> update you on Cole's progress. He was out of his helmet for 2 days

because

> of a bad red spot. But he had an adjustment yesterday, and his

skin looks

> like it has healed, so he is back in the helmet today. The

orthotist said

> that he predicts Cole will be done around Thanksgiving. He has

definitely

> gotten much rounder (my husband thinks that Cole looks great and we

should

> just stop now), but I still see so much room for improvement. But

his hair

> is growing like crazy (anyone else think the helmet promotes hair

> growth?!?!), which helps his head look more rounded too. I'll keep

you

> posted on Cole's graduation... I'm hoping for much more rounding in

the next

> couple of months!

>

> Kia (mom to Cole, born 11/20/01, STARBand 06/18/02)

>

> P.S. Sadly, my 3 month old niece has plagio. I saw her for the

first time

> at 2 months, and I immediately noticed the flat side (it was pretty

mild,

> but as a card carrying member of the " head-police " I spotted it

> immediately). I mentioned it to my sister-in-law and told her

about some

> repositioning tips. I saw her again this week (a month had

passed), and her

> head looked much worse. Her forehead bulges on the flattened side,

and her

> ears are definitely out of alignment. She also has a high peak on

the flat

> side. I don't see any facial asymmetries yet. I told my sister-in-

law that

> her flattening was worse, and I emailed her some more repositioning

tips.

> Luckily, she isn't the type to offend easily. I just hope they

take it

> seriously and that she won't need a helmet (they have the same

insurance we

> do, and we are still fighting to have them pay... and they will not

be able

> to afford it out of pocket). I am determined too give her as much

> information as possible, and I only wish someone had done the same

for me

> when Cole was only 3 months old!

[Guest guest]

Hi Kia :

Congradulations to little Cole It sounds like he got some good

correction. Good luck with your ins. battle, I hope they'll come

thru for you.

Sorry to see you leave, but we all understand. Hope you'll pop in

from time to time. Happy Holidays.

Debbie Abby's mom DOCGrad

MI

> Hi everyone,

>

> I know I kind of disappeared... I've been trying not to obsess

about Cole's

> head and concentrate on other things. And it felt like time to

take a break

> from the support group (I loved the support and offering it to

others, but

> it also meant I was constantly thinking about Cole's head... and

that isn't

> great for my state of mind!).

>

> Anyway, Cole has graduated from his helmet. He got good correction

> considering he started a little late (7 months) and he was so

severe. The

> cranio doc was very pleased with his progress, and thought a 2nd

helmet was

> not necessary. His head rounded out pretty nicely. Unfortunately,

his head

> was very short and wide (brachy) before starting the treatment. So

even

> though the back of his head has rounded out pretty well, he still

has a

> shorter/wider head shape. My only regret in the helmet is that we

didn't

> start it earlier (when he could have gotten better correction).

But I would

> say that it was a success (and my husband feels like it was too...

he was

> not convinced it was a good idea in the beginning). The other day

I saw him

> from across the store in profile (my husband was holding him), and

I was so

> pleased to see his head curve up gently off his neck... it didn't

used to do

> that at all!

>

> I want to thank everyone for all the support you gave me during a

difficult

> time. I am so glad that we pursued the helmet (despite our ped's

advice).

> I am sure that if we had not pursued it, I would have always

regretted the

> decision.

>

> I'm in the process of appealing the insurance company's decision

not to pay

> for Cole's helmet. It doesn't look promising, but at least I'll

know we

> tried If I get some good news, I'll pass it on. I hope

everyone is

> seeing lots of good rounding!

>

> And now I'm disappearing again. I fear that I will always be a

member of

> the head police (and I'll surely still be rolling Cole onto his

belly to

> sleep for years to come), but I'm trying to move on...

>

> Thanks again for the great information and support.

>

> Kia (Cole's mom)

[Guest guest]

Congratulations Cole!

And good luck going after the insurance company!

Dane's mom DOC Grad

[Guest guest]

Congratulations Cole!

Yes, sadly you will probably always be a member of the head police. I

know I will. I hope you drop in from time to time and update us on

Cole.

> Hi everyone,

>

> I know I kind of disappeared... I've been trying not to obsess

about Cole's

> head and concentrate on other things. And it felt like time to

take a break

> from the support group (I loved the support and offering it to

others, but

> it also meant I was constantly thinking about Cole's head... and

that isn't

> great for my state of mind!).

>

> Anyway, Cole has graduated from his helmet. He got good correction

> considering he started a little late (7 months) and he was so

severe. The

> cranio doc was very pleased with his progress, and thought a 2nd

helmet was

> not necessary. His head rounded out pretty nicely. Unfortunately,

his head

> was very short and wide (brachy) before starting the treatment. So

even

> though the back of his head has rounded out pretty well, he still

has a

> shorter/wider head shape. My only regret in the helmet is that we

didn't

> start it earlier (when he could have gotten better correction).

But I would

> say that it was a success (and my husband feels like it was too...

he was

> not convinced it was a good idea in the beginning). The other day

I saw him

> from across the store in profile (my husband was holding him), and

I was so

> pleased to see his head curve up gently off his neck... it didn't

used to do

> that at all!

>

> I want to thank everyone for all the support you gave me during a

difficult

> time. I am so glad that we pursued the helmet (despite our ped's

advice).

> I am sure that if we had not pursued it, I would have always

regretted the

> decision.

>

> I'm in the process of appealing the insurance company's decision

not to pay

> for Cole's helmet. It doesn't look promising, but at least I'll

know we

> tried If I get some good news, I'll pass it on. I hope

everyone is

> seeing lots of good rounding!

>

> And now I'm disappearing again. I fear that I will always be a

member of

> the head police (and I'll surely still be rolling Cole onto his

belly to

> sleep for years to come), but I'm trying to move on...

>

> Thanks again for the great information and support.

>

> Kia (Cole's mom)

[Guest guest]

Kia,

Glad to hear that Cole is a graduate! It sounds like his head is

looking good and you are happy with your choice. That's great!

Best of wishes to you and please pop in from time to time to

update us.

Marci (Mom to )

Oklahoma

> Hi everyone,

>

> I know I kind of disappeared... I've been trying not to obsess

about Cole's

> head and concentrate on other things. And it felt like time to

take a break

> from the support group (I loved the support and offering it to

others, but

> it also meant I was constantly thinking about Cole's head... and

that isn't

> great for my state of mind!).

>

> Anyway, Cole has graduated from his helmet. He got good

correction

> considering he started a little late (7 months) and he was so

severe. The

> cranio doc was very pleased with his progress, and thought a

2nd helmet was

> not necessary. His head rounded out pretty nicely.

Unfortunately, his head

> was very short and wide (brachy) before starting the treatment.

So even

> though the back of his head has rounded out pretty well, he still

has a

> shorter/wider head shape. My only regret in the helmet is that

we didn't

> start it earlier (when he could have gotten better correction).

But I would

> say that it was a success (and my husband feels like it was

too... he was

> not convinced it was a good idea in the beginning). The other

day I saw him

> from across the store in profile (my husband was holding him),

and I was so

> pleased to see his head curve up gently off his neck... it didn't

used to do

> that at all!

>

> I want to thank everyone for all the support you gave me during

a difficult

> time. I am so glad that we pursued the helmet (despite our

ped's advice).

> I am sure that if we had not pursued it, I would have always

regretted the

> decision.

>

> I'm in the process of appealing the insurance company's

decision not to pay

> for Cole's helmet. It doesn't look promising, but at least I'll

know we

> tried If I get some good news, I'll pass it on. I hope everyone

is

> seeing lots of good rounding!

>

> And now I'm disappearing again. I fear that I will always be a

member of

> the head police (and I'll surely still be rolling Cole onto his belly

to

> sleep for years to come), but I'm trying to move on...

>

> Thanks again for the great information and support.

>

> Kia (Cole's mom)