Re: Vivian finally got her new hat!

[Guest guest]

,

Yeah!! Let the rounding begin! Isn't it amazing how quickly they

adjust to it? Please keep us posted on her progress!

> Hi everyone!

>

> Well, Vivian finally got her STARband on Saturday. It was supposed

> to come on Friday (which was one week late) and it did not!!! I was

> so mad I just thought I would go ballistic. It had a thumbprint in

> the plastic so it was a quality control thing. I'm like -

whatever -

> I'm just going to put a sticker on it - but oh well.

>

> So the orthotist calls me late Friday and was like " Bill at

> Orthomerica feels so badly about how this has gone that he is going

> to ship it for tommorrow morning " so she came in on Saturday (they

> are closed so I thought this was very nice of her) so that we

> wouldn't have to wait until Monday to get her fitted.

>

> I had nightmares about it all night on Friday like - ACK - what if

> it doesn't fit, what if it looks terrible (Debbie - I just kept on

> picturing Abby's STARband photos) - but it looks great. Fits like

a

> glove, the orthotist trimmed it beautifully, and she doesn't mind

> wearing it at all. She slept like a log in it last night. She has

> a red spot on the side of her head abover her ear- so hubby is

> taking her in today for a little adjustment. I decorated it with

> purple letters and these really cute muted pattern star and polka

> dot stickers.

>

> We went to the mall on Sunday since she was feeling good and we got

> a couple of stares, nothing we couldn't deal with. I did hear one

> lady tell her daughter that " she must have been in a very bad

> accident " . Funny what people will say when they don't really even

> know what it is.

>

> Anywhoo- just wanted to let everyone know how it went and thank you

> all again for your wisdom and support. I don't think I would have

> gone through with it without this group.

>

> & Vivian banded 09/28/02

[Guest guest]

:

That was so nice of Bill to come in on a Sat. for you guys! Sounds

like you have a super orthotist! I am glad to hear it fits so well

and doesn't resemble Abby's bad fit :( I don't ever want to

see any other photos like my Abby's band !!! I hadn't seen them in

a while & just took a look at them again, brought tears to my eyes!

It sounds like Vivian is adjusting perfectly. Now on to a rounder

head! Keep us updated.

Debbie Abby's mom DOCGrad

MI

> Hi everyone!

>

> Well, Vivian finally got her STARband on Saturday. It was supposed

> to come on Friday (which was one week late) and it did not!!! I was

> so mad I just thought I would go ballistic. It had a thumbprint in

> the plastic so it was a quality control thing. I'm like -

whatever -

> I'm just going to put a sticker on it - but oh well.

>

> So the orthotist calls me late Friday and was like " Bill at

> Orthomerica feels so badly about how this has gone that he is going

> to ship it for tommorrow morning " so she came in on Saturday (they

> are closed so I thought this was very nice of her) so that we

> wouldn't have to wait until Monday to get her fitted.

>

> I had nightmares about it all night on Friday like - ACK - what if

> it doesn't fit, what if it looks terrible (Debbie - I just kept on

> picturing Abby's STARband photos) - but it looks great. Fits like

a

> glove, the orthotist trimmed it beautifully, and she doesn't mind

> wearing it at all. She slept like a log in it last night. She has

> a red spot on the side of her head abover her ear- so hubby is

> taking her in today for a little adjustment. I decorated it with

> purple letters and these really cute muted pattern star and polka

> dot stickers.

>

> We went to the mall on Sunday since she was feeling good and we got

> a couple of stares, nothing we couldn't deal with. I did hear one

> lady tell her daughter that " she must have been in a very bad

> accident " . Funny what people will say when they don't really even

> know what it is.

>

> Anywhoo- just wanted to let everyone know how it went and thank you

> all again for your wisdom and support. I don't think I would have

> gone through with it without this group.

>

> & Vivian banded 09/28/02

[Guest guest]

YEAH for Vivian! That's so cool ! I've taken Chase out

recently in his helmet, and one lady came up to me and thought

he had to wear it because of seizures. I thought that was very

interesting for someone to think that. I'd rather have people

come up to me and ask " why? " than to just assume something

else. A lady at church came over to us right away and says I

have a friend who helped created those. I thought that was neat.

Good luck!

Tina

Jade (3 1/2 years) & Chase, 11 months (helmet 9/12/02)

[Guest guest]

,

Sounds like Vivian is adjusting very nicely to her band!! I am

really happy to hear that the ortho opened their office on a Saturday

so that Vivian could get into her band as soon as possible! Be sure

to keep us posted on how everything goes!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi everyone!

>

> Well, Vivian finally got her STARband on Saturday. It was supposed

> to come on Friday (which was one week late) and it did not!!! I was

> so mad I just thought I would go ballistic. It had a thumbprint in

> the plastic so it was a quality control thing. I'm like -

whatever -

> I'm just going to put a sticker on it - but oh well.

>

> So the orthotist calls me late Friday and was like " Bill at

> Orthomerica feels so badly about how this has gone that he is going

> to ship it for tommorrow morning " so she came in on Saturday (they

> are closed so I thought this was very nice of her) so that we

> wouldn't have to wait until Monday to get her fitted.

>

> I had nightmares about it all night on Friday like - ACK - what if

> it doesn't fit, what if it looks terrible (Debbie - I just kept on

> picturing Abby's STARband photos) - but it looks great. Fits like

a

> glove, the orthotist trimmed it beautifully, and she doesn't mind

> wearing it at all. She slept like a log in it last night. She has

> a red spot on the side of her head abover her ear- so hubby is

> taking her in today for a little adjustment. I decorated it with

> purple letters and these really cute muted pattern star and polka

> dot stickers.

>

> We went to the mall on Sunday since she was feeling good and we got

> a couple of stares, nothing we couldn't deal with. I did hear one

> lady tell her daughter that " she must have been in a very bad

> accident " . Funny what people will say when they don't really even

> know what it is.

>

> Anywhoo- just wanted to let everyone know how it went and thank you

> all again for your wisdom and support. I don't think I would have

> gone through with it without this group.

>

> & Vivian banded 09/28/02

[Guest guest]

In a message dated 10/1/2002 12:42:55 PM Eastern Daylight Time, jadesmom85251@... writes:

I've taken Chase out

recently in his helmet, and one lady came up to me and thought

he had to wear it because of seizures. I thought that was very

interesting for someone to think that.

Tina,

Actually my co-workers nephew has had to wear a helmet for seizures, because he would be at school and have an uncontrollable seizure and fall down and hit his head or his chin. The poor kid has a permanent dent in his chin from all the bangs he's taken, and also on his head somewhere is a knot. I feel so bad for him! He now has what they call a para, and this person must be with him at school wherever he goes, just to catch him if he falls (an alternative to having to wear the helmet). This is a state program and that's their service. It's scary because they say this all started from a bad fall at daycare when he was about 4- they are in litigation because the daycare never called his Mom, washed his bloody clothes, and she had to take him to get stitches it was that bad- can't believe they didn't call her!!! Ever since then, he has had seizures, although its inconclusive (per the defense witnesses) that the seizures were caused by the trauma. Sorry, more than you needed to know, but they do helmet kids with seizures just as protection also.

' Mom