Re: 6 months

[Guest guest]

Hi Stella,

Welcome to the group. Your daughter is at a great age to get some

awesome correction from a band or helmet. Did you get the results of

the x-rays yet? What is going to be your deciding factor in whether

to band or not? Again welcome to the group.

>

> Hi,

>

> Our daughter was diagnosed with plagio today.

> Her plagio is due to her torticollis.

>

> She also has a brachial plexus injury (erb's palsy)

> She has been on OT and PT therapy since she was 2 months old.

>

> Today, we took her for a head xray, -to rule out any fussion

> of her skull.

>

> We are considering a docband or a helmet.

>

> Any input would be appreciated.

>

> Thanks,

> Stella

[Guest guest]

Hi Stella & welcome to our group

We're glad you have found us.

Where abouts do you live? Are you near a Cranial Tech clinic?

I'm happy to hear she's had Xrays done that will most likely rule out

craniosynostosis, it's best to be safe & have the Xrays done.

What side of her head is flat? Is it mild, moderate, severe? We'd

love to see any pictures of her if youhave any...you can email them

to plagiocephaly or add them to our " photos "

section.

Check out www.plagiocephaly.org/support for addt'l plagio

information, also has information on torticollis.

Please let us know when the Xrays results are in & what you may

decide to do for treatment. My daughter wore a DOCband & we were

very happy with her results, she had severe plagio, began treatmetn

at 11.5 mos of age and still rec'd good improvment. So if you do get

a band/helmet, your daughter is at a good younger age to begin & get

great results.

Welcome again.

Debbie Abby's mom DOCGrad

MI

>

> Hi,

>

> Our daughter was diagnosed with plagio today.

> Her plagio is due to her torticollis.

>

> She also has a brachial plexus injury (erb's palsy)

> She has been on OT and PT therapy since she was 2 months old.

>

> Today, we took her for a head xray, -to rule out any fussion

> of her skull.

>

> We are considering a docband or a helmet.

>

> Any input would be appreciated.

>

> Thanks,

> Stella

[Guest guest]

Thanks for the info on collars, I am more scared about having to wear a

hard one then wearing a soft one...just the thought of it brings tears to my

eyes, those hard plastic collars that go down your chest and back, or worse

yet the ones with halo's...the whole thing has me a bit nuts, will ask the

surgeon about it all tomorrow, hopefully he will only say a soft

collar...anything else they will have to give me xanax for on a regular basis I

am

afraid.....lol

Is your neck shorter since the surgery? This is something that no one has

mentioned to me yet? I will definitely ask about it tomorrow.

Anatomically I don't understand why the neck should get shorter, they are

actually

creating more space between the discs then I have already. On my lumbar

spine after surgery I didn't loose any height, but since my spine has

collapsed, or as they say bone is now sitting on bone...I have actually lost 2

inches, I was surprised, but only wonder if I let them fuse my entire lumbar

spine (have not made that decision yet), will I grow 2 inches...lol...I don't

think so,but wouldn't mind getting my height back.

Thanks again for telling me,

If you don't mind can you also tell me how your doing since your surgery,

which discs you had done, and what they fused it with.

ilene

In a message dated 7/5/2009 8:27:51 A.M. Eastern Daylight Time,

glambert28@... writes:

Ilene,

Don't live in NY, but saw that you have a problem with the collars.. When

I had the cervical fusion done I too had a phobia about those soft collars.

I will say they are a pain to wear, but you must do this to make sure

there is no interruption with the fusion process. You could easily set yourself

back. I really hate collars, and will not ever wear a tie again lol. A

very personal dislike on my part. I had to force myself to wear one, I don't

have much neck length anymore with all the surgery's, so basically it seemed

I was looking up, but I did get use to it, and you can too. Just try not

to think about it, don't count the days either. Before you know it you won't

have to wear it anymore. Believe it or not you will become more secure

with it on.

I hope this helps, and I hope you surgery goes well.

Bama, george

" He is your friend, your partner, your defender, your dog. You are his

life, his love, his leader. He will be yours, faithful and true, to the last

beat of his heart. You owe it to him to be worthy of such devotion. "

-unknown-

________________________________

From: " _Ileney54@..._ (mailto:Ileney54@...) " <_Ileney54@..._

(mailto:Ileney54@...) >

_spinedisorderssuppospinedisorderssuspinedi_

(mailto:spinal problems )

Sent: Saturday, July 4, 2009 9:59:51 AM

Subject: Re: 6 Months

Hi, I am about to have cervical surgery, am still trying to figure out

which surgeon will do it and which procedure I will go with . So far have

seen to neurosurgeons, and had 2 different suggestions. ..Thurs I have apt

with

orthopedic spine surgeon 2 see what he says.

What I know is that I am having a fusion of C3-C6 (at the least), possibly

adding C6-C7 to the mix. What did you have ( I am new to this group)?

What kind of collar did you wear? Was the collar horrible? Believe it or

not, what scares me the most is wearing the collar...stupid right? But to

me

the collar is frightening, how you take showers, how it looks as though it

hurts..I know it doesn't, but the fear that the muscles aren't used for

the whole time it is on also scares me.

Any information you can give me will be greatly appreciated. I am from NY

and most likely doing the surgery in Manhattan (I live on Long Island), so

if you life near me and can also tell me who did your surgery that too

will

be appreciated.

Thanks in advance for any help you can give me,

ilene

In a message dated 7/4/2009 10:31:07 A.M. Eastern Daylight Time,

fanoboli1@sbcglobal .net writes:

Well,

It's 6 months since my surgery on 1-5-9 and my recovery is complete.

Goodbye to the neckbrace and to the Orthofix collar. I listened to the

doctors

and the therapists, followed thier advice and will now start to excersise

even more. I've learned to accept my cervical brace and why these things

occour. next april I'm to have another MRI to see how the upper and lower

areas

of the spine are doing. To all who have what happened to me you have my

support and prayers, I wish you all a decent recovery and life.

************ **A Good Credit Score is 700 or Above. See yours in just 2

easy

steps!

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[Non-text portions of this message have been removed]

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[Guest guest]

Ilene,

Don't live in NY, but saw that you have a problem with the collars.. When I had

the cervical fusion done I too had a phobia about those soft collars. I will say

they are a pain to wear, but you must do this to make sure there is no

interruption with the fusion process. You could easily set yourself back. I

really hate collars, and will not ever wear a tie again lol. A very personal

dislike on my part. I had to force myself to wear one, I don't have much neck

length anymore with all the surgery's, so basically it seemed I was looking up,

but I did get use to it, and you can too. Just try not to think about it, don't

count the days either. Before you know it you won't have to wear it anymore.

Believe it or not you will become more secure with it on.

I hope this helps, and I hope you surgery goes well.

 

Bama, george

 

" He is your friend, your partner, your defender, your dog. You are his life, his

love, his leader. He will be yours, faithful and true, to the last beat of his

heart. You owe it to him to be worthy of such devotion. " -unknown-

________________________________

From: " Ileney54@... " <Ileney54@...>

spinal problems

Sent: Saturday, July 4, 2009 9:59:51 AM

Subject: Re: 6 Months

Hi, I am about to have cervical surgery, am still trying to figure out

which surgeon will do it and which procedure I will go with . So far have

seen to neurosurgeons, and had 2 different suggestions. ..Thurs I have apt with

orthopedic spine surgeon 2 see what he says.

What I know is that I am having a fusion of C3-C6 (at the least), possibly

adding C6-C7 to the mix. What did you have ( I am new to this group)?

What kind of collar did you wear? Was the collar horrible? Believe it or

not, what scares me the most is wearing the collar...stupid right? But to me

the collar is frightening, how you take showers, how it looks as though it

hurts..I know it doesn't, but the fear that the muscles aren't used for

the whole time it is on also scares me.

Any information you can give me will be greatly appreciated. I am from NY

and most likely doing the surgery in Manhattan (I live on Long Island), so

if you life near me and can also tell me who did your surgery that too will

be appreciated.

Thanks in advance for any help you can give me,

ilene

In a message dated 7/4/2009 10:31:07 A.M. Eastern Daylight Time,

fanoboli1@sbcglobal .net writes:

Well,

It's 6 months since my surgery on 1-5-9 and my recovery is complete.

Goodbye to the neckbrace and to the Orthofix collar. I listened to the doctors

and the therapists, followed thier advice and will now start to excersise

even more. I've learned to accept my cervical brace and why these things

occour. next april I'm to have another MRI to see how the upper and lower areas

of the spine are doing. To all who have what happened to me you have my

support and prayers, I wish you all a decent recovery and life.

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100126575x122132 3013x1201367230/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 & bcd=

JulystepsfooterNO62 )