Re: Adam's casting and poll question

[Guest guest]

>> Last thing---I want to take a poll--Adam sometimes has tremors

when he's nursing. His head and arms tremble/shudder (like shivers

when you're cold). It lasts for 5-15 seconds....and happens about

once a day now. The ped. thinks it's nothing to worry

about...immature nervous system, etc. Although, she did rec an

EEG--which came back normal (this was at his 4 mon appt). Not sure

what to do from here---other than hope that he grows out of them.

My hubby suggests that I'm just looking for things to be wrong with

my son. I'm really not!!! just want a healthy boy (with a nice,

round head). I'll prob discuss this again with my ped. next Thurs

at Adam's 6 mon appt.

Amy-

Both my kids did this too at Adam's age. I think it's pretty common

and you shouldn't worry about it since the EEG came back fine too!

Great to hear the casting is over. It is just a short time, but

when it's happening it seems like forever. It's quite amazing how

when it's over they bounce back so well!

[Guest guest]

Amy:

It sounds like Adam was a real trooper during the casting, it sure

makes it a heckuva lot easier on mom & dad if the baby is ok during

the process! The hard part is over, the rest will be a piece of cake.

I've seen the design you're talking about for the helmet, it's very

cute! I'm sure you'll like it.

Good luck with Cigna, let's hope you'll be a fortunate one & have no

trouble getting them to pay.

Voice mails?? Nice aren't they? They drive me nutz - you can never

get a real person any more..grr!

Those tremors do sound scary, I can't offer any advice about them,

but I can understand you wanting to know just why he's having them.

25 lbs at 6 mos???? !!!!! YOWZA, what a big boy I thought my

Abby was big, she was I think 23 lbs at 6 mos., she's 2.5 now and

about 40 lbs, solid as a rock!!!

Let us know when the helmet is in, I'm sure if Adam handled the

casting just fine, he won't mind the helmet at all!

Debbie Abby's mom DOCGrad

MI

> Just wanted to let you guys know that Adam's casting went well. I

was prepared for the worst (me in tears)--but it wasn't that bad.

Adam's neurosurg is Dr. Frim and we went to Ballert too (small world,

Taryn). Our ortho was Tom, not Jim. He was nice. Didn't cut a hole

in the stocking ---said Adam could see and breathe through it fine.

Adam wasn't freaking out, so neither did I. He did get a little

pissy when Tom started to wrap his head like a mummy---but it was all

over in 5 min. The hardest decision was which " wall paper " sample to

pick for a design. Sounds like you must have picked white--since

you're talking about decorating with stickers. I picked zig zag blue

lines and colorful animals. We'll have to post pics when we have

some. Poor kid didn't get his hair washed at the ortho and daddy

didn't do it before bed. (I had to go to work this evening).

>

> We go back on Mon, Oct 14th for the helmet. Hope he likes it....or

at least, doesn't hate it. Also hope Cigna pays. Need a letter of

med nec from Dr. Frim. I hate his voice mail---can never talk to an

actual person!! We'll go back to Frim 2 weeks later to see how the

helmet fits.

>

> Someone wrote that they had a big 25# 1 yr old. Well, my almost 6

month old is almost 25 lbs. We'll get the official weight at the

pediatrician on Thurs.

>

> Last thing---I want to take a poll--Adam sometimes has tremors when

he's nursing. His head and arms tremble/shudder (like shivers when

you're cold). It lasts for 5-15 seconds....and happens about once a

day now. The ped. thinks it's nothing to worry about...immature

nervous system, etc. Although, she did rec an EEG--which came back

normal (this was at his 4 mon appt). Not sure what to do from here---

other than hope that he grows out of them. My hubby suggests that

I'm just looking for things to be wrong with my son. I'm really

not!!! just want a healthy boy (with a nice, round head). I'll

prob discuss this again with my ped. next Thurs at Adam's 6 mon appt.

>

> Thanks to all of you for welcoming me so warmly. It's kind of fun

sifting through 100 e'mails/day. I think I've been tied to this

computer too much. Mostly on after Adam is asleep.

> Re: Re: A question about helmets? to Amy

>

>

> Welcome, Amy and Adam. I am sorry I didn't respond sooner. Did

you see Dr. Frim? We got casted on Tues. at Ballert and it was

a painless and quick process. The casting material only took about 5

minutes to harden and we were done. My dh held in his lap

while I took pictures and it wasn't as bad as I thought it would be.

didn't cry when the back part of the cast went on but when he

put another stocking over her head (with cut outs for the mouth and

nose and somewhat of the eyes of course) and placed the front part

she was really crying. As soon as he took it off she was back to

normal and took a long nap in the car on the way home. That night

she sleep from 7 p.m. until 10 a.m. You will get the helmet a week

after the casting. was casted on Tues. and we will go Tues.

for her helmet. hasn't gotten hers yet so I can't tell you our

experience with adjusting but I have never heard anyone on this list

say anything but that their kids adjusted right away. The orthotist

told us it becomes like a security blanket for them almost and they

actually like having it on. I hope you like Jim...he was a very nice

guy and answered the tons of questions I had for him!!! Please let

us know how it went today. We also didn't have to give a

bottle or anything because it went so quickly she didn't have time to

fuss too much.

>

> Please don't feel guilty....I know it's hard and when I first

came here I felt the same exact way. I do still feel guilty

sometimes but I know I am doing what is best for by getting

this taken care of. also has tort and we are getting physical

therapy for that.

>

> Taryn and

> Indiana

>

>

> Hi all. I'm a new member and have already learned so much--

reading all of your e'mails (including who's older than who I'm

30....but more importantly my son, Adam, is 5 1/2 mons old. I want

to share my story (vent) and would love to read any

comments/suggestions you guys can offer.

>

> At his 4 mon appt. I mentioned that several people had pointed

out a flat spot on Adam's head. My pediatrician was pro-active and

recommended a CT scan. We had that done two days later and the !%@$%

@^%@$ radiologist interpreted the CT as craniostenosis of the left

lamboidal suture. So, off to the neurosurgeon we went----it took a

month to get in for that consult. Meanwhile, we didn't try any

positional changes, because I was under the impression that his

little bones were fusing prematurely and had nothing to do with

position. I hadn't noticed him favoring that side and he doesn't

have tort. Anyway, the neurosurg informed us that his sutures were

fine and that it was " positional plagiocephaly " . Suggested the

helmet vs. trying to do the positioning thing. I just don't think

we'd be able to keep him from rolling around now---he'll be free-er

in the helmet. His appt witht he othotist is on Friday--for the

casting. I saw some pics of what to expect on the CAPPS website. I

can only guess how much of a fuss Adam will make. Any suggestions

to make the ordeal any less of an ordeal?? He doesn't take a

pacifier. I'm sure it's harder on me, than on him.

>

> My other issue is how guilty I feel about my baby's deformed

head. I have no idea if it's mild, mod or severe (the neurosurg

pointed out how his ears are assymetrical---which seems to be common

with all of your kids too), but feel like I should have done

something. Like I said before, I never noticed him laying towards

that side----but he must have been....how else would his head have

gotten flat. It wasn't in utero or during the whole birthing

process. What's done is done---now I just want to fix it.

>

> So, Friday will be our big day. Going to Ballert (as per

neurosurg rec). How long should it take to get the helmet--after the

casting?? How long did it take your kids to adjust to having the

helmet on. Hopefully it's no big whoop. We'll find out soon

enough.

>

> Amy

> Plainfield, Illinois

>

>

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