Guest guest Posted October 4, 2002 Report Share Posted October 4, 2002 Thank you (((())))) I'm really freaking over here. I'm trying to not show my emotions in front of my kids. The 2 specialists said today that if it isn't Charcot Marie Tooth, then it is CP. I'll take the CP. I can deal with that. I've read so much about it. The brain injury won't ever get worse. With the CMT it does get worse and there isn't anything you can do about it. So I'm praying so hard for it not to be that. I never even heard of it before. I found this web page about it. http://www.charcot-marie-tooth.org/site/content/what_is_cmt.asp It's not a pretty picture. I really hate today. Thanks again, > ((())) > > Oh..i'm so sorry. Is it a definite that she has either of them..or is it > still a possibility that she doesn't have either??? > > I am praying really hard for her!!! I agree with you..the insurance > companies are awful and so uncaring. Please keep us posted and i am praying > for the best!!! > > > Mom to > > In a message dated 10/4/2002 4:53:20 PM Eastern Daylight Time, > taime@o... writes: > > > > They've tried to deny my > > 3.5 yo doctors she NEEDS to see. Today I found out that she may have > > a syndrome called Charcot Marie Tooth. She has to have genetic > > testing done on her DNA through a blood test. Do you believe I have > > to wait b/c the lab that is in network doesn't do that!!! I was and > > still am so mad!!! Either she has CMT (which is pretty bad) or CP. I > > never thought I'd want my daughter to have CP but God, I'm praying > > that she does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 I hope things get better for you, and please keep us posted. You are definitely in our prayers. Taryn and Indiana Re: Cigna paid for a DOCband.../ Thank you (((()))))I'm really freaking over here. I'm trying to not show my emotions in front of my kids. The 2 specialists said today that if it isn't Charcot Marie Tooth, then it is CP. I'll take the CP. I can deal with that. I've read so much about it. The brain injury won't ever get worse. With the CMT it does get worse and there isn't anything you can do about it. So I'm praying so hard for it not to be that.I never even heard of it before. I found this web page about it.http://www.charcot-marie-tooth.org/site/content/what_is_cmt.aspIt's not a pretty picture. I really hate today.Thanks again,> ((()))> > Oh..i'm so sorry. Is it a definite that she has either of them..or is it > still a possibility that she doesn't have either??? > > I am praying really hard for her!!! I agree with you..the insurance > companies are awful and so uncaring. Please keep us posted and i am praying > for the best!!!> > > Mom to > > In a message dated 10/4/2002 4:53:20 PM Eastern Daylight Time, > taime@o... writes:> > > > They've tried to deny my > > 3.5 yo doctors she NEEDS to see. Today I found out that she may have > > a syndrome called Charcot Marie Tooth. She has to have genetic > > testing done on her DNA through a blood test. Do you believe I have > > to wait b/c the lab that is in network doesn't do that!!! I was and > > still am so mad!!! Either she has CMT (which is pretty bad) or CP. I > > never thought I'd want my daughter to have CP but God, I'm praying > > that she does.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 , I can totally understand you freaking...i know i would be too. And i understand you don't want your kids to see you so upset and scared. I wish there was a chance she didn't have either..but i guess the less of the 2 evils would be CP, so i can understand you hoping it's that!! After you wrote in..i went on and did a search on CMT and it sounds very scary. I am and will continue to pray really hard that she doesn't have that. When will you find out for sure? I will be here if you ever want to just talk or vent or cry. Mom to In a message dated 10/4/2002 5:22:59 PM Eastern Daylight Time, taime@... writes: Thank you (((())))) I'm really freaking over here. I'm trying to not show my emotions in front of my kids. The 2 specialists said today that if it isn't Charcot Marie Tooth, then it is CP. I'll take the CP. I can deal with that. I've read so much about it. The brain injury won't ever get worse. With the CMT it does get worse and there isn't anything you can do about it. So I'm praying so hard for it not to be that. I never even heard of it before. I found this web page about it. http://www.charcot-marie-tooth.org/site/content/what_is_cmt.asp It's not a pretty picture. I really hate today. Thanks again, --- In Plagiocephaly Quote Link to comment Share on other sites More sharing options...
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