Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram I have a friend that has fibromyalgia and I know she would get fevers with it and feel sick. Next time I see here I will ask about having rash. Hello-I am back.. I have missed you all and welcome to all of the newer members(since about a year or so?) Does anyone know...When you have had Stills for more than 5 years;can your ( Ferritin labwork)and Sed. rate be NORMAL? My NEW rhuemmy here in New Mexico says that I have fibromyalgia- not stills. I still get fevers and rashes...Is she possibly right? I get awfully sick for fibro! Also-How may I have my questions answered on the board;and not in my home email box? Where can I change that? (Boy-I forgot everything-ha ha!) In Luv and empathy;Bram. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram I have a friend that has fibromyalgia and I know she would get fevers with it and feel sick. Next time I see here I will ask about having rash. Hello-I am back.. I have missed you all and welcome to all of the newer members(since about a year or so?) Does anyone know...When you have had Stills for more than 5 years;can your ( Ferritin labwork)and Sed. rate be NORMAL? My NEW rhuemmy here in New Mexico says that I have fibromyalgia- not stills. I still get fevers and rashes...Is she possibly right? I get awfully sick for fibro! Also-How may I have my questions answered on the board;and not in my home email box? Where can I change that? (Boy-I forgot everything-ha ha!) In Luv and empathy;Bram. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram, Yes your labs can go to normal. Mine are normal right now. Doesn't mean I don't have Stills and I am on medication - I'm certainly not in remission! Can you get a second opinoin? The doc says that even after looking at your entire history? Houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram, Yes your labs can go to normal. Mine are normal right now. Doesn't mean I don't have Stills and I am on medication - I'm certainly not in remission! Can you get a second opinoin? The doc says that even after looking at your entire history? Houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram, Welcome back. How are the critters? My rummy always says that as you progress and gor through meds your labs may not tell the whole picture. Your Ferritin and Sed used to be quite high, right? In addition, in certain cases of Still's the Ferritin is not always elevevated. Dr. Cush's criteria put Ferritin as one of the minor markers. It is just another piece of the puzzle. If your Ferritin is really really high along with the clinical pictire and some of the labs then it is (or was) highly likely to be Still's. As Marty indicated inhis post to you, a doc getting engaged after 5 years of being treated needs to look at the past history. We change over time. That is why some have fevers for an interval of time and then no more. Or the dragon decides to attack aomething else and leaves its old organs alone for a bit. Take care and glad to see you again. Tom > > I have missed you all and welcome to all of the newer members(since > about a year or so?) > Does anyone know...When you have had Stills for more than 5 years;can > your ( Ferritin labwork)and Sed. rate be NORMAL? > My NEW rhuemmy here in New Mexico says that I have fibromyalgia-not > stills. I still get fevers and rashes...Is she possibly right? I get > > In Luv and empathy;Bram. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Bram, Welcome back. How are the critters? My rummy always says that as you progress and gor through meds your labs may not tell the whole picture. Your Ferritin and Sed used to be quite high, right? In addition, in certain cases of Still's the Ferritin is not always elevevated. Dr. Cush's criteria put Ferritin as one of the minor markers. It is just another piece of the puzzle. If your Ferritin is really really high along with the clinical pictire and some of the labs then it is (or was) highly likely to be Still's. As Marty indicated inhis post to you, a doc getting engaged after 5 years of being treated needs to look at the past history. We change over time. That is why some have fevers for an interval of time and then no more. Or the dragon decides to attack aomething else and leaves its old organs alone for a bit. Take care and glad to see you again. Tom > > I have missed you all and welcome to all of the newer members(since > about a year or so?) > Does anyone know...When you have had Stills for more than 5 years;can > your ( Ferritin labwork)and Sed. rate be NORMAL? > My NEW rhuemmy here in New Mexico says that I have fibromyalgia-not > stills. I still get fevers and rashes...Is she possibly right? I get > > In Luv and empathy;Bram. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 PS You do NOT get rash, chills nor seats wt. FM. That I'm sure. NOt because just me. but I have other friends wt. that. Also I read the FM magazine for yrs. & never mention those symptoms. Really recommmend that you get another opinion. VIVI **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 PS You do NOT get rash, chills nor seats wt. FM. That I'm sure. NOt because just me. but I have other friends wt. that. Also I read the FM magazine for yrs. & never mention those symptoms. Really recommmend that you get another opinion. VIVI **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Bram-It's so good to hear from you!!! How do you like your new home? Who are you seeing for rheum? I know the sed rate can be intermittently normal and I'm pretty sure the ferritiin level can be too. Ann lotr56@... > I have missed you all and welcome to all of the newer members(since > about a year or so?) > Does anyone know...When you have had Stills for more than 5 years;can > your ( Ferritin labwork)and Sed. rate be NORMAL? > My NEW rhuemmy here in New Mexico says that I have fibromyalgia-not > stills. I still get fevers and rashes...Is she possibly right? I get > awfully sick for fibro! > Also-How may I have my questions answered on the board;and not in my > home email box? Where can I change that? (Boy-I forgot everything-ha > ha!) > In Luv and empathy;Bram. > > > ------------------------------------ > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to > replace the services of a trained health professional or to be a substitute > for medical advice of physicians and/or other health care professionals. The > International Still's Disease Foundation is not engaged in rendering medical > or professional medical services. You should consult your physician on > specific medical questions, particularly in matters requiring diagnosis or > medical attention. The International Still's Disease Foundation makes no > representations or warranties with respect to any treatment, action, > application, medication or preparation by any person following the > information offered or provided within this support form. > > ion by any person following the information offered or provided within this > support form. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Bram-It's so good to hear from you!!! How do you like your new home? Who are you seeing for rheum? I know the sed rate can be intermittently normal and I'm pretty sure the ferritiin level can be too. Ann lotr56@... > I have missed you all and welcome to all of the newer members(since > about a year or so?) > Does anyone know...When you have had Stills for more than 5 years;can > your ( Ferritin labwork)and Sed. rate be NORMAL? > My NEW rhuemmy here in New Mexico says that I have fibromyalgia-not > stills. I still get fevers and rashes...Is she possibly right? I get > awfully sick for fibro! > Also-How may I have my questions answered on the board;and not in my > home email box? Where can I change that? (Boy-I forgot everything-ha > ha!) > In Luv and empathy;Bram. > > > ------------------------------------ > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to > replace the services of a trained health professional or to be a substitute > for medical advice of physicians and/or other health care professionals. The > International Still's Disease Foundation is not engaged in rendering medical > or professional medical services. You should consult your physician on > specific medical questions, particularly in matters requiring diagnosis or > medical attention. The International Still's Disease Foundation makes no > representations or warranties with respect to any treatment, action, > application, medication or preparation by any person following the > information offered or provided within this support form. > > ion by any person following the information offered or provided within this > support form. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Bram-It's so good to hear from you!!! How do you like your new home? Who are you seeing for rheum? I know the sed rate can be intermittently normal and I'm pretty sure the ferritiin level can be too. Ann lotr56@... > I have missed you all and welcome to all of the newer members(since > about a year or so?) > Does anyone know...When you have had Stills for more than 5 years;can > your ( Ferritin labwork)and Sed. rate be NORMAL? > My NEW rhuemmy here in New Mexico says that I have fibromyalgia-not > stills. I still get fevers and rashes...Is she possibly right? I get > awfully sick for fibro! > Also-How may I have my questions answered on the board;and not in my > home email box? Where can I change that? (Boy-I forgot everything-ha > ha!) > In Luv and empathy;Bram. > > > ------------------------------------ > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to > replace the services of a trained health professional or to be a substitute > for medical advice of physicians and/or other health care professionals. The > International Still's Disease Foundation is not engaged in rendering medical > or professional medical services. You should consult your physician on > specific medical questions, particularly in matters requiring diagnosis or > medical attention. The International Still's Disease Foundation makes no > representations or warranties with respect to any treatment, action, > application, medication or preparation by any person following the > information offered or provided within this support form. > > ion by any person following the information offered or provided within this > support form. > > Quote Link to comment Share on other sites More sharing options...
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