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Re: Stint in the ER

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* " Fortunately they gave me a prescription to fill out, but gave a " Don't

make it a habit " speech. " *

Are you serious? There is no other reason that they would put you through

that than because you are 19. Boys, if I were your mother, I'd be marching

up there and LOSING it on them. Can you get your doctor to write a note

saying 'Rickycat has Still's, and it's not fun. " or something? Or have your

RA call the hospital local to your college? This just made me LIVID!!

Not knowing what Stills is, is one thing. Doctors are only human, and there

are so many weird things out there. But implying that you might be playing

some game with it is completely another. Grr.

> So I don't have any way of getting my prescriptions while here at

> College.

> Luckily my breaks tend to be monthly, so I'll be able to go home and get my

> refills somewhat regularly. Next weekend, my Parents are coming up for

> Parent's weekend, and bringing me refills of everything. Unfortunately I

> ran

> out of Tramadol, my pain meds, last week. Even more unfortunately the

> Dragon

> found it an inopportune time to attack me. So for the past several days

> I've

> been in unbearable pain. I'd waited going to the hospital, hoping it wasn't

> a bad flareup and that I'd be fine, but I've been getting worse.

>

> So tonight I ended up going. I hate going because, being a 19 year old,

> asking a Doctor for pain-meds is like asking a police officer if I could

> hold his gun. Fortunately they gave me a prescription to fill out, but gave

> a " Don't make it a habit " speech. Because, you know, I like not being able

> to sleep, walk, or think. I blame the vast majority of junkies out there.

>

> I don't know if I'm going to be able to stay at College. It's too far from

> home, and from my Rheumatologist. Insurance doesn't cover out-of-town

> rheumatologists unless it's " urgent " or an " emergency. " Apparently Still's

> isn't urgent enough for them >=(

>

> What's helped when things get bad in a flareup? Pain meds aren't the

> answer,

> obviously, but it's a temporary relief. It just seems like most Doctor's

> don't know anything about Still's and can't do anything to help.

>

> --

> -

>

>

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* " Fortunately they gave me a prescription to fill out, but gave a " Don't

make it a habit " speech. " *

Are you serious? There is no other reason that they would put you through

that than because you are 19. Boys, if I were your mother, I'd be marching

up there and LOSING it on them. Can you get your doctor to write a note

saying 'Rickycat has Still's, and it's not fun. " or something? Or have your

RA call the hospital local to your college? This just made me LIVID!!

Not knowing what Stills is, is one thing. Doctors are only human, and there

are so many weird things out there. But implying that you might be playing

some game with it is completely another. Grr.

> So I don't have any way of getting my prescriptions while here at

> College.

> Luckily my breaks tend to be monthly, so I'll be able to go home and get my

> refills somewhat regularly. Next weekend, my Parents are coming up for

> Parent's weekend, and bringing me refills of everything. Unfortunately I

> ran

> out of Tramadol, my pain meds, last week. Even more unfortunately the

> Dragon

> found it an inopportune time to attack me. So for the past several days

> I've

> been in unbearable pain. I'd waited going to the hospital, hoping it wasn't

> a bad flareup and that I'd be fine, but I've been getting worse.

>

> So tonight I ended up going. I hate going because, being a 19 year old,

> asking a Doctor for pain-meds is like asking a police officer if I could

> hold his gun. Fortunately they gave me a prescription to fill out, but gave

> a " Don't make it a habit " speech. Because, you know, I like not being able

> to sleep, walk, or think. I blame the vast majority of junkies out there.

>

> I don't know if I'm going to be able to stay at College. It's too far from

> home, and from my Rheumatologist. Insurance doesn't cover out-of-town

> rheumatologists unless it's " urgent " or an " emergency. " Apparently Still's

> isn't urgent enough for them >=(

>

> What's helped when things get bad in a flareup? Pain meds aren't the

> answer,

> obviously, but it's a temporary relief. It just seems like most Doctor's

> don't know anything about Still's and can't do anything to help.

>

> --

> -

>

>

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darling:

I'm so sorry you've had to go through this at all. May I suggest you

get a hold of Bob (oldgoat, a.k.a. Dad) and ask him to send you a few

brochures on our little pet,the dragon. This way you are prepared, G-

d forbid you have to visit the ER again or see someone else that is

clueless.

As for your meds; honey, did you have a full supply of your Tramadol

when you went to campus? Is there some way your parents could've

brought them to you or even mail them perhaps? I've been without my

pain meds, I'm not exactly someone you'd want to be around during

those times.

Now, I will tell you I've tried all kinds of mind over matter methods

when it comes to managing discomfort, forget managing pain. You

know, meditation, deep breathing, etc. I will say, that when the

pain level is fairly low, these methods are wonderful! But when the

joints start screaming louder and louder, forget breathing - crawling

under the covers and crying works for me. Everyone, however, has

their own method of dealing and you might need to find yours in case

you run out again.

Feel better darling, and keep us informed as to how you are doing,

Take care and be well.

Ellen

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darling:

I'm so sorry you've had to go through this at all. May I suggest you

get a hold of Bob (oldgoat, a.k.a. Dad) and ask him to send you a few

brochures on our little pet,the dragon. This way you are prepared, G-

d forbid you have to visit the ER again or see someone else that is

clueless.

As for your meds; honey, did you have a full supply of your Tramadol

when you went to campus? Is there some way your parents could've

brought them to you or even mail them perhaps? I've been without my

pain meds, I'm not exactly someone you'd want to be around during

those times.

Now, I will tell you I've tried all kinds of mind over matter methods

when it comes to managing discomfort, forget managing pain. You

know, meditation, deep breathing, etc. I will say, that when the

pain level is fairly low, these methods are wonderful! But when the

joints start screaming louder and louder, forget breathing - crawling

under the covers and crying works for me. Everyone, however, has

their own method of dealing and you might need to find yours in case

you run out again.

Feel better darling, and keep us informed as to how you are doing,

Take care and be well.

Ellen

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HEY Man,,

Hang in there,, talk to the doc... refills at walgreens in wisconsin with auto

pay is the way to go.. just stop and get the meds.. your young and able to

readjust your life style as I did... yep ,, now that I look back to when I was

19 I remember the problems the Docs did not know anything about stills. try

1969 and in a army hospital with some " unknown health problem " on top of

hepititus for a year......now at age 58 relearning again.. you will need that

sheep skin from school ..

Hang in there man.....

Alan

Stint in the ER

So I don't have any way of getting my prescriptions while here at College.

Luckily my breaks tend to be monthly, so I'll be able to go home and get my

refills somewhat regularly. Next weekend, my Parents are coming up for

Parent's weekend, and bringing me refills of everything. Unfortunately I ran

out of Tramadol, my pain meds, last week. Even more unfortunately the Dragon

found it an inopportune time to attack me. So for the past several days I've

been in unbearable pain. I'd waited going to the hospital, hoping it wasn't

a bad flareup and that I'd be fine, but I've been getting worse.

So tonight I ended up going. I hate going because, being a 19 year old,

asking a Doctor for pain-meds is like asking a police officer if I could

hold his gun. Fortunately they gave me a prescription to fill out, but gave

a " Don't make it a habit " speech. Because, you know, I like not being able

to sleep, walk, or think. I blame the vast majority of junkies out there.

I don't know if I'm going to be able to stay at College. It's too far from

home, and from my Rheumatologist. Insurance doesn't cover out-of-town

rheumatologists unless it's " urgent " or an " emergency. " Apparently Still's

isn't urgent enough for them >=(

What's helped when things get bad in a flareup? Pain meds aren't the answer,

obviously, but it's a temporary relief. It just seems like most Doctor's

don't know anything about Still's and can't do anything to help.

--

-

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