Stills

[Guest guest]

Hi Phil,

I live a close to normal life. Am I as active I used to be - no.

Am I fatter than I used to be - yes. DO I require more sleep and

downtime - yes. But I do get up every morning and go to work every

day and am able to see my friends occasionally. So i consider that

a pretty normal life.

But it also took years for me to get here. First I went 6 years

with no diagnosis. Then I was on meds for 2 1/2 years before they

all clicked adn it worked. I've been workign the whole time,

luckily I had jobs that I could take off from or work from home.

Now I don't and I'm flaring due to being off Kineret or 2 months and

it's rough.

The main thing is patience, faith in your doctor, and educating

yourself. It may take awhile to find meds that work for you. But

you have to have hope that you will.

Houston, Texas

[Guest guest]

Hi Phil,

I live a close to normal life. Am I as active I used to be - no.

Am I fatter than I used to be - yes. DO I require more sleep and

downtime - yes. But I do get up every morning and go to work every

day and am able to see my friends occasionally. So i consider that

a pretty normal life.

But it also took years for me to get here. First I went 6 years

with no diagnosis. Then I was on meds for 2 1/2 years before they

all clicked adn it worked. I've been workign the whole time,

luckily I had jobs that I could take off from or work from home.

Now I don't and I'm flaring due to being off Kineret or 2 months and

it's rough.

The main thing is patience, faith in your doctor, and educating

yourself. It may take awhile to find meds that work for you. But

you have to have hope that you will.

Houston, Texas

[Guest guest]

Hi Phil,

I live a close to normal life. Am I as active I used to be - no.

Am I fatter than I used to be - yes. DO I require more sleep and

downtime - yes. But I do get up every morning and go to work every

day and am able to see my friends occasionally. So i consider that

a pretty normal life.

But it also took years for me to get here. First I went 6 years

with no diagnosis. Then I was on meds for 2 1/2 years before they

all clicked adn it worked. I've been workign the whole time,

luckily I had jobs that I could take off from or work from home.

Now I don't and I'm flaring due to being off Kineret or 2 months and

it's rough.

The main thing is patience, faith in your doctor, and educating

yourself. It may take awhile to find meds that work for you. But

you have to have hope that you will.

Houston, Texas

[Guest guest]

thanks for that marty i hope we can talk some more

Marty wrote: Phil;

I for one tried to go back to work a sit down office job. I used to drive city

bus in Boise Idaho. well after less then 2 weeks fact only 3 days one week and

two the next they closed down but this was the same day I went in to say no more

.. I am like you feel almost normal for me back when and then in a day or so back

down to dam I am sick. unlike you I have had this now for over 6 years and still

can not get used to the ups and downs the not working being poor when i had a

good rich life but i did learn to smell the roses and slow down some to enjoy

life not just race threw it trying to get where my ex felt we should be . she

was a person not to keep up with the but lived only to pass them up and

all that matterd was how others saw you and wehn i could not work any more she

devorced me and I have to say thanks to her as she gave me the best gift of my

life . she gave me freedom and the chance to meet a woman I now call my wife and

even being with

the ex for over 25 years not one time was I treated as nice or carred about as

my wife dose now so take heart there are bad things with stills and there

are good things it just gets hard to see the good when ya hurt so much or had to

much moon shine trying to kill the pain LOL

the redneck

Marty

__________________________________________________________

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[Guest guest]

Phil

any time drope a line and we can talk

Marty

the redneck

Marty

Calling an illegal alien an " undocumented immigrant " is like calling a drug

dealer an " unlicensed pharmacist. "

" Those who hammer their guns into plows will plow for those who do not. "

~ Jefferson

Stills ; An illness I know to well!

To learn about Stills http://www.stillsdisease.org/stills_info

To donate http://www.stillsdisease.org/donations

__________________________________________________

[Guest guest]

Hi,

I just wanted to say thank you for your comment Carol. It was really

sweet. I know that this whole disease has changed my life forever. And

in ways it was for the worse, I can't be young and stupid anymore. But,

I think that we all can take it and learn from it. It helped me grow

up. And it brought me closer to my mom, who has M.S. and until now I

had no idea what she went through everyday. So yes, this disease sucks

I guess you could say, but I think if everyone just my opion I don't

want to upset anyone could step back maybe one good thing did come out

of it. Sorry I guess it's easier for me to look on the brighter side of

things then the bad. I hope everyone has a good day, I will be out of

town til' Thursday my mom has to have surgery.

May everyone be blessed today,

Mandy (Wyoming)