Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again, It's pretty hard to keep the stress under control at a time like this. thanks for reading! hope all is well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 I can only speak for myself and some people that I have met to say the future can be very good for some. My onset was very bad and I did move a lot! That means a lot! And it usually caused me joint and flare problems, but my long term future was good and my disease went slowly into remission over the past 31 years and is in remission now. I think the most important thing to try is to rest and protect your joints as much as possible. That is where I have any problems today. The joint damage of the early severe onset and any damage or injuries to my joints over the years since where the arthritis has taken over. I hope this helps you to have a smoother move, just let others help you as much as you have help and rest as much as you can and leave the heavy stuff to someone else for sure. Best of luck, P.S. It's nice if you sign your posts On Behalf Of srougea Sent: Wednesday, October 01, 2008 10:36 AM Subject: living with stills Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again ____________________________________________________________ Stuck in a dead end job?? Click to start living your dreams by earning an online degree. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uI3uCQFkEodCCfxh20PzJROYRw\ acN6Gw4G7RrCUgGbKP3EC/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 I can only speak for myself and some people that I have met to say the future can be very good for some. My onset was very bad and I did move a lot! That means a lot! And it usually caused me joint and flare problems, but my long term future was good and my disease went slowly into remission over the past 31 years and is in remission now. I think the most important thing to try is to rest and protect your joints as much as possible. That is where I have any problems today. The joint damage of the early severe onset and any damage or injuries to my joints over the years since where the arthritis has taken over. I hope this helps you to have a smoother move, just let others help you as much as you have help and rest as much as you can and leave the heavy stuff to someone else for sure. Best of luck, P.S. It's nice if you sign your posts On Behalf Of srougea Sent: Wednesday, October 01, 2008 10:36 AM Subject: living with stills Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again ____________________________________________________________ Stuck in a dead end job?? Click to start living your dreams by earning an online degree. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uI3uCQFkEodCCfxh20PzJROYRw\ acN6Gw4G7RrCUgGbKP3EC/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 HELLO I HAVE HAD STILLS FOR 13 YEARS . IT IS A BEST A CHALLENGE TO WORK. YOU ARE ABLE TO COMPLETE MANY THINGS IFYOU DO A LOT OF PLANING. PLANING SEEMS TO RELEAVE A LOT OF THE STRESS. DON'T TACKLE STRENEOUS TASKS BY YOUR SELF. MOVING IS A BIG DEAL! STOP AND REST REGARDLESS OF WHAT IS WAITING TO BE DONE. IT WILL GET DONE IN TIME PACE YOUR DAY. DONT EAT A LOT OF FAST FOOD AVOID ARTIFICIAL SWEETENERS AND ARTIFICIAL COLOR ADDITIVES IN YOUR FOOD. REDS AND A LOT OF SUGAR AND CERTAIN VEGGIES LIKE F FRIES AND PEANUTS MAKE YO8U HURT WORSE. IT TAKES SOME MANAGING BUT YOU CAN DO IT . Subject: living with stills To: Stillsdisease Date: Wednesday, October 1, 2008, 1:36 PM Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again, It's pretty hard to keep the stress under control at a time like this. thanks for reading! hope all is well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Dear Barbara, Welcome to the group, I have to say that we are not doctors and do not give advice here about what to eat and medications or treatments to get. We share experiences and what has worked for us but do not tell others what to do. Please keep this in mind when posting to the group. Thank you and good day, Group Moderator _____ On Behalf Of Barbara Centofonti Sent: Wednesday, October 01, 2008 10:49 AM Subject: Re: living with stills DONT EAT A LOT OF FAST FOOD AVOID ARTIFICIAL SWEETENERS AND ARTIFICIAL COLOR ADDITIVES IN YOUR FOOD. REDS AND A LOT OF SUGAR AND CERTAIN VEGGIES LIKE F FRIES AND PEANUTS MAKE YO8U HURT WORSE ____________________________________________________________ Click here to find Medical Transcription Training programs. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uAmTQCFReaPYGGjQrGcKTZCFsj\ YP1ComdissVdpveZfXCYu/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 , Since you are in remission, do you stay on some medication or were you able to get completly off. Since you have had this for such a long time, and meds have changed what meds did you take initially. Lea Subject: RE: living with stills To: Stillsdisease Date: Wednesday, October 1, 2008, 12:43 PM I can only speak for myself and some people that I have met to say the future can be very good for some. My onset was very bad and I did move a lot! That means a lot! And it usually caused me joint and flare problems, but my long term future was good and my disease went slowly into remission over the past 31 years and is in remission now. I think the most important thing to try is to rest and protect your joints as much as possible. That is where I have any problems today. The joint damage of the early severe onset and any damage or injuries to my joints over the years since where the arthritis has taken over. I hope this helps you to have a smoother move, just let others help you as much as you have help and rest as much as you can and leave the heavy stuff to someone else for sure. Best of luck, P.S. It's nice if you sign your posts On Behalf Of srougea Sent: Wednesday, October 01, 2008 10:36 AM Subject: living with stills Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again ____________ _________ _________ _________ _________ _________ _ Stuck in a dead end job?? Click to start living your dreams by earning an online degree. http://thirdpartyof fers.netzero. net/TGL2241/ fc/Ioyw6i4uI3uCQ FkEodCCfxh20PzJR OYRwacN6Gw4G7RrC UgGbKP3EC/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Thank's so much for your input...I'll try to take it slow and let my husband do all the lifting! thanks again Sharlene living with stills Does anyone know just what are future hold's for us living with still's I doing pretty good now, but we are moving in 3 weeks and I'm thinking after we go that I might get sick again ____________ _________ _________ _________ _________ _________ _ Stuck in a dead end job?? Click to start living your dreams by earning an online degree. http://thirdpartyof fers.netzero. net/TGL2241/ fc/Ioyw6i4uI3uCQ FkEodCCfxh20PzJR OYRwacN6Gw4G7RrC UgGbKP3EC/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Hi Lea, My initial medications for Still's were the Prednisone the highest dose being 60mg a day and then when admitted by the FDA D-Penacillamine or also called Cupramine put my Still's in to remission. I have always been on an anti inflammatory and still am today. I've taken many types but my trusty Naprosin has always worked the best and once for a couple of years DayPro worked well for me too. I did have a nine month course of Remicade and Methotrexate a couple of years ago but didn't need it long as my flare was not too intense compared to the initial years. So just Naprosin twice a day now and of course something for my stomach. These medications can play bad on our stomachs with use and we must be always careful of that I think. My doctor has always advised me of this anyway. Of course there have been many medications to treat the other symptoms of Still's and side effects of medications as well but those are the big gun ones. Hope it has helped. Best regards, _____ On Behalf Of Lea Howell Sent: Wednesday, October 01, 2008 12:02 PM Subject: RE: living with stills , Since you are in remission, do you stay on some medication or were you able to get completly off. Since you have had this for such a long time, and meds have changed what meds did you take initially. Lea ____________________________________________________________ Meditate on the best. Find great yoga mats for less by clicking now! http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4u1W67scyzFU0JpP1QALBNnnT29\ KSSwxrzUsGd5km91o0Ty2/ Quote Link to comment Share on other sites More sharing options...
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